Difficult Nids Case.....anyone similar?

[Guest guest]

Okay, let me ask this. We have been using Dr. G's protocal since

1999. At the time he told me my son was one of the more severe cases.

After almost 7 yrs, we are still doing Pandas therapy for strep

bacteria in his blood stream.

We continually switch between famvir and valtrex. We did a stint with

kutapressin until that ran out. Dr. G won't let us try the new stuff

yet.

We have run the gamit thru various ssri's we have settled into

effexor, wellbutrin and zoloft.

we are using tennex, allergy meds, and diet intervention.

My son is now 14, his language still resembles a stroke survivor. So

do any of you have a similar story? Have any of you added in a 4th

ssri? Like a sm amt of paxil? Or maybe some adhd medication like

adderall.

I've read adderall/ritalin in stroke survivors results in improved

speech clarity and spontanteous utterances. Don't know if I can

convince dr. G to let us try this.

Despite better looking natural killer cells, better looking immune

system, my son seems forever damaged by his viral/bacterial

infections at the age of 23months.

Have any of you with kids that kind of look like this added any

medicines I have not mentioned that maybe improved concentration and

language? Just want to ask before I officially throw in towel. No

true recovery here.....but maybe for the next generations born years

from now Immune induced autism will be a thing of the past.

thanks,