Re: My Lana is 14 months now

[Guest guest]

Lina,

Yes, my son did not crawl or walk at 14 months. His PT worked a lot on getting

him onto his hands and knees to build up strength. Around 20 months he started

crawling on his hands and knees. He was able to army crawl for a bit before

then. He was also able to stand if placed against something before he could

crawl. That sounds strange, but his upper body couldn't hold up his weight.

His PT was adamant about getting him crawling and now I see why. His upper body

is much stronger because of that. At 2 1/2 he started walking. It took a lot

of hard work (physically for him, emotionally for me!). Just keep up the PT and

if she is tight, stretch her several times a day. Hang in there! I remember

those days clearly.

Sent from my iPhone

> Dear all,

>

> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>

> Best Regards,

> Lina Kurdi

>

>

>

>

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[Guest guest]

This is exactly what Lana dies she rolls over to go wherever she wants which I

see is a very good sign, and am so happy about it:)

Thanks dear Tara

Best Regards,

Lina Kurdi

> Hi Lina!

>

> My daughter was recently diagnosed with left unilateral PMG. She is 18 months

old 15.5 corrected and is nowhere close to crawling. She doesn't have the

strength in her right arm to crawl, and her trunk control is poor. She will walk

along furniture very gingerly, and will walk as long as her hands are being

held. That being said, when she walks along the couch, she lacks the protective

instinct to protect herself if she falls, so she just topples over and will

smack her head on whatever is nearby. She will roll all over the place to get

where she wants to go.

>

> We see both physiotherapy and occupational once a week.

>

> Tara

>

>

>> Dear all,

>>

>> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>>

>> Best Regards,

>> Lina Kurdi

>>

>>

>

>

>

>

[Guest guest]

Tara,

Your daughter sounds exactly like my son. My son is 16 months old. He can sit up

unassisted but prefers to throw himself backward and doesn't catch himself when

he falls. He rolls and does a bit of army crawling to get around. He refuses to

his right hand unless you hold his left one back. And even then he spends most

of that time fighting to get his left arm back.

“I am learning all the time. The tombstone will be my diploma.â€

— Eartha Kitt

> Hi Lina!

>

> My daughter was recently diagnosed with left unilateral PMG. She is 18 months

old 15.5 corrected and is nowhere close to crawling. She doesn't have the

strength in her right arm to crawl, and her trunk control is poor. She will walk

along furniture very gingerly, and will walk as long as her hands are being

held. That being said, when she walks along the couch, she lacks the protective

instinct to protect herself if she falls, so she just topples over and will

smack her head on whatever is nearby. She will roll all over the place to get

where she wants to go.

>

> We see both physiotherapy and occupational once a week.

>

> Tara

>

>

>> Dear all,

>>

>> My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

>>

>> Best Regards,

>> Lina Kurdi

>>

>>

>

>

>

>

[Guest guest]

!

Elara won't army crawl, she down right refuses to try any type of crawling. It's

crazy. Our PT really wants to see some crawling, but we know she has no

inclination to push up on her arms. BUT, what she will do is really neat. We

have a bench that is about 7 inches off the floor. She will stand at the bench,

and bend over nearly halfway, and put weight on her arms. So we play like that

at least twice a day. We saw a lot of change with her right hand after we

constrained the left with a splint for three weeks. She will now at least try

and hold things in her right hand and will open it up to help with balance. I'm

very proud of her for that.

I have a lot more that I'd like to type, but she is now loosing her mind because

she wants the laptop that mommy is playing with.

Tara

> Lina,

> Yes, my son did not crawl or walk at 14 months. His PT worked a lot on getting

him onto his hands and knees to build up strength. Around 20 months he started

crawling on his hands and knees. He was able to army crawl for a bit before

then. He was also able to stand if placed against something before he could

crawl. That sounds strange, but his upper body couldn't hold up his weight. His

PT was adamant about getting him crawling and now I see why. His upper body is

much stronger because of that. At 2 1/2 he started walking. It took a lot of

hard work (physically for him, emotionally for me!). Just keep up the PT and if

she is tight, stretch her several times a day. Hang in there! I remember those

days clearly.

>

>

> Sent from my iPhone

>

>

>

> > Dear all,

> >

> > My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

> >

> > Best Regards,

> > Lina Kurdi

> >

> >

> >

> >

> > TODAY(Beta) • Powered by Yahoo!

> > 'Ugliest fish in the world' draws big crowd

> > A cringe-inducing kiss is one of the wild traditions at Minnesota's bizarre

eelpout festival.

> > Privacy Policy

>

>

[Guest guest]

Hi Lina,

My daughter is 8 years old and still not walking. She did a wiggle worm commando

crawl for a few years when she was younger but with growth lost the ability to

do that. She does roll and squirm around to get what she wants now. I wish I had

used a crawling frame when she was younger to help her up into the crawling

position. Her arm strength is very low and her legs are very high tone. She has

spastic quad CP.

