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Seta,

I can tell you our experience with Valtrex. My son started 1/2 pill

3x per day at age 3. We saw a significant die off, with a spike of

the HHV6 titer, then HHV6 titer in normal ranges....all within the

first 3 months.

He was on Famvir for a couple of months but the HHV6 titer elevated

so we switched back to Valtrex. After a couple more months on

Valtrex, we decreased the dose to 2 x per day for about 7 months.

Although HHV6 number remained in range, he showed " viral symptoms "

(lethargic, sensitivity to light). Upped the dose back to 3 x per

day and saw healthier child. Total time on Valtrex is approaching 2

yrs.

HTH

>

> Hello,

> I am new to this list. I was wondering if I could get a " poll " of

how many

> families have tried Valtrex, and if you saw improvements, what

were they?

>

> We accidentally found out that my daughter was Valtrex responder

when her

> doctor prescribed it for the chicken pox (which she got despite

immunization).

> She happened to get her first " spots " while she was in the

hospital for an

> overnight EEG--otherwise I'm not sure she would've even been

treated at all.

>

> Within three days we (and all her teachers/therapists) noticed

that she is

> much more accurate in verbal imitation. The effect seemed to wear

off until she

> gets next dose. We stopped it for 10 days and she regressed back

to her

> baseline behavior, so we put her back on, with repeated benefit.

It's almost as

> though her hearing is better. She's also been in a terrific mood.

> I understand that about 30% of children with ASD

are " responders. " I heard

> that the mechanism may not necessarily be due to anti-viral

activity--for

> example it could be enhanced methylation or something to do with

thymidine

> kinase/ATP production.

>

> Can anyone fill me in on more details about this phenomenon?

> How long can you keep them on Valtrex, what's the dose and does it

wear off

> eventually?

>

> Many thanks,

>

> Seta

> mom to , age 8, leukemia " survivor " (age 2), seizures,

emerging verbal

> communicator, PDD nos

>

>

>

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  • 1 year later...

,

You can go to the group's archives search engine and search for Valtrex and

probably spend hours reading posts about Valtrex... I'm sure you can get a

feel for what to expect that way. One experience we had was that both of my

sons developed normal reflexes after being on Valtrex for a while. One had

NO reflexes before that. He was also hypotonic and developed normal muscle

tone. We we also on other meds at the time but I feel very strongly that it

was the Valtrex that made the big difference. On the down side, the Valtrex

seemed to worsen the seizures one son had so we switched to Famvir which has

been great.

As far as immune boosters, those are not something Dr. Goldberg uses with

his patients. For example, we just had a phone consultation with him last

night regarding my son where we discussed the fact that my son's immune

system is very overactive... it can't seem to shut itself down and continues

firing off antibodies long after an illness passes (in this case parvovirus,

also called Fifth's Disease). It's the same problem for my other son (high

parvo, mycoplasma and strep antibodies when he's not sick... these were

found by doing blood titers through our local hospital). The last thing my

kids need is to rev up their immune systems any more. They need targeted

immune modulators, which would be a different type of thing, to help their

immune systems regulate themselves properly.

I hope that helps. I know that each child is different, but in our case

that's our situation.

Caroline

> From: <emcommunic@...>

> Reply-< >

> Date: Mon, 27 Nov 2006 21:24:54 -0500 (EST)

> <autisminfo >, <BioMedHeads >,

> < >, <IllinoisBiomedicalKids >,

> < >

> Subject: Valtrex

>

> Hello and Happy Holidays,

>

> I would like to get some information on Valtrex. The positives and

> negatives would be greatly appreciated. What should I expect once I start

> giving it

> to my son? What types of improvements have you seen? What about negative

> side effects? Has anyone seen any agitation or aggression? Sorry for so

> many

> questions. I am just trying to figure all of this out. Has anyone used other

> anti-virals in addition to Valtrex? For example the Olive Leaf Extract,

> etc.?

>

> I would like to thank you all in advance for your help. I am so overwhelmed

> at this point and very exhausted. I appreciate the wonderful giving people

> that you all are.

>

> If I may ask another question? What are you all using for immune boosters.

> Has anyone used IgG 2000? What about Transfer Factor? What are the

> positives and negatives. Since they are from cows, what about the CF? Also,

> do you

> think about " Mad Cow " ?

>

> Thanks again,

>

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  • 1 month later...

Well, we've been on Valtrex for 2 weeks now and I'm hesitant to say

if it's producing gains or if it's just coincidence *but* the

coincidence does seem rather timely. We've gotten receptive and

expressive gains from him in the last 2 weeks. The first day of

Valtrex was only one dose and the second day, he had 2 and he

obviously didn't feel well. He started running a very low grade

fever (99.7) for a couple of days and then that was it. We are now

on the full dose of 1/2 pill 3x/day. I haven't seen any rashes or

any other evidence of him not feeling well since. I don't know if

that's a good thing or a bad thing. I have a hard time saying that

the cognitive gains are *huge* because everything has been so slow

and steady with him that I just don't know if it's something that

would have happened anyway or if it's the Valtrex causing the gains.

He just *seems* like he understands so much more now and I can't be

sure that it isn't just me and wishful thinking. For example, he's

always been able to say " hot " and understood not to touch something

if I say it's hot but he never really seemed to *understand the

concept* hot. He just knew that if I said hot he shouldn't touch it

and he would always repeat hot back to me. He would also say hot

when he knew it was food that he couldn't eat right away and he'd

blow on it if I told him, " it's hot, blow it " . Well, yesterday he

saw the flame on the stove and immediately started smiling and

saying, " hot! " and acting like he shouldn't touch it. This seemed

rather impressive to me! He brought me his cup last night and said

" choco juice " (chocolate soy milk) which I've never heard him say and

it hasn't been something I've even really emphasized him learning.

And to top that off, I have no idea where he even got the term " choco

juice " . He also seems to now understand the concept of " broken " . He

brought me something that was in two pieces that he was trying to put

together (no they don't go together - a bar of soap and an old 4

prong telephone jack!) and said " broken " . He seems to understand

what I'm saying more. Today he was giving his ABA therapist a hard

time and telling her " no " , etc. and I stood him up, got down on my

knees, looked him in the eyes and told him he has to listen to her

and he said, " okay " and turned around and went where she told him to

go. I'm hesitant to call it a *wow* but I don't know if it's just me

being hesitant or if it truly is a *wow* moment. I'm going to give

it another week and see if I continue seeing strong gains before I

commit to it being the Valtrex and not just a coincidence. What do

you guys think? And is it okay that I haven't seen any rashes or

anything? I was kind of expecting rashes as that seems to be the

norm. At what point do the gains level off? Am I expecting too much

to think that if it is the Valtrex, I should continue to see strong

gains throughout the next few weeks?

Cheryl

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We never saw rashes come on, but just a cranky, not feeling well kid.

I would call them *wows* because you are wondering if they are, so

they are. If it is something new/out of the norm/you say to

yourself " he's never done that before " , in my book its a wow. And

hey we deserve these!

Another good indicator for us was people who we did not see everyday,

who would come once a week or once every 2 weeks. They would say to

me, " he's never done that before with me, it must be that medicine

you put him on. " :)

>

> Well, we've been on Valtrex for 2 weeks now and I'm hesitant to

say

> if it's producing gains or if it's just coincidence *but* the

> coincidence does seem rather timely. We've gotten receptive and

> expressive gains from him in the last 2 weeks. The first day of

> Valtrex was only one dose and the second day, he had 2 and he

> obviously didn't feel well. He started running a very low grade

> fever (99.7) for a couple of days and then that was it. We are

now

> on the full dose of 1/2 pill 3x/day. I haven't seen any rashes or

> any other evidence of him not feeling well since. I don't know if

> that's a good thing or a bad thing. I have a hard time saying

that

> the cognitive gains are *huge* because everything has been so slow

> and steady with him that I just don't know if it's something that

> would have happened anyway or if it's the Valtrex causing the

gains.

> He just *seems* like he understands so much more now and I can't

be

> sure that it isn't just me and wishful thinking. For example,

he's

> always been able to say " hot " and understood not to touch

something

> if I say it's hot but he never really seemed to *understand the

> concept* hot. He just knew that if I said hot he shouldn't touch

it

> and he would always repeat hot back to me. He would also say hot

> when he knew it was food that he couldn't eat right away and he'd

> blow on it if I told him, " it's hot, blow it " . Well, yesterday he

> saw the flame on the stove and immediately started smiling and

> saying, " hot! " and acting like he shouldn't touch it. This seemed

> rather impressive to me! He brought me his cup last night and

said

> " choco juice " (chocolate soy milk) which I've never heard him say

and

> it hasn't been something I've even really emphasized him

learning.

> And to top that off, I have no idea where he even got the

term " choco

> juice " . He also seems to now understand the concept of " broken " .

He

> brought me something that was in two pieces that he was trying to

put

> together (no they don't go together - a bar of soap and an old 4

> prong telephone jack!) and said " broken " . He seems to understand

> what I'm saying more. Today he was giving his ABA therapist a

hard

> time and telling her " no " , etc. and I stood him up, got down on my

> knees, looked him in the eyes and told him he has to listen to her

> and he said, " okay " and turned around and went where she told him

to

> go. I'm hesitant to call it a *wow* but I don't know if it's just

me

> being hesitant or if it truly is a *wow* moment. I'm going to

give

> it another week and see if I continue seeing strong gains before I

> commit to it being the Valtrex and not just a coincidence. What

do

> you guys think? And is it okay that I haven't seen any rashes or

> anything? I was kind of expecting rashes as that seems to be the

> norm. At what point do the gains level off? Am I expecting too

much

> to think that if it is the Valtrex, I should continue to see

strong

> gains throughout the next few weeks?

