Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 That just does not seem like a pediatric neuro. I live in Indianapolis. When Nisha was started them they called in a script but seen was the next open clinic day. It was over a holiday. They sat and answered questions for a long time. They even have a monthly seizure educational meeting if you want to go. They never offered your input what about the type of seizure? What about an emergency diastat if its too long? What about diet changes or lifestyle? if he starts having school problems or odd neuro things you need some back up PMG is not just an simple disorder. I would be very upset too. Diane mom Nisha PMG LeftHemiparesis CP seizures Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi all from OZ WE have an appointment in end of May. Not good enough. He has said he will try to squeze us in early. We will take any time. When you get in he is great but you can see we are not happy. He hated the Epliptin the heavy cherry flavour was just too strong. He did not mind it in a mashed banana. Since out cyclones and floods in OZ bananas have hit $14 ++++ a kilo and as he eats 2 at a time it is a problem. I mananged to buy some boxes of them cheaply and noe have a freezer full of skinned bananas. They freeze well and thaw in the microwave. You can imagine we have a million questions and will push to get an answer. Every one look after yourselves and loved ones Grandma Carol, Torin nearly 5, PMG CP hemi Deaf ++ but my darling little redhead. > > That just does not seem like a pediatric neuro. I live in Indianapolis. When Nisha was started them they called in a script but seen was the next open clinic day. It was over a holiday. They sat and answered questions for a long time. They even have a monthly seizure educational meeting if you want to go. They never offered your input what about the type of seizure? What about an emergency diastat if its too long? What about diet changes or lifestyle? if he starts having school problems or odd neuro things you need some back up PMG is not just an simple disorder. > I would be very upset too. > Diane mom Nisha PMG LeftHemiparesis CP seizures > Diane > Quote Link to comment Share on other sites More sharing options...
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