Guest guest Posted October 20, 2011 Report Share Posted October 20, 2011 Hi I've just spoken to our epilepsy nurse and confirmed a date to meet our neurosurgeon and neurologist. Jenna, my one year daughter has right-sided PMG, 15+spams daily plus absenses, jerks etc, severly sight impaired and slightly low tone in her trunk and left side. I'm hoping maybe as parents and family members of PMG kids if you have any advice on what questions i could ask at the meeting. I'll probably take my mum with me but i'd like someone else's perspective who's situation is similar. Thanks Katy (and Jenna :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2011 Report Share Posted October 20, 2011 Katy We did surgery in August. Where are you having yours? Sent from my iPhone > Hi > > I've just spoken to our epilepsy nurse and confirmed a date to meet our neurosurgeon and neurologist. Jenna, my one year daughter has right-sided PMG, 15+spams daily plus absenses, jerks etc, severly sight impaired and slightly low tone in her trunk and left side. > > I'm hoping maybe as parents and family members of PMG kids if you have any advice on what questions i could ask at the meeting. I'll probably take my mum with me but i'd like someone else's perspective who's situation is similar. > > Thanks > > Katy (and Jenna :-) > > Quote Link to comment Share on other sites More sharing options...
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