>

> Cheryl

>

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Hi Cheryl -

How exciting!

I think 2 weeks with Valtrex is a good timing to

'begin' to see improvements. Please document these

things as they occur. You will not believe how they

add up, and you'll be surprised at how quickly you

forget them. It's the best way to overcome your

doubt.

My son used only echolalia for his speech, w/that

musical lilt at the end of each 'sentence' and

everything, and 3 days after he started Diflucan, he

completely dropped ALL echolalia, started using one

and two words at a time, and within 2 weeks on it he

was constructing 5 word sentences. That is a dramatic

and sudden speech development that wouldn't otherwise

be possible unless he already was building that

foundation and just 'unlocked a door' for him to use

it. Speech just isn't developed that quickly. So

everytime I ever find doubts to anything re 'autism',

the protocol, CFIDS, PANDAS, etc, the memory of that

dramatic and shocking change pops up to restore my

faith.

Diflucan for us, Valtrex for another... why would

yeast or viruses bring about the same type changes?

The only logical explanation that can apply to both is

the reduction of the immune response to these

infections. Just like antibiotics can reduce OCD

behavior in just 3 days, so did Diflucan for my oldest

child. In fact, in my PANDAS, antibiotics would

significantly help initially, but much much more

improvement came w/antibiotics AND antifungals. Dr

Goldberg said it was " an axis " when I asked him why

antifungals could have so much impact something that

was completely unequivically definitely triggered by

strep.

I notice two types of timing that keep coming up over

and over again in the last few years. People seem to

notice things happening starting at 3 days, and

starting at 2 weeks. Some meds bring about responses

in just 3 days, some at two weeks, and the two week

interval seems to be involving cellular immunity.

Just like it takes two weeks after most vaccines for

immunity to be completed. So sometimes, a negative

impact may not be observed for 2 weeks (like 2 wks

after the MMR in my boy's case his detatchment peaked

to become the most noticable for me), again post-flu,

again after the DTP-mucous dumping in both boys, and

stools 2 weeks later, and I could think of more

examples if I kept at it), and sometimes postive

impacts don't start for two weeks.

It is less often that someone responds so rapidly to

antivirals. More often, they do their constant subtle

work over time (months) and people see a steady

brightening and it shows more in the labs. That can

be the same way with diet changes, etc. But sometimes

you get these wonderful lightbulb moments (to quote

Oprah :) that just stand out at you, and they are a

blessing and provide so much hope and optimism.

You are so blessed if you get the opportunity to

observe this, as many parents don't get that kind of

huge leap immediately. Even as you question what you

are seeing, accept it, write it down, remember that

others have reported the same type things very early

on (often enough that it cannot be coincidence),

although many don't show that kind of leap.

Even between my two children, one had all these leaps,

but my 'neurotypical-if-he-didn't-have-CFIDS' one

didn't show cognitive changes so obviously - but

rather one day a few weeks in, I looked at him and

thought " WOW - his eyes are so bright ... when did

that happen? I didn't know they were dull before but

omygosh! " Besides his starting to sleep and resolving

a year and a half of severe GI pain w/antifungals, I

had not realized how many other ways the meds were

helping him.

Anyway, there's enough reason to believe that these

kids are capable of being a lot more aware than they

were very quickly, and you see them 'catching on' to

concepts that they didn't seem to be able to

understand just a short time ago, and you think wow!!!

It is like a lightbulb coming on in his little head,

blood flow starting to get up there, eyes starting to

brighten up... gosh it's amazing.

One day maybe I'll be able to bring myself to watch

videos from that time when my son first started the

protocol.

__________________________________________________

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  • 1 year later...
Guest guest

My son has been on Valtrex for a week now and I've noticed small, red welts--one

on his upper lip and several on his legs and buttocks. Cold this have something

to do with a possible virus awakening in response to the treatment?

Thanks!

Robyn

Bill klimas <klimas_bill@...> wrote:

Amie

You actually can do more than just the diet. The

protocol is based on informed and observant parents.

Go to Dr. G's web site and pull down the parents and

physicians page and truly read them. The test for food

allergies is cheap and easy. Share it with you

Pediatrician and do the Preliminary testing. Ask the

office to link you with various lectures and videos

and share them with you support staff to re-enforce

the diet plans. The basic tests that he recommends are

listed as well. Do them before your first appointment

so the data is available.

My son is nine and if followed religiously this will

make a huge difference. Got to go Connor is asking for

help with fourth grade spelling, really!

Bill

--- thegraceacademy <amie_j@...> wrote:

> I'm the mom of a 16 1/2 year old son who has

> struggled from what has

> been labeled severe autism his entire life, only the

> more and more

> research I do leads me to believe his behaviors are

> a result of the

> multitude of food allergies and internal medical

> issues. Out of

> ignorance on my part, we've never even had him

> tested for allergies or

> gut problems. I am blessed to live in So Cal, just

> over the hill from

> Tarzana. Is it as simple as calling Dr. G's office

> and making an

> appointment to get started in exploring other ways

> of approach? I know

> his primary care physician would give us a referral

> if we needed that,

> and we also do have insurance. I didn't see an

> appointment link on his

> website, so I got a little discouraged.

> Thank you.

>

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

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Guest guest

Hi I don't know the answer, but I know that that

question has been asked at least 5 times. :) So it

MUST be connected. It goes away.

Odds are it's fine.

You are washing off the blue dye, right?

HTH-

--- Robyn & Greg Coggins <rngcoggs@...>

wrote:

> My son has been on Valtrex for a week now and I've

> noticed small, red welts--one on his upper lip and

> several on his legs and buttocks. Cold this have

> something to do with a possible virus awakening in

> response to the treatment?

>

> Thanks!

>

> Robyn

>

> Bill klimas <klimas_bill@...> wrote:

> Amie

> You actually can do more than just the diet. The

> protocol is based on informed and observant parents.

> Go to Dr. G's web site and pull down the parents and

> physicians page and truly read them. The test for

> food

> allergies is cheap and easy. Share it with you

> Pediatrician and do the Preliminary testing. Ask the

> office to link you with various lectures and videos

> and share them with you support staff to re-enforce

> the diet plans. The basic tests that he recommends

> are

> listed as well. Do them before your first

> appointment

> so the data is available.

> My son is nine and if followed religiously this will

> make a huge difference. Got to go Connor is asking

> for

> help with fourth grade spelling, really!

> Bill

>

> --- thegraceacademy <amie_j@...> wrote:

>

> > I'm the mom of a 16 1/2 year old son who has

> > struggled from what has

> > been labeled severe autism his entire life, only

> the

> > more and more

> > research I do leads me to believe his behaviors

> are

> > a result of the

> > multitude of food allergies and internal medical

> > issues. Out of

> > ignorance on my part, we've never even had him

> > tested for allergies or

> > gut problems. I am blessed to live in So Cal, just

> > over the hill from

> > Tarzana. Is it as simple as calling Dr. G's office

> > and making an

> > appointment to get started in exploring other ways

> > of approach? I know

> > his primary care physician would give us a

> referral

> > if we needed that,

> > and we also do have insurance. I didn't see an

> > appointment link on his

> > website, so I got a little discouraged.

> > Thank you.

> >

> >

>

>

__________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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Guest guest

More than likely! It's a good thing!

cheryl

On Mar 13, 2008, at 6:43 PM, Robyn & Greg Coggins wrote:

> My son has been on Valtrex for a week now and I've noticed small,

> red welts--one on his upper lip and several on his legs and

> buttocks. Cold this have something to do with a possible virus

> awakening in response to the treatment?

>

> Thanks!

>

> Robyn

>

> Bill klimas <klimas_bill@...> wrote:

> Amie

> You actually can do more than just the diet. The

> protocol is based on informed and observant parents.

> Go to Dr. G's web site and pull down the parents and

> physicians page and truly read them. The test for food

> allergies is cheap and easy. Share it with you

> Pediatrician and do the Preliminary testing. Ask the

> office to link you with various lectures and videos

> and share them with you support staff to re-enforce

> the diet plans. The basic tests that he recommends are

> listed as well. Do them before your first appointment

> so the data is available.

> My son is nine and if followed religiously this will

> make a huge difference. Got to go Connor is asking for

> help with fourth grade spelling, really!

> Bill

>

> --- thegraceacademy <amie_j@...> wrote:

>

> > I'm the mom of a 16 1/2 year old son who has

> > struggled from what has

> > been labeled severe autism his entire life, only the

> > more and more

> > research I do leads me to believe his behaviors are

> > a result of the

> > multitude of food allergies and internal medical

> > issues. Out of

> > ignorance on my part, we've never even had him

> > tested for allergies or

> > gut problems. I am blessed to live in So Cal, just

> > over the hill from

> > Tarzana. Is it as simple as calling Dr. G's office

> > and making an

> > appointment to get started in exploring other ways

> > of approach? I know

> > his primary care physician would give us a referral

> > if we needed that,

> > and we also do have insurance. I didn't see an

> > appointment link on his

> > website, so I got a little discouraged.

> > Thank you.

