Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 After posting my son's story, I had an email from a member of the list who sent me this comment, " I truly wish that more parents would respond about how well their children are doing. I have been on this list for over 3 yrs. the same very few parents respond about how well their children are doing. as far as I know, you are the only one who child is " considered recovered " . I just wanted to thank Warren and for sharing their stories. And who is always there to help others through this nightmare. I know there are many kids out there who are recovered who want to forget the pain the Autism has caused and move on. I truly understand this. I have also gone away and then came back to the list. Also the A-Word has a very negative connotation and first and foremost we must protect our children. In my case, even when I told people that my kid was born with Autism and is recovered, they assume I am not telling the truth or he was misdiagnosed. Why would anyone set their kid up for that kind of reaction? So I monitor the list and write articles in hopes that someone with a kid believes and does what is necessary to save their child. Marcia P.S. Doris hang in there. You are a wonderful mother and it is sometimes hard to keep going. Recovery is not overnight and a very slow process of ten steps forward, three steps back. Even my son who has been well for years, recently had a problem. His antiviral meds he has been on forever stopped working. I took him to see Dr. G (after many years of managing this with another doctor) and a switch to Famvir did the trick. Dr G is the best and after a massive search across the country when my son was little, the only one I found who truly knows his stuff. As much as I sometimes get upset with having to wait a long time for Dr. G because he always runs late, he is worth the wait. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 In a message dated 1/8/2006 12:06:02 P.M. Eastern Standard Time, hindssite@... writes: After posting my son's story, I had an email from a member of the list who sent me this comment, " I truly wish that more parents would respond about how well their children are doing. I have been on this list for over 3 yrs. the same very few parents respond about how well their children are doing. as far as I know, you are the only one who child is " considered recovered " . I just wanted to thank Warren and for sharing their stories. And who is always there to help others through this nightmare. I know there are many kids out there who are recovered who want to forget the pain the Autism has caused and move on. I truly understand this. I have also gone away and then came back to the list. Also the A-Word has a very negative connotation and first and foremost we must protect our children. In my case, even when I told people that my kid was born with Autism and is recovered, they assume I am not telling the truth or he was misdiagnosed. Why would anyone set their kid up for that kind of reaction? So I monitor the list and write articles in hopes that someone with a kid believes and does what is necessary to save their child. Marcia Dear Marcia, This is an important point and one we all have to be reminded of. I pray to God if my son continues to improve that I will never wander away from the community that gave me such strength. My son will probably go to college, and I hope he mentions Autism in his admissions essay. It will be his choice, but I want him to know about his past and be proud. Charmian Rye New York Quote Link to comment Share on other sites More sharing options...
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