Do you have a stander for her? This helps get the kids upright and " standing. "

My daughter loved hers when she was little but not so much the last few years.

When my daughter was 3 and a half I found Conductive Education and the program

did wonders for her. This was the only program that seemed to get her and help

her make amazing progress. She started traditional therapy and early

intervention at 5 months old and made slow steady progress. But with CE the

progress was dramatic. I ended up moving to be closer to the CE program so my

daughter could attend full time. It was the best decision ever.

I know how hard it is to get stuck on the age brackets of when kids should be

doing things but dont...stay away from those! All it will do is drive you crazy.

Your daughter will do things when she is ready, on her own time. Just keep

supporting her and giving her all the chances you can.

My Lana is 14 months now

Posted by: " Lina Kurdi " sweet.kurdi@...

sweet.kurdi

Mon Mar 5, 2012 3:13 am (PST)

Dear all,

My daughter is 14 months now but she is not walking or crawling yet!! Any

experience about this specifically?

Best Regards,

Lina Kurdi

[Guest guest]

My daughter just turned five months. She can roll over from her stomach to her

back. Yesterday for the first time she rolled over from her back to her stomach.

Also she tries to crawl but all she does is move her arms and legs and gets mad.

She can slowly make it off her blanket if you let her try for awhile. She can

lift up her front end if that & #39;s all she is trying to do. She also does a

thing where she looks like she wants to sit up. When she is on her back she will

pull up her front end and hold it a few inches off the ground until she

can & #39;t any longer. I was wondering if any other kids with pmg were doing

stuff like this around five months. Another thing I have a question about is her

eyesight. Right now she can only see light and she can & #39;t track at all. Her

eyes are ok, the connections just rant getting through in her brain. Did anyone

else have this problem and did it get any better? She just got diagnosed two

weeks ago so I & #39;m still

trying to figure a lot of this out.

[Guest guest]

It sounds like your daughter is doing very well and is very active. My 9 month

old can roll from stomach to back (he did that at 3 weeks due to excessive

tone). He's not strong enough in his trunk yet to get his leg lifted up and

over to roll from back to tummy but he tries (with his shoulders no doubt!).

He isn't lifting his legs up underneath him yet when on his tummy nor does he

extend his arms out completely when laying on his tummy. He does little

sit-ups that sound kind of like what you described and he started those around

7 or 8 months. We've had no issues with sight.

polymicrogyria on Monday, March 05, 2012 at 11:00 AM -0800

wrote:

>

>

>

>My daughter just turned five months. She can roll over from her stomach to her

>back. Yesterday for the first time she rolled over from her back to her

>stomach. Also she tries to crawl but all she does is move her arms and legs

>and gets mad. She can slowly make it off her blanket if you let her try for

>awhile. She can lift up her front end if that & #39;s all she is trying to do.

>She also does a thing where she looks like she wants to sit up. When she is on

>her back she will pull up her front end and hold it a few inches off the

>ground until she can & #39;t any longer. I was wondering if any other kids with

>pmg were doing stuff like this around five months. Another thing I have a

>question about is her eyesight. Right now she can only see light and she

>can & #39;t track at all. Her eyes are ok, the connections just rant getting

>through in her brain. Did anyone else have this problem and did it get any

>better? She just got diagnosed two weeks ago so I & #39;m still

>trying to figure a lot of this out.

>

>

[Guest guest]

My daughter has occipital damage so we had neglect to use her vision on the left

side. After therapy it seems things are fine.

Diane

Sent from Samsung Conquerâ„¢ 4Gnull

[Guest guest]

Their is a device that assists crawling and you can make a wooden one. I am not

home we are doing VEEG. I will try when home.

Diane

Sent from Samsung Conquerâ„¢ 4G

[Guest guest]

Tara,

Not sure if you've been shown this by a PT, but something simple to try is using

a light blanket/ towel and place it across the child's chest and hip area.

Place them in the crawling position and use the blanket/ towel as a sling to

help bear some of the weight. With time, if they are able, allow them to take

on more weight on their own. Just something we did that helped and didn't

require purchasing any equipment.

Sent from my iPhone

>

> I would love more information on a crawling set up if it is available please.

>

> Thank you

> Tara

>

>

[Guest guest]

Diane,

Good luck with the VEEG.

I have been putting off doing a VEEG. I haven't seen my daughter exhibiting

signs of seizures...I often nap with her and 2x a week we sleep together during

the night. I do it to see if there is any abnormal sleep activity (both for nap

and night time). I haven't seen anything unusual.

I am also interested in the device you mentioned regarding crawling, I would

appreciate any additional info.

Karla

Sent from my iPad

> Their is a device that assists crawling and you can make a wooden one. I am

not home we are doing VEEG. I will try when home.

> Diane

>

> Sent from Samsung Conquerâ„¢ 4G

> think

>

[Guest guest]

Tara,

This is what I am talking about for the crawling frame. Here are two options

that I found.

