Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Hi Alia, I have dry eyes, which I only sought treatment for when my vision began to blur. My eye dr said one of the symptoms of FMS is dry eye. Also, many meds have dry eye as a side effect. I use Restasis eye drops in the morning and at night, and that takes care of it for me. They are by prescription. Good luck, and I hope the things you are doing help your eyes. T. > > Hey everyone, > ? > ? ? I have no idea what's been going on on here lately (about the last month and a half) because I've been having a lot of trouble with my eyes. To sum it up they're dry, itchy, generally hurt, and aren't focusing very well when I try to read....makes it really hard to study (I had 300 textbook pages to read this week plus some lectures to watch). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Hi Alia, I have dry eyes, which I only sought treatment for when my vision began to blur. My eye dr said one of the symptoms of FMS is dry eye. Also, many meds have dry eye as a side effect. I use Restasis eye drops in the morning and at night, and that takes care of it for me. They are by prescription. Good luck, and I hope the things you are doing help your eyes. T. > > Hey everyone, > ? > ? ? I have no idea what's been going on on here lately (about the last month and a half) because I've been having a lot of trouble with my eyes. To sum it up they're dry, itchy, generally hurt, and aren't focusing very well when I try to read....makes it really hard to study (I had 300 textbook pages to read this week plus some lectures to watch). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Do you have any symptoms of SJorens syndrome? My doctor has tested me for that repeatedly over the years with my fibromyalgia --- litleqtee@... wrote: > Hey everyone, > ? > ? ? I have no idea what's been going on on here > lately (about the last month and a half) because > I've been having a lot of trouble with my eyes. To > sum it up they're dry, itchy, generally hurt, and > aren't focusing very well when I try to > read....makes it really hard to study (I had 300 > textbook pages to read this week plus some lectures > to watch). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Do you have any symptoms of SJorens syndrome? My doctor has tested me for that repeatedly over the years with my fibromyalgia --- litleqtee@... wrote: > Hey everyone, > ? > ? ? I have no idea what's been going on on here > lately (about the last month and a half) because > I've been having a lot of trouble with my eyes. To > sum it up they're dry, itchy, generally hurt, and > aren't focusing very well when I try to > read....makes it really hard to study (I had 300 > textbook pages to read this week plus some lectures > to watch). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hello; From the web site here as I haven't been receiving any email since recently approved to join. Alia, I'm unsure what type eye Dr. you mean but it appears off hand they jumped on the mention of CSF/FMS as cause so as not to appear ignorant. Sounds like you've been using your eyes very, or too much as you relate to a 6 year old experience as similar. Do you really think it possible to overcompensate for fatigue? I think your eyes are reacting naturally to fatigue. I hope the drops and Lacrilube? Hey, relax a little in Hawaii. Go to the beach and scream! : ) If things become worse there, I suppose increased eye usage or increased allergens may be a factor. Russ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 I too have severe dry eyes. It took me 3 trys to find a great eye doctor. He has put plugs in my tear ducts to dam up the tears to keep the eyes from drying out. They can last up to 6 months. They have helped me tremendously because it got so bad that I had to stop driving for awhile. I tried restasis and it gave me a rash around the eyes. I use drops during the day. According to research, the eye drops that say celluvisc in the name, stay in the eye longer than others. I also use Genteal severe dry eye salve in my eyes at bedtime and sleep with an eyemask over them. I think it's called the dry eye zone (can google) and they have lots of products for people with dry eyes. Unfortunately, it can be a side trouble that some with CFS/ME face. Best of luck to you. Hope this helps, cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Thanx everyone for the replies. I've been using the genteal eye salve at night and the genteal moderate dry eye drops during the day, plus the fish oil pills. It seems to be helping some, but there is this one textbook that is giving me heck with the tiny font. I'm still stopping before the rest of me is tired just because my eyes are hurting too bad and just stop focusing. I can't wait until Saturday when I get my glasses (never thought I'd say that). Hopefully they'll help. If not the optometrist had some other ideas that she said I could try, though she didn't say what. Ugh, I am so tired of that hospital complex right now!!! -Alia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Hi all, I'm writing in reply to 'eye trouble' in general... I noticed with my eyes over the years -and this was after diagnosis as well- that the CMV virus which was detected as 'high' and present in my T cell count over the years. As I understand ME/CFS (and I also have fibro) there are 3 or so viruses which will be found to be high in terms of their count within your T cells (HHV 6, Epstein-Barr, and CMV are me). Not contagious, mind you, but .. just 'there' and the CMV is I THINK almost always one of them. Nasty thing; for my experience m eyesight got pretty much progressively worse, at times I'd have these quick little shooting pains in my eyeball and these were nothing to take medicine for. Not often that it would happen; just enough to be alarming. Then there was the damn tearing. My doctor (Enlander) said his patients seem to vary with this; either the dry eye or the tearing thing. Currently I'm doing under his supervision the Valcyte thing. Odd thing is that thus far it seems to be working! I DID get a great deal better with his usual regimen, but I think the only reason I did not reach a point of remission was all the .. STRESS in my life. Just been one thing after another. At least I've a sense of humour... Hope that this might help someone. Jane, the one with the hound > Hmmm. I don't know. I think it's mostly from too much school related >reading.> -Alia > Re: Eye Trouble> Do you have any symptoms of >SJorens syndrome? My> doctor has tested me for that repeatedly over the > years with my fibromyalgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 One thing that helped me when print was seeming to jump on the page was to take an index card - blank - or other white - or pastel color if that helps you see better and cut a line out the size of the line of print and slide this down as I read each line - it helped to focus attention on that line only and might help with the tiny print - you can cover it with clear contact paper to make it more durable. Don't use it now but it helped during that time - still have the card I made - you can make a different one for each size line/book in Georgia litleqtee@... wrote: Thanx everyone for the replies. I've been using the genteal eye salve at night and the genteal moderate dry eye drops during the day, plus the fish oil pills. It seems to be helping some, but there is this one textbook that is giving me heck with the tiny font. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Alia, When you go to the eye doctor, there is a very quick painless test that they can do to see how dry your eyes really are. It is called the schirmer (SP) test. They basically put a small strip of paper in your bottom eyelid for a few seconds and that measures the level of tears that you have. It may be a good indicator for you. Take care, cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Alia, As a student with a disability you are entitled to accommodations. You can get books on tape. Your school can get them through Recording for the Blind & Dyslexic (RFB & D). Recording for the Blind & Dyslexic (RFB & D) http://www.rfbd.org/ Happy New Year! Any questions ask, I'm not shy. Take care of you. Big gentle huggles, Di in Feasterville-Trevose, PA ) dimntd on AIM, IRC, ICQ & Yahoo! Messenger litleqtee@... wrote: > Thanx everyone for the replies. I've been using the genteal eye salve at night and the genteal moderate dry eye drops during the day, plus the fish oil pills. It seems to be helping some, but there is this one textbook that is giving me heck with the tiny font. I'm still stopping before the rest of me is tired just because my eyes are hurting too bad and just stop focusing. Quote Link to comment Share on other sites More sharing options...
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