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Hi Debby!

Welcome to our little zoo. :) Thanks for the intro, it sounds like

you are well on your way to your goals! Just an FYI, your

registration sometimes takes a while with BFL, especially the January

challenge (alot of New Year's resolutioners in the mix). If you

haven't received your packet, I would give the toll-free EAS number a

call (I think they have one down under just like in the states).

Good luck and keep us posted!

Jen B.

> Hi to everyone

> I have been lurking since finding this group about 4 weeks ago,

> having a

> look and deciding if I would stay etc. Well it sounds like you are

> all a

> great group of people and I just love the way you support each

other,

> so I

> decided that it is probably about time I introduced myself. My

name

> is

> Debby. I am 39 yrs old (40 in 4 weeks), mother of 3 boys. I am

> heavily

> into dog competition (showing, obedience and retrieving), which

takes

> up a

> lot of my time in competing and training the dogs. I started my

first

> challenge (unofficially) in the first week in January. I actually

> thought

> I had registered to enter but I must have done something wrong, so

I

> am just

> acting as though I am official anyway. I am not looking for huge

> changes

> as I am not overweight as such, I just want to improve my body

shape

> and

> lose about 5kg of bodyfat

*snip*

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Hi Debby,

Welcome to the group. :)

Martie

> Hi to everyone

> I have been lurking since finding this group about 4 weeks ago,

> having a

> look and deciding if I would stay etc. Well it sounds like you are

> all a

> great group of people and I just love the way you support each

other,

> so I

> decided that it is probably about time I introduced myself. My

name

> is

> Debby. I am 39 yrs old (40 in 4 weeks), mother of 3 boys. I am

> heavily

> into dog competition (showing, obedience and retrieving), which

takes

> up a

> lot of my time in competing and training the dogs. I started my

first

> challenge (unofficially) in the first week in January. I actually

> thought

> I had registered to enter but I must have done something wrong, so

I

> am just

> acting as though I am official anyway. I am not looking for huge

> changes

> as I am not overweight as such, I just want to improve my body

shape

> and

> lose about 5kg of bodyfat. I am now at 64 kg ( I think that

> converts to

> 140 lbs), I am 5'6'. I am not sure of my bodyfat %, probably about

> 20% I

> would guess. My upper body is very lean and quite muscular but I

> have

> larger hips and thighs than I would prefer (womens disease!!). I

> started

> working out about 6 months ago, but saw very limited changes, so I

> started

> reading and came across the BFL book in the library. I found it

very

> inspirational so I decided to give it a go. I am now comfortable

with

> eating so many times a day, ( I found it quite hard in the

> beginnning) and I

> love going to the gym. I just don't like getting out of bed

> early!!.............By the way I am in Australia and I have been

> looking at

> your temperatures. It is 8.00 in the morning now and 25 degrees

> centigrade.

> (approx 78 degrees F). And we are expecting to get to approx 94F-

95F

> by

> lunchtime. So getting a sweat up is not hard. Asd a matter of

> interest I

> was born in New York but left when I was a baby. I intend to come

> back one

> day and have a look.

>

> Debby Mulrain

> thepoochpolisher@b...

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  • 1 year later...

Welcome smbee :)

So what you're saying is that you should be more confident with " The

Work " ? How'bout: you should be more confident with your thinking? -

doesn't that sound true, too?

Can't really speak for this group as i'm new too...but it appears

easier to do 'the work' with a group who can help facilitate the

process with kindness and understanding...

Just like a flower unfolding...it can't be forced to bloom before its

time... ;)

Be kind & gentle with yourself!

Jup

> I don't know alot about using yahoogroups or any group for that

> matter. I was introduced to the work 2 months ago and I am just

> learning. I do the work with someone who went to the school for

the

> work. We get together two times a month. I am trying to do this

> work also on my own at home. I wonder if using the yahoo group

will

> help me. Is there anyone willing to explain things to me or what

> might help me with the work online? Thanks in advance.

> I am trying to do a judge your neighbor worksheet at least once a

> day. I have had some amazing experiences and some empty

> experiences. I know I have a lot to learn. My most current work

is

> with my family and my boyfriend. I am learning a lot about

myself.

> That keeps me going back to the work again and again. I do not

feel

> confident with the work but I am trying.

> Hope this helps.

> B

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Hello B ~

I don't know alot about using yahoogroups or any group for that

matter. I was introduced to the work 2 months ago and I am just

learning. I do the work with someone who went to the school for the

work. We get together two times a month. I am trying to do this

work also on my own at home. I wonder if using the yahoo group will

help me.

*****Best way to find out is to use it! From my experience, it is

quite safe here.

