Re: Are there any relations to FAS and?

[Guest guest]

Hi,

This doesn't help answer your question, but I was wondering about the

improvement during a fever that you talked about. I haven't heard of this

before.

Thanks,

Are there any relations to FAS and ?

Hi all-

I have a friend whose adopted son has fetal alcohol

syndrome and their family is struggling a great deal.

This child's behaviors are so similar to PDD in a lot

of ways, and he did behave rather PDD/autistic a few

years back, though he has grown a lot since.

He's currently on stimulant meds that have

significantly diminished his eye contact and increased

aggression.

Mom has observed her son have those major improvements

during a fever (in behavior and connectedness, almost

becoming normal) just like many of us have. I believe

I've witnessed changes in behavior from foods like

many of us have. But the fever/normal thing just

screams to me that there must be a similarity

somewhere, and just wanted to know if anyone else is

familiar with those possibilities.

If anyone happened to have similar cases/friends and

are doing phone consults w/Dr G, could you ask him? I

guess I could call the office as well and ask if he

has ever treated FAS as a neuroimmune illness too.

Thanks-

__________________________________________________

[Guest guest]

Mom might want to consider a SPECT Scan for her child. Perhaps the stimulants

are the wrong fit. Just a thought, but because alcohol is a depressant he might

want to be assessed with a Mental Status Exam by a professional for other

issues. ADHD is often misdiagnosed in lieu of Depression (30% of the time) or

Oppositional Defiant Disorder which could be going on given the FAS. Hence,

perhaps the stimulant is the wrong fit. Not sure what area mom is in, but I can

give her some referrals depending on locality. Good Luck and bless you for

being a concerned, thoughtful friend.

Juarez, M.S., Marriage and Family Therapist

>From: <thecolemans4@...>

>Date: 2007/05/10 Thu PM 04:21:17 CDT

> < >

>Subject: Are there any relations to FAS and ?

>

>Hi all-

>I have a friend whose adopted son has fetal alcohol

>syndrome and their family is struggling a great deal.

>This child's behaviors are so similar to PDD in a lot

>of ways, and he did behave rather PDD/autistic a few

>years back, though he has grown a lot since.

>

>He's currently on stimulant meds that have

>significantly diminished his eye contact and increased

>aggression.

>

>Mom has observed her son have those major improvements

>during a fever (in behavior and connectedness, almost

>becoming normal) just like many of us have. I believe

>I've witnessed changes in behavior from foods like

>many of us have. But the fever/normal thing just

>screams to me that there must be a similarity

>somewhere, and just wanted to know if anyone else is

>familiar with those possibilities.

>

>If anyone happened to have similar cases/friends and

>are doing phone consults w/Dr G, could you ask him? I

>guess I could call the office as well and ask if he

>has ever treated FAS as a neuroimmune illness too.

>

>Thanks-

>

>

>__________________________________________________

>

[Guest guest]

My personal opinion is yes. I think that FAS and or any other

biomedical intervention would be helpful and here's why:

Drinking while pregnant causes fetal trauma. Fetal trauma can puts

the immune system the baby under a huge amount of stress. The immune

system can not possibly develop normal if not under normal

conditions. The biological mother's drinking puts her immune system

under stress, too. Which is something Dr. G talks about frequently,

if the mother's immune system is not functioning properly, odds are

good the baby's isn't either. So in my not so medical opinion, I

would check out the immune system and see what's happening there. I

could be completely wrong here but to me it seems to make sense. It

may not be able to alleviate all symptoms of the FAS - since it does

have a known etiology and probably distinct markers, (I don't know a

whole heck of a lot about FAS) but I just can't believe that the

immune system would be functioning properly in an alcoholic's body,

much less a fetus inside the alcoholic's body.

Cheryl

On May 10, 2007, at 2:21 PM, wrote:

> Hi all-

> I have a friend whose adopted son has fetal alcohol

> syndrome and their family is struggling a great deal.

> This child's behaviors are so similar to PDD in a lot

> of ways, and he did behave rather PDD/autistic a few

> years back, though he has grown a lot since.

>

> He's currently on stimulant meds that have

> significantly diminished his eye contact and increased

> aggression.

>

> Mom has observed her son have those major improvements

> during a fever (in behavior and connectedness, almost

> becoming normal) just like many of us have. I believe

> I've witnessed changes in behavior from foods like

> many of us have. But the fever/normal thing just

> screams to me that there must be a similarity

> somewhere, and just wanted to know if anyone else is

> familiar with those possibilities.

>

> If anyone happened to have similar cases/friends and

> are doing phone consults w/Dr G, could you ask him? I

> guess I could call the office as well and ask if he

> has ever treated FAS as a neuroimmune illness too.

>

> Thanks-

>

>

> __________________________________________________

>

[Guest guest]

Wow! I had a lot of typo's and grammatical errors in that

one!!! Must start proofreading!

