Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Hi. My son has now turned 2 and is showing signs of autism. We are having problems getting an official diagnosis. His paediatrician puts autism and global delay 'with a question mark' on all her letters. At 18 months old lost his previous ability to say words and still wasn't pointing - he would have failed every aspect of the CHAT (checklist for autism in toddlers) yet the specialists still said they couldn't officially diagnose him. Last autumn we took him to 6 special needs group sessions whereby the speech therapist was going to assess and try to help him with his 'significant communication disorder'. He didn't point until 21 months old and still has limited language skills, though he now says around 20 single words. He also has hyperactivity issues and more recently he has began pacing up and down the front room for hours, making strange noises and turning his wrists round in circles - often he walks around in circles. Recently he has began circling his feet as well as the circling flapping motion he does with his hands. is getting very distressed when we are out and seems to have huge problems coping at the moment. He usually loves going to the indoor play areas, yet last friday he had a meltdown because he was unable to climb up a ramp in one of the play areas we take him to. We showed him another way to climb the equipment and he usually climbs that way without any problems, yet once he decided the ramp was the only way up he got completely fixated with it and threw himself around on the floor screaming. He was inconsolable and we had to bring him home. He has very limited ability to communicate what he wants, and he is very impatient and unable to wait a second for anything. He doesn't sleep well and the other night he was crying but kept laughing at the same time and he often cries or laughs for no obvious reason. He is the youngest of my 6 children and lacks the imaginative play my older children had at his age. has now began a second course at the special needs centre (an hour each week without us present) and the therapist is going to write a report on his difficulties. However she is still saying that he is too young to diagnose as he is only 2 and she says most aren't diagnosed until the age of 3. We are in the UK and I am hoping for a diagnoses so that we can move forward with therapy to help and teach him some coping skills. He seems to have a good few days followed by a really bad week whereby he is extremely active and cannot sit still for a second, and gets extremely distressed all of the time and is unable to wait a second for anything. In fact spends a lot of the time distressed which is why we are so desperate to help him learn some coping skills. We find that discipline is very difficult with as his understanding is limited and I don't feel that he should be disciplined for his fixated ways if he is unable to help the way he behaves. We know that loves music and is extremely musical. He can perfectly repeat a tune after hearing it only once. So we thought music would be a good therapy and took him to a music school for an hour but he couldn't cope with the structure. He hates car drives as he cannot cope with sitting still - he can be extremely distressed, but as soon as we put the Crazy Frog song on the stereo he is silenced imediately. So music could be something that helps cope when he is distressed. The transformation was amazing - one minute he was hysterically screaming, yet stopped immediately when the Crazy Frog tune came on. We are wondering if has ADHD as well as autism as he is extremely hyperactive and lacks concentration. Does any of the above sound familiar, and have any of you have similar experiences? We would really appreciate some advice. Below is a list of things about that I printed off for the special needs co-ordinator last week. Regards, - signs of autism / ADHD at 2 years old. Febuary 2007 1. doesn't say Mum or refer to us as Mum and Dad. 2. He doesn't understand the word Mum and doesn't understand his 5 sibling's names. 3. He has very poor general understanding and does not follow instructions. 4. is constantly stimming - circling his hands, and now circles feet as well. Sometimes bites his hands. His stimming happens most of the time. For example when he is in the buggy his wrists are permanently turning or flapping, unless he is holding something. 5. bounces up and down on his knees and rocks up and down making a noise. 6. Sometimes appears in his own little world and tunes us all out. 7. Other than on two occasions, (and echolalic phrases such as " thereyougo " ) does not say two word sentences. Previously had a few words at 14 months old, but lost them and didn't talk again until around 21 months. 8. had fairly normal development up until around a year old (though he wasn't pointing) - he sat up early and crawled early (which is why we don't believe he has just global delay). Then around 14 or 15 months his development suddenly changed drastically and he lost his previously learnt speech. 9. often appears to be deaf even though we know he can hear as he has grommets now and had his hearing tested. He was difficult to test as he rarely turned for the sounds and sometimes looked in the wrong direction. We believe has auditory processing problems as he sometimes looks the wrong way for a sound. Both hearing specialists who tested 's hearing said that he was very difficult to test because of his disorder. However they have both stated that his hearing is at normal levels now. 10. Most of the time is unable to tell us what he wants. He is able to say 'cup' and 'muslin' but generally will scream instead. 