Is there anyone willing to explain things to me or what

might help me with the work online? Thanks in advance.

I am trying to do a judge your neighbor worksheet at least once a

day. I have had some amazing experiences and some empty

experiences. I know I have a lot to learn. My most current work is

with my family and my boyfriend. I am learning a lot about myself.

That keeps me going back to the work again and again. I do not feel

confident with the work but I am trying.

*****Consider where the lack of confidence arises from. You said

you had " some amazing experiences. " That sure sounds like

confidence speaking! And yet a lack of confidence is felt. Perhaps

you want to explore the validity of the thoughts which birth the

lack of confidence?

Cheers ~

andy

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  • 2 years later...
Guest guest

Hi Ally, and welcome to the group! My name is (or just "Chelle", and I live in NW Houston, off US Hwy 290 (the road that connects our two cities ). I look forward to getting to know you too, and I believe you'll find the folks and info in this group helpful. I know I have.

~Chelle

>> > Hello Everyone,> > My name is Ally and I am glad to have found this group! I live in> Austin with my hubby and son. I was diagnosed with Hypothyroidism two> years ago.> > I look forward to getting to know more about everyone.> > Thanks,> > Ally>

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Guest guest

Your wheat and corn allergies sound suspicious to me, for Celiac Disease.

There are specific antibodies in the gut for certain types of grains. Rice

is not included in these grains, but wheat, corn, rye, and some others are.

Some Celiacs find that they can eat some of these grains, but wheat is the

big daddy of all the offenders there. The antigliadin antibody test is one

of these tests, but there is another one that I can't remember the name of.

Re: New to the group

In 2002, I had an Allergy Prick Test done, and these were the

results of offensive products: fish mix, soybean, beef, corn, whole

wheat, eggs, shrimp, cow's milk, onion, orange, peanut, pork,

mushroom food. In addition, I am allergic to all types of grass and

tress. But no cat or dog hair/dander.

At that time I didn't know that I had thyroid disease and didn't

make this connection until later. I was taken biweekly shots to

help with the outside allergies. I am no longer taking these shots,

because I am handling that much better now. As with the food, the

allergist told me to eliminate everything for a month and then

slowly introduce foods one at a time, to see which ones are the most

offensive. It has been trial and error because sometimes

combinations of certain ones could be just as bad as just one

particular food. I do know that corn can cause severe stomach

ailment (and yes, I ate a small corn-on-cob yesterday, my fault) but

these others, I haven't figured out quite yet.

Two weeks ago, I did buy a few GF products and I encountered only a

few stomach problems. You mentioned Celiac Disease and that's

something I'm going to investigate further. Can that be determined

through blood test? I'll go to my PD on Thursday, so should this be

something I need to mentioned to her? Thanks for any feedback.

Kady

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Kady,

Your " IBS " is probably hypo. Are you optimized? Do you take any digestive

enzymes?

Kate

At 11:27 AM 7/17/2006, you wrote:

>Sounds like a good plan. I'm opposite in that I can lose weight at

>the drop of a dime. I am trying to maintain between 135 - 145

>(ideal for me is 145), but having some difficulties. If I just can

>get my stomach in order. I will have one good day, eat well, only

>to have the next day full of grief. I still haven't figured out why

>I suffer with the IBS so much. I try to watch the foods I eat,

>especially my numerous food allergies. Could this be an adrenal

>problem (if that makes sense)? Should I be working with a

>nutritionist? Or just with a gastreologist? Help somebody!!

>

>Kady

>

>

> >

> >

> > Hi Ally,

> >

> >

> >

> > I am one of those who can gain weight at the drop of a hat but has

>a terrible time losing. I had gained 25 pounds since Christmas and

>so I really had to look at what I was eating and of course, at my

>amount of exercise. I was tired and hungry all the time and spent

>most of the afternoon and evening doing a kitchen inventory in my

>head and fighting off the urge to ram food into my mouth. I am

>typically a healthy eater, so the food cravings were what I needed

>to focus on most. My overall energy levels also needed a huge

>boost. Over the past few weeks I have finally started losing

>weight. I am not counting or weighing anything and I have lost 10

>pounds in about 3 weeks and I am convinced that there is much more

>to come. I no longer thinking about food until my body tells me

>that I'm truly hungry and then I eat from my new selection of

>foods. My energy levels are far from optimum, but there has been

>great improvement. My tiny husband has also lost 3 pounds. I am a

> > career dieter and I had to look for something different. As

>always, it's a long-winded response, but I was documenting it for my

>daughter anyway. My changes may or may not work for you, but here

>they are…

> >

> >

> >

> > 1. I totally eliminated High Fructose Corn Syrup from my diet. I

>had to spend a couple of hours in each grocery store, just once for

>each store, while I found the brands for each of the things that I

>was replacing such as cranberry, apple sauce, salad dressing, mayo,

>bbq sauce, baked goods, bread etc. I still have a sweet tooth, and

>I always will, but the urge to ram food in my mouth was

>diminishing. This elimination also frees up the liver to do other

>more useful things.

