Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 *Ahh.. we are struggling with the same issue but Brie doesn't have full control of her head yet. She is getting there, but last week we were coming back from her appt and I told my daughter that I couldn't find Brie's head! We pulled over, and her head had fallen over the side of the seat! We did ask her physiatrist about it, and apparently there are adaptive car seats or some contraption that adapts to regular car seats maybe? We have a follow up appt this month to get more info, but it sure makes me nervous in the mean time. She is still in the weight limit for the carrier but not the length and she is almost at the max weight. * * * *Hopefully someone else here, knows more about it than we do!* * * * * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 We have the Snug Seat Travelier Plus by Britax for special needs. Its amazing. We want to donate it locally because it is so heavy, I cannot ship it. I think its nearly 30LBS. ________________________________ To: polymicrogyria Sent: Thursday, March 8, 2012 8:09 PM Subject: Car seat  Is anyone using a regular car seat? My son will soon outgrow his infant seat. He has good head control, but still working on it. He is not sitting up yet and he has a small head for his age. Finding a car seat has been difficult. Any suggestions? Thank you, Julissa Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 *I'm sure it could be shipped via UPS. And I for one, would be happy to pay for the shipping to have it! But Julissa posted first:) * On Thu, Mar 8, 2012 at 11:19 PM, Aranda < vanessa.aranda0311@...> wrote: > ** > > > We have the Snug Seat Travelier Plus by Britax for special needs. Its > amazing. We want to donate it locally because it is so heavy, I cannot > ship it. I think its nearly 30LBS. > > ________________________________ > > To: polymicrogyria > Sent: Thursday, March 8, 2012 8:09 PM > Subject: Car seat > > > > Is anyone using a regular car seat? My son will soon outgrow his infant > seat. He has good head control, but still working on it. He is not sitting > up yet and he has a small head for his age. Finding a car seat has been > difficult. Any suggestions? Thank you, Julissa > > Sent from my iPad > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Sorry! Where are you? Sent from my iPad > *I'm sure it could be shipped via UPS. And I for one, would be happy to pay > for the shipping to have it! But Julissa posted first:) > * > On Thu, Mar 8, 2012 at 11:19 PM, Aranda < > vanessa.aranda0311@...> wrote: > >> ** >> >> >> We have the Snug Seat Travelier Plus by Britax for special needs. Its >> amazing. We want to donate it locally because it is so heavy, I cannot >> ship it. I think its nearly 30LBS. >> >> ________________________________ >> >> To: polymicrogyria >> Sent: Thursday, March 8, 2012 8:09 PM >> Subject: Car seat >> >> >> >> Is anyone using a regular car seat? My son will soon outgrow his infant >> seat. He has good head control, but still working on it. He is not sitting >> up yet and he has a small head for his age. Finding a car seat has been >> difficult. Any suggestions? Thank you, Julissa >> >> Sent from my iPad >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 *If Julissa isn't interested, I certainly would be. I would need final approval from my daughter and they are on a cruise but I should hear from there soon. I could definitely pay for the shipping via paypal. Just let me know:) * On Thu, Mar 8, 2012 at 11:46 PM, Aranda < vanessa.aranda0311@...> wrote: > ** > > > The head space is extra wide, but it originally came with padding inserts > to prevent head falling, which we no longer have. We had this seat covered > partially by insurance since it is a medical necessity. > > I live in Santa Cruz, California. If someone wants it, please let me > know. I can ship it but Ill need your address and for you to paypal me the > shipping cost. My email is vanessa.aranda0311@.... It will likely > be around $50-60 dollars to ship Im guessing, its absolutely HUGE and very > very heavy! > > ________________________________ > > To: " polymicrogyria " <polymicrogyria > > Sent: Thursday, March 8, 2012 8:31 PM > Subject: Re: Car seat > > > > Sorry! Where are you? > > Sent from my iPad > > > > > *I'm sure it could be shipped via UPS. And I for one, would be happy to > pay > > for the shipping to have it! But Julissa posted first:) > > * > > On Thu, Mar 8, 2012 at 11:19 PM, Aranda < > > vanessa.aranda0311@...> wrote: > > > >> ** > >> > >> > >> We have the Snug Seat Travelier Plus by Britax for special needs. Its > >> amazing. We want to donate it locally because it is so heavy, I cannot > >> ship it. I think its nearly 30LBS. > >> > >> ________________________________ > >> > >> To: polymicrogyria > >> Sent: Thursday, March 8, 2012 8:09 PM > >> Subject: Car seat > >> > >> > >> > >> Is anyone using a regular car seat? My son will soon outgrow his infant > >> seat. He has good head control, but still working on it. He is not > sitting > >> up yet and he has a small head for his age. Finding a car seat has been > >> difficult. Any suggestions? Thank you, Julissa > >> > >> Sent from my iPad > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 I'm having exactly the same problem, we are using a good solid car seat that has good padding, but her head has fallen out to the side a couple of times. I'm also talking to the services here to try and get some help, no luck so far. I have ended up padding the sides with cloth nappies and a sleeping wedge, not the best but has worked so far, but I worry if we were in even a minor accident where I had to slam on the brakes, how would her head handle it. Bit of a worry. I hope they can come up with something! ________________________________ To: polymicrogyria Sent: Friday, 9 March 2012 5:15 PM Subject: Re: Car seat  *Ahh... we are struggling with the same issue but Brie doesn't have full control of her head yet. She is getting there, but last week we were coming back from her appt and I told my daughter that I couldn't find Brie's head! We pulled over, and her head had fallen over the side of the seat! We did ask her physiatrist about it, and apparently there are adaptive car seats or some contraption that adapts to regular car seats maybe? We have a follow up appt this month to get more info, but it sure makes me nervous in the mean time. She is still in the weight limit for the carrier but not the length and she is almost at the max weight. * * * *Hopefully someone else here, knows more about it than we do!* * * * * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 http://www.snuggingo.com/snuggingo/Home.html Found this and thought it was interesting. Anyone tried it? Julissa Sent from my iPad > I'm having exactly the same problem, we are using a good solid car seat that has good padding, but her head has fallen out to the side a couple of times. I'm also talking to the services here to try and get some help, no luck so far. I have ended up padding the sides with cloth nappies and a sleeping wedge, not the best but has worked so far, but I worry if we were in even a minor accident where I had to slam on the brakes, how would her head handle it. > > Bit of a worry. I hope they can come up with something! > > ________________________________ > > To: polymicrogyria > Sent: Friday, 9 March 2012 5:15 PM > Subject: Re: Car seat > > > > *Ahh... we are struggling with the same issue but Brie doesn't have full > control of her head yet. She is getting there, but last week we were coming > back from her appt and I told my daughter that I couldn't find Brie's head! > We pulled over, and her head had fallen over the side of the seat! We > did ask her physiatrist about it, and apparently there are adaptive car > seats or some contraption that adapts to regular car seats maybe? We have a > follow up appt this month to get more info, but it sure makes me nervous in > the mean time. She is still in the weight limit for the carrier but not the > length and she is almost at the max weight. * > * > * > *Hopefully someone else here, knows more about it than we do!* > * > * > * > * > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 I have having the same problem with my daughter. She is 10 months old, and has macrocephaly. Her head control is ok...but not great! I just tried to put her in my sons old car seat, graco 365, but her head completely falls to one side. We have a great program at our Children's hospital where we can take her in & they find a carseat that will properly fit her & thats for special needs children, & will install it! Maybe check with your local children's hospital to see if they have a similar program...? Sent from my iPad > I'm curious, too. Has anyone tried this in a stroller or high chair. > > Karla > > Sent from my iPad > > > > > http://www.snuggingo.com/snuggingo/Home.html > > > > Found this and thought it was interesting. Anyone tried it? Julissa > > > > Sent from my iPad > > > > > > > > > I'm having exactly the same problem, we are using a good solid car seat that has good padding, but her head has fallen out to the side a couple of times. I'm also talking to the services here to try and get some help, no luck so far. I have ended up padding the sides with cloth nappies and a sleeping wedge, not the best but has worked so far, but I worry if we were in even a minor accident where I had to slam on the brakes, how would her head handle it. > > > > > > Bit of a worry. I hope they can come up with something! > > > > > > ________________________________ > > > > > > To: polymicrogyria > > > Sent: Friday, 9 March 2012 5:15 PM > > > Subject: Re: Car seat > > > > > > > > > > > > *Ahh... we are struggling with the same issue but Brie doesn't have full > > > control of her head yet. She is getting there, but last week we were coming > > > back from her appt and I told my daughter that I couldn't find Brie's head! > > > We pulled over, and her head had fallen over the side of the seat! We > > > did ask her physiatrist about it, and apparently there are adaptive car > > > seats or some contraption that adapts to regular car seats maybe? We have a > > > follow up appt this month to get more info, but it sure makes me nervous in > > > the mean time. She is still in the weight limit for the carrier but not the > > > length and she is almost at the max weight. * > > > * > > > * > > > *Hopefully someone else here, knows more about it than we do!* > > > * > > > * > > > * > > > * > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 The Sleepytime Headrest has served us well! http://www.childrensheadrest.com/ and Carver Hickory, NC From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of Kat Reid Sent: Friday, March 09, 2012 12:33 AM To: polymicrogyria Subject: Re: Re: Car seat I'm having exactly the same problem, we are using a good solid car seat that has good padding, but her head has fallen out to the side a couple of times. I'm also talking to the services here to try and get some help, no luck so far. I have ended up padding the sides with cloth nappies and a sleeping wedge, not the best but has worked so far, but I worry if we were in even a minor accident where I had to slam on the brakes, how would her head handle it. Bit of a worry. I hope they can come up with something! ________________________________ From: Catrina Byrge <catrina1118@... <mailto:catrina1118%40gmail.com> > To: polymicrogyria <mailto:polymicrogyria%40yahoogroups.com> Sent: Friday, 9 March 2012 5:15 PM Subject: Re: Car seat *Ahh... we are struggling with the same issue but Brie doesn't have full control of her head yet. She is getting there, but last week we were coming back from her appt and I told my daughter that I couldn't find Brie's head! We pulled over, and her head had fallen over the side of the seat! We did ask her physiatrist about it, and apparently there are adaptive car seats or some contraption that adapts to regular car seats maybe? We have a follow up appt this month to get more info, but it sure makes me nervous in the mean time. She is still in the weight limit for the carrier but not the length and she is almost at the max weight. * * * *Hopefully someone else here, knows more about it than we do!* * * * * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Yes, the Travel can seat up to 105 lbs. and Carver Hickory, NC Car seat Is anyone using a regular car seat? My son will soon outgrow his infant seat. He has good head control, but still working on it. He is not sitting up yet and he has a small head for his age. Finding a car seat has been difficult. Any suggestions? Thank you, Julissa Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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