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Re: HELLO EVERYBODY

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Rosemary,

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines

long term make you older in your elder years. It means for my daughter that she

needs to remain active to keep her muscles strong. And seizures and the meds can

be limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

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MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

 

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Tue, July 19, 2011 9:16:28 PM

Subject: RE: HELLO EVERYBODY

Rosemary, 

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

------------------------------------

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Nisha was dx at 6 mos with unilateral perisylvian PMG and her tone is more

intermittent to tight. She had the most trouble rolling over I wish I would of

just physically rolled her daily maybe she would of caught on. Because when she

started gymnastics doing the pencil roll it helped her to use her left side.

She sat up 5 mos and crawled at 9 mos and walked 13 mos know we estimed since 10

mos. We had very qualified therapist and I took on alot of work.

I would suggest kinesio tape on the core, or DMO's or theratogs. At that age

core strength and awareness is priority.

Diane

RE: HELLO EVERYBODY

Rosemary, 

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex

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Guest guest

My girl is 10 months and still doesn't hold her head up either or sit up

unsupported and has very low tone. She also wriggles alot and moves her arms and

legs well and is quite strong when pushing off me when holding her. I also hope

that oneday she will become strong enough to hold her own head up and sit on her

own, She also does not smile. She has been spasm free for 1 mth after complete

ACTH treatment but doc has said she will develop other types of seizures. We are

hoping these will be easier to control with medication as the spasms were really

awful!

We are wanting to have another baby, her micro array came back normal, so I

guess we have to take a leap of faith and hope this doesn't happen again,

although it is very scarey to think about going through it again. has anyone got

good stories of having further children without problems when you don't know

what actually cauzed the PG in the first place?

Thanks

Kat

________________________________

To: polymicrogyria

Sent: Thursday, 21 July 2011 7:02 AM

Subject: Re: HELLO EVERYBODY

 

MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

 

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Tue, July 19, 2011 9:16:28 PM

Subject: RE: HELLO EVERYBODY

Rosemary, 

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

------------------------------------

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I had a second baby they are 17 months apart. Dr Doblyns said that is was a 5%

chance the second one would have PMG and she seems fine. Nisha'sa testing was

all negative so no cause. It was the best decision for us. Whatever development

Nisha missed she learns it later with her sister. They are very loving and fight

often but mostly just play make believe all the time. It is a build in

nonjudgmental friend and therapist. Don't get me wrong it is difficult two kids

that close but I was older and we needed to do it that way. It is getting easier

but Nisha does still get so much more care so we have to take special time for

Rayna. It makes me sad when Rayna (3) talks about seizures and Nisha being

out.Know that our kids meet their milestones in their own time so you have to

celebrated the small things.We have been seizure free for 6 weeks yeah but we

are thinking surgery might be best for her development. Get the most and best

therapist and doctors.

Diane

To: polymicrogyria

From: cutekat@...

Date: Thu, 21 Jul 2011 18:49:48 +1200

Subject: Re: HELLO EVERYBODY

My girl is 10 months and still doesn't hold her head up either or sit up

unsupported and has very low tone. She also wriggles alot and moves her arms and

legs well and is quite strong when pushing off me when holding her. I also hope

that oneday she will become strong enough to hold her own head up and sit on her

own, She also does not smile. She has been spasm free for 1 mth after complete

ACTH treatment but doc has said she will develop other types of seizures. We are

hoping these will be easier to control with medication as the spasms were really

awful!

We are wanting to have another baby, her micro array came back normal, so I

guess we have to take a leap of faith and hope this doesn't happen again,

although it is very scarey to think about going through it again. has anyone got

good stories of having further children without problems when you don't know

what actually cauzed the PG in the first place?

Thanks

Kat

________________________________

To: polymicrogyria

Sent: Thursday, 21 July 2011 7:02 AM

Subject: Re: HELLO EVERYBODY

MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Tue, July 19, 2011 9:16:28 PM

Subject: RE: HELLO EVERYBODY

Rosemary,

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

------------------------------------

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I had another son and he is fine. Try not to worry. I know its hard.

To: polymicrogyria

From: cutekat@...