> >

> >

> >

> > 2. I started baking with stevia and using it in my decaf coffee.

>Switching to stevia allows me to satisfy my sweet tooth without

>getting the body response to sugar. Since my sweet tooth comes out

>at night, it also helps me sleep better and I no longer have the

>truly bizarre 'sugar dreams' in the morning. My night sweats have

>been drastically reduced as well to where I only have zero or one

>each night. I've made muffins, cookies and banana bread so far and

>they all taste great. My afternoon and evening snacks consist of

>fresh fruit and a stevia muffin or 2 stevia cookies. I have to be

>careful not to have my afternoon snack too late or I have no

>appetite for supper! There are a few articles that suggest that

>stevia may lower testosterone levels, just so you know.

> >

> >

> >

> > 3. I stopped buying lite/light products! After I started reading

>all of the labels for the high fructose corn syrup, I noticed that

>many whole products have about 1/2 of the ingredients of the

>lite/light ones and about 1/2 again of the fat free ones. This is

>particularly true of mayo and salad dressings. They all have the

>same whole ingredients, but the lite/light and fat free ones are

>filled with things that you can barely pronounce to make them taste

>similar without the calories and fat. What I do now is buy and

>organic regular full fate product that just has normal ingredients

>like milk and eggs, and then cut it about 40/60 with plain fat free

>yogurt. It tastes just fine, plus you don't have to use as much

>because it's thinner and gives you more coverage with a smaller

>amount. Plus the yogurt gives me the active cultures to keep the

>yeast in check.

> >

> >

> >

> > 4. I nixed most of the potatoes/rice/pasta at lunch and dinner

>from Mon-Fri and have a salad and vegetables with meat. I also

>switched to multi grain bread without any kind of sweetener and use

>it sparingly. It's a modified Broda diet.

> >

> >

> >

> > 5. I started drinking lemon water with lunch and dinner. I read

>that the acid in it makes the food enter your system at a slower

>rate so that you stay full longer. I'm not sure if this is working

>because I haven't really been paying attention, but the vitamin C in

>it will also help me absorb the iron from the meal and it supposedly

>helps to clean out the liver. To make the lemon water, I squeeze

>one lemon and one lime for juice and mix it in a glass quart

>bottle. I then mix it half & half (8oz & 8oz) with plain water to

>have with lunch and/or dinner.

> >

> >

> >

> > It sounds like a lot of changes, but it's really not. My

>objective was to eliminate the cravings and I have done that. I've

>just made substitutions of what I was already eating and so I never

>have to go hungry and I'm not counting anything. As always, I've

>done too many things at once to know which are really doing the

>trick, but I think the changes are all working together to clean up

>my system. My energy levels are to the point where I think I'll be

>able to start exercising this week. That's the plan anyway.

> >

> >

> >

> > Judy

> >

> > aka - I'm not lazy, I'm hypoactive

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

>30+ countries) for 2¢/min or less.

> >

>

>

>

>

>

>

>

>

>

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Guest guest

It is pretty here in Austin, Tx. It sounds like the pilates is

working for you. I have the Winsor pilates set......I liked doing

them but haven't in a while since weakened adrenals and exercise

don't like eachother much. I did 30 minutes on the treadmill

lastnight and lifted weights for about 10 minutes and today I am

kinda sore.

I'm working on getting my thyroid/adrenals healthy again. I have that

Metabolic Typing Diet book but when you eat that way, people start to

look at you as if you're taking it to the extreme....including

family. Now on the other hand ~ when we go out with my In Laws.my

Mother In Law always tells the waiter/waitress " I'll have whatever

she's having " . lol

Gotta love that woman!

Sue

>

> Hi Ally,

>

> I've only been to Austin once (about 4 years ago); but it reminded

me a

> lot of California -- lots of hills, and lots of rocks! [:D]

>

> As far as exercise, I try to walk for 45-60 minutes 4-5 times a

week and

> do Pilates at least twice a week (sometimes I also do the Pilates

> exercises while I'm watching TV). So far I have noticed that my

clothes

> are fitting more loosely and my arms and legs are getting slimmer

and

> have more definition to them. I also swim and do water exercises.

