Re: Autism and antibiotics study

[Guest guest]

Caroline

My son is brighter, more enegetic when on antibiotics. We have

discussed this with Dr G many times, he agrees and has him on a

maintenance dose of Eryped. He says there is a group of kids that

just kinda lose energy and stamina when off antibiotics, and

brighten when on. His ASO has never been elevated, neither has

mycoplasma.

>

> Listmates,

>

> I know this is old, but I just found it and wanted to post it to

the group

> because it is related and I didn't remember seeing it

before. I found

> it on the drgreene.org website (LOVE that site!).

>

> Caroline

>

>

>

> Autism Bacteria?

>

> We now know that ulcers, once thought to be stress-induced, are

often caused

> by a bacterial infection. What if autism where an infection? Ellen

Bolte, a

> self-trained computer programmer and mother of four, wondered this

when she

> watched her son's development deteriorate while he was being

treated with

> antibiotics for several months for an ear infection. Thus began a

journey

> that resulted in an article in the July 2000 issue of the Journal

of Child

> Neurology. Partnering with Dr. Sandler, the insightful Director of

Pediatric

> Gastroenterology at her local children's hospital, a study

commenced in

> which 11 autistic children were treated with vancomycin, a very

strong

> antibiotic against resistant bacteria. Ten of the children showed

dramatic

> -- though short-lived -- improvement. The answers are by no means

all in,

> but this important study gives evidence of a gut-brain-bacteria

connection

> in at least some children with autism. One parent's determined

fight for her

> son is opening up an exciting new area of research in this

devastating and

> frustrating disease.

>

>

> Alan Greene MD FAAP

>

> September 21, 2000

>

[Guest guest]

When my son is on antiboitics he talks a great deal more. I know a

lot of people say antibiotics are not good, but I notice and (others

around him that don't know he is on antibiotics) how much more with it

and much more language he has. I really noticed this correlation

since Oct. because he has been sick off and on sice Oct. Before that

he was not really all that sick and never ran a fever hardly ever, but

this year has been very different; continuously sick. So he has been

on about 5 rounds of antibiotics since Oct. till now and I always

notice a huge improvement in language.

[Guest guest]

Clostridia, anyone??

We're not with dr. G anymore-- my son's stimming went way up about 1.5

yrs into the protocol. This was blamed on a multitude of things- wrong

SSRI, allergies, foods, parenting, homeschooling, the weather, etc...

Our DAN Dr we now see ran a stool analysis plus organic acids and my

son has a major Clostridia problem, and probably has for a while now. We're

treating and see quite a decrease in the running/flapping that has caused me

hair loss over the last year or so..... Clostridia is very hard to treat

and keep away..it takes time but I'm seeing positives. We're using

naturals right now but will move to Vancomycin/Flagyl if the next OAT is not

clean.

BTW, Clostridia can be caused by alterations in the gut flora brought on

by broad spectrum antibiotics, OR even long term use of antifungals--since

we do normally have strains of beneficial yeast that keep things in balance,

which are wiped out by antifungals.

Another BTW--- my son's stools were fairly normal all this time-- no overt

signs of infection other than the stimming , increase in autistic behaviors,

and more eczema.

FWIW, Becky

Autism and antibiotics study

> Listmates,

>

> I know this is old, but I just found it and wanted to post it to the group

> because it is related and I didn't remember seeing it before. I

> found

> it on the drgreene.org website (LOVE that site!).

>

> Caroline

>

>

>

> Autism Bacteria?

>

> We now know that ulcers, once thought to be stress-induced, are often

> caused

> by a bacterial infection. What if autism where an infection? Ellen Bolte,

> a

> self-trained computer programmer and mother of four, wondered this when

> she

> watched her son's development deteriorate while he was being treated with

> antibiotics for several months for an ear infection. Thus began a journey

> that resulted in an article in the July 2000 issue of the Journal of Child

> Neurology. Partnering with Dr. Sandler, the insightful Director of

> Pediatric

> Gastroenterology at her local children's hospital, a study commenced in

> which 11 autistic children were treated with vancomycin, a very strong

> antibiotic against resistant bacteria. Ten of the children showed dramatic

> -- though short-lived -- improvement. The answers are by no means all in,

> but this important study gives evidence of a gut-brain-bacteria connection

> in at least some children with autism. One parent's determined fight for

> her

> son is opening up an exciting new area of research in this devastating and

> frustrating disease.

