PANDAS and antivirals - anyone see ASO come down w/antiviral?

[Guest guest]

Hi all -

I hope to approach my immunologist re antivirals after

my skin testing is done and he confirms the absence of

cellular immunity.

I feel pretty sure that HHV6 is responsible for this.

What I wonder is if anyone has seen an ASO titer that

has been 'resistant' to coming down and goes back up

after antibiotics are stopped - if it has taken a big

drop when antivirals were started or changed? I

haven't actually heard of it happening.

I think gammaglobulin would also help ... have some of

you seen success with it? Dr G had almost used

gammaglobulin on but no one locally would show

us how to use it and we just kinda let it go since

about that time labs did start looking better.

Anyway, just wanted to know some PANDAS moms

experiences... seems like years since I really heard

much.

Thanks-

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