In

> the eating dept, I'm trying to eat fewer grains (and the ones I do

eat

> are whole and sprouted) and more green leafy vegetables. I also

have

> drastically reduced my intake of soda, except for the occasional

> specialty root beer (that contains real sugar instead of high-

fructose

> corn syrup -- we like Berghoff's which you can get at H-E-B). I

try to

> drink a gallon of water per day, too. I don't always succeed but

if I

> aim that high I usually end up drinking between 2-3 qts.

>

> Anyhoo, that's my 2 cents. *plink* *plink* [;)] I don't believe

in

> " one-size-fits-all " diets. Speaking of which, has anybody heard of

the

> Metabolic Typing diet?

>

> ~Chelle

>

>

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I got the Winsor Pilates set too, with the "sculpting circle". It's really great; but the thing with me is that I'll be doing really well with exercise for a while and then my joints and muscles will "make me pay" and that discourages me from exercising for quite a while. I need stamina, and I'm hoping the Armour will help with that.Oh by the way -- I finally got my Armour today! Yes, the doctor's office called me this afternoon to let me know that they had corrected the dosing error, and a couple of hours later I called Wal-Mart and my Rx was ready. So I've finally got my Armour! Woohoo!!! And it's real Armour, too -- I checked while I was still at Wal-Mart to make sure. Can't have them givin' me none o' that generic junk! So tomorrow morning I will begin my new life, Armour-enhanced. No, I don't expect to be transformed into Superwoman overnight. But you gotta start somewhere, right? Right!(Can you tell I'm just a tad excited? )>> It is pretty here in Austin, Tx. It sounds like the pilates is > working for you. I have the Winsor pilates set......I liked doing > them but haven't in a while since weakened adrenals and exercise > don't like eachother much. I did 30 minutes on the treadmill > lastnight and lifted weights for about 10 minutes and today I am > kinda sore.> > I'm working on getting my thyroid/adrenals healthy again. I have that > Metabolic Typing Diet book but when you eat that way, people start to > look at you as if you're taking it to the extreme....including > family. Now on the other hand ~ when we go out with my In Laws.my > Mother In Law always tells the waiter/waitress "I'll have whatever > she's having". lol> > Gotta love that woman!> > Sue

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Definitely!!! I'll probably give ya'll a weekly report, or however long from now it takes me to experience results. I hope I don't regret doing this.>> And I'm excited for you! Good luck with the new meds and be sure to tell us how you're doing... Judy

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  • 8 months later...
Guest guest

Dear Joni,

Well, if it looks like a duck and talks like a duck and sounds like a duck -

mmmmmm, could be a duck!

Doctors.... what part of the country do you live in? Check out the doctors

on the stills website and maybe you'll find a rhuemy that is open to a still's

diagnosis if that's what you have. But it sure sounds like Stills to me.

Sorry for the reason you found us, but hopefully finding us will help you a

lot! Good luck to you.

Carole in Hollywood FL

************************************** See what's free at http://www.aol.com.

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Joni,

Welcome to the group. And please know that it is my sincere wish that it NOT

be Still's, but like Carole said, it very well could be. What caught my

attention is that your RA factor is negative, which can throw some doctors off.

But in Still's, usually in the beginning at least, the RA factor is negative. I

know mine was.

I live in central KY, so we're practically neighbors! Hang in there and keep

insisting with your docs to find what's wrong!

Gail

JONI JORDAN wrote:

Hi all!

I am new to the group. I have not been diagnosed with Still's, but

found out about it while trying to find pictures of a rash that I

have. I have been to 3 different Rheumatologists. They all repeat the

same tests and my RA factor is negative. One was convinced the first

time that he saw me that I had RA. The next one said that " a lot

happens to women over 40 " , and when I showed the third one my rash

she thought it didn't have anything to do with my other symptoms. I

may or may not have Still's, but I think I'm on to something.

I have had joint problems for the last two years (perhaps before that

too). Everything started with a case of Shingles. Since then I have

had surgery on both wrists for capel tunnel.I have symptoms of RA,

but all tests are negative. At Chrismastime I started to noice a

rash. The doctor said that she didn't think the joint problems and

rash were connected. One day I started to look up " rashes with

Rheumatoid Arthritis " and all I could find were things realted to

JRA. Then I searched for adults with JRA and found out about

Still's.I just finfished a 10 day dose of Prednisone. Within a day my

rash was gone and I felt great. The swelling in my knees, ankles,

feet and the rash were gone. My knees still felt weak. I finshed my

last dose on Friday. Saturday night my rash started to come back.I

mentioned Still's disease to my doctor, and showed him pictures of a

child with a rash with JRA and the pictures of the adults with

Still's rash. He is now sending me to a dermatologist.When you look

up info about Still's, it almost always says that the rash does not

itch.I noticed that some do complain of the itching. My rash does

itch at times.I don't want to go back to any of the Rheumatoligists

that I have already seen.

