Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 We have had 3 surgeries for strabismus and the third one finally " took " and our daughter's eyes now focus together. The surgeries themselves are quick and very fast recovery. Our doctor said it was unusual that she had to have 3, usually the eyes will respond after just one. It has made all of the difference for her and I highly recommend it. a99diva wrote: > > > Our son has strabismus of his left eye which we have been treating by > using atropine drops on the right eye, forcing him to use the left eye > more. This by no means will fix the strabismus, but it is part of the > therapy (I couldn't keep a pair of glasses on him for love or money). > The pedi opthamologist has strongly recommended surgery which I think > is appropriate. My husband is having a REALLY tough time getting on > board with the idea of eye surgery. > > Does anyone have experience with this? My understanding is that the > strabismus really compromises his vision which in turn delays his OT > and PT gains. > > Thanks, > , mother to 3 (BBP) and his fabulous big sister Sophia, 11. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 , My son also has strabismus and had surgery last September. It has really helped and he has regained his vision in his left eye that he had partially lost due to the strabismus. I would encourage you (and your husband) to do the surgery because if it is left untreated it can lead to complete or significant loss of vision in one eye. What happens is that the eye that is not aligned will shut off to allow the other eye to do all the work. The surgery is out patient and is not as invasive as it may seem. I will admit I was a bit scared about anyone messing with his eyes- we depend on our vision so much. Gage was back to playing and doing his normal daily activies by that afternoon/ evening. And as superficial as this may seem, the surgery also helps their eyes look normal. We all know how it can be hard to talk with an adult with strabismus and not know how exactly where to look them in the eye during conversations. Hope this helped. Subject: Strabismus To: polymicrogyria Date: Tuesday, May 18, 2010, 8:22 AM  Our son has strabismus of his left eye which we have been treating by using atropine drops on the right eye, forcing him to use the left eye more. This by no means will fix the strabismus, but it is part of the therapy (I couldn't keep a pair of glasses on him for love or money). The pedi opthamologist has strongly recommended surgery which I think is appropriate. My husband is having a REALLY tough time getting on board with the idea of eye surgery. Does anyone have experience with this? My understanding is that the strabismus really compromises his vision which in turn delays his OT and PT gains. Thanks, , mother to 3 (BBP) and his fabulous big sister Sophia, 11. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 > > Our son has strabismus of his left eye which we have been treating by using atropine drops on the right eye, forcing him to use the left eye more. This by no means will fix the strabismus, but it is part of the therapy (I couldn't keep a pair of glasses on him for love or money). The pedi opthamologist has strongly recommended surgery which I think is appropriate. My husband is having a REALLY tough time getting on board with the idea of eye surgery. > > Does anyone have experience with this? My understanding is that the strabismus really compromises his vision which in turn delays his OT and PT gains. > > Thanks, > , mother to 3 (BBP) and his fabulous big sister Sophia, 11. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2011 Report Share Posted July 7, 2011 Our Joshy's left eye strabismus corrected all on it's own when he was about 7/8 years old. I've never heard of PMG not qualifying for special services at school?!?! But we live in Calif. US, great services in our county. Best, Joshy, 9 Sent from my iPhone > hello: > I took my five year old to the eye doc for an annual checkup today. He diagnosed her with Strabismus, but did not recommend any treatment yet until she sees the neurologist. I did not notice the eye crossing much only when she was tired. > Her PMG is on the left side of her brain but her weak eye is the left eye. She is very typical but does have some motor skills that we work on with PT and ot. Has anyone had a similar situation? If yes what has been the recommended treatment? > She is also starting K this year and I am torn between bringing the PMG to the schools attention or taking a wait and see approach. She did not qualify for any services when she aged out of early steps becuase they said it was a medical condition and did not fit the education model. Any advice? > Thanks > MAria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 - My 3 year old has bilateral PMG and strabismus in both eyes. (Her eyes were crossed, also known as esotropia.) It was so bad, you could barely see the pupils in her eyes. We had differing opinions about what to do, but both suggested surgically correcting her eyes (either before 3 years or 5) to ensure that she would have the neural passageways for binocular vision set. But, because her case was so severe and she was going blind, one doctor insisted upon doing it right away. In the end, she needed two surgeries due to the severity. Fortunately, her eyesight was preserved and restored. But, she had a seizure that knocked them out of alignment. However, because she was able to use her eye binocularly before the seizures started, her brain is wired for it and will, in all likelihood, work itself out as she ages. If your daughter was using both eyes together before the age of 3, she can still have binocular vision, too (according to the doctors we talk with). Right now, we patch my daughter's right eye because she won't use her left eye when she can see with her right. She