RE: Re: Bilateral generalized polymicrogyria

March 3, 2011

I think that you can not predict an outcome with our children. PMG has too many

variables exactly what cells did it disorganize varies from each child. When I

met with Dr Dobyns he gave me a much better picture of the future and I felt

much more focused on the areas I needed to be worried about. And he was right on

for us. The bottom line is you have to focus on being aware of each development

milestones it is important to master things before they move on. This is ages

Seizures can be very harmful to develepment so see an pediatric epileptologists

for quick, appropriate, and aggresive treatment because they can get out of

control. Hope this helps. Enjoy your lovely son 14 mos is some really fun times,

try not to worry so much about the future.

Diane

From: rodsky82@...

Date: Thu, 3 Mar 2011 16:27:13 +0000

Subject: Re: Bilateral generalized polymicrogyria

le,

My son was diagnosed with Unilateral, but I know what you mean. He doesn't fit

the " text book " description either. He hasn't had any seizures, he hasn't had

any delays besides tight muscles in his left hand/arm and he is not walking yet

(15 months old), but he is also close. He talks ALL the time and can say

probably 20 words. The doctors said that usually kids either walk early or talk

early...not both. So even without his condition since he talks more he would

most likely take longer to walk. I have seen it the other way with perfectly

healthy kids that walk early and have delays with talking, so I wouldn't think

too much about the fact that he is not walking. Just keep an eye on the seizures

because with PMG whats done is done and the only thing that can make a child

regress is the seizures that can cause damage and make it hard to fix what is

wrong. At least that is the way I understand it.

>

> i know i have asked this before but has anyone elses child been given this

same diagnosis? i just wanna know what other children have experianced. my son

is 14 months old this week still not walking but very close he is sayin all the

mamas dadas and babas he should be.i have noticed a bit of a delay about 2

months at the most in the motor skill area and only 1 seizure from a fever so

far. i try to look up what to expect and it always gives me the most extreme

outcome but he seems to be far from that. i really hate not knowing. he is doing

so well im so proud of him but would like to know what i could possibly expect

in the future. thank u for ur answers.

>

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