Guest guest Posted October 16, 2011 Report Share Posted October 16, 2011 Lina, How about I answer for you? She is normal for her -- and that is all that matters. I know the frustration you are going through, because I do it all the time. Every little twitch, a far off look, any of those could mean a seizure.....but, you know what, I've just decided that what is going to happen is going to happen. We can't change it. It's like a flow of rapids -- we are just along for the ride and to keep from crashing into the big rocks. So hold on, and go with it! R. Holman PADI OWSI #193832 Subject: Bored To: polymicrogyria Date: Sunday, October 16, 2011, 2:57 AM  Dear all, Am bored of asking myself everyday about any single movement of Lana " is this normal " I don't want to ask this frustrating question everyday. I promised myself not to ask it again!! She is normal but in deferent standards!!!! Regards, Lina Mother of Lana, 12 months in Oct 21 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2011 Report Share Posted October 16, 2011 That was great advise ! Very positive.  Bonnie (grandmother to Lindsey, 9 YO/W/PMG) ________________________________ To: polymicrogyria Sent: Sunday, October 16, 2011 8:01 AM Subject: Re: Bored  Lina, How about I answer for you? She is normal for her -- and that is all that matters. I know the frustration you are going through, because I do it all the time. Every little twitch, a far off look, any of those could mean a seizure.....but, you know what, I've just decided that what is going to happen is going to happen. We can't change it. It's like a flow of rapids -- we are just along for the ride and to keep from crashing into the big rocks. So hold on, and go with it! R. Holman PADI OWSI #193832 Subject: Bored To: polymicrogyria Date: Sunday, October 16, 2011, 2:57 AM  Dear all, Am bored of asking myself everyday about any single movement of Lana " is this normal " I don't want to ask this frustrating question everyday. I promised myself not to ask it again!! She is normal but in deferent standards!!!! Regards, Lina Mother of Lana, 12 months in Oct 21 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2011 Report Share Posted October 16, 2011 Bonnie, I don't know about positive, but I do not it is what gets me through. Cause there are days when I am TIRED...exhausted...but then I think of the alternative. What if we didn't have these children?? And, with seizures and everything else, that is a real thought......From that I have figured out my own way of coping...... R. Holman PADI OWSI #193832 Subject: Bored To: polymicrogyria Date: Sunday, October 16, 2011, 2:57 AM  Dear all, Am bored of asking myself everyday about any single movement of Lana " is this normal " I don't want to ask this frustrating question everyday. I promised myself not to ask it again!! She is normal but in deferent standards!!!! Regards, Lina Mother of Lana, 12 months in Oct 21 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2011 Report Share Posted October 17, 2011 Hi Lina, I totally know what you mean. I think I'm kind of over the constant study of my son at this point but I did probably spend the first 12 months at least watching everything he did and wondering the same thing. He's 19 months and doing amazing right now, throughout his many medical issues. But I constantly need to remind myself to take it all one day at a time. And like said, I try to appreciate all that he can do, which luckily for us is a lot. It's also tricky because he has an older sister who was quite ahead of her curve so my " normal " training was the opposite of what I'm dealing with now. Patience and full excitement at every milestone met is what I'm working on right now. Shari > > Dear all, > > Am bored of asking myself everyday about any single movement of Lana " is this normal " I don't want to ask this frustrating question everyday. > I promised myself not to ask it again!! > She is normal but in deferent standards!!!! > > Regards, > Lina > Mother of Lana, 12 months in Oct 21 > Quote Link to comment Share on other sites More sharing options...
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