Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 My son drooled like a st Bernard all of his life. We did not know of his diagnosis of PMG until he was four because we thought it was due to his chromosome abnormality. It turned out he was also aspirating. Drooling was a HUGE sign that he did not have enough muscle control to control the excessive saliva. I've never seen a typical child drool like that. I have a 2 year old now that has never drooled even while teething. He had constant upper respiratory infections starting at 3 when he went to pre school. It never dawned on any of his dr's or therapist that he could be aspirating. Looking back its so obvious and is truly scary how kids slip threw the cracks. He is in therapy now for aspirating. He is getting something called Vitalstim. You can see videos of it on utube. We think it is helping he is less gurgly sounding when he drinks. To: polymicrogyria From: melrush75@... Date: Wed, 9 Mar 2011 14:21:27 +0000 Subject: drooling questions My son is almost a year. He has bilateral frontoparietal polymicrogyria. I've seen a lot of posts about drooling. I'm wondering at what point/age or how you knew the excessive drooling was because of the PMG and not due to normal baby/toddler development. Luke is a drooling MACHINE! It's like a faucet:) Our OT said it could be because of some low tone in his jaw but she's not for sure. We have a neuro appt. coming up and I wanted to be armed with some info from others experiences so I know if this is something we should already be dealing with or not. Thanks so much! Mel - mom to Luke, just shy of a year, BFPP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Hi Mel, My son Finlay is nearly 10 and is still having drooling problems. It gets worse with teething and he is currently growing his adult teeth, so we are in a bad time. However, we decided not to medicate and have made a large number of triangular bibs which we change regularly throughout the day. They look a bit like a neckerchief and are not too obvious. Annelies Mum to Gregor (12), Finlay (9, BFPP) and Rowan (5) [Norton AntiSpam] drooling questions My son is almost a year. He has bilateral frontoparietal polymicrogyria. I've seen a lot of posts about drooling. I'm wondering at what point/age or how you knew the excessive drooling was because of the PMG and not due to normal baby/toddler development. Luke is a drooling MACHINE! It's like a faucet:) Our OT said it could be because of some low tone in his jaw but she's not for sure. We have a neuro appt. coming up and I wanted to be armed with some info from others experiences so I know if this is something we should already be dealing with or not. Thanks so much! Mel - mom to Luke, just shy of a year, BFPP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Riley was diagnosed at 2 1/2 but she was always a drooler. She had trouble with drinking and the liquid would come out of the sides of her cup--We didn't connect it all until she was diagnosed. Do you have a speech therapist? She/he would be a great person to discuss the issue with. christina To: polymicrogyria From: melrush75@... Date: Wed, 9 Mar 2011 14:21:27 +0000 Subject: drooling questions My son is almost a year. He has bilateral frontoparietal polymicrogyria. I've seen a lot of posts about drooling. I'm wondering at what point/age or how you knew the excessive drooling was because of the PMG and not due to normal baby/toddler development. Luke is a drooling MACHINE! It's like a faucet:) Our OT said it could be because of some low tone in his jaw but she's not for sure. We have a neuro appt. coming up and I wanted to be armed with some info from others experiences so I know if this is something we should already be dealing with or not. Thanks so much! Mel - mom to Luke, just shy of a year, BFPP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Thanks everyone. - What do you do for that? It sounds exactly like Luke. He can suck from a straw and drink from a sippy but most of it is lost out of the sides of his mouth. I'm trying to transition him to a cup w/ whole milk but I think he's losing a lot. He does ok with his bottle. We don't have a speech therapist yet. On Wed, Mar 9, 2011 at 11:05 AM, Doyle wrote: > > Riley was diagnosed at 2 1/2 but she was always a drooler. She had trouble > with drinking and the liquid would come out of the sides of her cup--We > didn't connect it all until she was diagnosed. Do you have a speech > therapist? She/he would be a great person to discuss the issue with. > christina > > > > To: polymicrogyria > From: melrush75@... > Date: Wed, 9 Mar 2011 14:21:27 +0000 > Subject: drooling questions > > > > > > > My son is almost a year. He has bilateral frontoparietal polymicrogyria. > I've seen a lot of posts about drooling. I'm wondering at what point/age or > how you