> >

> >

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

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Guest guest

My son has been on Valtrex for a week now and I've noticed small, red welts--one

on his upper lip and several on his legs and buttocks. Cold this have something

to do with a possible virus awakening in response to the treatment?

Thanks!

Robyn

Bill klimas <klimas_bill@...> wrote:

Amie

You actually can do more than just the diet. The

protocol is based on informed and observant parents.

Go to Dr. G's web site and pull down the parents and

physicians page and truly read them. The test for food

allergies is cheap and easy. Share it with you

Pediatrician and do the Preliminary testing. Ask the

office to link you with various lectures and videos

and share them with you support staff to re-enforce

the diet plans. The basic tests that he recommends are

listed as well. Do them before your first appointment

so the data is available.

My son is nine and if followed religiously this will

make a huge difference. Got to go Connor is asking for

help with fourth grade spelling, really!

Bill

--- thegraceacademy <amie_j@...> wrote:

> I'm the mom of a 16 1/2 year old son who has

> struggled from what has

> been labeled severe autism his entire life, only the

> more and more

> research I do leads me to believe his behaviors are

> a result of the

> multitude of food allergies and internal medical

> issues. Out of

> ignorance on my part, we've never even had him

> tested for allergies or

> gut problems. I am blessed to live in So Cal, just

> over the hill from

> Tarzana. Is it as simple as calling Dr. G's office

> and making an

> appointment to get started in exploring other ways

> of approach? I know

> his primary care physician would give us a referral

> if we needed that,

> and we also do have insurance. I didn't see an

> appointment link on his

> website, so I got a little discouraged.

> Thank you.

>

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

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Share on other sites

Guest guest

Sorry. Posted twice.

Robyn & Greg Coggins <rngcoggs@...> wrote: My son has been on

Valtrex for a week now and I've noticed small, red welts--one on his upper lip

and several on his legs and buttocks. Cold this have something to do with a

possible virus awakening in response to the treatment?

Thanks!

Robyn

Bill klimas <klimas_bill@...> wrote:

Amie

You actually can do more than just the diet. The

protocol is based on informed and observant parents.

Go to Dr. G's web site and pull down the parents and

physicians page and truly read them. The test for food

allergies is cheap and easy. Share it with you

Pediatrician and do the Preliminary testing. Ask the

office to link you with various lectures and videos

and share them with you support staff to re-enforce

the diet plans. The basic tests that he recommends are

listed as well. Do them before your first appointment

so the data is available.

My son is nine and if followed religiously this will

make a huge difference. Got to go Connor is asking for

help with fourth grade spelling, really!

Bill

--- thegraceacademy <amie_j@...> wrote:

> I'm the mom of a 16 1/2 year old son who has

> struggled from what has

> been labeled severe autism his entire life, only the

> more and more

> research I do leads me to believe his behaviors are

> a result of the

> multitude of food allergies and internal medical

> issues. Out of

> ignorance on my part, we've never even had him

> tested for allergies or

> gut problems. I am blessed to live in So Cal, just

> over the hill from

> Tarzana. Is it as simple as calling Dr. G's office

> and making an

> appointment to get started in exploring other ways

> of approach? I know

> his primary care physician would give us a referral

> if we needed that,

> and we also do have insurance. I didn't see an

> appointment link on his

> website, so I got a little discouraged.

> Thank you.

>

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

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Share on other sites

Guest guest

Thanks!

Cheryl Lowrance <c.lowrance@...> wrote: More than likely! It's a

good thing!

cheryl

On Mar 13, 2008, at 6:43 PM, Robyn & Greg Coggins wrote:

> My son has been on Valtrex for a week now and I've noticed small,

> red welts--one on his upper lip and several on his legs and

> buttocks. Cold this have something to do with a possible virus

> awakening in response to the treatment?

>

> Thanks!

>

> Robyn

>

> Bill klimas <klimas_bill@...> wrote:

> Amie

> You actually can do more than just the diet. The

> protocol is based on informed and observant parents.

> Go to Dr. G's web site and pull down the parents and

> physicians page and truly read them. The test for food

> allergies is cheap and easy. Share it with you

> Pediatrician and do the Preliminary testing. Ask the

> office to link you with various lectures and videos

> and share them with you support staff to re-enforce

> the diet plans. The basic tests that he recommends are

> listed as well. Do them before your first appointment

> so the data is available.

> My son is nine and if followed religiously this will

> make a huge difference. Got to go Connor is asking for

> help with fourth grade spelling, really!

> Bill

>

> --- thegraceacademy <amie_j@...> wrote:

>

> > I'm the mom of a 16 1/2 year old son who has

> > struggled from what has

> > been labeled severe autism his entire life, only the

> > more and more

> > research I do leads me to believe his behaviors are

> > a result of the

> > multitude of food allergies and internal medical

> > issues. Out of

> > ignorance on my part, we've never even had him

> > tested for allergies or

> > gut problems. I am blessed to live in So Cal, just

> > over the hill from

> > Tarzana. Is it as simple as calling Dr. G's office

> > and making an

> > appointment to get started in exploring other ways

> > of approach? I know

> > his primary care physician would give us a referral

> > if we needed that,

> > and we also do have insurance. I didn't see an

> > appointment link on his

> > website, so I got a little discouraged.

> > Thank you.

> >

> >

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

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Share on other sites

Guest guest

Never gave it a thought to wash off the dye, but I will do it from now on.

Thanks!

<thecolemans4@...> wrote: Hi I don't know the

answer, but I know that that

question has been asked at least 5 times. :) So it

MUST be connected. It goes away.

Odds are it's fine.

You are washing off the blue dye, right?

HTH-

--- Robyn & Greg Coggins <rngcoggs@...>

wrote:

> My son has been on Valtrex for a week now and I've

> noticed small, red welts--one on his upper lip and

> several on his legs and buttocks. Cold this have

> something to do with a possible virus awakening in

> response to the treatment?

>

> Thanks!

>

> Robyn

>

> Bill klimas <klimas_bill@...> wrote:

> Amie

> You actually can do more than just the diet. The

> protocol is based on informed and observant parents.

> Go to Dr. G's web site and pull down the parents and

> physicians page and truly read them. The test for

> food

> allergies is cheap and easy. Share it with you

> Pediatrician and do the Preliminary testing. Ask the

> office to link you with various lectures and videos

> and share them with you support staff to re-enforce

> the diet plans. The basic tests that he recommends

> are

> listed as well. Do them before your first

> appointment

> so the data is available.

> My son is nine and if followed religiously this will

> make a huge difference. Got to go Connor is asking

> for

> help with fourth grade spelling, really!

> Bill

>

> --- thegraceacademy <amie_j@...> wrote:

>

> > I'm the mom of a 16 1/2 year old son who has

> > struggled from what has

> > been labeled severe autism his entire life, only

> the

> > more and more

> > research I do leads me to believe his behaviors

> are

> > a result of the

> > multitude of food allergies and internal medical

> > issues. Out of

> > ignorance on my part, we've never even had him

> > tested for allergies or

> > gut problems. I am blessed to live in So Cal, just

> > over the hill from

> > Tarzana. Is it as simple as calling Dr. G's office

> > and making an

> > appointment to get started in exploring other ways

> > of approach? I know

> > his primary care physician would give us a

> referral

> > if we needed that,

> > and we also do have insurance. I didn't see an

> > appointment link on his

> > website, so I got a little discouraged.

> > Thank you.

> >

> >

>

>

__________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

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Guest guest

Ahhh that could be it....

Let us know if it helps...

--- Robyn & Greg Coggins <rngcoggs@...>

wrote:

> Never gave it a thought to wash off the dye, but I

> will do it from now on. Thanks!

>

> <thecolemans4@...> wrote:

> Hi I don't know the answer, but I know that that

> question has been asked at least 5 times. :) So it

> MUST be connected. It goes away.

> Odds are it's fine.

>

> You are washing off the blue dye, right?

>

> HTH-

>

>

> --- Robyn & Greg Coggins <rngcoggs@...>

> wrote:

>

> > My son has been on Valtrex for a week now and I've

> > noticed small, red welts--one on his upper lip and

> > several on his legs and buttocks. Cold this have

> > something to do with a possible virus awakening in

> > response to the treatment?

> >

> > Thanks!

> >

> > Robyn

> >

> > Bill klimas <klimas_bill@...> wrote:

> > Amie

> > You actually can do more than just the diet. The

> > protocol is based on informed and observant

> parents.

> > Go to Dr. G's web site and pull down the parents

> and

> > physicians page and truly read them. The test for

> > food

> > allergies is cheap and easy. Share it with you

> > Pediatrician and do the Preliminary testing. Ask

> the

> > office to link you with various lectures and

> videos

> > and share them with you support staff to

> re-enforce

> > the diet plans. The basic tests that he recommends

> > are

> > listed as well. Do them before your first

> > appointment

> > so the data is available.

> > My son is nine and if followed religiously this

> will

> > make a huge difference. Got to go Connor is asking

> > for

> > help with fourth grade spelling, really!

