Feeding difficulties

[Guest guest]

I have just about had it with trying to feed my son. It's this constant daily

battle. It's soooooo frustrating. My husband has always been weird about the

g-tube because I think he views it as us giving up and taking the " easy route " .

I don't think he'd ever admit to that. He also rarely feeds our son, which is

fine, not complaining about that. Just don't think he always understands how

frustrating it is.

Anyway, Just wanting to know how your kids came to have a gtube, for those

children that do. My son is not on the charts weight wise and never has been

(height wise he tops them). His eating seemed to be getting better, but now it

seems like he's eating less and less. He still drinks infant formula fortified

to a million calories. I also give him solid foods two-three times a day. It

takes 30-90 minutes for each of these eating periods. Some days I skip a solid

food meal so he can spend more time on the floor playing or in his gait trainer.

He also barely actually eats any of this solid food. He gags a lot and spits

most of it out. I usually give him a sippy cup of half and half or fortified

formula to go with. That's where most of the fat and cals come from. Anyway, I

have a checkup with his pediatrician on Monday and I was going to ask her about

revisiting the g tube, maybe doing a swallow study too. I think if he had more

meat on his bones he might start meeting some of his milestones. He's 16 months

and can sit up unassisted as long as I sit him up and it's only for short

periods, depends on what he's doing. He hasn't any teeth yet either and doesn't

crawl. He rolls to get around. He has cp on his right side and hearing loss.

Also, everyone is always asking me if he points to things he wants, which he

doesn't. Do your kids point? When did they start pointing? Just had a speech

eval which brought up a thousand questions I hadn't even thought of. So now I'm

obsessed with getting him to point. Seriously, why do we do these things to

ourselves?

Thanks for reading my rant. Having a special needs child can be so rewarding,

but some days I just wanna rip out all of my hair. I guess that's true of all

children because somedays I'd like the gypsies to take my " normal " and talkative

8 yr old. :-)

Peace and love to you all.

Kim

“I am learning all the time. The tombstone will be my diploma.â€

— Eartha Kitt