Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 (((Miriam))) If or when you're ready to talk more, I'd be interested to hear what else went on in your appointment and how you plan to change things for Wyatt with your local medical care. Blessings to you, > ** > > > We just saw Dobyns on June 16. He is a nice guy, he explained to us that > Wyatt has the rarest form of PMG. (Don't ask me what it is because I don't > remember.) > He went on to explain to me that although I live in Salt Lake and we have > one of the best hospitals in the states Wyatt has been medically neglected. > If they would have paid more attention they would have realized that many of > Wyatt's symptoms have nothing to do with his PMG. I had always known that > Wyatt was getting the short end of the stick, I just had never expected a dr > to say it... > Sorry I wish I had more to say, but at this point we are still trying to > digest the conversation. I just feel like I'm running out of energy. > Miriam-mother of Wyatt PMG, g-tube, wheelchair, seizures, vision problems > > > -- Out of the Gray Serving caregivers who give their all. Donate here: http://stylewithpurpose.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
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