> > Bill

> >

> > --- thegraceacademy <amie_j@...> wrote:

> >

> > > I'm the mom of a 16 1/2 year old son who has

> > > struggled from what has

> > > been labeled severe autism his entire life, only

> > the

> > > more and more

> > > research I do leads me to believe his behaviors

> > are

> > > a result of the

> > > multitude of food allergies and internal medical

> > > issues. Out of

> > > ignorance on my part, we've never even had him

> > > tested for allergies or

> > > gut problems. I am blessed to live in So Cal,

> just

> > > over the hill from

> > > Tarzana. Is it as simple as calling Dr. G's

> office

> > > and making an

> > > appointment to get started in exploring other

> ways

> > > of approach? I know

> > > his primary care physician would give us a

> > referral

> > > if we needed that,

> > > and we also do have insurance. I didn't see an

> > > appointment link on his

> > > website, so I got a little discouraged.

> > > Thank you.

> > >

> > >

> >

> >

>

__________________________________________________________

> > Never miss a thing. Make your home page.

> > http://www./r/hs

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

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Guest guest

I will. It's funny . . . I sent an update to Dr. G's office and just

e-mailed me back with the same advice--wipe off the blue dye.

Thanks for all of your help. It certainly puts my mind at ease to have such

knowledgeable people on this list.

Have a great weekend,

Robyn

<thecolemans4@...> wrote:

Ahhh that could be it....

Let us know if it helps...

--- Robyn & Greg Coggins <rngcoggs@...>

wrote:

> Never gave it a thought to wash off the dye, but I

> will do it from now on. Thanks!

>

> <thecolemans4@...> wrote:

> Hi I don't know the answer, but I know that that

> question has been asked at least 5 times. :) So it

> MUST be connected. It goes away.

> Odds are it's fine.

>

> You are washing off the blue dye, right?

>

> HTH-

>

>

> --- Robyn & Greg Coggins <rngcoggs@...>

> wrote:

>

> > My son has been on Valtrex for a week now and I've

> > noticed small, red welts--one on his upper lip and

> > several on his legs and buttocks. Cold this have

> > something to do with a possible virus awakening in

> > response to the treatment?

> >

> > Thanks!

> >

> > Robyn

> >

> > Bill klimas <klimas_bill@...> wrote:

> > Amie

> > You actually can do more than just the diet. The

> > protocol is based on informed and observant

> parents.

> > Go to Dr. G's web site and pull down the parents

> and

> > physicians page and truly read them. The test for

> > food

> > allergies is cheap and easy. Share it with you

> > Pediatrician and do the Preliminary testing. Ask

> the

> > office to link you with various lectures and

> videos

> > and share them with you support staff to

> re-enforce

> > the diet plans. The basic tests that he recommends

> > are

> > listed as well. Do them before your first

> > appointment

> > so the data is available.

> > My son is nine and if followed religiously this

> will

> > make a huge difference. Got to go Connor is asking

> > for

> > help with fourth grade spelling, really!

> > Bill

> >

> > --- thegraceacademy <amie_j@...> wrote:

> >

> > > I'm the mom of a 16 1/2 year old son who has

> > > struggled from what has

> > > been labeled severe autism his entire life, only

> > the

> > > more and more

> > > research I do leads me to believe his behaviors

> > are

> > > a result of the

> > > multitude of food allergies and internal medical

> > > issues. Out of

> > > ignorance on my part, we've never even had him

> > > tested for allergies or

> > > gut problems. I am blessed to live in So Cal,

> just

> > > over the hill from

> > > Tarzana. Is it as simple as calling Dr. G's

> office

> > > and making an

> > > appointment to get started in exploring other

> ways

> > > of approach? I know

> > > his primary care physician would give us a

> > referral

> > > if we needed that,

> > > and we also do have insurance. I didn't see an

> > > appointment link on his

> > > website, so I got a little discouraged.

> > > Thank you.

> > >

> > >

> >

> >

>

__________________________________________________________

> > Never miss a thing. Make your home page.

> > http://www./r/hs

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

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Guest guest

I put about 20 or so pills in a bowl and fill it with

water. I move it around some and keep dumping and

refilling the water until most of the dye is off.

Then I take them each by hand under water to get some

more off. Then I lay them out on a paper towel to

dry. It's been a lot easier since I started doing it

that way.

Valtrex has really gone up. Our insurance will only

allow us to get 10 days worth at a time--1 gm., 3x per

day, and it is 375 or so. Incredible! Anyone finding

a less expensive source? that is with the discount we

have thru our ins. co. !

--- <thecolemans4@...> wrote:

> Ahhh that could be it....

> Let us know if it helps...

>

>

>

> --- Robyn & Greg Coggins <rngcoggs@...>

> wrote:

>

> > Never gave it a thought to wash off the dye, but I

> > will do it from now on. Thanks!

> >

> > <thecolemans4@...> wrote:

>

> > Hi I don't know the answer, but I know that

> that

> > question has been asked at least 5 times. :) So it

> > MUST be connected. It goes away.

> > Odds are it's fine.

> >

> > You are washing off the blue dye, right?

> >

> > HTH-

> >

> >

> > --- Robyn & Greg Coggins <rngcoggs@...>

> > wrote:

> >

> > > My son has been on Valtrex for a week now and

> I've

> > > noticed small, red welts--one on his upper lip

> and

> > > several on his legs and buttocks. Cold this have

> > > something to do with a possible virus awakening

> in

> > > response to the treatment?

> > >

> > > Thanks!

> > >

> > > Robyn

> > >

> > > Bill klimas <klimas_bill@...> wrote:

> > > Amie

> > > You actually can do more than just the diet. The

> > > protocol is based on informed and observant

> > parents.

> > > Go to Dr. G's web site and pull down the parents

> > and

> > > physicians page and truly read them. The test

> for

> > > food

> > > allergies is cheap and easy. Share it with you

> > > Pediatrician and do the Preliminary testing. Ask

> > the

> > > office to link you with various lectures and

> > videos

> > > and share them with you support staff to

> > re-enforce

> > > the diet plans. The basic tests that he

> recommends

> > > are

> > > listed as well. Do them before your first

> > > appointment

> > > so the data is available.

> > > My son is nine and if followed religiously this

> > will

> > > make a huge difference. Got to go Connor is

> asking

> > > for

> > > help with fourth grade spelling, really!

> > > Bill

> > >

> > > --- thegraceacademy <amie_j@...> wrote:

> > >

> > > > I'm the mom of a 16 1/2 year old son who has

> > > > struggled from what has

> > > > been labeled severe autism his entire life,

> only

> > > the

> > > > more and more

> > > > research I do leads me to believe his

> behaviors

> > > are

> > > > a result of the

> > > > multitude of food allergies and internal

> medical

> > > > issues. Out of

> > > > ignorance on my part, we've never even had him

> > > > tested for allergies or

> > > > gut problems. I am blessed to live in So Cal,

> > just

> > > > over the hill from

> > > > Tarzana. Is it as simple as calling Dr. G's

> > office

> > > > and making an

> > > > appointment to get started in exploring other

> > ways

> > > > of approach? I know

> > > > his primary care physician would give us a

> > > referral

> > > > if we needed that,

> > > > and we also do have insurance. I didn't see an

> > > > appointment link on his

> > > > website, so I got a little discouraged.

> > > > Thank you.

> > > >

> > > >

> > >

> > >

> >

>

__________________________________________________________

> > > Never miss a thing. Make your home page.

> > > http://www./r/hs

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

>

__________________________________________________________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> >

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

Barb Katsaros

barbkatsaros@...

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

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Guest guest

Regarding the price on Valtrex -

does your insurance specify why? Depending on who it

is, you could possibly appeal it as a long-term

therapy.

When you sell 10 days at a time, the price honestly

isn't all that different on some meds for a few days

vs a month's worth. Have you asked what 90 pills cost

at one purchase? Anyway, it sounds as if your ins has

the med set up for single infection treatments (like a

10 day round of antibiotic) and perhaps you could have

that corrected?

Or is it your insurance that's all wierd? :)

HTH)

--- Barb Katsaros <barbkatsaros@...> wrote:

> I put about 20 or so pills in a bowl and fill it

> with

> water. I move it around some and keep dumping and

> refilling the water until most of the dye is off.

> Then I take them each by hand under water to get

> some

> more off. Then I lay them out on a paper towel to

> dry. It's been a lot easier since I started doing

> it

> that way.

>

> Valtrex has really gone up. Our insurance will only

> allow us to get 10 days worth at a time--1 gm., 3x

> per

> day, and it is 375 or so. Incredible! Anyone

> finding

> a less expensive source? that is with the discount

> we

> have thru our ins. co. !

>

> --- <thecolemans4@...> wrote:

>

> > Ahhh that could be it....

> > Let us know if it helps...

> >

> >

> >

> > --- Robyn & Greg Coggins <rngcoggs@...>

> > wrote:

> >

> > > Never gave it a thought to wash off the dye, but

> I

> > > will do it from now on. Thanks!

> > >

> > > <thecolemans4@...> wrote:

>

> >

> > > Hi I don't know the answer, but I know that

> > that

> > > question has been asked at least 5 times. :) So

> it

> > > MUST be connected. It goes away.

> > > Odds are it's fine.

> > >

> > > You are washing off the blue dye, right?

> > >

> > > HTH-

> > >

> > >

> > > --- Robyn & Greg Coggins

> <rngcoggs@...>

> > > wrote:

> > >

> > > > My son has been on Valtrex for a week now and

> > I've

> > > > noticed small, red welts--one on his upper lip

> > and

> > > > several on his legs and buttocks. Cold this

> have

> > > > something to do with a possible virus

> awakening

> > in

> > > > response to the treatment?

> > > >

> > > > Thanks!