>

>

> Alan Greene MD FAAP

>

> September 21, 2000

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent Coalition.

>

>

[Guest guest]

,

We experienced great improvement when one of my kids was on ERY-PED...

several years ago he was so spaced out that I pulled him out of school...

Dr. Goldberg had been watching his ASO for many months. At that point Dr. G

started him on ERY-PED and a couple of days later when he went back to

school his teacher called me from school to say it was a " miracle " . It's

one of the most dramatic improvements we ever saw.

It was good to see that somewhere out there, someone else is seeing the

connection. I wonder whatever came of that study or if the subject was just

dropped after that.

Caroline

> From: meljackmom <meljackmom@...>

> Reply-< >

> Date: Sat, 28 Jan 2006 15:08:53 +0000

> < >

> Subject: Re: Autism and antibiotics study

>

> Caroline

> My son is brighter, more enegetic when on antibiotics. We have

> discussed this with Dr G many times, he agrees and has him on a

> maintenance dose of Eryped. He says there is a group of kids that

> just kinda lose energy and stamina when off antibiotics, and

> brighten when on. His ASO has never been elevated, neither has

> mycoplasma.

>

[Guest guest]

Yes he was tested for Clostridia, and some others, and it was all

negative. Glad to hear you found it out.

>

> Clostridia, anyone??

>

> We're not with dr. G anymore-- my son's stimming went way up

about 1.5

> yrs into the protocol. This was blamed on a multitude of things-

wrong

> SSRI, allergies, foods, parenting, homeschooling, the weather,

etc...

>

> Our DAN Dr we now see ran a stool analysis plus organic

acids and my

> son has a major Clostridia problem, and probably has for a while

now. We're

> treating and see quite a decrease in the running/flapping that has

caused me

> hair loss over the last year or so..... Clostridia is very hard

to treat

> and keep away..it takes time but I'm seeing positives. We're

using

> naturals right now but will move to Vancomycin/Flagyl if the next

OAT is not

> clean.

>

> BTW, Clostridia can be caused by alterations in the gut flora

brought on

> by broad spectrum antibiotics, OR even long term use of

antifungals--since

> we do normally have strains of beneficial yeast that keep things

in balance,

> which are wiped out by antifungals.

>

> Another BTW--- my son's stools were fairly normal all this time--

no overt

> signs of infection other than the stimming , increase in autistic

behaviors,

> and more eczema.

>

> FWIW, Becky

>

>

> Autism and antibiotics study

>

>

> > Listmates,

> >

> > I know this is old, but I just found it and wanted to post it to

the group

> > because it is related and I didn't remember seeing it

before. I

> > found

> > it on the drgreene.org website (LOVE that site!).

> >

> > Caroline

> >

> >

> >

> > Autism Bacteria?

> >

> > We now know that ulcers, once thought to be stress-induced, are

often

> > caused

> > by a bacterial infection. What if autism where an infection?

Ellen Bolte,

> > a

> > self-trained computer programmer and mother of four, wondered

this when

> > she

> > watched her son's development deteriorate while he was being

treated with

> > antibiotics for several months for an ear infection. Thus began

a journey

> > that resulted in an article in the July 2000 issue of the

Journal of Child

> > Neurology. Partnering with Dr. Sandler, the insightful Director

of

> > Pediatric

> > Gastroenterology at her local children's hospital, a study

commenced in

> > which 11 autistic children were treated with vancomycin, a very

strong

> > antibiotic against resistant bacteria. Ten of the children

showed dramatic

> > -- though short-lived -- improvement. The answers are by no

means all in,

> > but this important study gives evidence of a gut-brain-bacteria

connection

> > in at least some children with autism. One parent's determined

fight for

> > her

> > son is opening up an exciting new area of research in this

devastating and

> > frustrating disease.

> >

> >

> > Alan Greene MD FAAP

> >

> > September 21, 2000

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

Coalition.

> >

> >

[Guest guest]

Hi Becky. I had Clostridium once and almost died. I was very, very

sick, as a result of not finishing antibiotics prior to some

surgery. I wonder if most of us carry some of that bacteria in our

GI track and would therefore test positive, naturally. I can't

imagine having an all out attack, worthy of Vancomycin, and not be

aware of it. This is a very strong antibiotic...At the time, the

strongest one available and the one used to treat the awful flesh

eating bacterias. If Vancomycin doesn't work, one would be in very

serious trouble. This is where you could become very concerned about

becoming resistant to antibiotics and therefore really in trouble if

plagued by any other serious bacteria. Might be worth some research.

