Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi all, Well..the last time i updated you all about he was starting the Ketogenic Diet. Sadly the diet did not work for so it's back to the drawing board. has started to have a new type of seizure along with the ones he had originally. he is now having 4 Grand Mal seizures and 20-30 Peti Mals ( Staring) He has terrible Drop Attacks in the morning and is unable to walk from one end of a room to the other without falling over. 30-40 of these new " things " - eyes rolling back in his head, head jerks back and he loses control of his body, drops what he has in his hands and his knees buccal. He so tired all the time it's breaking my heart... He's gone from a Happy little boy who runs around(well as best he can) to a tired, sad little boy who spends most of his time sat on the sofa, I think he is getting to frightened to move incase one if these horrible things attack. He has fell down the stairs twice in two days and I think it's only the fact that his body goes so wobbly/relaxed that he hasn't been more seriously hurt. Anyway i hope everyone else's little Angels are having a better time?! mum to 8yrs PMG/LISS Severe Epilepsy Reflux and a G-Tube Quote Link to comment Share on other sites More sharing options...
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