> > > >

> > > > Robyn

> > > >

> > > > Bill klimas <klimas_bill@...> wrote:

> > > > Amie

> > > > You actually can do more than just the diet.

> The

> > > > protocol is based on informed and observant

> > > parents.

> > > > Go to Dr. G's web site and pull down the

> parents

> > > and

> > > > physicians page and truly read them. The test

> > for

> > > > food

> > > > allergies is cheap and easy. Share it with you

> > > > Pediatrician and do the Preliminary testing.

> Ask

> > > the

> > > > office to link you with various lectures and

> > > videos

> > > > and share them with you support staff to

> > > re-enforce

> > > > the diet plans. The basic tests that he

> > recommends

> > > > are

> > > > listed as well. Do them before your first

> > > > appointment

> > > > so the data is available.

> > > > My son is nine and if followed religiously

> this

> > > will

> > > > make a huge difference. Got to go Connor is

> > asking

> > > > for

> > > > help with fourth grade spelling, really!

> > > > Bill

> > > >

> > > > --- thegraceacademy <amie_j@...>

> wrote:

> > > >

> > > > > I'm the mom of a 16 1/2 year old son who has

> > > > > struggled from what has

> > > > > been labeled severe autism his entire life,

> > only

> > > > the

> > > > > more and more

> > > > > research I do leads me to believe his

> > behaviors

> > > > are

> > > > > a result of the

> > > > > multitude of food allergies and internal

> > medical

> > > > > issues. Out of

> > > > > ignorance on my part, we've never even had

> him

> > > > > tested for allergies or

> > > > > gut problems. I am blessed to live in So

> Cal,

> > > just

> > > > > over the hill from

> > > > > Tarzana. Is it as simple as calling Dr. G's

> > > office

> > > > > and making an

> > > > > appointment to get started in exploring

> other

> > > ways

> > > > > of approach? I know

> > > > > his primary care physician would give us a

> > > > referral

> > > > > if we needed that,

> > > > > and we also do have insurance. I didn't see

> an

> > > > > appointment link on his

> > > > > website, so I got a little discouraged.

> > > > > Thank you.

> > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

__________________________________________________________

> > > > Never miss a thing. Make your home page.

>

> > > > http://www./r/hs

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> >

>

__________________________________________________________

> > > Be a better friend, newshound, and

> > > know-it-all with Mobile. Try it now.

> > >

> >

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> >

> >

> >

>

________________________________________________________________________________\

____

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> >

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

>

>

> Barb Katsaros

> barbkatsaros@...

>

>

>

>

________________________________________________________________________________\

____

>

=== message truncated ===

________________________________________________________________________________\

____

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Guest guest

Barb, that sounds a bit strange. I had that happen with our pharmacy

not too long ago - they said I couldn't have more than x amount and

yet my coverage allowed for 30 days worth. I had to have the

pharmacy call my insurance company and speak with them. It doesn't

sound right to me and I would call your insurance company. I find it

hard to believe that they wouldn't cover it for someone with genital

herpes or the shingles so I would definitely investigate this. And

$365 w/ insurance sounds too high. That sounds closer to the prices

w/o insurance.

And btw, there is a $10 off coupon at Valtrex.com that can be applied

to your copay. Just read the fine print, you *must* present it when

you fill your Rx, not when you pick it up.

cheryl

On Mar 15, 2008, at 12:40 AM, Barb Katsaros wrote:

> I put about 20 or so pills in a bowl and fill it with

> water. I move it around some and keep dumping and

> refilling the water until most of the dye is off.

> Then I take them each by hand under water to get some

> more off. Then I lay them out on a paper towel to

> dry. It's been a lot easier since I started doing it

> that way.

>

> Valtrex has really gone up. Our insurance will only

> allow us to get 10 days worth at a time--1 gm., 3x per

> day, and it is 375 or so. Incredible! Anyone finding

> a less expensive source? that is with the discount we

> have thru our ins. co. !

>

> --- <thecolemans4@...> wrote:

>

> > Ahhh that could be it....

> > Let us know if it helps...

> >

> >

> >

> > --- Robyn & Greg Coggins <rngcoggs@...>

> > wrote:

> >

> > > Never gave it a thought to wash off the dye, but I

> > > will do it from now on. Thanks!

> > >

> > > <thecolemans4@...> wrote:

> >

> > > Hi I don't know the answer, but I know that

> > that

> > > question has been asked at least 5 times. :) So it

> > > MUST be connected. It goes away.

> > > Odds are it's fine.

> > >

> > > You are washing off the blue dye, right?

> > >

> > > HTH-

> > >

> > >

> > > --- Robyn & Greg Coggins <rngcoggs@...>

> > > wrote:

> > >

> > > > My son has been on Valtrex for a week now and

> > I've

> > > > noticed small, red welts--one on his upper lip

> > and

> > > > several on his legs and buttocks. Cold this have

> > > > something to do with a possible virus awakening

> > in

> > > > response to the treatment?

> > > >

> > > > Thanks!

> > > >

> > > > Robyn

> > > >

> > > > Bill klimas <klimas_bill@...> wrote:

> > > > Amie

> > > > You actually can do more than just the diet. The

> > > > protocol is based on informed and observant

> > > parents.

> > > > Go to Dr. G's web site and pull down the parents

> > > and

> > > > physicians page and truly read them. The test

> > for

> > > > food

> > > > allergies is cheap and easy. Share it with you

> > > > Pediatrician and do the Preliminary testing. Ask

> > > the

> > > > office to link you with various lectures and

> > > videos

> > > > and share them with you support staff to

> > > re-enforce

> > > > the diet plans. The basic tests that he

> > recommends

> > > > are

> > > > listed as well. Do them before your first

> > > > appointment

> > > > so the data is available.

> > > > My son is nine and if followed religiously this

> > > will

> > > > make a huge difference. Got to go Connor is

> > asking

> > > > for

> > > > help with fourth grade spelling, really!

> > > > Bill

> > > >

> > > > --- thegraceacademy <amie_j@...> wrote:

> > > >

> > > > > I'm the mom of a 16 1/2 year old son who has

> > > > > struggled from what has

> > > > > been labeled severe autism his entire life,

> > only

> > > > the

> > > > > more and more

> > > > > research I do leads me to believe his

> > behaviors

> > > > are

> > > > > a result of the

> > > > > multitude of food allergies and internal

> > medical

> > > > > issues. Out of

> > > > > ignorance on my part, we've never even had him

> > > > > tested for allergies or

> > > > > gut problems. I am blessed to live in So Cal,

> > > just

> > > > > over the hill from

> > > > > Tarzana. Is it as simple as calling Dr. G's

> > > office

> > > > > and making an

> > > > > appointment to get started in exploring other

> > > ways

> > > > > of approach? I know

> > > > > his primary care physician would give us a

> > > > referral

> > > > > if we needed that,

> > > > > and we also do have insurance. I didn't see an

> > > > > appointment link on his

> > > > > website, so I got a little discouraged.

> > > > > Thank you.

> > > > >

> > > > >

> > > >

> > > >

> > >

> >

> __________________________________________________________

> > > > Never miss a thing. Make your home page.

> > > > http://www./r/hs

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> >

> __________________________________________________________

> > > Be a better friend, newshound, and

> > > know-it-all with Mobile. Try it now.

> > >

> >

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> >

> >

> >

> __________________________________________________________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> >

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

>

> Barb Katsaros

> barbkatsaros@...

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now. http://

> mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

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Guest guest

The month supply for Us is around 950.00 USD. We

co-pay almost 200 per script.

--- <thecolemans4@...> wrote:

> Regarding the price on Valtrex -

> does your insurance specify why? Depending on who

> it

> is, you could possibly appeal it as a long-term

> therapy.

>

> When you sell 10 days at a time, the price honestly

> isn't all that different on some meds for a few days

> vs a month's worth. Have you asked what 90 pills

> cost

> at one purchase? Anyway, it sounds as if your ins

> has

> the med set up for single infection treatments (like

> a

> 10 day round of antibiotic) and perhaps you could

> have

> that corrected?

>

> Or is it your insurance that's all wierd? :)

>

> HTH)

>

>

>

> --- Barb Katsaros <barbkatsaros@...> wrote:

>

> > I put about 20 or so pills in a bowl and fill it

> > with

> > water. I move it around some and keep dumping and

> > refilling the water until most of the dye is off.

> > Then I take them each by hand under water to get

> > some

> > more off. Then I lay them out on a paper towel to

> > dry. It's been a lot easier since I started doing

> > it

> > that way.

> >

> > Valtrex has really gone up. Our insurance will

> only

> > allow us to get 10 days worth at a time--1 gm., 3x

> > per

> > day, and it is 375 or so. Incredible! Anyone

> > finding

> > a less expensive source? that is with the

> discount

> > we

> > have thru our ins. co. !

> >

> > --- <thecolemans4@...>

> wrote:

> >

> > > Ahhh that could be it....

> > > Let us know if it helps...

> > >

> > >

> > >

> > > --- Robyn & Greg Coggins

> <rngcoggs@...>

> > > wrote:

> > >

> > > > Never gave it a thought to wash off the dye,

> but

> > I

> > > > will do it from now on. Thanks!

> > > >

> > > > <thecolemans4@...>

> wrote:

> >

> > >

> > > > Hi I don't know the answer, but I know

> that

> > > that

> > > > question has been asked at least 5 times. :)

> So

> > it

> > > > MUST be connected. It goes away.

> > > > Odds are it's fine.