11. paces backwards and forwards every day sometimes for hours on end. From one end of the room to the other, often making little noises. 12. He gets extremely distressed frequently and often for no apparent reason. This is results in huge and frequent trantrums. 13. Circle walking - when holding our hand will try to pull us to walk round in a circle and when standing on his own often walks round in circles. 14. doesn't engage in imaginary or pretend play other than pushing toy cars. 15. doesn't play with toys in the way my other 5 children did. For example he will not sit on a sit on and ride car, and does not play with imaginary toys. 16. has sleep problems and wakes up screaming several times a night as if in a panic. He is then hard to settle. 17. He often laughs or cries for no apparent reason. He has got the giggles for no apparent reason in a play area before and had funny looks from other kids. 18. Mixed crying and laughing. Last weekend woke up crying in his sleep. The crying then turned to hysterical laughing at the same time, even though he was still clearly extremely distressed - it switched back and forth from hysterical laughter to crying at approximately 5 second intervals. This was extremely strange and frightening to watch. 19. doesn't show affection. 20. is extremely over-active and in general will not sit still for a second. He gets very distressed during car journeys and will scream very loudly until we put on Crazy Frog tune to settle him down. Also will not tolerate being in the buggy unless the buggy is constantly on the move, and even then at times he cannot cope with it. 21. He often spends hours at a time with total avoidance of any eye contact. 22. Lack of gesturing. started pointing to show at 21 months and pointing to ask for things at 23 months and occasionally waves, but has no other body gestures. He doesn't nod his head or shrug his shoulders. 23. doesn't find hidden objects ie a crisp that was hidden under a block while he was watching. 24. He refuses to scribble with pencil and prefers to throw all the pencils on floor. 25. compulsively empties out toyboxes and any containers. He tantrums if he is not able to empty everything out. He'll go round emptying all his pots of things eg toy cars, alphabet letters and if we try to put the small things back in their containers he has huge tantrums and tries to stop us. He seems to be obsessed with scattering things and any toys with detachable pieces must be detached. 26. gets overwhelmed in crowds. If there are a lot of people around he will scream and scream eg round a car boot sale. Also in the play area he is fine and does very well, until there are a lot of people. When that happens he gets extremely distressed. 27. has fixated play. He has a whole tub of different shaped wooden blocks but will always dig out the red cylindrical blocks and line those up. 28. He is still unable to feed himself without my hand over his guiding the spoon. is a very fussy eater and is unable to eat certain textures and foods. We have to blend up most of 's food in order to get him to eat. Although we do encourage finger foods for one meal per day. 29. He is still unable to undress or dress himself without significant help and will often tantrum during the dressing or undressing process while putting arms through etc. 31. has certain food sensitivities and gets extremely hyperactive after bananas. He is also allergic to cow's milk as it make him vomit. 32. cannot cope with structure, for example the structure and his music lesson. We had to pull him out of his course as he could not cope with it. 33. He cannot cope with changing direction. If we're driving somewhere and have to do a 3 point turn or turn around and go back the other way, he screams. Also at the music lesson, he got very upset when each person in the group was marching round in a circle had to turn around. He was OK until we had to turn around and march the other way. 34. cannot cope with any sort of waiting! He is extremely impatient and even while waiting for us to sign him in at the play area he screams and has powerful tantrums. Even something simple like sitting in the car for a few seconds after the engine has stopped, waiting for us to get him out of the car, can lead to him being very distressed and screaming. 35. answers any question with the word " yeah " and his tone for the word " yeah " is almost a questioning tone. Example, if you said " do you want a car or a book? " he will reply " yeah? " with a questioning tone. 36. Mood swings. has the strangest changes of mood. We've found in the past he'll have one week where he isn't quite as bad and is actually able to learn and doesn't scream as much. Then something will click and he will have a terrible week after that where he doesn't sleep and spends all day and night distressed and not coping with anything. During his bad periods his pacing gets non-stop throughout the day. Just recently we're finding that he can change from good to bad very quickly indeed. For example at the play area last week when it got too crowded had a complete meltdown as he couldn't cope with the amount of people. 37. has claustrophobia and gets distressed in small areas such as the changing rooms in the swimming pool. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.