Guest guest Posted July 19, 2011 Report Share Posted July 19, 2011 Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Tue, July 19, 2011 9:16:28 PM Subject: RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 Nisha was dx at 6 mos with unilateral perisylvian PMG and her tone is more intermittent to tight. She had the most trouble rolling over I wish I would of just physically rolled her daily maybe she would of caught on. Because when she started gymnastics doing the pencil roll it helped her to use her left side. She sat up 5 mos and crawled at 9 mos and walked 13 mos know we estimed since 10 mos. We had very qualified therapist and I took on alot of work. I would suggest kinesio tape on the core, or DMO's or theratogs. At that age core strength and awareness is priority. Diane RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 My girl is 10 months and still doesn't hold her head up either or sit up unsupported and has very low tone. She also wriggles alot and moves her arms and legs well and is quite strong when pushing off me when holding her. I also hope that oneday she will become strong enough to hold her own head up and sit on her own, She also does not smile. She has been spasm free for 1 mth after complete ACTH treatment but doc has said she will develop other types of seizures. We are hoping these will be easier to control with medication as the spasms were really awful! We are wanting to have another baby, her micro array came back normal, so I guess we have to take a leap of faith and hope this doesn't happen again, although it is very scarey to think about going through it again. has anyone got good stories of having further children without problems when you don't know what actually cauzed the PG in the first place? Thanks Kat ________________________________ To: polymicrogyria Sent: Thursday, 21 July 2011 7:02 AM Subject: Re: HELLO EVERYBODY  MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC  ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Tue, July 19, 2011 9:16:28 PM Subject: RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 I had a second baby they are 17 months apart. Dr Doblyns said that is was a 5% chance the second one would have PMG and she seems fine. Nisha'sa testing was all negative so no cause. It was the best decision for us. Whatever development Nisha missed she learns it later with her sister. They are very loving and fight often but mostly just play make believe all the time. It is a build in nonjudgmental friend and therapist. Don't get me wrong it is difficult two kids that close but I was older and we needed to do it that way. It is getting easier but Nisha does still get so much more care so we have to take special time for Rayna. It makes me sad when Rayna (3) talks about seizures and Nisha being out.Know that our kids meet their milestones in their own time so you have to celebrated the small things.We have been seizure free for 6 weeks yeah but we are thinking surgery might be best for her development. Get the most and best therapist and doctors. Diane To: polymicrogyria From: cutekat@... Date: Thu, 21 Jul 2011 18:49:48 +1200 Subject: Re: HELLO EVERYBODY My girl is 10 months and still doesn't hold her head up either or sit up unsupported and has very low tone. She also wriggles alot and moves her arms and legs well and is quite strong when pushing off me when holding her. I also hope that oneday she will become strong enough to hold her own head up and sit on her own, She also does not smile. She has been spasm free for 1 mth after complete ACTH treatment but doc has said she will develop other types of seizures. We are hoping these will be easier to control with medication as the spasms were really awful! We are wanting to have another baby, her micro array came back normal, so I guess we have to take a leap of faith and hope this doesn't happen again, although it is very scarey to think about going through it again. has anyone got good stories of having further children without problems when you don't know what actually cauzed the PG in the first place? Thanks Kat ________________________________ To: polymicrogyria Sent: Thursday, 21 July 2011 7:02 AM Subject: Re: HELLO EVERYBODY MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Tue, July 19, 2011 9:16:28 PM Subject: RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 I had another son and he is fine. Try not to worry. I know its hard. To: polymicrogyria From: cutekat@... Date: Thu, 21 Jul 2011 18:49:48 +1200 Subject: Re: HELLO EVERYBODY My girl is 10 months and still doesn't hold her head up either or sit up unsupported and has very low tone. She also wriggles alot and moves her arms and legs well and is quite strong when pushing off me when holding her. I also hope that oneday she will become strong enough to hold her own head up and sit on her own, She also does not smile. She has been spasm free for 1 mth after complete ACTH treatment but doc has said she will develop other types of seizures. We are hoping these will be easier to control with medication as the spasms were really awful! We are wanting to have another baby, her micro array came back normal, so I guess we have to take a leap of faith and hope this doesn't happen again, although it is very scarey to think about going through it again. has anyone got good stories of having further children without problems when you don't know what actually cauzed the PG in the first place? Thanks Kat ________________________________ To: polymicrogyria Sent: Thursday, 21 July 2011 7:02 AM Subject: Re: HELLO EVERYBODY MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Tue, July 19, 2011 9:16:28 PM Subject: RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 Our daughter also had IS, and had ACTH as treatment, successfully. She went four years without seizures, then they started to creep back. She is now fairly well maintained on Lomictal. She was also very low tone, and sat up for the first time at 18 mos, and walked at 4 years. LOTS of therapies helped--PT, OT, special ed, Speech, etc. Get as much as you can as early as you can! In terms of not smiling