Guest guest Posted December 25, 2007 Report Share Posted December 25, 2007 If I were you I would get a second opinion. I think your regular doc is onto something. A rheumatologist is probably your best choice. Maybe see the doctor your mother does. FM is hereditary. All I can say is keep on it until you get a definate diagnosis. Be very truthful when you go to the doctor. Don't sugar coat anything. Tell them how you truly feel. I've been in your shoes. It is very frustrating to not know what is going on. Hang in there. Let us know where you live and maybe someone in the group will recommend a doc to see. Kendra > > I am 33 yrs. old. I have had symptoms of chronic fatigue for years (if > I clean the house, etc. I want to not move for the next week!), as > well as pain in my feet & my hands, as well as all over pain. I was > recently told by my neurologist that I have peripheral neuropathy & > they did tests that ruled out any carpal or tarsal tunnel, & basically > left it as unexplained. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 CFS/Fibro is often a disease of elimination of other possibilities. A diagnosis without a treatment plan makes no sense to me. Does unexplained mean he is stumped or needs time to consider the possibilities and what to do next? Does your gut say he is on the right track or going down the wrong path? Some doctors merely want to treat symptoms and some want to cure. Can you find a specialist in the area of Environmental Health? Can your regular doctor provide a referral since he seems to think it is CFS/FMS? If it is FMS, a Rheumatologist is the appropriate diagnosing specialty. A different neurologist might be helpful - my neurologist is very well versed in CFS and FMS. I go to him for his expertise, to an Internist/Environmental Health Specialist for most everything else, and a D.O. for monthly manipulations. A good D.O. that could do OMT (manipulation therapy) on you might be very helpful. What area of the country are you located? If we knew, then maybe someone near by could give you a more specific doctor recommendation. You sound like you have a good husband. Celebrate that! This is a journey, it will have ups and downs, but it IS a battle than can be won. You know your own body and you know it is not right. You will have to persist and insist on getting to a proper diagnosis and treatment plan. When you go to the doctor, be well prepared. I find it best to have a list prepared a day or two before. Doctors can read and assimilate a lot of information very quickly and a typed sheet allow you to present in an organized way what you need him to know. Can save much time during the appointment. Wishing you better health and a speedy journey to answers and effective treatment. > I am 33 yrs. old. I have had symptoms of chronic fatigue for years (if > I clean the house, etc. I want to not move for the next week!), as > well as pain in my feet & my hands, as well as all over pain. I was > recently told by my neurologist that I have peripheral neuropathy & > they did tests that ruled out any carpal or tarsal tunnel, & basically > left it as unexplained. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I really feel for you. I have been struggling with pain since I was about 15 years old and it has just gotten worse over the years. I have seen some many physicians that have told me that they don't know what is wrong and it is just something I am going to have to live with I have even had Physical Therapists tell me this. Out of desperation I tried a Rheum. doctor who told me the same thing as all of the other doctors. I did most of my research online and I found a website that actually gives you a check list to fill out and take to your physician to show them that your problem is real. It was amazing how differenty I have been treated since then. I was correclty dx with fibro, cfs as well as DJD (I already knew I had this)and since then they have all been willing to help and listen instead of treat me like I was crazy. I don't remember the exact website but if you just search on " Fibromyalgia worksheet " several different sites come up that have the same form. I would start this way with your family doctor and then proceed from there. I wish you all the best in finding someone to listen to you. > > > > I am 33 yrs. old. I have had symptoms of chronic fatigue for years > (if > > I clean the house, etc. I want to not move for the next week!), as > > well as pain in my feet & my hands, as well as all over pain. I was > > recently told by my neurologist that I have peripheral neuropathy & > > they did tests that ruled out any carpal or tarsal tunnel, & > basically > > left it as unexplained. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I really feel for you. I have been struggling with pain since I was about 15 years old and it has just gotten worse over the years. I have seen some many physicians that have told me that they don't know what is wrong and it is just something I am going to have to live with I have even had Physical Therapists tell me this. Out of desperation I tried a Rheum. doctor who told me the same thing as all of the other doctors. I did most of my research online and I found a website that actually gives you a check list to fill out and take to your physician to show them that your problem is real. It was amazing how differenty I have been treated since then. I was correclty dx with fibro, cfs as well as DJD (I already knew I had this)and since then they have all been willing to help and listen instead of treat me like I was crazy. I don't remember the exact website but if you just search on " Fibromyalgia worksheet " several different sites come up that have the same form. I would start this way with your family doctor and then proceed from there. I wish you all the best in finding someone to listen to you. > > > > I am 33 yrs. old. I have had symptoms of chronic fatigue for years > (if > > I clean the house, etc. I want to not move for the next week!), as > > well as pain in my feet & my hands, as well as all over pain. I was > > recently told by my neurologist that I have peripheral neuropathy & > > they did tests that ruled out any carpal or tarsal tunnel, & > basically > > left it as unexplained. > Quote Link to comment Share on other sites More sharing options...
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