> > > >

> > > > You are washing off the blue dye, right?

> > > >

> > > > HTH-

> > > >

> > > >

> > > > --- Robyn & Greg Coggins

> > <rngcoggs@...>

> > > > wrote:

> > > >

> > > > > My son has been on Valtrex for a week now

> and

> > > I've

> > > > > noticed small, red welts--one on his upper

> lip

> > > and

> > > > > several on his legs and buttocks. Cold this

> > have

> > > > > something to do with a possible virus

> > awakening

> > > in

> > > > > response to the treatment?

> > > > >

> > > > > Thanks!

> > > > >

> > > > > Robyn

> > > > >

> > > > > Bill klimas <klimas_bill@...> wrote:

> > > > > Amie

> > > > > You actually can do more than just the diet.

> > The

> > > > > protocol is based on informed and observant

> > > > parents.

> > > > > Go to Dr. G's web site and pull down the

> > parents

> > > > and

> > > > > physicians page and truly read them. The

> test

> > > for

> > > > > food

> > > > > allergies is cheap and easy. Share it with

> you

> > > > > Pediatrician and do the Preliminary testing.

> > Ask

> > > > the

> > > > > office to link you with various lectures and

> > > > videos

> > > > > and share them with you support staff to

> > > > re-enforce

> > > > > the diet plans. The basic tests that he

> > > recommends

> > > > > are

> > > > > listed as well. Do them before your first

> > > > > appointment

> > > > > so the data is available.

> > > > > My son is nine and if followed religiously

> > this

> > > > will

> > > > > make a huge difference. Got to go Connor is

> > > asking

> > > > > for

> > > > > help with fourth grade spelling, really!

> > > > > Bill

> > > > >

> > > > > --- thegraceacademy <amie_j@...>

> > wrote:

> > > > >

> > > > > > I'm the mom of a 16 1/2 year old son who

> has

> > > > > > struggled from what has

> > > > > > been labeled severe autism his entire

> life,

> > > only

> > > > > the

> > > > > > more and more

> > > > > > research I do leads me to believe his

> > > behaviors

> > > > > are

> > > > > > a result of the

> > > > > > multitude of food allergies and internal

> > > medical

> > > > > > issues. Out of

> > > > > > ignorance on my part, we've never even had

> > him

> > > > > > tested for allergies or

> > > > > > gut problems. I am blessed to live in So

> > Cal,

> > > > just

> > > > > > over the hill from

> > > > > > Tarzana. Is it as simple as calling Dr.

> G's

> > > > office

> > > > > > and making an

> > > > > > appointment to get started in exploring

> > other

> > > > ways

> > > > > > of approach? I know

> > > > > > his primary care physician would give us a

> > > > > referral

> > > > > > if we needed that,

> > > > > > and we also do have insurance. I didn't

> see

> > an

> > > > > > appointment link on his

> > > > > > website, so I got a little discouraged.

> > > > > > Thank you.

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

__________________________________________________________

> > > > > Never miss a thing. Make your home

> page.

> >

> > > > > http://www./r/hs

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > [Non-text portions of this message have been

>

=== message truncated ===

________________________________________________________________________________\

____

Looking for last minute shopping deals?

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Guest guest

Can those of you paying so much get generic?

cheryl

On Mar 16, 2008, at 9:32 AM, Bill klimas wrote:

> The month supply for Us is around 950.00 USD. We

> co-pay almost 200 per script.

> --- <thecolemans4@...> wrote:

>

> > Regarding the price on Valtrex -

> > does your insurance specify why? Depending on who

> > it

> > is, you could possibly appeal it as a long-term

> > therapy.

> >

> > When you sell 10 days at a time, the price honestly

> > isn't all that different on some meds for a few days

> > vs a month's worth. Have you asked what 90 pills

> > cost

> > at one purchase? Anyway, it sounds as if your ins

> > has

> > the med set up for single infection treatments (like

> > a

> > 10 day round of antibiotic) and perhaps you could

> > have

> > that corrected?

> >

> > Or is it your insurance that's all wierd? :)

> >

> > HTH)

> >

> >

> >

> > --- Barb Katsaros <barbkatsaros@...> wrote:

> >

> > > I put about 20 or so pills in a bowl and fill it

> > > with

> > > water. I move it around some and keep dumping and

> > > refilling the water until most of the dye is off.

> > > Then I take them each by hand under water to get

> > > some

> > > more off. Then I lay them out on a paper towel to

> > > dry. It's been a lot easier since I started doing

> > > it

> > > that way.

> > >

> > > Valtrex has really gone up. Our insurance will

> > only

> > > allow us to get 10 days worth at a time--1 gm., 3x

> > > per

> > > day, and it is 375 or so. Incredible! Anyone

> > > finding

> > > a less expensive source? that is with the

> > discount

> > > we

> > > have thru our ins. co. !

> > >

> > > --- <thecolemans4@...>

> > wrote:

> > >

> > > > Ahhh that could be it....

> > > > Let us know if it helps...

> > > >

> > > >

> > > >

> > > > --- Robyn & Greg Coggins

> > <rngcoggs@...>

> > > > wrote:

> > > >

> > > > > Never gave it a thought to wash off the dye,

> > but

> > > I

> > > > > will do it from now on. Thanks!

> > > > >

> > > > > <thecolemans4@...>

> > wrote:

> > >

> > > >

> > > > > Hi I don't know the answer, but I know

> > that

> > > > that

> > > > > question has been asked at least 5 times. :)

> > So

> > > it

> > > > > MUST be connected. It goes away.

> > > > > Odds are it's fine.

> > > > >

> > > > > You are washing off the blue dye, right?

> > > > >

> > > > > HTH-

> > > > >

> > > > >

> > > > > --- Robyn & Greg Coggins

> > > <rngcoggs@...>

> > > > > wrote:

> > > > >

> > > > > > My son has been on Valtrex for a week now

> > and

> > > > I've

> > > > > > noticed small, red welts--one on his upper

> > lip

> > > > and

> > > > > > several on his legs and buttocks. Cold this

> > > have

> > > > > > something to do with a possible virus

> > > awakening

> > > > in

> > > > > > response to the treatment?

> > > > > >

> > > > > > Thanks!

> > > > > >

> > > > > > Robyn

> > > > > >

> > > > > > Bill klimas <klimas_bill@...> wrote:

> > > > > > Amie

> > > > > > You actually can do more than just the diet.

> > > The

> > > > > > protocol is based on informed and observant

> > > > > parents.

> > > > > > Go to Dr. G's web site and pull down the

> > > parents

> > > > > and

> > > > > > physicians page and truly read them. The

> > test

> > > > for

> > > > > > food

> > > > > > allergies is cheap and easy. Share it with

> > you

> > > > > > Pediatrician and do the Preliminary testing.

> > > Ask

> > > > > the

> > > > > > office to link you with various lectures and

> > > > > videos

> > > > > > and share them with you support staff to

> > > > > re-enforce

> > > > > > the diet plans. The basic tests that he

> > > > recommends

> > > > > > are

> > > > > > listed as well. Do them before your first

> > > > > > appointment

> > > > > > so the data is available.

> > > > > > My son is nine and if followed religiously

> > > this

> > > > > will

> > > > > > make a huge difference. Got to go Connor is

> > > > asking

> > > > > > for

> > > > > > help with fourth grade spelling, really!

> > > > > > Bill

> > > > > >

> > > > > > --- thegraceacademy <amie_j@...>

> > > wrote:

> > > > > >

> > > > > > > I'm the mom of a 16 1/2 year old son who

> > has

> > > > > > > struggled from what has

> > > > > > > been labeled severe autism his entire

> > life,

> > > > only

> > > > > > the

> > > > > > > more and more

> > > > > > > research I do leads me to believe his

> > > > behaviors

> > > > > > are

> > > > > > > a result of the

> > > > > > > multitude of food allergies and internal

> > > > medical

> > > > > > > issues. Out of

> > > > > > > ignorance on my part, we've never even had

> > > him

> > > > > > > tested for allergies or

> > > > > > > gut problems. I am blessed to live in So

> > > Cal,

> > > > > just

> > > > > > > over the hill from

> > > > > > > Tarzana. Is it as simple as calling Dr.

> > G's

> > > > > office

> > > > > > > and making an

> > > > > > > appointment to get started in exploring

> > > other

> > > > > ways

> > > > > > > of approach? I know

> > > > > > > his primary care physician would give us a

> > > > > > referral

> > > > > > > if we needed that,

> > > > > > > and we also do have insurance. I didn't

> > see

> > > an

> > > > > > > appointment link on his

> > > > > > > website, so I got a little discouraged.

> > > > > > > Thank you.

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> __________________________________________________________

> > > > > > Never miss a thing. Make your home

> > page.

> > >

> > > > > > http://www./r/hs

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > [Non-text portions of this message have been

> >

> === message truncated ===

>

> __________________________________________________________

> Looking for last minute shopping deals?

> Find them fast with Search. http://tools.search./

> newsearch/category.php?category=shopping

>

>

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Share on other sites

Guest guest

I do not know if Dr G agrees with the generic. has

anyone asked him?

This is the srp from Glaxo on the dosage we use. I do

see it on line at lower prices but after all of the

pharm/asian scandals I am not comfortable and do not

know how to confirm they are true equivalents.

