Guest guest Posted February 3, 2012 Report Share Posted February 3, 2012 Great thank you. I will definetly get the assistance of her PT and am going to try and get them funded. Will let you know how it goes. thanks so much. Kat ________________________________ To: polymicrogyria Sent: Saturday, 4 February 2012 7:36 AM Subject: RE: Baby in 3% weight Here is the website. I hope you can get them there. http://www.theratogs.com/ To: polymicrogyria From: cutekat@... Date: Fri, 3 Feb 2012 11:54:43 +1300 Subject: Re: Baby in 3% weight Hi, im trying to get info on the therotogs but as i am in New Zealand and a long way from USA no one here seems to know about them. Can u get them online? Im keen to try them for my girl who has weak upper body but strong lower body. Thanks. Kat -original message- Subject: Re: Baby in 3% weight Date: 03/02/2012 5:34 am My son is the same way and his therapist said the same thing.. He doesn't know how to connect them - he thinks they are separate.. I'll definitely ask her about the Theratogs - awesome suggestion! polymicrogyria on Thursday, February 02, 2012 at 5:57 AM -0800 wrote: > >She sounds like she is doing wonderfully! That is great news! > >The custard recipe I used was actually to make ice cream. You can freeze it >like I did if you have a ice cream maker and just melt what you need to add to >her bottles.. Or you can just keep in in the fridge. I'll look it up and send >it to you. > >I have one suggestion since you said your daughter has a stronger lower body >than upper. With my son it's the same and it is really more coordination kind >of like linking his upper body to his lower body. Its almost like they are >separate entities. Anyway, we used something called theratogs. It does just >that, links the body to act like one. He did great when he had them on. > >To: polymicrogyria >From: kjlondon@... >Date: Thu, 2 Feb 2012 04:16:10 -0800 >Subject: RE: Baby in 3% weight > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi, > > > >What a great suggestion! Any chance you can remember your custard recipe? I >feed Pediasure and adding some calories would be helpful for my girl, too. I >tried adding Duocal which is a calorie rich powder with no flavor but she >knows when it is in her bottle and does not like it, at all. > > > >My little girl, a, is 2 yrs, BFPP and very bright. She can not sit >unsupported...but getting there. I can't walk away because she may tip over, >I surround her with pillows if I do walk away but she cannot get back to >sitting on her own, yet. Its like a nickel on the table, if you move the >table the niclel falls over....the the closest analogy. > > > >Her lower half is much stronger than her upper. We have a Mustang gait trainer >and when she is in it she cruises all over the place. She opens cabinets, >drawers and pulls toilet paper off the roll by the handful. When other kids >come over she can chase them and they chase her, she has the best time in >it...she laughs and plays...it allows her to be mobile. > > > >We do lots of therapy, she goes to school and has a 1:1 aide which allows her >to interact with the class and activities. School has been fantastic for >a and for me. She is with other typical 2 year olds and is learning the >skills of a 2 year old, like turn taking but also learning about emotions and >how to handle 'big emotions' (code for a tantrum or feeling sad when I leave >the room or even mad) and I've learned how to recognize her emotions and >acknowledge them with her when she feels sad or mad or frustrated. > > > >I've been following these boards for nearly a year and just wanted to add what >I hope is encouragement. I love my little a sooo much. > > > >Karla > >Sent with Verizon Mobile Email > > > >---Original Message--- > >From: polymicrogyria > >Sent: 1/20/2012 9:20 am > >To: polymicrogyria@... > >Subject: RE: Baby in 3% weight > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2012 Report Share Posted February 3, 2012 Thanks! I'll look into it. To: polymicrogyria From: jennifer.miller@... Date: Fri, 3 Feb 2012 11:09:13 -0800 Subject: Re: Baby in 3% weight The brand of fish oil we use for Hudson (8 months) is Metagenics. He also takes B12, D Vitamins, Probiotics and Blueberry extract. I've seen noticeable differences when he's on his vitamins. Things just seem to " click " for him and he really does seem learn new things quicker. In case your wondering about Blueberry it's full of antioxidants and is really great for brain growth - it's one