Re: Medications for PMG kids

[Guest guest]

Onfi

Banzel

Lamictal

1K unit of Vit D

B6

Omega 3 (Fish oil) 1X day

Also Diastat as needed and (Ativan as needed to calm his agitation)

Sent from my Verizon Wireless BlackBerry

Medications for PMG kids

We need your help. If your child is on any medications or supplements, can you

please reply? We will use this information to build a Medications page at

www.pmgawareness.org. Your information will be an invaluable help to all those

who need information about medications and supplements for PMG.

Thanks!

Catrina

[Guest guest]

Seizure: phenobarbital, trileptal

Spasms: topomax, B6

Sent from my iPad

> We need your help. If your child is on any medications or supplements, can you

please reply? We will use this information to build a Medications page at

www.pmgawareness.org. Your information will be an invaluable help to all those

who need information about medications and supplements for PMG.

>

> Thanks!

> Catrina

>

>

>

>

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[Guest guest]

Would it also be helpful to day what the meds are for and any noticeable side

effects? i have just in case.

Seizures - Epilim  - can make her sleepy

Clonazepam - for spasms - can make her sleepy

Vigabactrim for spasms - can cause changes to vision, must be monitored while on

this drug.

Scopoderm patches - used for excessive drooling/spit, 1/4 of a patch every 3

days, originally used for adults for motion sickness, work really well for the

drooling!

Liquid Gaviscon - I find this really good as the regular spasms create reflux

and bring acid up her throat which is why she cries after them. Giving her a

small amount she instantly stops crying as it lines her throat.

Losec - for reflux

Chloral Hydrate - used for sleeping, she falls asleep within 10mins of having

this.

Hope this helps

________________________________

To: polymicrogyria

Sent: Sunday, 11 March 2012 10:18 AM

Subject: Medications for PMG kids

 

We need your help. If your child is on any medications or supplements, can you

please reply? We will use this information to build a Medications page at

www.pmgawareness.org. Your information will be an invaluable help to all those

who need information about medications and supplements for PMG.

Thanks!

Catrina

[Guest guest]

Keppra 100 mg/ml 2x daily for seizures. No noticeable side affects.

Sent on the Sprint® Now Network from my BlackBerry®

Medications for PMG kids

We need your help. If your child is on any medications or supplements, can you

please reply? We will use this information to build a Medications page at

www.pmgawareness.org. Your information will be an invaluable help to all those

who need information about medications and supplements for PMG.

Thanks!

Catrina

[Guest guest]

Thanks. Now, I know why Drake is crying so much. Did not know the spasms

effect the reflux. Julissa

Sent from my iPad

> Would it also be helpful to day what the meds are for and any noticeable side

effects? i have just in case.

>

> Seizures - Epilim - can make her sleepy

> Clonazepam - for spasms - can make her sleepy

> Vigabactrim for spasms - can cause changes to vision, must be monitored while

on this drug.

> Scopoderm patches - used for excessive drooling/spit, 1/4 of a patch every 3

days, originally used for adults for motion sickness, work really well for the

drooling!

> Liquid Gaviscon - I find this really good as the regular spasms create reflux

and bring acid up her throat which is why she cries after them. Giving her a

small amount she instantly stops crying as it lines her throat.

> Losec - for reflux

> Chloral Hydrate - used for sleeping, she falls asleep within 10mins of having

this.

>

> Hope this helps

>

> ________________________________

>

> To: polymicrogyria

> Sent: Sunday, 11 March 2012 10:18 AM

> Subject: Medications for PMG kids

>

>

>

> We need your help. If your child is on any medications or supplements, can you

please reply? We will use this information to build a Medications page at

www.pmgawareness.org. Your information will be an invaluable help to all those

who need information about medications and supplements for PMG.

>

> Thanks!

> Catrina

>

>

[Guest guest]

Keppra 140 mg twice daily for seizures

Zantac for reflux

Was on prednisolone for infantile spasms, a 6-week treatment worked almost

immediately and he has been spasm free since. Made him very hungry and

wouldn't eat for a few days after we finished weaning him (slowly) off the

medication

On Sat, Mar 10, 2012 at 5:56 PM, Contreras wrote:

> Keppra 100 mg/ml 2x daily for seizures. No noticeable side affects.

>

> Sent on the Sprint® Now Network from my BlackBerry®

>

> Medications for PMG kids

>

> We need your help. If your child is on any medications or supplements, can

> you please reply? We will use this information to build a Medications page

> at www.pmgawareness.org. Your information will be an invaluable help to

> all those who need information about medications and supplements for PMG.

>

> Thanks!

> Catrina

>

>