Lori

>

> Clostridia, anyone??

>

> We're not with dr. G anymore-- my son's stimming went way up

about 1.5

> yrs into the protocol. This was blamed on a multitude of things-

wrong

> SSRI, allergies, foods, parenting, homeschooling, the weather,

etc...

>

> Our DAN Dr we now see ran a stool analysis plus organic acids

and my

> son has a major Clostridia problem, and probably has for a while

now. We're

> treating and see quite a decrease in the running/flapping that has

caused me

> hair loss over the last year or so..... Clostridia is very hard to

treat

> and keep away..it takes time but I'm seeing positives. We're

using

> naturals right now but will move to Vancomycin/Flagyl if the next

OAT is not

> clean.

>

> BTW, Clostridia can be caused by alterations in the gut flora

brought on

> by broad spectrum antibiotics, OR even long term use of antifungals-

-since

> we do normally have strains of beneficial yeast that keep things in

balance,

> which are wiped out by antifungals.

>

> Another BTW--- my son's stools were fairly normal all this time--

no overt

> signs of infection other than the stimming , increase in autistic

behaviors,

> and more eczema.

>

> FWIW, Becky

>

>

> Autism and antibiotics study

>

>

> > Listmates,

> >

> > I know this is old, but I just found it and wanted to post it to

the group

> > because it is related and I didn't remember seeing it

before. I

> > found

> > it on the drgreene.org website (LOVE that site!).

> >

> > Caroline

> >

> >

> >

> > Autism Bacteria?

> >

> > We now know that ulcers, once thought to be stress-induced, are

often

> > caused

> > by a bacterial infection. What if autism where an infection?

Ellen Bolte,

> > a

> > self-trained computer programmer and mother of four, wondered

this when

> > she

> > watched her son's development deteriorate while he was being

treated with

> > antibiotics for several months for an ear infection. Thus began a

journey

> > that resulted in an article in the July 2000 issue of the Journal

of Child

> > Neurology. Partnering with Dr. Sandler, the insightful Director

of

> > Pediatric

> > Gastroenterology at her local children's hospital, a study

commenced in

> > which 11 autistic children were treated with vancomycin, a very

strong

> > antibiotic against resistant bacteria. Ten of the children showed

dramatic

> > -- though short-lived -- improvement. The answers are by no means

all in,

> > but this important study gives evidence of a gut-brain-bacteria

connection

> > in at least some children with autism. One parent's determined

fight for

> > her

> > son is opening up an exciting new area of research in this

devastating and

> > frustrating disease.

> >

> >

> > Alan Greene MD FAAP

> >

> > September 21, 2000

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

Coalition.

> >

> >

[Guest guest]

This is so true! Dr G said it is criminal to treat children with vancomycin. It

is the big guns. When all other antibiotics fail. If a child really needed this

antibiotic and was already resistant to it, it could be fatal. Jerri

Hi Becky. I had Clostridium once and almost died. I was very, very

sick, as a result of not finishing antibiotics prior to some

surgery. I wonder if most of us carry some of that bacteria in our

GI track and would therefore test positive, naturally. I can't

imagine having an all out attack, worthy of Vancomycin, and not be

aware of it. This is a very strong antibiotic...At the time, the

strongest one available and the one used to treat the awful flesh

eating bacterias. If Vancomycin doesn't work, one would be in very

serious trouble. This is where you could become very concerned about

becoming resistant to antibiotics and therefore really in trouble if

plagued by any other serious bacteria. Might be worth some research.

Lori

[Guest guest]

Lori,

What symptoms did you have? Do you think Clostridium can be diagnosed at an

early stage? The reason I'm asking is that I think my mother in law might

have this and not know it!

Thank you!

Argie

Re: Autism and antibiotics study

Hi Becky. I had Clostridium once and almost died. I was very, very

sick, as a result of not finishing antibiotics prior to some

surgery. I wonder if most of us carry some of that bacteria in our

GI track and would therefore test positive, naturally. I can't

imagine having an all out attack, worthy of Vancomycin, and not be

aware of it. This is a very strong antibiotic...At the time, the

strongest one available and the one used to treat the awful flesh

eating bacterias. If Vancomycin doesn't work, one would be in very

serious trouble. This is where you could become very concerned about

becoming resistant to antibiotics and therefore really in trouble if

plagued by any other serious bacteria. Might be worth some research.

