Sleep issues

[Guest guest]

Hello,

My son, , is 10 weeks old and is diagnosed with PMG (caused by CMV). He

sleeps very little. He will take himself off to sleep first thing in the morning

but later we have to use a dummy. He will then often doze about 15 minutes, cry

and spit out the dummy. We then start again. Even with the dummy as the day goes

on he will not sleep at all. He will not sleep all evening and we often do not

get him to sleep at night until the early hours of the morning. Sometimes he is

crying and can't be consoled. Often he will seem to drop off but then be awake

again or cry as earlier but go quiet when given the dummy again. The

paediatrician suggested it was just his age. I am convinced there is more to it

and it is related to his PMG. I have seen posts on here about older children and

sleep but not babies. Does anyone have a similar experience?

I am currently looking into cranial osteopathy at the recommendation of a friend

and my Health Visitor. Does anyone have any experience of this?

Also if anyone reading this can comment on ' development I'd be grateful.

He is doing very well at the moment, smiles, holds his head very well and pretty

much anything else expected at this age. Is it inevitable he will suffer some

lack of development later or could he continue to progress as any baby without

PMG?

Thanks

Lucy

[Guest guest]

Dear Lucy,

I recognize what you are describing as well. Doctors dismissed Finlay's

sleep issues when he was little (he is 9 now). I would have to walk around

with Finlay rocking him to sleep and he would wake up over and over again.

Sometimes I would sleep in the rocking chair with him.

Maybe try to get your Paediatrician to agree to a sleep EEG early. We never

did because Finlay never had clear seizures and I always wondered whether it

was epileptic activity disrupting his sleep.

They did an EEG when he was 6 and found he had continuous epileptic activity

with spikes at night. He probably had that all his life.

Good luck

Annelies

[Norton AntiSpam] Sleep issues

Hello,

My son, , is 10 weeks old and is diagnosed with PMG (caused by CMV).

He sleeps very little. He will take himself off to sleep first thing in the

morning but later we have to use a dummy. He will then often doze about 15

minutes, cry and spit out the dummy. We then start again. Even with the

dummy as the day goes on he will not sleep at all. He will not sleep all

evening and we often do not get him to sleep at night until the early hours

of the morning. Sometimes he is crying and can't be consoled. Often he will

seem to drop off but then be awake again or cry as earlier but go quiet when

given the dummy again. The paediatrician suggested it was just his age. I am

convinced there is more to it and it is related to his PMG. I have seen

posts on here about older children and sleep but not babies. Does anyone

have a similar experience?

I am currently looking into cranial osteopathy at the recommendation of a

friend and my Health Visitor. Does anyone have any experience of this?

Also if anyone reading this can comment on ' development I'd be

grateful. He is doing very well at the moment, smiles, holds his head very

well and pretty much anything else expected at this age. Is it inevitable he

will suffer some lack of development later or could he continue to progress

as any baby without PMG?

Thanks

Lucy

[Guest guest]

Hi Lucy

I am new to this message board. I am from New Zealand and have an 8 month old

girl with left sided NMD. She has suffered from seizures from 11 weeks of age.

The description of your son also sounds familiar to me, I also thought she had

colic.

From day one she did not sleep well, never more than 2 hours at a time and I

always had to soothe or rock her to sleep. Now at 8mths and with the help of

medication for her seizures she can sleep up to 3 or 4 hours but rare for her to

sleep longer than that and always takes me hours to get her to sleep. I have

found she likes movement, like the rocking bouncer as a small baby, the dummy

and lots of cuddles.

- great advice on taking it one day at a time, the development thing

has been constantly on my mind, my girl still doesn't hold her head up, has some

cortical visual problems to sort and is weak on her right side. Some days I

think about it so much I end up a wreck! We had a follow up eye appt and got

told the same thing about the cortical development, we now have a visual

resource teacher.

This message board was great to find, happy to share thoughts. Feel free to

email me.

Thanks.

Kat

> >

> > Hello,

> > My son, , is 10 weeks old and is diagnosed with PMG (caused by CMV).

He sleeps very little. He will take himself off to sleep first thing in the

morning but later we have to use a dummy. He will then often doze about 15

minutes, cry and spit out the dummy. We then start again. Even with the dummy as

the day goes on he will not sleep at all. He will not sleep all evening and we

often do not get him to sleep at night until the early hours of the morning.

Sometimes he is crying and can't be consoled. Often he will seem to drop off but

then be awake again or cry as earlier but go quiet when given the dummy again.

The paediatrician suggested it was just his age. I am convinced there is more to

it and it is related to his PMG. I have seen posts on here about older children

and sleep but not babies. Does anyone have a similar experience?

> > I am currently looking into cranial osteopathy at the recommendation of a

friend and my Health Visitor. Does anyone have any experience of this?

> > Also if anyone reading this can comment on ' development I'd be

grateful. He is doing very well at the moment, smiles, holds his head very well

and pretty much anything else expected at this age. Is it inevitable he will

suffer some lack of development later or could he continue to progress as any

baby without PMG?

> > Thanks

> > Lucy

> >

>