knew the excessive drooling was because of the PMG and not due to > normal baby/toddler development. Luke is a drooling MACHINE! It's like a > faucet:) Our OT said it could be because of some low tone in his jaw but > she's not for sure. We have a neuro appt. coming up and I wanted to be armed > with some info from others experiences so I know if this is something we > should already be dealing with or not. > Thanks so much! > Mel - mom to Luke, just shy of a year, BFPP > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Riley is now 10 and has bilateral perisylvian syndrome. We got a speech therapist when she was 18 months old to work with swallow issues--it was prior to her diagnosis but I am a dietitian so I was able to realize that this wasn't right and got a speech therapist working early. Our speech therapist recommended continuing with a straw. Riley also had no problems with growth so she was getting enough nutrition. So if he is growing normally I wouldn't be as concerned with nutrition. If you can, try and get a speech consult. For Riley early intervention with speech and swallow was key to how well she is doing now. christina To: polymicrogyria From: melrush75@... Date: Wed, 9 Mar 2011 11:11:40 -0600 Subject: Re: drooling questions Thanks everyone. - What do you do for that? It sounds exactly like Luke. He can suck from a straw and drink from a sippy but most of it is lost out of the sides of his mouth. I'm trying to transition him to a cup w/ whole milk but I think he's losing a lot. He does ok with his bottle. We don't have a speech therapist yet. On Wed, Mar 9, 2011 at 11:05 AM, Doyle wrote: > > Riley was diagnosed at 2 1/2 but she was always a drooler. She had trouble > with drinking and the liquid would come out of the sides of her cup--We > didn't connect it all until she was diagnosed. Do you have a speech > therapist? She/he would be a great person to discuss the issue with. > christina > > > > To: polymicrogyria > From: melrush75@... > Date: Wed, 9 Mar 2011 14:21:27 +0000 > Subject: drooling questions > > > > > > > My son is almost a year. He has bilateral frontoparietal polymicrogyria. > I've seen a lot of posts about drooling. I'm wondering at what point/age or > how you knew the excessive drooling was because of the PMG and not due to > normal baby/toddler development. Luke is a drooling MACHINE! It's like a > faucet:) Our OT said it could be because of some low tone in his jaw but > she's not for sure. We have a neuro appt. coming up and I wanted to be armed > with some info from others experiences so I know if this is something we > should already be dealing with or not. > Thanks so much! > Mel - mom to Luke, just shy of a year, BFPP > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 You can strengthen oral muscles with sucking apple sauce or ice cream diane drooling questions > > > > > > > My son is almost a year. He has bilateral frontoparietal polymicrogyria. > I've seen a lot of posts about drooling. I'm wond Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 I'm not sure if my reply posted so I'll resend. Sorry if its a repeat. My son drooled like a st Bernard all of his life. We did not know of his diagnosis of PMG until he was four because we thought it was due to his chromosome abnormality. It turned out he was also aspirating. Drooling was a HUGE sign that he did not have enough muscle control to control the excessive saliva. I've never seen a typical child drool like that. I have a 2 year old now that has never drooled even while teething. He had constant upper respiratory infections starting at 3 when he went to pre school. It never dawned on any of his dr's or therapist that he could be aspirating. Looking back its so obvious and is truly scary how kids slip threw the cracks. He is in therapy now for aspirating. He is getting something called Vitalstim. You can see videos of it on utube. We think it is helping he is less gurgly sounding when he drinks. I would get a barium swallow study done just to be sure. It seems like a lot of people have very young kids on here. We learned the hard way. > > > > > Riley was diagnosed at 2 1/2 but she was always a drooler. She had trouble > > with drinking and the liquid would come out of the sides of her cup--We > > didn't connect it all until she was diagnosed. Do you have a speech > > therapist? She/he would be a great person to discuss the issue with. > > christina > > > > > > > > To: polymicrogyria > > From: melrush75@... > > Date: Wed, 9 Mar 2011 14:21:27 +0000 > > Subject: drooling questions > > > > > > > > > > > > > > My son is almost a year. He has bilateral frontoparietal polymicrogyria. > > I've seen a lot of posts about drooling. I'm wond > Quote Link to comment Share on other sites More sharing options...
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