Re: Anyone in VA Beach or Dallas?

[Guest guest]

No to VA Beach, Va area.

Not much for our children with special needs here.

Donna (mom to Trevor, 16 yrs old BPNH+PMG, seizures, ect.)

Chesapeake, VA

From: polymicrogyria [mailto:polymicrogyria ]

On Behalf Of hssdcali

Sent: Wednesday, February 29, 2012 1:55 PM

To: polymicrogyria

Subject: Anyone in VA Beach or Dallas?

Hi,

We are considering relocating to Virginia Beach, VA or Dallas, TX which

would be a big move for us. I am doing some research on doctors, etc. Does

anyone live in either of these cities and have any input on doctors and the

amount of programs available? We have been blessed to have some good, very

proactive doctors and support from early intervention programs and would

want that to continue.

Thanks!

_____

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[Guest guest]

I'm in Ft. Worth, which is about 30 miles east of Dallas. We moved here about a

year and a half ago from Houston.

Hospital wise, it ain't Houston. Dallas has one main pediatric hospital, Dallas

Children's, and Ft. Worth has Cook Children's. I've been pretty happy with

Cook's, but may check out Dallas in the future. There is also ish Rite,

which is kind of like Shriner's Hospitals, in that all the care is free if your

child qualifies. I've heard that they are excellent, that the doctors they get

are VERY good, BUT, you have to apply and be accepted. Their main concentration

is orthopedic issues, so you have to get in with a scoliosis or something, and

then go from there. They denied Maureen based on the fact that they " didn't see

enough potential for improvement " with her orthopedic issues.

I always keep Houston in my back pocket. It's about a 4 hour drive away, so if

there were ever anything we needed to go to the " best of the best " I'd make the

drive down there. We did make the drive down there to get Maureen started on

the ketogenic diet, because our neuro down there was especially good, and

studied under Dr. Dobyns. But obviously, for emergencies and acute care, we

have to have a network up here, so I'm still working on that.

Government benefits-wise, I've heard really high praise for TX. I don't know

any better, since we've lived here since Maureen was born, but I have to say we

haven't had too many difficulties. I just met a mom the other day who moved

here from Arizona, and she said Texas is way better than AZ for benefits. There

are several waiver programs that can be applied for. We got one, which

qualified Maureen for Medicaid, and it's been pretty easy since then. Medicaid

is MAGIC. They cover everything, her formula, her diapers, pretty much all the

equipment we've ordered so far, her home nursing. There are even programs to

reimburse your mileage for driving to appointments, and sometimes to reimburse

you food expenses for hospital stays.

Feel free to ask anything I've forgotten.

-c-

To: polymicrogyria

From: hjlsanders@...

Date: Wed, 29 Feb 2012 18:54:55 +0000

Subject: Anyone in VA Beach or Dallas?

Hi,

We are considering relocating to Virginia Beach, VA or Dallas, TX which would be

a big move for us. I am doing some research on doctors, etc. Does anyone live in

either of these cities and have any input on doctors and the amount of programs

available? We have been blessed to have some good, very proactive doctors and

support from early intervention programs and would want that to continue.

Thanks!

[Guest guest]

We are also in dallas texas and see a neurologist at childrens

Also get eci which is a great help

Sent via my Samsung Galaxy Prevail from Boost Mobile

and Kent wrote:

>We are in Dallas and have been pleased with our pediatric neurologist

>and therapy providers. Feel free to e-mail me directly for specific

>questions.

>, mother of Eva (8, unilateral PMG)

>

>

>>

>> Hi,

>> We are considering relocating to Virginia Beach, VA or Dallas, TX

>> which would be a big move for us. I am doing some research on doctors,

>> etc. Does anyone live in either of these cities and have any input on

>> doctors and the amount of programs available? We have been blessed to

>> have some good, very proactive doctors and support from early

>> intervention programs and would want that to continue.

>>

>> Thanks!

>>

>>

>

>

>