Re: Re: GERD/Constipation

[Guest guest]

,

We use Miralax for Lindsey's constipation who is now 9 years old, She is not

mobile and is medicated for seizures with Keppra.  She gets 90 percent of her

nutrition from Pedisure which she still takes in a bottle.  She is also non-

verbal.  She is not potty trained and I doubt she ever will be.  Too hard to

lift!  She takes something for GERD but at the moment  I can't remember the

name of the medication.  Anyway, to make a long story short, my daughter just

kept adjusting the Miralax till she got it right and seems it works fine. 

Could be in your case maybe that a certain medication  is causing the

constipation.  Maybe just keep adjusting the Miralax dose.  Sorry I couldn't

help more.

Blessings,

Bonnie (grandmother to Lindsey 9 years old)

Bonnie

Subject: Re: GERD/Constipation

To: polymicrogyria

Date: Tuesday, May 17, 2011, 11:37 PM

 

Hello ! I wish I had some good advice for you, but all I can really

say is that you that you are not alone! My son Eli is 6 and has struggled with

the same problem. We have been using the miralax in varied doses for over a

year, and the problem persists. He is still not potty trained either, and I

feel that this issue is part of what is making potty training so hard. I'm sure

the poor kid feels he just does not have enough control over this, so he doesn't

even want to try! Sometimes he goes for 4 to 6 days at a time without a BM, and

other times he has them in very small amounts several times a day. I also feel

that his seizures cause some incontinence too, although since he is still

wearing pull-ups it is hard to tell if it happened during the seizure or before!

Eli's bottom gets sore too, but other than using desitin or a similar type of

baby butt cream, I don't have any great answers. I know it is very frustrating!

If anyone else

has been to a GI who had a solution for this issue, I would be happy to hear it

also!

Mom to Eli(6)BFPP, Melody (12), and Lydia (3)- very understanding and tolerant

sisters!

>

> Hello All,

>

> My son has struggled with GERD and bowel issues since he was an infant.

He is now four and still is having issues. We have been to the GI doc who

prescribed Prevacid for the GERD and Miralax for constipation. We are yet to

find a balance with the Miralax as he either remains constipated or starts to

have frequent bowel movements which result in a painfully irratated behind. I

feel so helpless because I know it must be really uncomfortable for him. I have

also tried Culturelle (probiotic) which seems to give him loose BMs. His diet

is fairly consistent w/fruit, oatmeal, milk, water, juice, chicken, veggies,

crackers, etc. Any suggestions?

>

> Thanks,

> , Mom to (4) BPP, Sophia (12)

>