of the super-foods and since he's not eating solids we decided to start the extract. polymicrogyria on Thursday, February 02, 2012 at 10:55 AM -0800 wrote: > >ok, thank you! > >To: polymicrogyria >From: jennifer.miller@... >Date: Thu, 2 Feb 2012 10:53:19 -0800 >Subject: Re: Baby in 3% weight > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I'll look at the bottle tonight and let you know. (It might be Nordic >Naturals > >too). > > > >polymicrogyria on Thursday, February 02, 2012 at 10:52 AM -0800 > >wrote: > >> > >>Does it have a brand name? > >> > >>To: polymicrogyria > >>CC: polymicrogyria > >>From: jennifer.miller@... > >>Date: Thu, 2 Feb 2012 10:49:06 -0800 > >>Subject: Re: Baby in 3% weight > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> I get my sons from a naturopath. You DO want to do your research. > >>Everyone, > >> > >>including his pediatrician, naturopath and my Dr (I take it too) all said do > >> > >>NOT buy it at Costco. You want the kind that contains Omega 3 and not the > >> > >>others Omegas. > >> > >> > >> > >>polymicrogyria on Thursday, February 02, 2012 at 10:46 AM >-0800 > >> > >>wrote: > >> > >>> > >> > >>>I buy it at the vitamin shoppe. I use Nordic Naturals and Dr. Sears. Nordic > >> > >>>naturals comes in orange fish gummies that are delicious. Dr. Sears chews >are > >> > >>>disgusting but cost less. I give the fishies to my younger son and for my >PMG > >> > >>>kid I use the oil from Dr. Sears and just put it through his feeding tube. >It > >> > >>>is expensive but I think its worth it. Just make sure that whatever brand >you > >> > >>>buy it is 3rd party tested for impurities like lead or mercury. Also, they > >> > >>>should make the findings of these tests readily available. I called one > >> > >>>company and they would not release it so I returned it to the store after >more > >> > >>>research. I wouldn't buy cod liver oil because the liver has very high > >> > >>>vitamin A. The fish oil source usually comes from anchovies and sardines. > >> > >>> > >> > >>> > >> > >>> > >> > >>>To: polymicrogyria > >> > >>>From: kjlondon@... > >> > >>>Date: Thu, 2 Feb 2012 09:08:58 -0800 > >> > >>>Subject: RE: Baby in 3% weight > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> What form is the fish oil in and how do you administer. Where can I >buy? > >> > >>> > >> > >>> > >> > >>> > >> > >>>Sent with Verizon Mobile Email > >> > >>> > >> > >>> > >> > >>> > >> > >>>---Original Message--- > >> > >>> > >> > >>>From: polymicrogyria > >> > >>> > >> > >>>Sent: 2/2/2012 8:52 am > >> > >>> > >> > >>>To: polymicrogyria > >> > >>> > >> > >>>Subject: RE: Baby in 3% weight > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>>Fish oil is good for brain and eye development, also for the anti >inflammatory > >> > >>>effects for joints and even asthma. Since starting fish oil my son's > >> > >>>psoriasis cleared up. He's more focused and gets less coughs. He has asthma > >> > >>>and usually with every cold he ends up needing an oral steroid. He's only > >> > >>>needed it once this year - for him that's good. > >> > >>> > >> > >>>To: polymicrogyria > >> > >>>From: kjlondon@... > >> > >>>Date: Thu, 2 Feb 2012 04:16:12 -0800 > >> > >>>Subject: RE: Baby in 3% weight > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> Why fish oil? > >> > >>> > >> > >>> > >> > >>> > >> > >>>Sent with Verizon Mobile Email > >> > >>> > >> > >>> > >> > >>> > >> > >>>---Original Message--- > >> > >>> > >> > >>>From: polymicrogyria > >> > >>> > >> > >>>Sent: 1/20/2012 10:23 am > >> > >>> > >> > >>>To: polymicrogyria > >> > >>> > >> > >>>Subject: RE: Baby in 3% weight > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>>I occasionally put flax seeds in my sons formula before I tube feed him but >he > >> > >>>has no problems with weight now and I give him fish oil everyday. Flax is a > >> > >>>good idea to sprinkle on top of the food he eats cause its high in fat. > >> > >>>Almost 5 grams in 2 tbls. > >> > >>>To: polymicrogyria > >> > >>>From: auburn715@... > >> > >>>Date: Fri, 20 Jan 2012 10:15:17 -0500 > >> > >>>Subject: Re: Baby in 3% weight > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> , > >> > >>> > >> > >>> > >> > >>> > >> > >>>Thanks. I have been giving him avocado, but the custard is a good idea. Has > >> > >>>anyone tried flax? > >> > >>> > >> > >>> > >> > >>> > >> > >>>Thanks, Julissa > >> > >>> > >> > >>> > >> > >>> > >> > >>>Sent from my iPad > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> If you