Date: Thu, 21 Jul 2011 18:49:48 +1200

Subject: Re: HELLO EVERYBODY

My girl is 10 months and still doesn't hold her head up either or sit up

unsupported and has very low tone. She also wriggles alot and moves her arms and

legs well and is quite strong when pushing off me when holding her. I also hope

that oneday she will become strong enough to hold her own head up and sit on her

own, She also does not smile. She has been spasm free for 1 mth after complete

ACTH treatment but doc has said she will develop other types of seizures. We are

hoping these will be easier to control with medication as the spasms were really

awful!

We are wanting to have another baby, her micro array came back normal, so I

guess we have to take a leap of faith and hope this doesn't happen again,

although it is very scarey to think about going through it again. has anyone got

good stories of having further children without problems when you don't know

what actually cauzed the PG in the first place?

Thanks

Kat

________________________________

To: polymicrogyria

Sent: Thursday, 21 July 2011 7:02 AM

Subject: Re: HELLO EVERYBODY

MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Tue, July 19, 2011 9:16:28 PM

Subject: RE: HELLO EVERYBODY

Rosemary,

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

------------------------------------

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Guest guest

Our daughter also had IS, and had ACTH as treatment, successfully. She went

four years without seizures, then they started to creep back. She is now fairly

well maintained on Lomictal. She was also very low tone, and sat up for the

first time at 18 mos, and walked at 4 years. LOTS of therapies helped--PT, OT,

special ed, Speech, etc. Get as much as you can as early as you can! In terms of

not smiling she may still be feeling the (crabby) effects of the ACTH. That

stuff is rough!

I asked a few docs about getting pregnant again, and I heard that the rate of

recurrence could be anywhere from 11% to 25 %.

Best of luck to you!

Thea in NY

RE: HELLO EVERYBODY

Rosemary,

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

------------------------------------

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Rosemary,

 

Our daughter Amelie started PT to help her sit-up around her 1st birthday and

she fought it for 2 months but got it down.  Crawling started around 18 months

and pulling up around 2 years.  She would walk holding your hand or cruising

from the couch to the table, etc.  She didn't start walking on her own until

right after her third birthday.  Every stage took a long time and we worked and

worked with her to try things out.  Alabama sent Early Intervention therapists

to help out along the way and they were fantastic.  I'm thrilled to tell you

that Amelie will be 5 in September and she walks everywhere, talks in complete

sentences, and does pretty much everything the other kids do.  I've only seen

her run twice and she is wobbly but she's improving daily.  I just want to

encourage you because it may take our kids longer to hit these milestones but

when they do it's AMAZING.  Part of Amelie's neuronal migration disorder was

that she was born legally

blind with cataracts but after a few surgeries and lots of doctor visits, her

vision has drastically improved and she loves her glasses.  When you see

another " normal " child that's the same age as your daughter doing things that

she can't don't be discouraged.  God made her just like she is and put her on

her own timetable.  Cherish the small victories and shower her with love.  If

she's a wiggler maybe she loves music, I know Amelie does.  Have a great day,

Jeff

To: polymicrogyria

Sent: Wednesday, July 20, 2011 2:02 PM

Subject: Re: HELLO EVERYBODY

 

MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

 

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Tue, July 19, 2011 9:16:28 PM

Subject: RE: HELLO EVERYBODY

Rosemary, 

Welcome to the group ask any questions their is a lot of support and knowledge

here.

Having PMG does not shorten your life span but I would guess some medicines long

term make you older in your elder years. It means for my daughter that she needs

to remain active to keep her muscles strong. And seizures and the meds can be

limiting and need to be monitered.

PMG is different for each person it depends on how severe and the area of

damage.

My daughter has 30% of the right side that is effected. She also experiences

frontal lobe complex partial seizures. Eventhought she has left hemiparesis

cerebral palsy, sensory, vision, processing and focus issues she is high

functioning. She runs without braces, talks well and fits in with regular kids.

As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy. Know

that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

gymnastics, augmenting education and robotic therapy.

Diane

------------------------------------

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Guest guest

Thanks for all the feedback im.so trill to hear ....all this info they had mis

diagnosed.my daughter at first.....

