Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 My son has MPPH Syndrome and began having regular seizures in September. They can last anywhere from 25 min(cluster; Clonazepam .5mg is given after 7 min) to three minutes (clonic tonic; Diastat is given). Average of about 2 a week. Most occur after his nap in the afternoon; however, several have been random. They occur on average twice a week. We have been recommendation to do surgery but would like to exhaust all mediation options frist. Here is list of the meds and dosages that we have tried. Current: Keppra 7mL (3mL am; 4mL pm) Vimpat 250mg (100mg am; 150mg pm) Previous Mediations: Topamax (125mg; 50mg am, 75mg pm) – caused fevers resulting in additional seizures Trileptal (3mL q12) – on for approx. a month taken off and moved to Vimpat Any suggestions of medication or neurologists specializing in epilepsy that you have had success with would be helpful. Thanks! Quote Link to comment Share on other sites More sharing options...
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