might lose her vision in her left eye, if we don't do this. Ask if your daughter's vision is good in both eyes. If it is, just give her time. In time, she may work it out. If it's not, glasses or patching might be your options. Check with your eye doctor. Good luck, > > > hello: > > I took my five year old to the eye doc for an annual checkup today. He diagnosed her with Strabismus, but did not recommend any treatment yet until she sees the neurologist. I did not notice the eye crossing much only when she was tired. > > Her PMG is on the left side of her brain but her weak eye is the left eye. She is very typical but does have some motor skills that we work on with PT and ot. Has anyone had a similar situation? If yes what has been the recommended treatment? > > She is also starting K this year and I am torn between bringing the PMG to the schools attention or taking a wait and see approach. She did not qualify for any services when she aged out of early steps becuase they said it was a medical condition and did not fit the education model. Any advice? > > Thanks > > MAria > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2011 Report Share Posted July 9, 2011 Hi , About special ed/accommodations: we are in Texas and PMG qualifies for learning/classroom accommodations under the " other health impairment " category. Like Diane, our daughter is in a regular classroom but her learning is not uniform - she does fine in some areas and struggles in others, so accommodations are necessary to keep her in the mainstream setting. As far as strabismus, goes, we had 3 surgeries for strabismus and last year did 8 months of vision therapy to address Eva's lack of binocular vision (even though the eyes were surgically corrected to look straight, they weren't seeing straight neurologically because the brain hadn't rewired itself - it did after vision therapy.) I think in her case both the surgeries and the vision rehab (basically PT for the eyes) was necessary but may not be in all cases. (For Eva, we knew she needed something because she would literally walk into walls and fall out of her chair at 7 years of age because she had no depth perception.) She is now 8 and with therapeutic glasses and the rehab, her accidents have gone from daily to only very occasionally. We also did patching for her strabismus. This brings me to a new question: has anyone used Constraint Induced Movement Therapy? It's basically the equivalent of doing the eye patch but for weak limbs (using something like a mitten) while doing intensive therapy on the weak hand. Eva has left sided weakness, most noticeable in her hand and fingers, and I had wondered if any of our kids could benefit from this? She benefitted from traditional OT to some extent but has plateaued. Blessings, (mom of Eva, 8, unilateral right hemi PMG) > > hello: > I took my five year old to the eye doc for an annual checkup today. He > diagnosed her with Strabismus, but did not recommend any treatment yet > until she sees the neurologist. I did not notice the eye crossing much > only when she was tired. > Her PMG is on the left side of her brain but her weak eye is the left > eye. She is very typical but does have some motor skills that we work > on with PT and ot. Has anyone had a similar situation? If yes what has > been the recommended treatment? > She is also starting K this year and I am torn between bringing the > PMG to the schools attention or taking a wait and see approach. She > did not qualify for any services when she aged out of early steps > becuase they said it was a medical condition and did not fit the > education model. Any advice? > Thanks > MAria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2011 Report Share Posted July 10, 2011 Hi , Boy! I shouldn't have written this while in the hospital with my daughter (recovering from a bad seizure episode). I left out some details. Like said, vision therapy (VT) is wonderful. Check with your local school for the blind for recommendations for therapists. Our daughter had VT twice a month around the times of her surgeries. She did well, and the services were cut in half once she was no longer legally blind. Also, here in Massachusetts (USA), any medical diagnosis will qualify you for testing for special ed public school services. The number and type of therapies are based on evaluations. They also describe her condition as " neurological " . This will ensure that she'll get services beyond age 8. (Here, up until age 8, you can use " developmental delay. " Then, you have to get more specific. But, " neurological " is a separate category that is defined until age 22, when all kids have to graduate from public school.) My daughter is in an integrated preschool classroom, and she has her own aide to help her. Good luck, (mom to Anne, aged 3) PS , I've never heard of Constraint Induced Movement Therapy. It sounds interesting! > > > > hello: > > I took my five year old to the eye doc for an annual checkup today. He > > diagnosed her with Strabismus, but did not recommend any treatment yet > > until she sees the neurologist. I did not notice the eye crossing much > > only when she was tired. > > Her PMG is on the left side of her brain but her weak eye is the left > > eye. She is very typical but does have some motor skills that we work > > on with PT and ot. Has anyone had a similar situation? If yes what has > > been the recommended treatment? > > She is also starting K this year and I am torn between bringing the > > PMG to the schools attention or taking a wait and see approach. She > > did not qualify for any services when she aged out of early steps > > becuase they said it was a medical condition and did not fit the > > education model. Any advice? > > Thanks > > MAria > > > > > > > Quote Link to comment Share on other sites More sharing options...
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