T-Mobile, America's First Nationwide 4G Network

Sent by Samsung Mobile

jeff sharp wrote:

>Rosemary,

> 

>Our daughter Amelie started PT to help her sit-up around her 1st birthday and

she fought it for 2 months but got it down.  Crawling started around 18 months

and pulling up around 2 years.  She would walk holding your hand or cruising

from the couch to the table, etc.  She didn't start walking on her own until

right after her third birthday.  Every stage took a long time and we worked and

worked with her to try things out.  Alabama sent Early Intervention therapists

to help out along the way and they were fantastic.  I'm thrilled to tell you

that Amelie will be 5 in September and she walks everywhere, talks in complete

sentences, and does pretty much everything the other kids do.  I've only seen

her run twice and she is wobbly but she's improving daily.  I just want to

encourage you because it may take our kids longer to hit these milestones but

when they do it's AMAZING.  Part of Amelie's neuronal migration disorder was

that she was born legally

> blind with cataracts but after a few surgeries and lots of doctor visits, her

vision has drastically improved and she loves her glasses.  When you see

another " normal " child that's the same age as your daughter doing things that

she can't don't be discouraged.  God made her just like she is and put her on

her own timetable.  Cherish the small victories and shower her with love.  If

she's a wiggler maybe she loves music, I know Amelie does.  Have a great day,

Jeff

>

>

>To: polymicrogyria

>Sent: Wednesday, July 20, 2011 2:02 PM

>Subject: Re: HELLO EVERYBODY

>

>

> 

>MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

>UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

>DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

>

> 

>

>________________________________

>

>To: " polymicrogyria " <polymicrogyria >

>Sent: Tue, July 19, 2011 9:16:28 PM

>Subject: RE: HELLO EVERYBODY

>

>Rosemary, 

>Welcome to the group ask any questions their is a lot of support and knowledge

>here.

>Having PMG does not shorten your life span but I would guess some medicines

long

>term make you older in your elder years. It means for my daughter that she

needs

>to remain active to keep her muscles strong. And seizures and the meds can be

>limiting and need to be monitered.

>PMG is different for each person it depends on how severe and the area of

>damage.

>

>My daughter has 30% of the right side that is effected. She also experiences

>frontal lobe complex partial seizures. Eventhought she has left hemiparesis

>cerebral palsy, sensory, vision, processing and focus issues she is high

>functioning. She runs without braces, talks well and fits in with regular kids.

>

>As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy.

Know

>that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

>earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

>gymnastics, augmenting education and robotic therapy.

>

>Diane

>

>------------------------------------

>

>

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Guest guest

I had a second child 9 years later. She is fine.

Sent from my iPhone

>

> I had another son and he is fine. Try not to worry. I know its hard.

>

>

>

> To: polymicrogyria

> From: cutekat@...

> Date: Thu, 21 Jul 2011 18:49:48 +1200

> Subject: Re: HELLO EVERYBODY

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> My girl is 10 months and still doesn't hold her head up either or sit up

unsupported and has very low tone. She also wriggles alot and moves her arms and

legs well and is quite strong when pushing off me when holding her. I also hope

that oneday she will become strong enough to hold her own head up and sit on her

own, She also does not smile. She has been spasm free for 1 mth after complete

ACTH treatment but doc has said she will develop other types of seizures. We are

hoping these will be easier to control with medication as the spasms were really

awful!

>

>

>

> We are wanting to have another baby, her micro array came back normal, so I

guess we have to take a leap of faith and hope this doesn't happen again,

although it is very scarey to think about going through it again. has anyone got

good stories of having further children without problems when you don't know

what actually cauzed the PG in the first place?

>

>

>

> Thanks

>

> Kat

>

>

>

> ________________________________

>

>

>

> To: polymicrogyria

>

> Sent: Thursday, 21 July 2011 7:02 AM

>

> Subject: Re: HELLO EVERYBODY

>

>

>

>

>

> MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

>

> UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

>

> DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

>

>

>

>

>

>

>

> ________________________________

>

>

>

> To: " polymicrogyria " <polymicrogyria >

>

> Sent: Tue, July 19, 2011 9:16:28 PM

>

> Subject: RE: HELLO EVERYBODY

>

>

>

> Rosemary,

>

> Welcome to the group ask any questions their is a lot of support and knowledge

>

> here.

>

> Having PMG does not shorten your life span but I would guess some medicines

long

>

> term make you older in your elder years. It means for my daughter that she

needs

>

> to remain active to keep her muscles strong. And seizures and the meds can be

>

> limiting and need to be monitered.