she may still be feeling the (crabby) effects of the ACTH. That stuff is rough! I asked a few docs about getting pregnant again, and I heard that the rate of recurrence could be anywhere from 11% to 25 %. Best of luck to you! Thea in NY RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 Rosemary,  Our daughter Amelie started PT to help her sit-up around her 1st birthday and she fought it for 2 months but got it down. Crawling started around 18 months and pulling up around 2 years. She would walk holding your hand or cruising from the couch to the table, etc. She didn't start walking on her own until right after her third birthday. Every stage took a long time and we worked and worked with her to try things out. Alabama sent Early Intervention therapists to help out along the way and they were fantastic. I'm thrilled to tell you that Amelie will be 5 in September and she walks everywhere, talks in complete sentences, and does pretty much everything the other kids do. I've only seen her run twice and she is wobbly but she's improving daily. I just want to encourage you because it may take our kids longer to hit these milestones but when they do it's AMAZING. Part of Amelie's neuronal migration disorder was that she was born legally blind with cataracts but after a few surgeries and lots of doctor visits, her vision has drastically improved and she loves her glasses. When you see another " normal " child that's the same age as your daughter doing things that she can't don't be discouraged. God made her just like she is and put her on her own timetable. Cherish the small victories and shower her with love. If she's a wiggler maybe she loves music, I know Amelie does. Have a great day, Jeff To: polymicrogyria Sent: Wednesday, July 20, 2011 2:02 PM Subject: Re: HELLO EVERYBODY  MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC  ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Tue, July 19, 2011 9:16:28 PM Subject: RE: HELLO EVERYBODY Rosemary, Welcome to the group ask any questions their is a lot of support and knowledge here. Having PMG does not shorten your life span but I would guess some medicines long term make you older in your elder years. It means for my daughter that she needs to remain active to keep her muscles strong. And seizures and the meds can be limiting and need to be monitered. PMG is different for each person it depends on how severe and the area of damage. My daughter has 30% of the right side that is effected. She also experiences frontal lobe complex partial seizures. Eventhought she has left hemiparesis cerebral palsy, sensory, vision, processing and focus issues she is high functioning. She runs without braces, talks well and fits in with regular kids. As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, gymnastics, augmenting education and robotic therapy. Diane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 Thanks for all the feedback im.so trill to hear ....all this info they had mis diagnosed.my daughter at first..... T-Mobile, America's First Nationwide 4G Network Sent by Samsung Mobile jeff sharp wrote: >Rosemary, > >Our daughter Amelie started PT to help her sit-up around her 1st birthday and she fought it for 2 months but got it down. Crawling started around 18 months and pulling up around 2 years. She would walk holding your hand or cruising from the couch to the table, etc. She didn't start walking on her own until right after her third birthday. Every stage took a long time and we worked and worked with her to try things out. Alabama sent Early Intervention therapists to help out along the way and they were fantastic. I'm thrilled to tell you that Amelie will be 5 in September and she walks everywhere, talks in complete sentences, and does pretty much everything the other kids do. I've only seen her run twice and she is wobbly but she's improving daily. I just want to encourage you because it may take our kids longer to hit these milestones but when they do it's AMAZING. Part of Amelie's neuronal migration disorder was that she was born legally > blind with cataracts but after a few surgeries and lots of doctor visits, her vision has drastically improved and she loves her glasses. When you see another " normal " child that's the same age as your daughter doing things that she can't don't be discouraged. God made her just like she is and put her on her own timetable. Cherish the small victories and shower her with love. If she's a wiggler maybe she loves music, I know Amelie does. Have a great day, Jeff > > >To: polymicrogyria >Sent: Wednesday, July 20, 2011 2:02 PM >Subject: Re: HELLO EVERYBODY > > > >MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD >UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR >DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC > > > >________________________________ > >To: " polymicrogyria " <polymicrogyria > >Sent: Tue, July 19, 2011 9:16:28 PM >Subject: RE: HELLO EVERYBODY > >Rosemary, >Welcome to the group ask any questions their is a lot of support and knowledge >here. >Having PMG does not shorten your life span but I would guess some medicines long >term make you older in your elder years. It means for my daughter that she needs >to remain active to keep her muscles strong. And seizures and the meds can be >limiting and need to be monitered. >PMG is different for each person it depends on how severe and the area of >damage. > >My daughter has 30% of the right side that is effected. She also experiences >frontal lobe complex partial seizures. Eventhought she has left hemiparesis >cerebral palsy, sensory, vision, processing and focus issues she is high >functioning. She runs without braces, talks well and fits in with regular kids. > >As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know >that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, >earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, >gymnastics, augmenting education and robotic therapy. > >Diane > >------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 I had a second child 9 years later. She is fine. Sent from my iPhone > > I had another son