Lori

>

> Clostridia, anyone??

>

> We're not with dr. G anymore-- my son's stimming went way up

about 1.5

> yrs into the protocol. This was blamed on a multitude of things-

wrong

> SSRI, allergies, foods, parenting, homeschooling, the weather,

etc...

>

> Our DAN Dr we now see ran a stool analysis plus organic acids

and my

> son has a major Clostridia problem, and probably has for a while

now. We're

> treating and see quite a decrease in the running/flapping that has

caused me

> hair loss over the last year or so..... Clostridia is very hard to

treat

> and keep away..it takes time but I'm seeing positives. We're

using

> naturals right now but will move to Vancomycin/Flagyl if the next

OAT is not

> clean.

>

> BTW, Clostridia can be caused by alterations in the gut flora

brought on

> by broad spectrum antibiotics, OR even long term use of antifungals-

-since

> we do normally have strains of beneficial yeast that keep things in

balance,

> which are wiped out by antifungals.

>

> Another BTW--- my son's stools were fairly normal all this time--

no overt

> signs of infection other than the stimming , increase in autistic

behaviors,

> and more eczema.

>

> FWIW, Becky

>

>

> Autism and antibiotics study

>

>

> > Listmates,

> >

> > I know this is old, but I just found it and wanted to post it to

the group

> > because it is related and I didn't remember seeing it

before. I

> > found

> > it on the drgreene.org website (LOVE that site!).

> >

> > Caroline

> >

> >

> >

> > Autism Bacteria?

> >

> > We now know that ulcers, once thought to be stress-induced, are

often

> > caused

> > by a bacterial infection. What if autism where an infection?

Ellen Bolte,

> > a

> > self-trained computer programmer and mother of four, wondered

this when

> > she

> > watched her son's development deteriorate while he was being

treated with

> > antibiotics for several months for an ear infection. Thus began a

journey

> > that resulted in an article in the July 2000 issue of the Journal

of Child

> > Neurology. Partnering with Dr. Sandler, the insightful Director

of

> > Pediatric

> > Gastroenterology at her local children's hospital, a study

commenced in

> > which 11 autistic children were treated with vancomycin, a very

strong

> > antibiotic against resistant bacteria. Ten of the children showed

dramatic

> > -- though short-lived -- improvement. The answers are by no means

all in,

> > but this important study gives evidence of a gut-brain-bacteria

connection

> > in at least some children with autism. One parent's determined

fight for

> > her

> > son is opening up an exciting new area of research in this

devastating and

> > frustrating disease.

> >

> >

> > Alan Greene MD FAAP

> >

> > September 21, 2000

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

Coalition.

> >

> >

[Guest guest]

Hi Argie. It was an infection that hit hard and fast...Severe

diarhea was the most obvious..to the point of literally not leaving

the bathroom for days, even to sleep. To leave the hospital I had to

sit on garbage bags. Vomiting and complete exhaustion were also

present. My tongue turned completely black, I think from

dehydration. The hospital released me, after a first culture. Not

sure what they tested for though. Then I ended up in emerg and

isolation. This all happened in a matter of days - perhaps 5. I

think it took another few days to grow a culture again and once

diagnosed and on Vancomycin I believe I felt better within a

week...although syptoms continued and I had to consult with an

infectious disease specialist. It was a terrible infection and I

think if you have it you would KNOW something was terribly wrong.

Hope that helps. Sorry to be so graphic.

Lori

-- In , " Argie Olivo " <golivo@c...> wrote:

>

> Lori,

>

> What symptoms did you have? Do you think Clostridium can be

diagnosed at an

> early stage? The reason I'm asking is that I think my mother in

law might

> have this and not know it!

>

> Thank you!

> Argie

> Re: Autism and antibiotics study

>

>

> Hi Becky. I had Clostridium once and almost died. I was very,

very

> sick, as a result of not finishing antibiotics prior to some

> surgery. I wonder if most of us carry some of that bacteria in

our

> GI track and would therefore test positive, naturally. I can't

> imagine having an all out attack, worthy of Vancomycin, and not be

> aware of it. This is a very strong antibiotic...At the time, the

> strongest one available and the one used to treat the awful flesh

> eating bacterias. If Vancomycin doesn't work, one would be in

very

> serious trouble. This is where you could become very concerned

about

> becoming resistant to antibiotics and therefore really in trouble

if

> plagued by any other serious bacteria. Might be worth some

research.