Reading your posts helps me to find out about real people with

Still's, and not some check list of symptoms that determines if you

have Still's or not. As far as the fevers, I have had some at night,

but I just passed them off as hot flashes since I am a 48 year old

woman who hasn't started menopause yet.I always have a sore throat,

but I attributed that to alleriges.

I carry on fairly normal as of right now. I had a cortisone shot in

my wrists, but before that I felt like I couldn't use my hands. Does

it seem like I could have Still's? I do have at least 5 of the major

and minor symptoms, and 2-3 of the major.

Thanks for your time,

Joni Jordan

Visit me, your Kay Independent Beauty Consultant (10% of your order will be

donated to the International Still's Disease Foundation)

http://www.marykay.com/glmurphy

---------------------------------

Never miss an email again!

Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.

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Joni,

Yea, I think you might be on to something,,, A Dermatologist might not know jack

beans about Stills.. let alone most Rheumatoligists,, Good grief!! were the

Doctors young guys or old fogies? the reason I ask is most of the new Doctors

have learned in school about still's and the old fogies are out there beating a

stick at vodo dolls...LOL... This problem is very rare most Doctors never see

it ...Head to the nearest University Hospital/clinic. also check out

Mayoclinic.com upper right hand corner is the sites search area type in still's

disease another window will come up select #2 adulit stills disease and you

will find so much information it will take you an hour to sort through it all..

also there are some pictures on the rash on the stillsdisease.org web site. mine

was like poison ivory welted up but not very ichy just a wierd feeling and very

red.

I really hope this helps.

Good Luck...

Alan

Aloon905

ps. Welcome Aboard

New to the Group

Hi all!

I am new to the group. I have not been diagnosed with Still's, but

found out about it while trying to find pictures of a rash that I

have. I have been to 3 different Rheumatologists. They all repeat the

same tests and my RA factor is negative. One was convinced the first

time that he saw me that I had RA. The next one said that " a lot

happens to women over 40 " , and when I showed the third one my rash

she thought it didn't have anything to do with my other symptoms. I

may or may not have Still's, but I think I'm on to something.

I have had joint problems for the last two years (perhaps before that

too). Everything started with a case of Shingles. Since then I have

had surgery on both wrists for capel tunnel.I have symptoms of RA,

but all tests are negative. At Chrismastime I started to noice a

rash. The doctor said that she didn't think the joint problems and

rash were connected. One day I started to look up " rashes with

Rheumatoid Arthritis " and all I could find were things realted to

JRA. Then I searched for adults with JRA and found out about

Still's.I just finfished a 10 day dose of Prednisone. Within a day my

rash was gone and I felt great. The swelling in my knees, ankles,

feet and the rash were gone. My knees still felt weak. I finshed my

last dose on Friday. Saturday night my rash started to come back.I

mentioned Still's disease to my doctor, and showed him pictures of a

child with a rash with JRA and the pictures of the adults with

Still's rash. He is now sending me to a dermatologist.When you look

up info about Still's, it almost always says that the rash does not

itch.I noticed that some do complain of the itching. My rash does

itch at times.I don't want to go back to any of the Rheumatoligists

that I have already seen.

Reading your posts helps me to find out about real people with

Still's, and not some check list of symptoms that determines if you

have Still's or not. As far as the fevers, I have had some at night,

but I just passed them off as hot flashes since I am a 48 year old

woman who hasn't started menopause yet.I always have a sore throat,

but I attributed that to alleriges.

I carry on fairly normal as of right now. I had a cortisone shot in

my wrists, but before that I felt like I couldn't use my hands. Does

it seem like I could have Still's? I do have at least 5 of the major

and minor symptoms, and 2-3 of the major.

Thanks for your time,

Joni Jordan

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Guest guest

Well, I was really upset that after I mentioned Still's to my doctor he called

to send me a list of dermatologists.I have read that Still's is diagnosed after

other things are ruled out, so I decided to go. The one I went to did a biopsy

of the rash to determine the source. She made a follow up appointment for two

weeks to take my stitches out and go over the results.

I called the last Rheumatologist I saw and asked if she had noted the rash in

my chart from when I was there in January (she is a Nurse Practitioner for

Washington University Department of Rheumatology. It took me 6 months to get an

appointment there. I have been there twice, and only saw the doctor once for

less than 2 minutes. He was the one that repeated all the same tests the first

Rheumatologist ran). She said that she had, and I asked her if it could be

Still's disease. Immediately she told me to make a follow up appointment and she

would check my Ferritin level. So I guess we'll see where it goes from here.