On May 11, 2007, at 8:21 AM, Cheryl Lowrance wrote:

> My personal opinion is yes. I think that FAS and or any other

> biomedical intervention would be helpful and here's why:

>

> Drinking while pregnant causes fetal trauma. Fetal trauma can puts

> the immune system the baby under a huge amount of stress. The immune

> system can not possibly develop normal if not under normal

> conditions. The biological mother's drinking puts her immune system

> under stress, too. Which is something Dr. G talks about frequently,

> if the mother's immune system is not functioning properly, odds are

> good the baby's isn't either. So in my not so medical opinion, I

> would check out the immune system and see what's happening there. I

> could be completely wrong here but to me it seems to make sense. It

> may not be able to alleviate all symptoms of the FAS - since it does

> have a known etiology and probably distinct markers, (I don't know a

> whole heck of a lot about FAS) but I just can't believe that the

> immune system would be functioning properly in an alcoholic's body,

> much less a fetus inside the alcoholic's body.

>

> Cheryl

>

> On May 10, 2007, at 2:21 PM, wrote:

>

> > Hi all-

> > I have a friend whose adopted son has fetal alcohol

> > syndrome and their family is struggling a great deal.

> > This child's behaviors are so similar to PDD in a lot

> > of ways, and he did behave rather PDD/autistic a few

> > years back, though he has grown a lot since.

> >

> > He's currently on stimulant meds that have

> > significantly diminished his eye contact and increased

> > aggression.

> >

> > Mom has observed her son have those major improvements

> > during a fever (in behavior and connectedness, almost

> > becoming normal) just like many of us have. I believe

> > I've witnessed changes in behavior from foods like

> > many of us have. But the fever/normal thing just

> > screams to me that there must be a similarity

> > somewhere, and just wanted to know if anyone else is

> > familiar with those possibilities.

> >

> > If anyone happened to have similar cases/friends and

> > are doing phone consults w/Dr G, could you ask him? I

> > guess I could call the office as well and ask if he

> > has ever treated FAS as a neuroimmune illness too.

> >

> > Thanks-

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi -

I certainly think a SPECT would be very enlightening.

I believe for sure the stimulants are shutting down

some of the temporal lobe. They just haven't had

anything else that helped w/the severe focus problems.

But the increased oppositional behavior seems to be

too bad to make the difference worth it. Diet

intervention hasn't been tried, nor do I think SSRIs.

I truly wish they had the financial resources to

travel for a SPECT. I think our local university

(UAB) may have obtained one recently - I believe

they're doing some research with it (on CFS plus?) but

I don't know if they are doing any clinical

evaluations with it.

We and they are in Birmingham AL. I think there's an

FAS specialist in Huntsville AL 1 1/2 hour north of us

but have heard very little.

It seems that the extreme oppositional behavior is

mostly with Mom. They truly need some counseling, but

she is holding him to some strong standards and he

lashes out intensely over them. On the other hand, if

she didn't keep him on tight reign he really would be

a terror lol. They truly need some help to cope, so

any referrals that have good experience would be

appreciated. I'm suggesting she look into the Sparks

Clinic here at UAB, etc.

You can really see brain dysfunction going on.

Thanks for your willingness to offer referrals if you

know of good resources.

--- and Sal Juarez <jamieandsal@...>

wrote:

> Mom might want to consider a SPECT Scan for her

> child. Perhaps the stimulants are the wrong fit.

> Just a thought, but because alcohol is a depressant

> he might want to be assessed with a Mental Status

> Exam by a professional for other issues. ADHD is

> often misdiagnosed in lieu of Depression (30% of

> the time) or Oppositional Defiant Disorder which

> could be going on given the FAS. Hence, perhaps the

> stimulant is the wrong fit. Not sure what area mom

> is in, but I can give her some referrals depending

> on locality. Good Luck and bless you for being a

> concerned, thoughtful friend.

>

> Juarez, M.S., Marriage and Family Therapist

>

>

________________________________________________________________________________\

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[Guest guest]

My child improves during a fever as well. If anyone does have more information

on this, it would be extremely helpful.

>From: TRACY METHE <tasmethe@...>

>Date: 2007/05/10 Thu PM 06:14:05 CDT

>

>Subject: Re: Are there any relations to FAS and ?

>

>Hi,

>

>This doesn't help answer your question, but I was wondering about the

improvement during a fever that you talked about. I haven't heard of this

before.

>

>Thanks,

>

> Are there any relations to FAS and ?

>

>Hi all-

> I have a friend whose adopted son has fetal alcohol

> syndrome and their family is struggling a great deal.

> This child's behaviors are so similar to PDD in a lot

> of ways, and he did behave rather PDD/autistic a few

> years back, though he has grown a lot since.

>

>He's currently on stimulant meds that have

> significantly diminished his eye contact and increased

> aggression.

>

>Mom has observed her son have those major improvements

> during a fever (in behavior and connectedness, almost

> becoming normal) just like many of us have. I believe

> I've witnessed changes in behavior from foods like

> many of us have. But the fever/normal thing just

> screams to me that there must be a similarity

> somewhere, and just wanted to know if anyone else is

> familiar with those possibilities.