>

> Lori

>

> --- In , " Norvell " <beckeric@e...>

wrote:

> >

> > Clostridia, anyone??

> >

> > We're not with dr. G anymore-- my son's stimming went way up

> about 1.5

> > yrs into the protocol. This was blamed on a multitude of

things-

> wrong

> > SSRI, allergies, foods, parenting, homeschooling, the weather,

> etc...

> >

> > Our DAN Dr we now see ran a stool analysis plus organic

acids

> and my

> > son has a major Clostridia problem, and probably has for a while

> now. We're

> > treating and see quite a decrease in the running/flapping that

has

> caused me

> > hair loss over the last year or so..... Clostridia is very

hard to

> treat

> > and keep away..it takes time but I'm seeing positives. We're

> using

> > naturals right now but will move to Vancomycin/Flagyl if the

next

> OAT is not

> > clean.

> >

> > BTW, Clostridia can be caused by alterations in the gut flora

> brought on

> > by broad spectrum antibiotics, OR even long term use of

antifungals-

> -since

> > we do normally have strains of beneficial yeast that keep

things in

> balance,

> > which are wiped out by antifungals.

> >

> > Another BTW--- my son's stools were fairly normal all this

time--

> no overt

> > signs of infection other than the stimming , increase in

autistic

> behaviors,

> > and more eczema.

> >

> > FWIW, Becky

> >

> >

> > Autism and antibiotics study

> >

> >

> > > Listmates,

> > >

> > > I know this is old, but I just found it and wanted to post it

to

> the group

> > > because it is related and I didn't remember seeing it

> before. I

> > > found

> > > it on the drgreene.org website (LOVE that site!).

> > >

> > > Caroline

> > >

> > >

> > >

> > > Autism Bacteria?

> > >

> > > We now know that ulcers, once thought to be stress-induced,

are

> often

> > > caused

> > > by a bacterial infection. What if autism where an infection?

> Ellen Bolte,

> > > a

> > > self-trained computer programmer and mother of four, wondered

> this when

> > > she

> > > watched her son's development deteriorate while he was being

> treated with

> > > antibiotics for several months for an ear infection. Thus

began a

> journey

> > > that resulted in an article in the July 2000 issue of the

Journal

> of Child

> > > Neurology. Partnering with Dr. Sandler, the insightful

Director

> of

> > > Pediatric

> > > Gastroenterology at her local children's hospital, a study

> commenced in

> > > which 11 autistic children were treated with vancomycin, a

very

> strong

> > > antibiotic against resistant bacteria. Ten of the children

showed

> dramatic

> > > -- though short-lived -- improvement. The answers are by no

means

> all in,

> > > but this important study gives evidence of a gut-brain-

bacteria

> connection

> > > in at least some children with autism. One parent's determined

> fight for

> > > her

> > > son is opening up an exciting new area of research in this

> devastating and

> > > frustrating disease.

> > >

> > >

> > > Alan Greene MD FAAP

> > >

> > > September 21, 2000

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> Coalition.

> > >

> > >

[Guest guest]

Hi Lori,

Thank you for the description! I'm sorry you went through all that!!!!

From your description, I don't think she has that, but it wouldn't hurt to

do a test or culture just in case. I did a google search for Clostridium

and sounds like it's very rare. I really do appreciate you letting the

group know your experiences, sometimes being graphic helps!!!

Talk to you soon,

Argie

Re: Autism and antibiotics study

>

>

> Hi Becky. I had Clostridium once and almost died. I was very,

very

> sick, as a result of not finishing antibiotics prior to some

> surgery. I wonder if most of us carry some of that bacteria in

our

> GI track and would therefore test positive, naturally. I can't

> imagine having an all out attack, worthy of Vancomycin, and not be

> aware of it. This is a very strong antibiotic...At the time, the

> strongest one available and the one used to treat the awful flesh

> eating bacterias. If Vancomycin doesn't work, one would be in

very

> serious trouble. This is where you could become very concerned

about

> becoming resistant to antibiotics and therefore really in trouble

if

> plagued by any other serious bacteria. Might be worth some

research.

>

> Lori

>

>

> >

> > Clostridia, anyone??

