Guest guest Posted October 20, 2011 Report Share Posted October 20, 2011 Hello everybody, My daughter Kiri was recently diagnosed with PMG and microcephaly. She is seven months old. I have a couple questions I was hoping some of you might be able to offer advice on. My husband and I are living and working abroad but will be moving home to California in a month to get better access to therapies for K. We're looking at different insurance options and are trying to find the best fit. We currently have international insurance but we'll need something more thorough when we get home. How regularly do you take your children in for doctor's visits? Would anyone recommend an HMO or is a PPO better for flexibility in finding better PMG specialists? I'm unsure what sort of plan to look for because I'm not sure what sort of care she will be needing. She hasn't had any identified seizures yet, but we have had an EEG done and she is definitely at risk. Are most seizure medications generic or are they mostly name-brand drugs? We have lots to figure out, obviously. Thanks so much for any help you can give us. - Arwen Quote Link to comment Share on other sites More sharing options...
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