Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi I've replied to another post but just wanted to say hi to everyone. Our baby girl started having seizures from 11 weeks and after two weeks of extensive testing we were told she has Neural Migration Disorder. Named polymicrogria, on the left side. She suffers from daily infantile spasms and is heavily medicated. These meds help but she has daily break through spasms. At 4 months she also had a tumour removed from her cerebellem. She is now 8mths old, is yet to hold her head up on her own. She is very vocal and with the help of an OT is now stronger on her right side. She has cortical impairment but I've been told they won't know until shes older how well she can see, but I definetly know that she can, so we are working with a visual resource teacher aswell. She is a beautiful girl and tries so hard every day. I'm interested in hearing how others are doing, especially with development. Also have other parents gone on to have more children, or had genetic testing done? Our girl is our first and we are wanting more but are scared this could happen again. Thanks for your time. Kat Quote Link to comment Share on other sites More sharing options...
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