> >

> > We're not with dr. G anymore-- my son's stimming went way up

> about 1.5

> > yrs into the protocol. This was blamed on a multitude of

things-

> wrong

> > SSRI, allergies, foods, parenting, homeschooling, the weather,

> etc...

> >

> > Our DAN Dr we now see ran a stool analysis plus organic

acids

> and my

> > son has a major Clostridia problem, and probably has for a while

> now. We're

> > treating and see quite a decrease in the running/flapping that

has

> caused me

> > hair loss over the last year or so..... Clostridia is very

hard to

> treat

> > and keep away..it takes time but I'm seeing positives. We're

> using

> > naturals right now but will move to Vancomycin/Flagyl if the

next

> OAT is not

> > clean.

> >

> > BTW, Clostridia can be caused by alterations in the gut flora

> brought on

> > by broad spectrum antibiotics, OR even long term use of

antifungals-

> -since

> > we do normally have strains of beneficial yeast that keep

things in

> balance,

> > which are wiped out by antifungals.

> >

> > Another BTW--- my son's stools were fairly normal all this

time--

> no overt

> > signs of infection other than the stimming , increase in

autistic

> behaviors,

> > and more eczema.

> >

> > FWIW, Becky

> >

> >

> > Autism and antibiotics study

> >

> >

> > > Listmates,

> > >

> > > I know this is old, but I just found it and wanted to post it

to

> the group

> > > because it is related and I didn't remember seeing it

> before. I

> > > found

> > > it on the drgreene.org website (LOVE that site!).

> > >

> > > Caroline

> > >

> > >

> > >

> > > Autism Bacteria?

> > >

> > > We now know that ulcers, once thought to be stress-induced,

are

> often

> > > caused

> > > by a bacterial infection. What if autism where an infection?

> Ellen Bolte,

> > > a

> > > self-trained computer programmer and mother of four, wondered

> this when

> > > she

> > > watched her son's development deteriorate while he was being

> treated with

> > > antibiotics for several months for an ear infection. Thus

began a

> journey

> > > that resulted in an article in the July 2000 issue of the

Journal

> of Child

> > > Neurology. Partnering with Dr. Sandler, the insightful

Director

> of

> > > Pediatric

> > > Gastroenterology at her local children's hospital, a study

> commenced in

> > > which 11 autistic children were treated with vancomycin, a

very

> strong

> > > antibiotic against resistant bacteria. Ten of the children

showed

> dramatic

> > > -- though short-lived -- improvement. The answers are by no

means

> all in,

> > > but this important study gives evidence of a gut-brain-

bacteria

> connection

> > > in at least some children with autism. One parent's determined

> fight for

> > > her

> > > son is opening up an exciting new area of research in this

> devastating and

> > > frustrating disease.

> > >

> > >

> > > Alan Greene MD FAAP

> > >

> > > September 21, 2000

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> Coalition.

> > >

> > >

[Guest guest]

Hi -

I actually have had a very hard time obtaining any

long-term prophylactic treatment for PANDAS because

everyone would say " Oh that puts you at risk for

clostridia " (as if I wasn't suffering miserably from

strep but that's beside the point).

I think that your GI tract is probably already out of

balance in order to have this overgrowth happen in the

first place, which is why probiotics are sooo

important in our kids' treatment, since they are known

to be out of balance and may even be having immune

reactions against their own gut bacteria in some cases

(ie pandas having reactions to lactobacillus). We

also have a lot of cases mentioned here where chronic

diahrrea was significantly improved on antibiotics

like ery-ped. I've also heard of an antibiotic for

adults with ulcerative colitis that is being very

successful for some people, too.

--- loribharris2003 <lbharris@...> wrote:

> Hi Becky. I had Clostridium once and almost died.

> I was very, very

> sick, as a result of not finishing antibiotics prior

> to some

> surgery. I wonder if most of us carry some of that

> bacteria in our

> GI track and would therefore test positive,

> naturally. I can't

> imagine having an all out attack, worthy of

> Vancomycin, and not be

> aware of it. This is a very strong antibiotic...At

> the time, the

> strongest one available and the one used to treat

> the awful flesh

> eating bacterias. If Vancomycin doesn't work, one

> would be in very

> serious trouble. This is where you could become

> very concerned about

> becoming resistant to antibiotics and therefore

> really in trouble if

> plagued by any other serious bacteria. Might be

> worth some research.

