Polymicrogyria (Never Give Up)

[Guest guest]

Hi Everyone,

I do not typically post to this group, however, I do read what others write.

My youngest son has bilateral perisylvian polymicrogyria. We did not

get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

he was an infant the Dr.’s told us that he would never walk, talk, have

severe learning/cognitive impairments, and would require a feeding tube at

some point. is a blessing and continues to mystify the Dr.’s with

progress.

Below is a link that I put together of him, that I hope will give hope to

families who are walking a similar journey to us:

Koyshman

Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)