RE: Acyclovir Vs. Famvir

[Guest guest]

Hey Jerri-

I'm sorry you are going thru that.

Have you called the drug company maker to ask if there

are any programs available to receive it at a

discount? They may be able to give you a lead on

that. I assume insurance isn't covering it? If that

is the problem, email me to see if I can help (if you

haven't already exhausted that area).

__________________________________________________

[Guest guest]

Yes Jeri as cynthia said definitely call the pharma company.

What about medicaid?

I think I remember others in the past saying Dr G does not use this

as much as Valtrex and Famvir. Have you tested his viral numbers

lately?

Hang in there and I know your son will get through this if it is the

antiviral.

--- In , <thecolemans4@...>

wrote:

>

>

> Hey Jerri-

>

> I'm sorry you are going thru that.

>

> Have you called the drug company maker to ask if there

> are any programs available to receive it at a

> discount? They may be able to give you a lead on

> that. I assume insurance isn't covering it? If that

> is the problem, email me to see if I can help (if you

> haven't already exhausted that area).

>

>

>

> __________________________________________________

>

[Guest guest]

Hi Jerri.

I seem to recall reading somewhere that acyclovir starts to metabolise in

the stomach where as Famvir and Valtrex metabolise more in the liver

converting to acyclovir their to do their job - maybe why Dr G does not

prefer it. and since acyclovir begins breaking down in the gut it might

create a food allergy reacting and raising eosinophils..just a hunch. For

some kids it seems to work fine, others not.

_____

From: [mailto: ] On Behalf Of Jerri

Gann

Sent: Friday, September 29, 2006 2:40 AM

Subject: Acyclovir Vs. Famvir

I just went through a trial of putting my son on Acyclovir to try and

save us money because Famvir is so expensive. My son after 10 days is so

out of it. He started the school year off fairly well, but now it's

pretty bad. He is standing up in the middle of class saying

inappropriate things, not doing any work, tapping two pencils

constantly, hyper and running around,and generally in his own world. I'm

pretty sure it is because of the change in anti-viral. We did change the

anti-fungal twenty days ago. I saw a little die-off and then only

improvement from this initially but maybe we did these changes too close

together. I had run out of Famvir and had a full bottle of Acyclovir and

asked Dr G if I could do this to save some money. He's EOS went back up

to 5% also when we had them down to 1%. I have not changed his diet. He

did have a few infractions at parties which caused very weird behavior

so I know I can't even allow that at this time but I didn't think that

would bring the EOS up so much if that's what did it. I guess I am

really baffled, scared and sad. I don't know if any of you have input

here but I would greatly appreciate it. I'm wondering if anyone else has

experienced any of this. Also, if Marcia could respond about whether her

son is still on an anti-viral and if it is Famvir. I don't know how we

are going to afford it for so long but I guess I will have to figure out

a way. Thanks so much, Jerri

[Guest guest]

Jerri,

My son is still on an antiviral. Try contacting the drug company. Tell them

your story. Sometimes they have programs for people who can't afford their

medications. Also someone on the list talked about getting their kid qualified

for Medicare or some other program that would cover the meds because of the

diagnosis. If you are in California, contact your regional center for info on

how to get help.

Unfortunately, you have to find a way to get this drug. My kid's autism symtoms

return without it.

Marcia