>

> PMG is different for each person it depends on how severe and the area of

>

> damage.

>

>

>

> My daughter has 30% of the right side that is effected. She also experiences

>

> frontal lobe complex partial seizures. Eventhought she has left hemiparesis

>

> cerebral palsy, sensory, vision, processing and focus issues she is high

>

> functioning. She runs without braces, talks well and fits in with regular

kids.

>

>

>

> As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy.

Know

>

> that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

>

> earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

>

> gymnastics, augmenting education and robotic therapy.

>

>

>

> Diane

>

>

>

> ------------------------------------

>

>

>

>

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Share on other sites

Guest guest

I have an eight year old who is fine, and my daughter, Cate, Sydney's identical

twin is also fine. However, we are fairly certain Syd had a stroke in-utero and

that the PMG is due to brain injury.

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Thu, July 21, 2011 10:08:59 PM

Subject: Re: HELLO EVERYBODY

 

I had a second child 9 years later. She is fine.

Sent from my iPhone

>

> I had another son and he is fine. Try not to worry. I know its hard.

>

>

>

> To: polymicrogyria

> From: cutekat@...

> Date: Thu, 21 Jul 2011 18:49:48 +1200

> Subject: Re: HELLO EVERYBODY

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> My girl is 10 months and still doesn't hold her head up either or sit up

>unsupported and has very low tone. She also wriggles alot and moves her arms

and

>legs well and is quite strong when pushing off me when holding her. I also hope

>that oneday she will become strong enough to hold her own head up and sit on

her

>own, She also does not smile. She has been spasm free for 1 mth after complete

>ACTH treatment but doc has said she will develop other types of seizures. We

are

>hoping these will be easier to control with medication as the spasms were

really

>awful!

>

>

>

> We are wanting to have another baby, her micro array came back normal, so I

>guess we have to take a leap of faith and hope this doesn't happen again,

>although it is very scarey to think about going through it again. has anyone

got

>good stories of having further children without problems when you don't know

>what actually cauzed the PG in the first place?

>

>

>

> Thanks

>

> Kat

>

>

>

> ________________________________

>

>

>

> To: polymicrogyria

>

> Sent: Thursday, 21 July 2011 7:02 AM

>

> Subject: Re: HELLO EVERYBODY

>

>

>

>

>

> MY DAUGHTER WELL BE 1 YR OLD AND IS VERY LOW TONE SHE STILL CANT HOLD HER HEAD

>

> UP OR SIT UP BUT MOVES AND WIGGLES ALOT ..THANKS FOR THE INFO HOW OLD WAS YOUR

>

> DAUGHTER WHEN SHE STARTED REACHING HER MILESTONES SITTING UP WALKING ETC

>

>

>

>

>

>

>

> ________________________________

>

>

>

> To: " polymicrogyria " <polymicrogyria >

>

> Sent: Tue, July 19, 2011 9:16:28 PM

>

> Subject: RE: HELLO EVERYBODY

>

>

>

> Rosemary,

>

> Welcome to the group ask any questions their is a lot of support and knowledge

>

> here.

>

> Having PMG does not shorten your life span but I would guess some medicines

>long

>

>

> term make you older in your elder years. It means for my daughter that she

>needs

>

>

> to remain active to keep her muscles strong. And seizures and the meds can be

>

> limiting and need to be monitered.

>

> PMG is different for each person it depends on how severe and the area of

>

> damage.

>

>

>

> My daughter has 30% of the right side that is effected. She also experiences

>

> frontal lobe complex partial seizures. Eventhought she has left hemiparesis

>

> cerebral palsy, sensory, vision, processing and focus issues she is high

>

> functioning. She runs without braces, talks well and fits in with regular

kids.

>

>

>

>

> As Dr. Dobyns predicted she is 95% normal but seizures are her worst enemy.

>Know

>

>

> that we have and still do lots of therapies PT OT SLP, kinesio taping, estim,

>

> earobics, vision therapy, therauputic riding, cranio sacral therapy, swimming,

>

> gymnastics, augmenting education and robotic therapy.

>

>

>

> Diane

>

>

>

> ------------------------------------

>

>

>

>

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