Last night my husband was ready to take me to the emergency room because the

rash was really severe.I used a cortisone cream that the doctor had prescribed,

and it calmed down a little after awhile. Then I took benedryl to help me sleep.

Thanks for the support, and hopefully someone will figure something out soon.

My son and his wife are at the hospital right now. She is being induced, and we

are heading up there early this morning. I have to hide my rash, because if

people see it they might think I have something contagious! This is our second

grandchild. The first one is 4 months. Both girls, so they should be close.Our

life is crazy, because I still have two younger ones at home, ages 9 and 11.

They are thrilled to be an aunt and uncle at such a young age. That's the main

reason I need to figure out what's going on. I don't have time to be sick!! I

know that's how you all feel.

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  • 1 year later...
Guest guest

Sorry to hear your frustration, which is very understandable.But, you

know, I still think being a doctor who actually relates to my patients and works for

their health is the absolutely best, most noble job. It's still what I love

doing.When I think about it, I talk to people all day long, tell people

what I think, and get paid (whether " enough " is debatable, but I do get

paid) ...and, truth is, I like talking people, I like telling others what I

think, and I like getting paid.It's really pretty cool.And

patients tell great stories ... fellow this morning told me about being 15yrs old

and going to a Yankees World Series game ... ended up being Larson's perfect

game! He told me all about it. That was fun, plain and

simple. And, at the same time, he got his Pneumovax, Shingles vax,

increase of his lovastatin, US of abd aorta to screen for AAA and a skin check of

moles/SK. One hour later, next patient was seen. That was a cool appt

from top to bottom.In the end, I like what I do ... but, alas, I DO wish

the money was better, and not so hard to get from the insurance companies.TimOn Tue, April 22, 2008 12:47 pm

EDT, Gretchen Reis MD wrote:

I’m in the process of going from

noinsurance at all to taking 2 insurances (just to keep the practice

alive…notby choice, that’s for sureJ). I’m disheartened that Medicare

seems to be the best payerhere, too…the fee schedules all the way down

are almost all less thanMedicare (avg probably 90-95% of Medicare). The office

manager at my previouspractice often said Medicare was their best and quickest

payer.

I’d opt back in if I didn’thate the system so much (see ’s enlightening but depressing

graph...)I’ve resigned myself to working for such meager pay…but

it surewould be nice to get paid what we’re worth, don’t you

think? (I knew I should have gone

intodermatology!!)

Gretchen

Reis MD

Wellspring Family Medicine

Circleville, OH

From: [mailto: ] OnBehalf Of Locke's in ColoradoSent: Tuesday, April 22, 200812:11

PMTo: Subject: RE: New to the

group

Welcome to the group, Steve.

Would be interested in your thoughts onMedicare only, too.

I could see this approach if there was asteady increase in fees every year to make up for the cost of giving

care.

But if the fee schedule for Medicareremains flat (or goes down), won't you make less money every year...or at leastmake the same money every year -- which goes down in buying

power.

As it is, the fee schedule is about thesame as the early 1990's -- but the buying power of that 1991 dollar is a lotless.

Of course, from what Floridacolleagues

have said, Medicare is their BEST payor there -- so maybe sheddinglow paying

private insurances in Floridaleaves you with Medicare.

Will be interested to hear your take andhow it is working out for you.

Cheers

Locke, MD

[iMAGE REMOVED]

From:

[mailto: ]On Behalf Of Lowell

Kleinman, MDSent:

Monday, April 21, 2008 10:49AMTo:

Subject: RE:

New to the group

Medicare only? That's a switch. Why

have you done this?

Lowell Kleinman,MD

5601 Norris Canyon Rd.

Suite 340

San

Ramon, CA 94583

www.drkleinman.com

drkdrkleinman

From:

[mailto: ]

On Behalf Of drhorvitzSent: Monday, April 21,

2008 9:41 AMTo:

Subject:

New to the group

Hi All:Just came across your group recently.Seems pretty active.I have recently transitioned my solo practice to not accepting any insurance other than Medicare.So far it is working well.I

found that the third party system is as unsustainable as the last years

mortgage industry.There is change a coming and we need to be in front to

lead it.Do any of the docs on this list belong to SERMO?There are also interesting topics on Sermo similar to here.Steve

Horvitz, D.O.

