Re: Polymicrogyria (Never Give Up)

[Guest guest]

Watched your video and loved it. Our Grandson's Dr. also painted a very grim

story  when he was first dig. He is 11 now and doing great. Thanks for posting

the video.

To: " polymicrogyria " <polymicrogyria >

Sent: Thursday, October 6, 2011 11:55 AM

Subject: Re: Polymicrogyria (Never Give Up)

 

Thank you so much. Even my husband got a little misty when he watched. :-) Keep

on trucking !

“I am learning all the time. The tombstone will be my diploma.â€

— Eartha Kitt

> Hi Everyone,

>

> I do not typically post to this group, however, I do read what others write.

> My youngest son has bilateral perisylvian polymicrogyria. We did not

> get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

> we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

> he was an infant the Dr.’s told us that he would never walk, talk, have

> severe learning/cognitive impairments, and would require a feeding tube at

> some point. is a blessing and continues to mystify the Dr.’s with

> progress.

>

> Below is a link that I put together of him, that I hope will give hope to

> families who are walking a similar journey to us:

>

>

>

> Koyshman

>

> Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

>

>

[Guest guest]

I really enjoyed the video too

Thank you for sharing it with us.

-Barbi

-sent via mindwaves

On Oct 6, 2011, at 4:53 PM, Frances McDermott

wrote:

> Watched your video and loved it. Our Grandson's Dr. also painted a very grim

story when he was first dig. He is 11 now and doing great. Thanks for posting

the video.

>

>

> To: " polymicrogyria " <polymicrogyria >

> Sent: Thursday, October 6, 2011 11:55 AM

> Subject: Re: Polymicrogyria (Never Give Up)

>

>

> Thank you so much. Even my husband got a little misty when he watched. :-)

Keep on trucking !

>

> “I am learning all the time. The tombstone will be my diploma.â€

> — Eartha Kitt

>

>

>

> > Hi Everyone,

> >

> > I do not typically post to this group, however, I do read what others write.

> > My youngest son has bilateral perisylvian polymicrogyria. We did not

> > get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

> > we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

> > he was an infant the Dr.’s told us that he would never walk, talk, have

> > severe learning/cognitive impairments, and would require a feeding tube at

> > some point. is a blessing and continues to mystify the Dr.’s with

> > progress.

> >

> > Below is a link that I put together of him, that I hope will give hope to

> > families who are walking a similar journey to us:

> >

> >

> >

> > Koyshman

> >

> > Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

> >

> >

[Guest guest]

,

 

Would you mind if I put this link to your video on my blog?  I loved it! 

is so cute and kind of reminds me of our boy .  Thanks.

 

Stacey

http://lifeonmysterylane.blogspot.com/

To: polymicrogyria

Sent: Wednesday, October 5, 2011 8:11 PM

Subject: Polymicrogyria (Never Give Up)

 

Hi Everyone,

I do not typically post to this group, however, I do read what others write.

My youngest son has bilateral perisylvian polymicrogyria. We did not

get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

he was an infant the Dr.’s told us that he would never walk, talk, have

severe learning/cognitive impairments, and would require a feeding tube at

some point. is a blessing and continues to mystify the Dr.’s with

progress.

Below is a link that I put together of him, that I hope will give hope to

families who are walking a similar journey to us:

Koyshman

Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

[Guest guest]

Dear Alison,

Like the video so much, nice to see him a happy child. God bless him. I watched

it three times already. Give a big kiss from all the group:)

Best Regards,

Lina Kurdi

> Hi Everyone,

>

> I do not typically post to this group, however, I do read what others write.

> My youngest son has bilateral perisylvian polymicrogyria. We did not

> get the official diagnosis until he was 2 ½ years old from Dr. Dobyns, whom

> we were fortunate to meet at an FCM Convention back in 2009. Anyways, when

> he was an infant the Dr.’s told us that he would never walk, talk, have

> severe learning/cognitive impairments, and would require a feeding tube at

> some point. is a blessing and continues to mystify the Dr.’s with

> progress.

>

> Below is a link that I put together of him, that I hope will give hope to

> families who are walking a similar journey to us:

>

>

>

> Koyshman

>

> Mom to Lara 9 yrs, Ethan (ASD) 7 yrs, 4 yrs (BPP)

>

>