>

> Lori

>

__________________________________________________

[Guest guest]

Hi,

With Clostidial infections, it is extremely important to supplement heavily with

probiotics. I like Klaire Labs' Therbiotic Complete. It supposed to consist of

the technology that protect the " good " microorganisms from stomach acid (6N

HCL), so that most of them would actually get to the intestine (gut).

Clostridia love protein, especially protein from red meats, so if that could be

cut down, that would help.

Also, since Clostridia is anaerobic, supplementation with oxypowder, which you

can get on line. This will provide oxygen to kill and keep the population down.

You can also purchase Penta bottled water from any health store to drink

regularly as well. Penta water is infused with hospital grade oxygen.

Kim M.

Re: Autism and antibiotics study

>

>

> Hi Becky. I had Clostridium once and almost died. I was very,

very

> sick, as a result of not finishing antibiotics prior to some

> surgery. I wonder if most of us carry some of that bacteria in

our

> GI track and would therefore test positive, naturally. I can't

> imagine having an all out attack, worthy of Vancomycin, and not be

> aware of it. This is a very strong antibiotic...At the time, the

> strongest one available and the one used to treat the awful flesh

> eating bacterias. If Vancomycin doesn't work, one would be in

very

> serious trouble. This is where you could become very concerned

about

> becoming resistant to antibiotics and therefore really in trouble

if

> plagued by any other serious bacteria. Might be worth some

research.

>

> Lori

>

>

> >

> > Clostridia, anyone??

> >

> > We're not with dr. G anymore-- my son's stimming went way up

> about 1.5

> > yrs into the protocol. This was blamed on a multitude of

things-

> wrong

> > SSRI, allergies, foods, parenting, homeschooling, the weather,

> etc...

> >

> > Our DAN Dr we now see ran a stool analysis plus organic

acids

> and my

> > son has a major Clostridia problem, and probably has for a while

> now. We're

> > treating and see quite a decrease in the running/flapping that

has

> caused me

> > hair loss over the last year or so..... Clostridia is very

hard to

> treat

> > and keep away..it takes time but I'm seeing positives. We're

> using

> > naturals right now but will move to Vancomycin/Flagyl if the

next

> OAT is not

> > clean.

> >

> > BTW, Clostridia can be caused by alterations in the gut flora

> brought on

> > by broad spectrum antibiotics, OR even long term use of

antifungals-

> -since

> > we do normally have strains of beneficial yeast that keep

things in

> balance,

> > which are wiped out by antifungals.

> >

> > Another BTW--- my son's stools were fairly normal all this

time--

> no overt

> > signs of infection other than the stimming , increase in

autistic

> behaviors,

> > and more eczema.

> >

> > FWIW, Becky

> >

> >

> > Autism and antibiotics study

> >

> >

> > > Listmates,

> > >

> > > I know this is old, but I just found it and wanted to post it

to

> the group

> > > because it is related and I didn't remember seeing it

> before. I

> > > found

> > > it on the drgreene.org website (LOVE that site!).

> > >

> > > Caroline

> > >

> > >

> > >

> > > Autism Bacteria?

> > >

> > > We now know that ulcers, once thought to be stress-induced,

are

> often

> > > caused

> > > by a bacterial infection. What if autism where an infection?

> Ellen Bolte,

> > > a

> > > self-trained computer programmer and mother of four, wondered

> this when

> > > she

> > > watched her son's development deteriorate while he was being

> treated with

> > > antibiotics for several months for an ear infection. Thus

began a

> journey

> > > that resulted in an article in the July 2000 issue of the

Journal

> of Child

> > > Neurology. Partnering with Dr. Sandler, the insightful

Director

> of

> > > Pediatric

> > > Gastroenterology at her local children's hospital, a study

> commenced in

> > > which 11 autistic children were treated with vancomycin, a

very

> strong

> > > antibiotic against resistant bacteria. Ten of the children

showed

> dramatic

> > > -- though short-lived -- improvement. The answers are by no

means

> all in,

> > > but this important study gives evidence of a gut-brain-

bacteria

> connection

> > > in at least some children with autism. One parent's determined

> fight for

> > > her

> > > son is opening up an exciting new area of research in this

> devastating and

> > > frustrating disease.

> > >

> > >

> > > Alan Greene MD FAAP

> > >

> > > September 21, 2000

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> Coalition.

> > >

> > >