---------------------------------------- Malia, MDMalia

Family Medicine & Skin Sense Laser6720 Pittsford-Palmyra Rd.Perinton

Square MallFairport, NY 14450 (phone / fax)www.relayhealth.com/doc/DrMaliawww.SkinSenseLaser.com--

Confidentiality Notice --This email message, including all the attachments, is

for the sole use of the intended recipient(s) and contains confidential information.

Unauthorized use or disclosure is prohibited. If you are not the intended recipient,

you may not use, disclose, copy or disseminate this information. If you are not the

intended recipient, please contact the sender immediately by reply email and destroy

all copies of the original message, including attachments.----------------------------------------

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  • 1 year later...
Guest guest

Have you taken him to see an endocrinologist to check growth hormone levels?

My son stopped growing between 6-9 months of age. It took to he was almost

3 yrs old for us to finally get someone to listen and a referral to an Ped.

Endocrinologist.

By that time, he was in the negative -25% for height and weight. They did a

blood test then a stim test and we found out he did not produce enough

Growth Hormone.

He is now 13 ½ yrs old and taller than me at 5 ft 4 in after 10 yrs of GH.

It was very frustrating trying to get the doctors to listen to me when I

would say BUT HE ISN’T GROWING!

Finally a kind neurologist took a look at his growth charts and said I

believe he has a growth hormone deficiency.

Check out the Magic Foundation website for more info on GHD.

http://www.magicfoundation.org/www/docs/108/growth_hormone_deficiency_in_chi

ldren.html

Donna(mom to Trevor, moderate BPNH-PMG, ACC, SOD, seizures, hydro,

allergies, PDD-NOS…………………..)

Virginia

_____

From: polymicrogyria [mailto:polymicrogyria ]

On Behalf Of Carly

Sent: Monday, April 27, 2009 12:52 PM

To: polymicrogyria

Subject: New to the group

....or at least I thought I was! LOL I just joined but after I started

looking around, I noticed that I added pics of my son to the photos page

back in '07, so apparently I *was* a member here before! :)

Anyway, I won't post the long version of our story again, but if you'd like

to hear it, its post 18239. Hehe.

A bit of an update to that post would be in order though, I guess (and I

guess I should update the photos too!).

My son's name is Bram and he'll be 4 next week. Our biggest concern at the

moment is his growth. He's so small that he's still rear-facing in his

carseat! LOL I knit and I've had to knit all of his shorts for the summer

because after he started potty learning, none of his bottoms fit anymore

without the fluffy cloth diaper to hold them up. We did try him on Pediasure

back in Sept. of '07, but he just kept throwing it up. He never had a

problem without keeping anything else down but once I looked at the

ingredient list and saw that the second ingredient was SUGAR, I no longer

wondered why. He IS growing, just very slowly. He's gained about 2 and half

pounds since my last post hear a year and a half ago. Our other concern

would be his stubborn feet. He has AMC as well and while we haven't had a

problem keeping the rest of his legs straight, his feet just keep tightening

back up. I'm afraid we might have to try more casting, but I dread casting a

4 year old.

Anyway, thanks for reading! I'm looking forward to getting to know you all.

:)

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  • 4 months later...

Hi There... welcome to Sydband.

We will help you if we can, but yes, a dietitan is a good idea if you can find one that you can work with and who also knows about banding.

Your weight loss so far is brilliant... hang in there, it will be ok once you get back onto the right track with what you can and can't eat.

Mel

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Hi and welcome

Sorry to hear your doc didn't give you info on post banding i wouldn't have been able to work out what i could/not eat.

If your in the Penrith or surrounding area I would love to catch up with you and grab a cuppa or something ;)

Shell

New to the group

I have just joined your group and have never posted before, so just getting used to it all. I was banded in Feb 09 and have so far lost 27kgs. Going really slow for the last 6 weeks or so. My surgeon is not the most helpful and has not given me any information at all about post op eating etc. I have only learnt by going online. Im stuggling a bit at the moment so I decided to make an appointment with a dietition in hope that it helps with the weight loss and getting a more balanced diet (and not eating junk because it goes down easier). Im going to see her tomorrow evening at Castle Hill. I would love to meet up with anyone from aroung my area for some extra support and understanding... Im from Western Sydney.

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Hi thereThat is really irresponsible that you havent been given some diet guidelines for post op... hmmm. Hope you were able to get thru okay all that time! I guess now you need to focus on getting yourself into a good eating program so you can concentrate on losing weight. I know its hard finding things to eat so I am pleased you are going to a dietician that that is part of the banding way of life - I hope they are able to shed some light and give you some points on eating. I am in Sydenham - happy to meet up with you for a coffee and a chat.

