Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 I have a friend that went through the process, but I don't know of any children. If you like you might want to locate a cochlear implant support group. They may help you or you might contact my friend. Let me know. Patty To: polymicrogyria From: estherhutman@... Date: Mon, 7 Feb 2011 01:22:17 +0000 Subject: Cochlear Implants Hi everyone, My 13 month old Sammy (PMG) failed the newborn hearing screening and has been wearing hearing aids since he was 4 months old. We are seeing some response to sound, but they are for the most part subtle and not consistent. At our last visit to the audiologist, she recommended that we start the process for cochlear implants, to determine if it is an option for him. Do any of you have experience with cochlear implants? thanks, Esther Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 How much of a hearing loss does your child have? ________________________________ To: polymicrogyria Sent: Sun, February 6, 2011 7:22:17 PM Subject: Cochlear Implants Hi everyone, My 13 month old Sammy (PMG) failed the newborn hearing screening and has been wearing hearing aids since he was 4 months old. We are seeing some response to sound, but they are for the most part subtle and not consistent. At our last visit to the audiologist, she recommended that we start the process for cochlear implants, to determine if it is an option for him. Do any of you have experience with cochlear implants? thanks, Esther ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Our daughter was diagnosed with hearing loss at 6 weeks. She was fitted with hearing aides and underwent numerous test to quantify her degree of loss. At age 2 1/2 she had an ABR under GA and they determined she was profoundly deaf in both ears. She was put on the cochlear implant program and after a few months received an implant in her right ear. We then had to wait for 6 weeks for it all to heal. There is always a concern that there will be no response when they finally turn it on, so we were stoked when screamed. Meant she was finally " hearing " sounds. That is the easy part. It takes a lot of time / commitment with the therapy. It was a fair bit of learning for us and the audiologists / therapists. Kiddies with other disabilities respond at much slower rates than kids with just hearing loss. We found that we would sometimes have to wait 20-30 seconds for a response to a sound. We also changed her mappings much more slowly than normal as sometimes they would bring on seizures. is now five and can recognise >50 words and phrases. She does not speak words herself, but has definitely started verbalising much more since being implanted. Her mother is sure she says " mum " :-) So in conclusion, a lot of hard work, but worthwhile so far. Dad to , 5 yo with BFPPMG Quote Link to comment Share on other sites More sharing options...
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