and he is fine. Try not to worry. I know its hard. > > > > To: polymicrogyria > From: cutekat@... > Date: Thu, 21 Jul 2011 18:49:48 +1200 > Subject: Re: HELLO EVERYBODY > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl is 10 months and still doesn't hold her head up either or sit up unsupported and has very low tone. She also wriggles alot and moves her arms and legs well and is quite strong when pushing off me when holding her. I also hope that oneday she will become strong enough to hold her own head up and sit on her own, She also does not smile. She has been spasm free for 1 mth after complete ACTH treatment but doc has said she will develop other types of seizures. We are hoping these will be easier to control with medication as the spasms were really awful! > > > > We are wanting to have another baby, her micro array came back normal, so I guess we have to take a leap of faith and hope this doesn't happen again, although it is very scarey to think about going through it again. has anyone got good stories of having further children without problems when you don't know what actually cauzed the PG in the first place? > > > > Thanks > > Kat > > > > ________________________________ > > > > To: polymicrogyria > > Sent: Thursday, 21 July 2011 7:02 AM > > Subject: Re: HELLO EVERYBODY > > > > > > MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD > > UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR > > DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC > > > > > > > > ________________________________ > > > > To: " polymicrogyria " <polymicrogyria > > > Sent: Tue, July 19, 2011 9:16:28 PM > > Subject: RE: HELLO EVERYBODY > > > > Rosemary, > > Welcome to the group ask any questions their is a lot of support and knowledge > > here. > > Having PMG does not shorten your life span but I would guess some medicines long > > term make you older in your elder years. It means for my daughter that she needs > > to remain active to keep her muscles strong. And seizures and the meds can be > > limiting and need to be monitered. > > PMG is different for each person it depends on how severe and the area of > > damage. > > > > My daughter has 30% of the right side that is effected. She also experiences > > frontal lobe complex partial seizures. Eventhought she has left hemiparesis > > cerebral palsy, sensory, vision, processing and focus issues she is high > > functioning. She runs without braces, talks well and fits in with regular kids. > > > > As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know > > that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, > > earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, > > gymnastics, augmenting education and robotic therapy. > > > > Diane > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 I have an eight year old who is fine, and my daughter, Cate, Sydney's identical twin is also fine. However, we are fairly certain Syd had a stroke in-utero and that the PMG is due to brain injury. ________________________________ To: " polymicrogyria " <polymicrogyria > Sent: Thu, July 21, 2011 10:08:59 PM Subject: Re: HELLO EVERYBODY  I had a second child 9 years later. She is fine. Sent from my iPhone > > I had another son and he is fine. Try not to worry. I know its hard. > > > > To: polymicrogyria > From: cutekat@... > Date: Thu, 21 Jul 2011 18:49:48 +1200 > Subject: Re: HELLO EVERYBODY > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl is 10 months and still doesn't hold her head up either or sit up >unsupported and has very low tone. She also wriggles alot and moves her arms and >legs well and is quite strong when pushing off me when holding her. I also hope >that oneday she will become strong enough to hold her own head up and sit on her >own, She also does not smile. She has been spasm free for 1 mth after complete >ACTH treatment but doc has said she will develop other types of seizures. We are >hoping these will be easier to control with medication as the spasms were really >awful! > > > > We are wanting to have another baby, her micro array came back normal, so I >guess we have to take a leap of faith and hope this doesn't happen again, >although it is very scarey to think about going through it again. has anyone got >good stories of having further children without problems when you don't know >what actually cauzed the PG in the first place? > > > > Thanks > > Kat > > > > ________________________________ > > > > To: polymicrogyria > > Sent: Thursday, 21 July 2011 7:02 AM > > Subject: Re: HELLO EVERYBODY > > > > > > MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD > > UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR > > DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC > > > > > > > > ________________________________ > > > > To: " polymicrogyria " <polymicrogyria > > > Sent: Tue, July 19, 2011 9:16:28 PM > > Subject: RE: HELLO EVERYBODY > > > > Rosemary, > > Welcome to the group ask any questions their is a lot of support and knowledge > > here. > > Having PMG does not shorten your life span but I would guess some medicines >long > > > term make you older in your elder years. It means for my daughter that she >needs > > > to remain active to keep her muscles strong. And seizures and the meds can be > > limiting and need to be monitered. > > PMG is different for each person it depends on how severe and the area of > > damage. > > > > My daughter has 30% of the right side that is effected. She also experiences > > frontal lobe complex partial seizures. Eventhought she has left hemiparesis > > cerebral palsy, sensory, vision, processing and focus issues she is high > > functioning. She runs without braces, talks well and fits in with regular kids. > > > > > As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. >Know > > > that we have and still do lots of therapies PT OT SLP, kinesio taping, estim, > > earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming, > > gymnastics, augmenting education and robotic therapy. > > > > Diane > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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