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Dobyns

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We just saw Dobyns on June 16. He is a nice guy, he explained to us that Wyatt

has the rarest form of PMG. (Don't ask me what it is because I don't remember.)

He went on to explain to me that although I live in Salt Lake and we have one of

the best hospitals in the states Wyatt has been medically neglected. If they

would have paid more attention they would have realized that many of Wyatt's

symptoms have nothing to do with his PMG. I had always known that Wyatt was

getting the short end of the stick, I just had never expected a dr to say it...

Sorry I wish I had more to say, but at this point we are still trying to digest

the conversation. I just feel like I'm running out of energy.

Miriam-mother of Wyatt PMG, g-tube, wheelchair, seizures, vision problems

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