Anyone have a reliable and inexpensive alternative

that has shown the viral tiers drop? (the only true

confirmation)

Valtrex: Manufacturer/Pricing

Manufacturer: GlaxoKline

DEA/FDA: Rx

Approximate Retail Price

tablet:

1 gm (30 ea): $319.99

500 mg (30 ea): $181.99

--- Cheryl Lowrance <c.lowrance@...> wrote:

> Can those of you paying so much get generic?

>

> cheryl

>

> On Mar 16, 2008, at 9:32 AM, Bill klimas wrote:

>

> > The month supply for Us is around 950.00 USD. We

> > co-pay almost 200 per script.

> > --- <thecolemans4@...>

> wrote:

> >

> > > Regarding the price on Valtrex -

> > > does your insurance specify why? Depending on

> who

> > > it

> > > is, you could possibly appeal it as a long-term

> > > therapy.

> > >

> > > When you sell 10 days at a time, the price

> honestly

> > > isn't all that different on some meds for a few

> days

> > > vs a month's worth. Have you asked what 90 pills

> > > cost

> > > at one purchase? Anyway, it sounds as if your

> ins

> > > has

> > > the med set up for single infection treatments

> (like

> > > a

> > > 10 day round of antibiotic) and perhaps you

> could

> > > have

> > > that corrected?

> > >

> > > Or is it your insurance that's all wierd? :)

> > >

> > > HTH)

> > >

> > >

> > >

> > > --- Barb Katsaros <barbkatsaros@...>

> wrote:

> > >

> > > > I put about 20 or so pills in a bowl and fill

> it

> > > > with

> > > > water. I move it around some and keep dumping

> and

> > > > refilling the water until most of the dye is

> off.

> > > > Then I take them each by hand under water to

> get

> > > > some

> > > > more off. Then I lay them out on a paper towel

> to

> > > > dry. It's been a lot easier since I started

> doing

> > > > it

> > > > that way.

> > > >

> > > > Valtrex has really gone up. Our insurance will

> > > only

> > > > allow us to get 10 days worth at a time--1

> gm., 3x

> > > > per

> > > > day, and it is 375 or so. Incredible! Anyone

> > > > finding

> > > > a less expensive source? that is with the

> > > discount

> > > > we

> > > > have thru our ins. co. !

> > > >

> > > > --- <thecolemans4@...>

> > > wrote:

> > > >

> > > > > Ahhh that could be it....

> > > > > Let us know if it helps...

> > > > >

> > > > >

> > > > >

> > > > > --- Robyn & Greg Coggins

> > > <rngcoggs@...>

> > > > > wrote:

> > > > >

> > > > > > Never gave it a thought to wash off the

> dye,

> > > but

> > > > I

> > > > > > will do it from now on. Thanks!

> > > > > >

> > > > > > <thecolemans4@...>

> > > wrote:

> > > >

> > > > >

> > > > > > Hi I don't know the answer, but I know

> > > that

> > > > > that

> > > > > > question has been asked at least 5 times.

> :)

> > > So

> > > > it

> > > > > > MUST be connected. It goes away.

> > > > > > Odds are it's fine.

> > > > > >

> > > > > > You are washing off the blue dye, right?

> > > > > >

> > > > > > HTH-

> > > > > >

> > > > > >

> > > > > > --- Robyn & Greg Coggins

> > > > <rngcoggs@...>

> > > > > > wrote:

> > > > > >

> > > > > > > My son has been on Valtrex for a week

> now

> > > and

> > > > > I've

> > > > > > > noticed small, red welts--one on his

> upper

> > > lip

> > > > > and

> > > > > > > several on his legs and buttocks. Cold

> this

> > > > have

> > > > > > > something to do with a possible virus

> > > > awakening

> > > > > in

> > > > > > > response to the treatment?

> > > > > > >

> > > > > > > Thanks!

> > > > > > >

> > > > > > > Robyn

> > > > > > >

> > > > > > > Bill klimas <klimas_bill@...>

> wrote:

> > > > > > > Amie

> > > > > > > You actually can do more than just the

> diet.

> > > > The

> > > > > > > protocol is based on informed and

> observant

> > > > > > parents.

> > > > > > > Go to Dr. G's web site and pull down the

> > > > parents

> > > > > > and

> > > > > > > physicians page and truly read them. The

> > > test

> > > > > for

> > > > > > > food

> > > > > > > allergies is cheap and easy. Share it

> with

> > > you

> > > > > > > Pediatrician and do the Preliminary

> testing.

> > > > Ask

> > > > > > the

> > > > > > > office to link you with various lectures

> and

> > > > > > videos

> > > > > > > and share them with you support staff to

> > > > > > re-enforce

> > > > > > > the diet plans. The basic tests that he

> > > > > recommends

> > > > > > > are

> > > > > > > listed as well. Do them before your

> first

> > > > > > > appointment

> > > > > > > so the data is available.

> > > > > > > My son is nine and if followed

> religiously

> > > > this

> > > > > > will

> > > > > > > make a huge difference. Got to go Connor

> is

> > > > > asking

> > > > > > > for

> > > > > > > help with fourth grade spelling, really!

> > > > > > > Bill

> > > > > > >

> > > > > > > --- thegraceacademy <amie_j@...>

> > > > wrote:

> > > > > > >

> > > > > > > > I'm the mom of a 16 1/2 year old son

> who

> > > has

> > > > > > > > struggled from what has

> > > > > > > > been labeled severe autism his entire

> > > life,

> > > > > only

> > > > > > > the

> > > > > > > > more and more

> > > > > > > > research I do leads me to believe his

> > > > > behaviors

> > > > > > > are

> > > > > > > > a result of the

> > > > > > > > multitude of food allergies and

> internal

> > > > > medical

> > > > > > > > issues. Out of

> > > > > > > > ignorance on my part, we've never even

> had

>

=== message truncated ===

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

Link to comment
Share on other sites

Guest guest

We've always used generic for everything. He usually only has issues

with it if there are negatives showing. At the time that we were

doing Valtrex, there wasn't a generic available but our insurance

covered it. I'm seeing more and more people getting generic now,

though so I'm guessing it's widely available now. Valacyclovir is

the generic name.

If you can't do that, could you ask Dr. G to give you a different

antiviral? He uses them all so I don't see why he wouldn't,

especially if you told him how much you were paying for it. Valtrex

brought us wonderful gains but it never did drop our titers. Our

HHV6 titers didn't start to drop until we switched to Zovirax

(Acyclovir). But in between we also used Famvir.

Cheryl

On Mar 16, 2008, at 3:27 PM, Bill klimas wrote:

> I do not know if Dr G agrees with the generic. has

> anyone asked him?

> This is the srp from Glaxo on the dosage we use. I do

> see it on line at lower prices but after all of the

> pharm/asian scandals I am not comfortable and do not

> know how to confirm they are true equivalents.

>

> Anyone have a reliable and inexpensive alternative

> that has shown the viral tiers drop? (the only true

> confirmation)

>

> Valtrex: Manufacturer/Pricing

>

>

> Manufacturer: GlaxoKline

> DEA/FDA: Rx

> Approximate Retail Price

> tablet:

> 1 gm (30 ea): $319.99

> 500 mg (30 ea): $181.99

> --- Cheryl Lowrance <c.lowrance@...> wrote:

>

> > Can those of you paying so much get generic?

> >

> > cheryl

> >

> > On Mar 16, 2008, at 9:32 AM, Bill klimas wrote:

> >

> > > The month supply for Us is around 950.00 USD. We

> > > co-pay almost 200 per script.

> > > --- <thecolemans4@...>

> > wrote:

> > >

> > > > Regarding the price on Valtrex -

> > > > does your insurance specify why? Depending on

> > who

> > > > it

> > > > is, you could possibly appeal it as a long-term

> > > > therapy.

> > > >

> > > > When you sell 10 days at a time, the price

> > honestly

> > > > isn't all that different on some meds for a few

> > days

> > > > vs a month's worth. Have you asked what 90 pills

> > > > cost

> > > > at one purchase? Anyway, it sounds as if your

> > ins

> > > > has

> > > > the med set up for single infection treatments

> > (like

> > > > a

> > > > 10 day round of antibiotic) and perhaps you

> > could

> > > > have

> > > > that corrected?

> > > >

> > > > Or is it your insurance that's all wierd? :)

> > > >

> > > > HTH)

> > > >

> > > >

> > > >

> > > > --- Barb Katsaros <barbkatsaros@...>

> > wrote:

> > > >

> > > > > I put about 20 or so pills in a bowl and fill

> > it

> > > > > with

> > > > > water. I move it around some and keep dumping

> > and

> > > > > refilling the water until most of the dye is

> > off.

> > > > > Then I take them each by hand under water to

> > get

> > > > > some

> > > > > more off. Then I lay them out on a paper towel

> > to

> > > > > dry. It's been a lot easier since I started

> > doing

> > > > > it

> > > > > that way.

> > > > >

> > > > > Valtrex has really gone up. Our insurance will

> > > > only

> > > > > allow us to get 10 days worth at a time--1

> > gm., 3x

> > > > > per

> > > > > day, and it is 375 or so. Incredible! Anyone

> > > > > finding

> > > > > a less expensive source? that is with the

> > > > discount

> > > > > we

> > > > > have thru our ins. co. !

> > > > >

> > > > > --- <thecolemans4@...>

> > > > wrote:

> > > > >

> > > > > > Ahhh that could be it....

> > > > > > Let us know if it helps...

