Neurologist NEEDED in ville, FL area ASAP

[Guest guest]

Can anyone recommend a neurologist in the ville, FL area? The one we have

at Nemours is AWFUL! It's so hard going through all of this and then you have

doctors who don't have a clue about her PMG.

Brie, my granddaughter is 12 weeks old today. If anyone knows any other

specialists in our area, I would love to know about them too.

Thanks so much for being here!

Brie's Gram, Catrina

[Guest guest]

You need to take her to one of the top specialist in the country in the

field of PMG.

Dr. Dobyns

He just moved to the West Coast but if I had to do it all over again, I

would not waste my time with regular neuros and go see him.

We saw the old neuro at NEMOURS in Jax when my son was 8 yrs old...we also

got nothing from them.

Donna (mom to Trevor, 15 yrs old moderate BPNH+PMG, seizures, feeding

difficulties, ect, ect ect,...)

From: polymicrogyria [mailto:polymicrogyria ]

On Behalf Of briesgram

Sent: Tuesday, October 04, 2011 4:49 PM

To: polymicrogyria

Subject: Neurologist NEEDED in ville, FL area ASAP

Can anyone recommend a neurologist in the ville, FL area? The one we

have at Nemours is AWFUL! It's so hard going through all of this and then

you have doctors who don't have a clue about her PMG.

Brie, my granddaughter is 12 weeks old today. If anyone knows any other

specialists in our area, I would love to know about them too.

Thanks so much for being here!

Brie's Gram, Catrina

[Guest guest]

Donna,

Thank you so much for your reply. I have read about Dr. Dobyns and we are

trying to figure out how we can afford to get her to Seattle to be seen.

Unfortunately, financing the trip to Seattle is more than a little daunting,

but he certainly is our top choice.

Thanks so much!

> **

>

>

> You need to take her to one of the top specialist in the country in the

> field of PMG.

>

> Dr. Dobyns

>

> He just moved to the West Coast but if I had to do it all over again, I

> would not waste my time with regular neuros and go see him.

>

> We saw the old neuro at NEMOURS in Jax when my son was 8 yrs old...we also

> got nothing from them.

>

> Donna (mom to Trevor, 15 yrs old moderate BPNH+PMG, seizures, feeding

> difficulties, ect, ect ect,...)

>

> From: polymicrogyria [mailto:

> polymicrogyria ]

> On Behalf Of briesgram

> Sent: Tuesday, October 04, 2011 4:49 PM

> To: polymicrogyria

> Subject: Neurologist NEEDED in ville, FL area ASAP

>

>

> Can anyone recommend a neurologist in the ville, FL area? The one we

> have at Nemours is AWFUL! It's so hard going through all of this and then

> you have doctors who don't have a clue about her PMG.

>

> Brie, my granddaughter is 12 weeks old today. If anyone knows any other

> specialists in our area, I would love to know about them too.

>

> Thanks so much for being here!

>

> Brie's Gram, Catrina

>

>