can get him to eat try smashing an avocado in his food. When he is > >> > >>>able to have more types of food and can tolerate milk and eggs you can make > >> > >>>custards with heavy cream and egg yolks. I used to make vanilla custard kind > >> > >>>of like making ice cream but always use the whole egg instead of just the >yolk > >> > >>>and then freeze it and melt what I needed to add to his bottle of milk along > >> > >>>with poly vi sol with iron. He fattened up real fast. He did eventually >stop > >> > >>>liking it and the weight was always an issue. Good luck. > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> CC: polymicrogyria > >> > >>> > >> > >>>> To: polymicrogyria > >> > >>> > >> > >>>> From: auburn715@... > >> > >>> > >> > >>>> Date: Thu, 19 Jan 2012 21:42:49 -0500 > >> > >>> > >> > >>>> Subject: Re: Baby in 3% weight > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> Just took blood today. Could not get enough for all the test. Have > >> > >>>to return on Tuesday. Thanks, Julissa > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> Sent from my iPad > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Request pediatric endocrinologist referral. Need growth hormone levels > >> > >>>checked. > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Some children (such as mine) have hormone deficiencies. > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Donna > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> From: polymicrogyria > >> > >>>[mailto:polymicrogyria ] On Behalf Of Julissa > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Sent: Thursday, January 19, 2012 4:07 PM > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> To: polymicrogyria > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Cc: polymicrogyria > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Subject: Baby in 3% weight > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> I am not new to the group, but have contributed very little. It has taken > >> > >>>me a while to come to terms with my son's condition. My son is 9 months old. > >> > >>>He almost has control of his head and today, for the first time, raised his > >> > >>>hand and tried to push one of the buttons on his gym. It made me so happy! > >> > >>>However, his 9 mo checkup did not go so well. In length he is in the 82%, but > >> > >>>his head has not grown and only weighs 16lbs 12oz. I am trying everything, >but > >> > >>>he is teething and won't suck a bottle, he wants to bite everything and has > >> > >>>been fighting a few bugs the past three weeks. Endo is running some tests. I > >> > >>>have introduced more fats in his diet. Hope it helps. My goal right now is to > >> > >>>fatten him up. I welcome any ideas. Julissa > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> Sent from my iPad > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> On Jan 19, 2012, at 3:41 PM, cutekat@... > >> > >>><mailto:cutekat%40xtra.co.nz> wrote: > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> My girl is 16mths and not doin any of that either, she only learnt to >hold > >> > >>>her head up about 4mths ago. Each child will write their own story, all u can > >> > >>>do is keep up the therapy & encourage them & support them. We celebrate ech > >> > >>>goal and set new smll goals our nex one is to sit up unassisted which we > >> > >>>practice every day. > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Hope this helps. Cheers > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Kat > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> -original message- > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Subject: The normal development of my baby > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> From: Lina Kurdi <sweet.kurdi@... <mailto:sweet.kurdi%40yahoo.com> >> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Date: 20/01/2012 7:37 am > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Dear friends, > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> I am concerning about my 15 months daughter is not walking yet or even > >> > >>>standing. Also she didn't crawled yet!! Can somebody share his experience > >> > >>>about this please? > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Thank u:) > >> > >>> > >> > >>>> > >> > >>> > >> > >>>>>> Lina > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> > >> > >>> Quote Link to comment Share on other sites More sharing options...
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