Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Yes... and once you get to having just the mic-key button, it is nice for the child because it is low profile...and with today's feeding pumps which are very small and have portable back packs... you hardly know they have it. Think of this too.. any medicines that your child takes, now...they do not have to taste, and if they are sick you can make sure their fluids are very regulated. got his g tube when he was 2 years old and not gaining weight. For many years it was only needed supplementally...to give him badly needed extra calories. He is much more complicated now...but... I remember distinctly the changes he went through when we got it and started g tube feeds along with oral feeds. He was brighter, more alert, and gained weight. Our problems have spiraled only because is now 11 and can not longer swallow safely... BUT some kids... grow so well... and improve their oral skills to the point where they no longer need the g tube. Be positive... it is a very common and very normal thing for children with feeding difficulties.... do it now... I agree it is better to do it while they are young. had no complications from his surgery. He was in the hospital for 3 days...just to make sure all systems were " go " and there were no complications. Good luck.. And keep smiling... We are blessed that we have so many wonderful technologies and ways to help our kids. Love, Hasselberger Subject: RE: feeding tube To: polymicrogyria Date: Wednesday, November 26, 2008, 11:02 AM A g- tube, definately. We took 6 months to decide and have it done, but it was by far the best thing we ever did for Finlay. He has had his tube for 5 years now and we never really had any trouble. He had a PEG tube to start with and after 18 months this was changed to a mic-key button. I know it is an operation, and there are always certain risks involved, but it is a relatively standard procedure and complications are very rare. It also is better to have it done when they are little. Annelies & Finlay (BFPP, 7) feeding tube All of Alia's Dr.'s nueroglogists and therapist have recently decided that she needs help with her food and calories intake. the decision we are making right now is wether we wwant the g tube or the one that goes through her nose. Im thinking the g tube because im afraid of her pulling it out. Her dr thinks the one that goes through her nose because of less risk. So i was just wanting to know other opinions and experience. so any feed back would be helpful thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Thank you for all your advise everybody. its nice to be able to ask other parents and relatives that actually know what im talking about. thanks so very much again it was very helpful. From: alianette16 <alianette16@ yahoo.com> Subject: feeding tube To: polymicrogyria@ yahoogroups. com Date: Tuesday, November 25, 2008, 11:38 PM All of Alia's Dr.'s nueroglogists and therapist have recently decided that she needs help with her food and calories intake. the decision we are making right now is wether we wwant the g tube or the one that goes through her nose. Im thinking the g tube because im afraid of her pulling it out. Her dr thinks the one that goes through her nose because of less risk. So i was just wanting to know other opinions and experience. so any feed back would be helpful thank you. Quote Link to comment Share on other sites More sharing options...
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