Guest guest Posted October 4, 2011 Report Share Posted October 4, 2011 My daughter a was just recently diagnosed in the past week with a fever of unknown origin. She has been running a temp. since the beginning of July. Strangely she only has this temp during the day. It ranges from 100.3, 100.4, 100.6, 100.9 and sometimes even 102.9. The drs. at CHOP said she has hyperthermia and thermoregulation issues. I kind of figured that one out on my own! She has had numerous tests, scans, etc. done and all results are normal except she is ANA positve. I am baffled & so are the drs. Does anyone else have problems with thermoregulation? This is way frustrating!! Also, is anyone from the Philadelphia area? We are followed by neuro at CHOP but unfortunately our neurologist just left the hospital & we are being bounced around from dr. to dr. None seem to know what to do with a. Her PMG is very severe, bilateral frontal, parietal, occipital and tempral. She was just decanulated, has central cortical visual impairment, and septo optic dysplasia, does not speak but will vocalize, eats very little by mouth due to severe dysphagia, no seizures (Iwas told that when she turns 4 her risk increases by 75%)all her teeth very early, walked at 2 1/2 but with DAFO's (she had bilateral club feet), ahe also has ADHD. She receives early intervention with 5 therapies. Any others diagnosised with ADHD? Any help/suggestions would be appreciated. Quote Link to comment Share on other sites More sharing options...
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