>

>If anyone happened to have similar cases/friends and

> are doing phone consults w/Dr G, could you ask him? I

> guess I could call the office as well and ask if he

> has ever treated FAS as a neuroimmune illness too.

>

>Thanks-

>

>

>__________________________________________________

>

[Guest guest]

“Hi all-

I saw that you were discussing an adult woman with mood difficulties

along side possible neuroimmune problems- I think?

Then I might be able to chime in here;

I as an adult I had the NeuroSPECT Scan done about 10 months ago...

and ACTUALLY the initial reason for the scan was due to chronic mental

illness problems- depression, bipolar, inability to concentrate, anger

outbursts, horrible fatigue and anxiety...

Nothing seemed to help or work for me- So after attempting to find a

way to pay for the scan after 4 years- I had one done; and that is

where I learned I had a Neuroimmune disorder- at Harbor UCLA,

BrainMatters clinic.

I've had medical treatment for serious mental illness for nearly eight

years now- I began medication back in '99.

So I as someone who knows what it's like to have the serious mental

illness, blow ups, anxiety, hospital stays, etc... Plus the

complication of the Neuroimmune disorder- AND what I found out via my

performed SPECT scan, I can share a lot-

I'd be happy to give my report on what happened, what I learned etc...

The specialists did find I had some brain damage- probably due to head

trauma in the frontal lobes of my brain, included with my brain's

overall toxic, pathogen, and/or hypoxic damage to my over all brain-

thus causing Chronic Fatigue disorder, and an inability to focus on

and complete simple tasks as part of it.-

The rest was also identified through the scan; Bipolar, General

Anxiety Disorder, OCD, ADHD, brain damage, and Neuroimmune disorder,

along w/ chronic fatigue features...

All of which came as no surprise (a relief rather) because it was

exactly what I'd been expecting/experiencing for years and had already

been previously diagnosed with before and receiving ineffective

treatment for- All for except the Neuroimmune disorder and brain

damage; that however was 'news to me,' and gave reason for why other

therapies weren't working right like they were supposed to.

They explained that once that was 'taken care of' or addressed

(Neuroimmune disorder); that likely the other problems would be

manageable and the medications I was taking would begin to work more

effectively- An improvement through the previous medications would

likely be due to an increase in oxygen and blood flow to the brain-

which is how the medications are carried into the brain in the first

place!

The medications couldn't do their job if they had a difficult time

reaching the brain- of course.

The SPECT scan done was done because of the inability to find any

medication that worked for me...

At the time of the scan I had been on 26 different medications- many

of them having more than one trial attempt, and in different pairs and

combinations with one another; making the total of 'attempted'

augmentations and adjustments probably around 50-100 all together;

this lasting over the time span of nearly eight years, and along side

that I checked into the hospital several times for life threatening

mood difficulties.

Treating the neuroimmune modulated difficulties can have a dramatic

impact on the effective treatment for so many other treatments

involving the brain-- Not to mention might even be the CAUSE for some

of them! i.e., ADHD, Chronic Fatigue, OCD, etc...

I hope this information helps- and any information I can provide I'd

like to be able to share, and help out...

- ;-)â€

>

> Mom might want to consider a SPECT Scan for her child. Perhaps the

stimulants are the wrong fit. Just a thought, but because alcohol is

a depressant he might want to be assessed with a Mental Status Exam by

a professional for other issues. ADHD is often misdiagnosed in lieu

of Depression (30% of the time) or Oppositional Defiant Disorder which

could be going on given the FAS. Hence, perhaps the stimulant is the

wrong fit. Not sure what area mom is in, but I can give her some

referrals depending on locality. Good Luck and bless you for being a

concerned, thoughtful friend.

>

> Juarez, M.S., Marriage and Family Therapist

>

> >From: <thecolemans4@...>

> >Date: 2007/05/10 Thu PM 04:21:17 CDT

> > < >

> >Subject: Are there any relations to FAS and ?

>

> >

> >Hi all-

> >I have a friend whose adopted son has fetal alcohol

> >syndrome and their family is struggling a great deal.

> >This child's behaviors are so similar to PDD in a lot

> >of ways, and he did behave rather PDD/autistic a few

> >years back, though he has grown a lot since.

> >

> >He's currently on stimulant meds that have

> >significantly diminished his eye contact and increased

> >aggression.

> >

> >Mom has observed her son have those major improvements

> >during a fever (in behavior and connectedness, almost

> >becoming normal) just like many of us have. I believe

> >I've witnessed changes in behavior from foods like

> >many of us have. But the fever/normal thing just

> >screams to me that there must be a similarity

> >somewhere, and just wanted to know if anyone else is

> >familiar with those possibilities.

> >

> >If anyone happened to have similar cases/friends and

> >are doing phone consults w/Dr G, could you ask him? I

> >guess I could call the office as well and ask if he

> >has ever treated FAS as a neuroimmune illness too.

> >

> >Thanks-

> >

> >

> >__________________________________________________

> >