Guest guest Posted September 28, 2006 Report Share Posted September 28, 2006 I just went through a trial of putting my son on Acyclovir to try and save us money because Famvir is so expensive. My son after 10 days is so out of it. He started the school year off fairly well, but now it's pretty bad. He is standing up in the middle of class saying inappropriate things, not doing any work, tapping two pencils constantly, hyper and running around,and generally in his own world. I'm pretty sure it is because of the change in anti-viral. We did change the anti-fungal twenty days ago. I saw a little die-off and then only improvement from this initially but maybe we did these changes too close together. I had run out of Famvir and had a full bottle of Acyclovir and asked Dr G if I could do this to save some money. He's EOS went back up to 5% also when we had them down to 1%. I have not changed his diet. He did have a few infractions at parties which caused very weird behavior so I know I can't even allow that at this time but I didn't think that would bring the EOS up so much if that's what did it. I guess I am really baffled, scared and sad. I don't know if any of you have input here but I would greatly appreciate it. I'm wondering if anyone else has experienced any of this. Also, if Marcia could respond about whether her son is still on an anti-viral and if it is Famvir. I don't know how we are going to afford it for so long but I guess I will have to figure out a way. Thanks so much, Jerri Quote Link to comment Share on other sites More sharing options...
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