Guest guest Posted October 4, 2011 Report Share Posted October 4, 2011 Hi everyone, We are new to this whole PMG experience. My granddaughter, Brie, is 12 weeks old today and was diagnosed with PMG at 3 weeks old. We still do not have a doctor who has a clue about PMG. So, we heard about Dr. Dobyns in Seattle but trying to find a way to finance the trip from ville, FL to Seattle (could it be any further away?) is extremely daunting, to say the least. Does anyone know of any organizations or resources for families of PMG kids that might help with expenses to travel for care? Thank you so much for any input! Catrina, Brie's Gram Quote Link to comment Share on other sites More sharing options...
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