Aden Wayne Lovell-Bilateral PMG

November 6, 2008

Our beautiful son Aden was born on July 13, 2008. He sadly passed

away just six days later.

Aden was diagnosed with a giant omphaloecele during an early

ultrasound. All chromosome tests came back normal. He was later

prediagnosed with club feet during a later ultrasound. We knew we

would be in for a long haul due the omphalocele but never imagined in

our worst of thoughts that we would lose him.

Aden had to go on life support immediately following birth. Those

six days in were such a roller coaster. At one point his doctor

said " I feel confident in saying you can buckle in for a long ride " .

To some people that may sound like aweful news, but to us it was

great news. We were optimistic that he would LIVE and that was all

that mattered. During the last day of his life Aden struggled

tremendously, and I could tell he was beginning to feel pain. The

doctors told us there was nothing more they could do, so we did the

unthinkable and chose to let our angel go to heaven where he could

rest in peace. That was the most difficult thing I have and will

ever have to do.

We chose to have an autopsy done because the doctors knew there were

many other underlying issues. We wanted to know how that would

affect future pregnancies, etc. It was during his autopsy that they

found signs of bilateral PMG. Unfortunately that is all we have to

go on right now. We have sent his autopsy report as well as brain

images to all the leading doctors in the U.S; however, our doctor has

told us that they may never know anything more than they do now.

I am really struggling with deciding if we should try to have more

children or not. We're a young couple, in our early 20's, and I

can't imagine not having more children. The doctors have given us a

reoccurence rate of 15-20%. I struggle not because I'm concerned

with having " normal " children, but because I know I would feel aweful

if I brought another child into this world and made them suffer with

the pain of the symptoms often associated with PMG. I could never

and would never terminate a pregnancy. Do I risk putting another

child at risk of living a painful life or even worse of dying? We

want to have our own children so bad, but does that seem selfish? Or

do I put all my faith forward and believe that God will give us

another child that was meant for us...PMG or no PMG.

Has anyone else ever faced this very very very difficult decision?

Cody and Michele (parents of Aden Wayne Lovell)

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