Re: Therapies - message to all - DATABASE SET UP

May 15, 2011

Hi everyone

I've set up a table under the data base link on the left hands site. I'd added a

few titles but if you think we need more/less let me know and i'll change it.

I've added one of ours for now, will have to finish the rest later as its

(hopefully) bedtime for us.

Please feel free to fill in as many as you can.

Katy, mummy to Jenna :-)

> >

> > is & #39; diagnosis came at two, not because of the pediatrician but

because of a persistent mommy who eventually took her to the ER at a childrens

hospital in our area to get someone to acknowledge there was a problem. The

issue has been the system! We live in CA, USA and is has Medi-Cal, the State

run insurance. The only way to proceed is to get a referal from her primary doc

(the blind ped). Only after the report from the ER went back to her primary

Peditrician did we get the referral to the neuro (what we had been pushing for

all along) We have now seen the neurologist and been refered to the Charlie

Clinic a pediatric clinic specializing in care for children with acute

medical issues. Both the neurologist and the specialized clinic have refered her

for speech therapy, physical and OT. We have been calling and waiting for

appointments since since January of this year. And have just been told we are

" on the list " . The clinic has

> > sent all her results to Dr. Dobyns in Seattle and we wait also be seen by

him. In the mean time we are doing our own home grown OT and PT with her and are

actually seeing progress. We have also using a combination of augmentative

communication systems. She has a sign language vocabulary of about 700 words and

uses her Itouch with a carrying case my daughter created and the Proloqu2go

language program that we bought out of pocket. Her neurologist is amazed by her.

Looking at her MRI he said she should have no Receptive language at all, as the

damage area lies smack dab in the middle of her language centers. Her latest

assessment by the school district placed her receptive skills at 7 years. The

neuro & #39;s best guess is that her brain is re-wiring around the damaged area.

We did start sign language at a very young age, 4-6 months old, possibly that

helped? Well, thanks for letting this G-Ma ramble on. But I do believe in being

proactive and would

> > appreciate list of possible therapies and strategies for expediting

treatment. I appreciate all you dedicated parents who push for your children.

GOD has been preparing me for my role for the past 20 years teaching children

with severe/profound disabilities. We can make a difference!

> > Tammy G-Ma

> >

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