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Hi Shell,

It was difficult but my cousins and a friend all had the surgery prior to me, so

they helped me out a little.

I live in the Penrith area and work in Seven Hills so that would be

great.

Thanks

>

> Hi and welcome

>

> Sorry to hear your doc didn't give you info on post banding i wouldn't have

been able to work out what i could/not eat.

>

> If your in the Penrith or surrounding area I would love to catch up with you

and grab a cuppa or something ;)

>

> Shell

> New to the group

>

>

> I have just joined your group and have never posted before, so just

getting used to it all. I was banded in Feb 09 and have so far lost 27kgs. Going

really slow for the last 6 weeks or so.

>

> My surgeon is not the most helpful and has not given me any information at

all about post op eating etc. I have only learnt by going online. Im stuggling a

bit at the moment so I decided to make an appointment with a dietition in hope

that it helps with the weight loss and getting a more balanced diet (and not

eating junk because it goes down easier). Im going to see her tomorrow evening

at Castle Hill.

>

> I would love to meet up with anyone from aroung my area for some extra

support and understanding... Im from Western Sydney.

>

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that's good you had some idea through people who had it before. Doctor (my surgeon) gave me heaps of information and i was still lost but that's me being blonde LOL.

I work from home so any time you want to catch up would be fine by me (I do Avon and look for work stupid recession LOL)

Shell

New to the group> > > I have just joined your group and have never posted before, so just getting used to it all. I was banded in Feb 09 and have so far lost 27kgs. Going really slow for the last 6 weeks or so. > > My surgeon is not the most helpful and has not given me any information at all about post op eating etc. I have only learnt by going online. Im stuggling a bit at the moment so I decided to make an appointment with a dietition in hope that it helps with the weight loss and getting a more balanced diet (and not eating junk because it goes down easier). Im going to see her tomorrow evening at Castle Hill. > > I would love to meet up with anyone from aroung my area for some extra support and understanding... Im from Western Sydney.>

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Hi, hope your meeting with the dietian went well, i also live out west in old mt druitt and am happy to meet up with you for a coffee and chat,

Regards

Barbara

Subject: New to the groupTo: SydBand Received: Monday, 21 September, 2009, 2:29 PM

I have just joined your group and have never posted before, so just getting used to it all. I was banded in Feb 09 and have so far lost 27kgs. Going really slow for the last 6 weeks or so. My surgeon is not the most helpful and has not given me any information at all about post op eating etc. I have only learnt by going online. Im stuggling a bit at the moment so I decided to make an appointment with a dietition in hope that it helps with the weight loss and getting a more balanced diet (and not eating junk because it goes down easier). Im going to see her tomorrow evening at Castle Hill. I would love to meet up with anyone from aroung my area for some extra support and understanding. .. Im from Western Sydney.

Get more done like never before with Yahoo!7 Mail. Learn more.

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  • 2 years later...

Hi Arwen,

Our insurance is a PPO. We have not had any problems with being able to see the

specialist that we chose to use. We have been able to see specialist in other

states than the one we live in. With the PPO we haven't had to deal with

getting specialists authorized to see. He sees a neurologist, orthopedist,

nuero-opthomologist, developmental pediatrician, and receives private OT, PT,

and speech. So far (over 4+ years), we have not been denied to see any

specialist/ therapist. We have been denied something essential- DAFOs (leg

braces). Whether you decide on a HMO or PPO, I would recommend if you can

afford to do so, that you pay a higher premium to have a lower deductible. I

don't want to be a downer, but the medical bills will add up quickly.

Most seizure medications come in generic form. My son is on a name brand

medication due it not being available in generic form when he started it. You

can find info about seizures and medications on the Epilepsy Foundation page.

Wish you the best in your move and search for insurance.

Sent from my iPhone

> Hello everybody,

> My daughter Kiri was recently diagnosed with PMG and microcephaly. She is

seven months old. I have a couple questions I was hoping some of you might be

able to offer advice on.

>

> My husband and I are living and working abroad but will be moving home to

California in a month to get better access to therapies for K. We're looking at

different insurance options and are trying to find the best fit. We currently

have international insurance but we'll need something more thorough when we get

home. How regularly do you take your children in for doctor's visits? Would

anyone recommend an HMO or is a PPO better for flexibility in finding better PMG

specialists? I'm unsure what sort of plan to look for because I'm not sure what

sort of care she will be needing. She hasn't had any identified seizures yet,

but we have had an EEG done and she is definitely at risk. Are most seizure

medications generic or are they mostly name-brand drugs?

>

> We have lots to figure out, obviously. Thanks so much for any help you can

give us.

>

> - Arwen

>

>

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