Re: RE: Canadian CFS research study now recruiting

[Guest guest]

I'm just getting to this now, as I have been so far behind.

This test is great in regards to people with CFS that are trying to get

disability. Dr. Bell is my CFS doctor and about two years ago he told me he

performs this test on his patients. He said it's a last resort thing and he

doesn't like to do it. But he said if a person is trying to get disability for

CFS, that with this test, it's automatic disability. He's had patients that

have been trying to get disability and they take this test and after this is

done, they get disability right away.

In fact, he was going to do the test with me if I wanted to stay up there as I

live about 3 1/2 hours away.

Lou

" J. Catchpole " wrote:

Hi All, While I do approve of the tack this research is taking, in terms of

finding a reliable diagnostic tool, basically the test is designed to drive

people into relapse!

[Guest guest]

I'm just getting to this now, as I have been so far behind.

This test is great in regards to people with CFS that are trying to get

disability. Dr. Bell is my CFS doctor and about two years ago he told me he

performs this test on his patients. He said it's a last resort thing and he

doesn't like to do it. But he said if a person is trying to get disability for

CFS, that with this test, it's automatic disability. He's had patients that

have been trying to get disability and they take this test and after this is

done, they get disability right away.

In fact, he was going to do the test with me if I wanted to stay up there as I

live about 3 1/2 hours away.

Lou

" J. Catchpole " wrote:

Hi All, While I do approve of the tack this research is taking, in terms of

finding a reliable diagnostic tool, basically the test is designed to drive

people into relapse!

[Guest guest]

what is this test that Dr. Bell does? Tilt-table? Diane

cindy post wrote: I'm just getting to this

now, as I have been so far behind.

This test is great in regards to people with CFS that are trying to get

disability. Dr. Bell is my CFS doctor and about two years ago he told me he

performs this test on his patients. He said it's a last resort thing and he

doesn't like to do it.

[Guest guest]

If a person has severe fatigue, than more than likely you have the low blood

volume. That's why Dr. Bell was pretty positive I had that.

It's in the nuclear dept. of a hospital. I remembered that as I couldn't

remember where it was located.

I don't think a doc will ever send anyone for this test unless they're

familiar with it. I don't think docs know about this.

I'm not allergic to anything and smells don't bother me either.

Lou

" J. Catchpole " wrote:

Thanks Lou, no worries…it sounds like not too bad a test as long as

one isn’t allergic to the injectables! Wow, do I wish I had a doc willing to

pursues this. Aylwin xox