> > > > > >

> > > > > >

> > > > > >

> > > > > > --- Robyn & Greg Coggins

> > > > <rngcoggs@...>

> > > > > > wrote:

> > > > > >

> > > > > > > Never gave it a thought to wash off the

> > dye,

> > > > but

> > > > > I

> > > > > > > will do it from now on. Thanks!

> > > > > > >

> > > > > > > <thecolemans4@...>

> > > > wrote:

> > > > >

> > > > > >

> > > > > > > Hi I don't know the answer, but I know

> > > > that

> > > > > > that

> > > > > > > question has been asked at least 5 times.

> > :)

> > > > So

> > > > > it

> > > > > > > MUST be connected. It goes away.

> > > > > > > Odds are it's fine.

> > > > > > >

> > > > > > > You are washing off the blue dye, right?

> > > > > > >

> > > > > > > HTH-

> > > > > > >

> > > > > > >

> > > > > > > --- Robyn & Greg Coggins

> > > > > <rngcoggs@...>

> > > > > > > wrote:

> > > > > > >

> > > > > > > > My son has been on Valtrex for a week

> > now

> > > > and

> > > > > > I've

> > > > > > > > noticed small, red welts--one on his

> > upper

> > > > lip

> > > > > > and

> > > > > > > > several on his legs and buttocks. Cold

> > this

> > > > > have

> > > > > > > > something to do with a possible virus

> > > > > awakening

> > > > > > in

> > > > > > > > response to the treatment?

> > > > > > > >

> > > > > > > > Thanks!

> > > > > > > >

> > > > > > > > Robyn

> > > > > > > >

> > > > > > > > Bill klimas <klimas_bill@...>

> > wrote:

> > > > > > > > Amie

> > > > > > > > You actually can do more than just the

> > diet.

> > > > > The

> > > > > > > > protocol is based on informed and

> > observant

> > > > > > > parents.

> > > > > > > > Go to Dr. G's web site and pull down the

> > > > > parents

> > > > > > > and

> > > > > > > > physicians page and truly read them. The

> > > > test

> > > > > > for

> > > > > > > > food

> > > > > > > > allergies is cheap and easy. Share it

> > with

> > > > you

> > > > > > > > Pediatrician and do the Preliminary

> > testing.

> > > > > Ask

> > > > > > > the

> > > > > > > > office to link you with various lectures

> > and

> > > > > > > videos

> > > > > > > > and share them with you support staff to

> > > > > > > re-enforce

> > > > > > > > the diet plans. The basic tests that he

> > > > > > recommends

> > > > > > > > are

> > > > > > > > listed as well. Do them before your

> > first

> > > > > > > > appointment

> > > > > > > > so the data is available.

> > > > > > > > My son is nine and if followed

> > religiously

> > > > > this

> > > > > > > will

> > > > > > > > make a huge difference. Got to go Connor

> > is

> > > > > > asking

> > > > > > > > for

> > > > > > > > help with fourth grade spelling, really!

> > > > > > > > Bill

> > > > > > > >

> > > > > > > > --- thegraceacademy <amie_j@...>

> > > > > wrote:

> > > > > > > >

> > > > > > > > > I'm the mom of a 16 1/2 year old son

> > who

> > > > has

> > > > > > > > > struggled from what has

> > > > > > > > > been labeled severe autism his entire

> > > > life,

> > > > > > only

> > > > > > > > the

> > > > > > > > > more and more

> > > > > > > > > research I do leads me to believe his

> > > > > > behaviors

> > > > > > > > are

> > > > > > > > > a result of the

> > > > > > > > > multitude of food allergies and

> > internal

> > > > > > medical

> > > > > > > > > issues. Out of

> > > > > > > > > ignorance on my part, we've never even

> > had

> >

> === message truncated ===

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

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Guest guest

My son has been on Valtrex for several years (500mg 3x/day) and insurance has

always

covered it. We have BCBS (scripts through Medco) and our co-pay is $25, but the

receipt

says retail is $620. I know that a few months ago, insurance required Dr. G to

verify the

script and basically state that we would be needing it for the next 12 months in

order for

them to continue to cover it (they've never done that before). So maybe there is

some way

to find out if there's a work-around of sorts to get the script written

differently in order

for it to be covered? Just a thought.

We also used Famvir years ago. I don't really remember why the change, but my

son's

titers have remained low and steady for quite some time on the Valtrex.

> > > > > > > > >

> > > > > > > > > > I'm the mom of a 16 1/2 year old son

> > > who

> > > > > has

> > > > > > > > > > struggled from what has

> > > > > > > > > > been labeled severe autism his entire

> > > > > life,

> > > > > > > only

> > > > > > > > > the

> > > > > > > > > > more and more

> > > > > > > > > > research I do leads me to believe his

> > > > > > > behaviors

> > > > > > > > > are

> > > > > > > > > > a result of the

> > > > > > > > > > multitude of food allergies and

> > > internal

> > > > > > > medical

> > > > > > > > > > issues. Out of

> > > > > > > > > > ignorance on my part, we've never even

> > > had

> > >

> > === message truncated ===

> >

> > __________________________________________________________

> > Never miss a thing. Make your home page.

> > http://www./r/hs

> >

> >

>

>

>

>

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  • 5 weeks later...
Guest guest

>I've never heard of this type of reaction. It sounds like die off, but

maybe he's allergic/sensitive to Valtrex. Have you tried posting this

question on the mb12 valtrex group? Stan Kurtz is the moderator.

Good luck.

> Anyone have fever, nausea and vomiting while on Valtrex? Trying to

> figure out if my son's symptoms are a flu, side effects or possible

> die off. He started Valtrex on Saturday.

>

> TIA,

>

> Robyn

>

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Guest guest

Thanks for the info. That was my feeling as well. Unfortunately, I'm in Florida

visiting my sister and new niece, and he's in CA. His dad is there, though, and

my mom reported this evening that he is much better. Dr. G's office said to keep

giving the Valtrex and let them know how he is in a couple of days. With the

fever it's probably the flu.

Thanks again.

Robyn

<thecolemans4@...> wrote: Hey

Robyn

Here in Alabama, there has been a vicious tummy virus

going around that lasts around 11 days and an even

longer recovery period where everyone still feels bad.

It has been going around about 4 weeks and hasn't let

up yet. It has fever, nausea, vomitting, then it lets

up, lets you think you're better, then 2-3 days later

you run a fever again and start having fluid/swelling

over joints.

Nausea can happen w/Valtrex in a wicked die-off, but

your son's sounds a bit fierce. The fever suggests

illness, and it could be possible that the Valtrex has

'stirred up' a virus ... BUT more likely, the timing

is coincidence and he has gotten sick at the same

time. The worst of a die-off lasts a few days then

improves over 2 weeks. This virus does too. The

fever is the biggest suggestion that he's sick instead

of reacting. I lean toward a bug but then I'm not

there.

While you're sorting this out, I don't think he's at

'risk' from the Valtrex even if that was the cause,

but I'd still report it to the doc.

Poor baby...and poor mama. :(

HTH-

--- Robyn <rngcoggs@...> wrote:

> Anyone have fever, nausea and vomiting while on

> Valtrex? Trying to

> figure out if my son's symptoms are a flu, side

> effects or possible

> die off. He started Valtrex on Saturday.

>

> TIA,

>

> Robyn

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

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Guest guest

Just to let you know, low grade fever is almost always a part of die

off. Vomiting, not nearly as common, although it does happen. My

son gets a low grade fever on and off for a couple weeks whenever we

switch antivirals.

Cheryl

On Apr 16, 2008, at 7:06 PM, Robyn & Greg Coggins wrote:

> Thanks for the info. That was my feeling as well. Unfortunately,

> I'm in Florida visiting my sister and new niece, and he's in CA.

> His dad is there, though, and my mom reported this evening that he

> is much better. Dr. G's office said to keep giving the Valtrex and

> let them know how he is in a couple of days. With the fever it's

> probably the flu.

>

> Thanks again.

>

> Robyn

>

> <thecolemans4@...> wrote: Hey Robyn

>

> Here in Alabama, there has been a vicious tummy virus

> going around that lasts around 11 days and an even

> longer recovery period where everyone still feels bad.

> It has been going around about 4 weeks and hasn't let

> up yet. It has fever, nausea, vomitting, then it lets

> up, lets you think you're better, then 2-3 days later

> you run a fever again and start having fluid/swelling

> over joints.

>

> Nausea can happen w/Valtrex in a wicked die-off, but

> your son's sounds a bit fierce. The fever suggests

> illness, and it could be possible that the Valtrex has

> 'stirred up' a virus ... BUT more likely, the timing

> is coincidence and he has gotten sick at the same

> time. The worst of a die-off lasts a few days then

> improves over 2 weeks. This virus does too. The

> fever is the biggest suggestion that he's sick instead

> of reacting. I lean toward a bug but then I'm not

> there.

>

> While you're sorting this out, I don't think he's at

> 'risk' from the Valtrex even if that was the cause,

> but I'd still report it to the doc.

>

> Poor baby...and poor mama. :(

>

> HTH-

>

>

> --- Robyn <rngcoggs@...> wrote:

>

> > Anyone have fever, nausea and vomiting while on

> > Valtrex? Trying to

> > figure out if my son's symptoms are a flu, side

> > effects or possible

> > die off. He started Valtrex on Saturday.

> >

> > TIA,

> >

> > Robyn

> >

> >

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now. http://

> mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

>

>

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