1) http://www.adaptivemall.com/crcr.html

The Creepster Crawler assists children with crawling when this activity cannot

be achieved independently. Instead of a caregiver (or two) trying to support the

child�s arms, legs, head and trunk, the Creepster Crawler does this with a

seven-point harness. This frees the caregiver to encourage the child to crawl.

Crawling is an important step in development. When a child is on his/her hands

and knees, the arm and leg joints, muscles and connective tissues receive

feedback (proprioceptive feedback) to let the brain know where the body in space

which helps stabilize the joints. Crawling also helps to build muscles in the

arms, legs and trunk. It is also the precursor to walking since you move your

arms and legs with the same pattern as you do for walking. Giving a child the

ability to move independently helps improve self-esteem and motivation.

The Creepster Crawler�s 7-Point Harness is adjustable and has worked

successfully for children with tracheotomies and G-Tubes. The Creepster

Crawler�s frame has a padded platform on top to support the caregiver while

assisting the child with the crawling motion. There are two sizes available.

Use the Creepster Crawler on a smooth surface at home, inside or outside, to

promote independence, work on muscle strengthening and training. It�s also a

great therapy tool as well. The Creepster Crawler can support the child on

his/her hands and knees while the therapist/caregiver works on encouraging the

child to reach for objects, weight-shifting and increasing head control.

2) http://www.adaptivemall.com/crawler.html

Adjustable Supportive Crawler aids a child in exploring their surrounding

environment. The crawler helps develop basic crawling skills. The body is

supported at the trunk. The supporting surface is made of a soft waterproof

vinyl sling which tilts to accommodate body movement.

The adjustable supportive crawler is multi-directional, supporting movement in

all directions as the child so chooses. Four casters are mounted to a sturdy

chromed steel frame. The height adjusts from 11.5 " (29 cm) to 15.25 " (39 cm).

The Crawler accommodates children from 3-9 years of age up to 90 lb. (41 kg).

Hope this helps.

Re: My Lana is 14 months now

Posted by: " Tara " tara.churchill@...

terikatlc

Mon Mar 5, 2012 6:05 pm (PST)

I would love more information on a crawling set up if it is available please.

Thank you

Tara

[Guest guest]

Our pt loaned us the creepster crawler and my son doesn't love it. I personally

wouldn't purchase one, but I wouldn't have found that out without my therapists

loaning me the equipment to try out. Ask for loaners or if they have one

available if they can use it in session to make sure your child will like it.

“I am learning all the time. The tombstone will be my diploma.â€

— Eartha Kitt

> Tara,

> This is what I am talking about for the crawling frame. Here are two options

that I found.

>

> 1) http://www.adaptivemall.com/crcr.html

>

> The Creepster Crawler assists children with crawling when this activity cannot

be achieved independently. Instead of a caregiver (or two) trying to support the

child�s arms, legs, head and trunk, the Creepster Crawler does this with a

seven-point harness. This frees the caregiver to encourage the child to crawl.

>

> Crawling is an important step in development. When a child is on his/her hands

and knees, the arm and leg joints, muscles and connective tissues receive

feedback (proprioceptive feedback) to let the brain know where the body in space

which helps stabilize the joints. Crawling also helps to build muscles in the

arms, legs and trunk. It is also the precursor to walking since you move your

arms and legs with the same pattern as you do for walking. Giving a child the

ability to move independently helps improve self-esteem and motivation.

>

> The Creepster Crawler�s 7-Point Harness is adjustable and has worked

successfully for children with tracheotomies and G-Tubes. The Creepster

Crawler�s frame has a padded platform on top to support the caregiver while

assisting the child with the crawling motion. There are two sizes available.

>

> Use the Creepster Crawler on a smooth surface at home, inside or outside, to

promote independence, work on muscle strengthening and training. It�s also a

great therapy tool as well. The Creepster Crawler can support the child on

his/her hands and knees while the therapist/caregiver works on encouraging the

child to reach for objects, weight-shifting and increasing head control.

>

> 2) http://www.adaptivemall.com/crawler.html

>

> Adjustable Supportive Crawler aids a child in exploring their surrounding

environment. The crawler helps develop basic crawling skills. The body is

supported at the trunk. The supporting surface is made of a soft waterproof

vinyl sling which tilts to accommodate body movement.

>

> The adjustable supportive crawler is multi-directional, supporting movement in

all directions as the child so chooses. Four casters are mounted to a sturdy

chromed steel frame. The height adjusts from 11.5 " (29 cm) to 15.25 " (39 cm).

The Crawler accommodates children from 3-9 years of age up to 90 lb. (41 kg).

>

> Hope this helps.

>

>

>

> Re: My Lana is 14 months now

>

> Posted by: " Tara " tara.churchill@... terikatlc

>

> Mon Mar 5, 2012 6:05 pm (PST)

>

>

> I would love more information on a crawling set up if it is available please.

>

> Thank you

> Tara

>

>