Re: I'm new-Share your information?

[Guest guest]

I am curious, how did they determine that it was neuroimmunological?

Who did the scan? Thanks for sharing.

I'm new-Share your information?

Hi-

I'm actually a 24 yo, male in CA.

I recently had a spect scan done, and among the many things they found

wrong, they felt I had a neuroimmunological disorder.

I can't begin to even describe to you how long I've struggled with

mood, mood, focus, attention, anxiety, etc etc...

I've tried to learn as much about it as possible. They thought it

could be a neuroimmunological disorder, or possibly even toxic

exposure to elements, or even 'hypoxic' exposure... with just a

starvation of oxygen and blood.

I don't do drugs and I have a VERY healthy life style. I don't drink,

smoke, drink pop, caffeine. I eat mostly white meat, veggies, etc. I

take some supplements.

-They told me that if they didn't know that I took such good care of

my health-by looking at my scan, they would have thought it was that

of a drug addict. They said " over-all there was just a really low

level of blood flow... if you were abusing drugs, I would say-'See?

This is what it is doing to your brain.' "

You seem like you might be a friendly group of peoploe on here... I'm

sure on some levels you can relate.

Aside from that I was diagnosised with (already diagnosised before the

scan with these disorders) but Bipolar, OCD, Generalized Anxiety

disorder, some head trauma, ADHD, and the overall neuronal damage.

SO-my question is, what are the treatments and supplements that are

being recommended?

I'm supposed to see a Dr. about it-but it will be another 3-5 months

before I get in... so I want to see what all of you have been doing

and learning.

THANKS!

-

[Guest guest]

>

> I am curious, how did they determine that it was neuroimmunological?

> Who did the scan? Thanks for sharing.

>

Well that is something yet to be confirmed. but the physical tell

signs of the disorder is damage and lack of activity/blood flow of the

cerebral cortex... the surface of the brain, involved with the blood

brain barrier.

They suggested that it seemed as though from the specialists at harbo

UCLA-brain matters, that something was causing this low level of

activity... a damage was being brought, but the question has been...

why? This was exemplified by my NeuroSPECT scan.

Like I mentioned they said there are three ways in which this could

happen... attacking of the brain from harmful viruses and bacteria in

the body due to a low immune system, or even exposure to toxic

elements, and/or hypoxic exposure... long sustained starvation of

oxygen and blood. Or several of the possibilities happening all at in

sync.

That is why I have' had to have blood tests and an appointment with

Dr. Goldberg to see what might be the cause and how to fix it.

Does that answer your question?

Thanks for getting with me, I appreciate your concern and questions,

thanks! It might not seem like much-but I'm really kinda concerned

and/or scared about the whole thing. I'm somewhat on my own in

this-considering my family/parents are not involved or interested in

helping me with any of my treatments. It has been somewhat of a

nightmare-and so I've had to pioneer it all myself.

Thanks again

-

[Guest guest]

Caroline-

Thanks for the prompt response and the good information :-)

Mother or not-it was a good message to recieve-and I surely appreciate

it and all the information you were willing to share.

I'll take a look at the diet, and see how I can incorporate it.

I was curious, about the probiotic bacteria-do you have a place where

you might know to get some of that? I guess I know yogurt has it-but

it is made from milk, so I guess in some ways it might kinda counter

the benefits.

I'm curious if there might be good places online to order some

capsules or something.

Aside from that, have you ever had any experience with b12 shots? I'm

learning they can be very beneficial, and that is one of the things

that Dr. Goldberg tests for is the amount of b12 in the system. I

guess it is supposed to have immune helping properties and such.

thanks again for the help.

- :-)

>

> ,

>

> Welcome.

>

> I am so glad that your are able to get in to see Dr. Goldberg.

Although you

> are older and have struggled with this for longer than most of our

children,

> you have the distinct advantage of being able to discern and

communicate how

> the meds are affecting you in person. We struggle through trying to

figure

> out how each change is affecting our kids and convey that to Dr.

Goldberg...

> it's a definite challenge.

>

> One of the best things you can do right now is to get onto Dr.

Goldberg's

> website (neuroimmunedr.com) and read everything you can find,

especially the

> articles section. Then you can get started on the diet (you'll find

it on

> the website), which may help you some immediately. Even if the diet

doesn't

> seem to help right away, stick with it... you have been ill a long

time and

> things aren't going to reverse themselves overnight. Dr. Goldberg

will do a

> food screen (blood test) when you see him which will help to fine

tune what

> foods might be bothering you so that you can remove them from your diet.

> That is a very important part of calming your immune system down.

We can

> help you if you have questions. Start with switching to soy milk

(but be

> aware that some people are bothered by that, so it may have to go

> eventually). The kind we like best at our house is Soysilk. We get

it at

> Walmart or Sam's Club.

>

> Another thing that seems silly to say (but I'm a mom so I'm going to say

> it!) is to make sure you're getting enough sleep. That can make a huge

> difference. At your age it's easy to burn the midnight oil...

you're at an

> exciting phase of life. If you are having trouble sleeping that is

> something Dr. Goldberg will probably be able to help you with.

Restorative

> sleep is a very important part of helping you body to heal.

>

> It sounds as though you're doing your best to take care of yourself

that's

> wonderful! Just think how much worse off you might be if you hadn't

been

> leading a healthy lifestyle. I hate to tell you this but most of the

> supplements will probably have to go except for a basic multivitamin (no

> more than the recommended daily allowance) and maybe a probiotic such as

> kyodophilus. Dr. Goldberg is big on only putting things into your

body that

> should already be there... believe it or not, some supplements can

throw you

> off.

>

> There is much more to treatment than what I have mentioned, but the

above

> items are things you can focus on now to help yourself.

>

> Good luck... we'll help you all we can.

>

> Caroline

>