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In a message dated 4/1/2000 4:13:37 AM Eastern Standard Time,

bowel cleanseonelist writes:

<<

Hi everyone, my name is Marcie and I am new to the list. I am 26 years old

and live in a small town in NY state. My problem is that I've tried colon

cleanses and they do not work for me. Nothing seems to make me go like I

should be. I've made a diet change, I don't eat meat, I don't drink milk, I

juice everyday, I take fiber,...I've tried cascara sagrada, bentonite clay-

nothing works. Any ideas? My body seems to be very backwards. All of the

females in my family are like this. We could go all week without a bowel

movement. The fiber and juicing cause me to go every morning now- so that's

an improvement. I would really like to do more though. I would appreciate

any ideas that you may have. :)

>>

It sounds like you are taking supplemental fiber...is that correct? Have you

tried eating FOODS with more fiber? Some High fiber foods...buckwheat,

barley, black beans, red kidney beans, and most beans, brown rice,

oatmeal/bran, collard greens, green peas, almonds, sesame seeds, pecans,

[nuts & seeds, you can grind in a coffee grinder, and add to a salad, or

yogurt or top on fruit] apples, raspberries, dried figs. Juicing, which

removes all the fiber, and adding supplemental fiber, are not the same as

eating the right foods.

If you haven't tried that, I would definitely try it. As a matter of fact

find a reference that actually gives you the amount of fiber in each food you

eat, and try to get 30gm of fiber every day. IT is not easy to do this...you

have to eat A LOT of these foods to get that much.

You should also be drinking at least 8 large glasses of water a day.

Good luck :-)

Jane

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,

That is the coolest thing I have ever heard. I need to figure out what my

blood type really is. How do I do that? We did it once in science class but

now I forget how we did it.

Betsy

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I am blood type O and that really bums me out. I don't want to eat meat.

The thought of it makes me cringe. Too many things are in meat. Yuk!

Thanks for the info- I better get reading. Marcie

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I also saw a commercial the other day, that was advertising that Tyson

chicken is free of hormones and antibiotics etc.....................Belinda

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>

> In a message dated 4/1/2000 4:13:37 AM Eastern Standard Time,

> bowel cleanseonelist writes:

>

> <<

> Hi everyone, my name is Marcie and I am new to the list. I am 26 years old

> and live in a small town in NY state. My problem is that I've tried colon

> cleanses and they do not work for me. Nothing seems to make me go like I

> should be. ...

Marcie,

I suggest Dr. Schultze's Intestinal Formula #1.

Call 1-800-HERBDOC.

Take one with your evening meal. There should be a dramatic increase the next

day, all " healthy " looking, not watery. If there isn't, take two with your

evening meal. Keep going until it works. One is enough for me. The record is

a dose of 52 (the guy weighed over 400 pounds).

Contains Curacao and Cape Aloes, Senna leaf and pod, Cascara Sagrada bark,

Jamaican Ginger rhizome, Barberry rootbark, Garlic bulb and African bird

peppers. Some of that is to soothe the colon.

Your problem may be a wimpy dose.

A bottle of 90 costs $18 + $5 shipping. I ordered a bottle last week and it came

coast-to-coast in 2 days.

If you do order it this month, ask for the two free tapes and all their

literature.

There are at least a couple of websites. but I don't have them handy. Use a

search engine, searching on " Schultze " .

Ron

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  • 2 weeks later...
Guest guest

<< However, 2 questions: 1) Could my severe iron def. anemia be caused

in some strange way by candida? >>

this is kind of like a " what came first, the chicken or the egg " situation.

candida and anemia often go hand in hand. iron is what brings oxygen to the

blood; a low oxygen body environment allows candida to thrive.

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  • 3 weeks later...
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Happy Birthday Meghan and Caitlin!!!!!!!!!!!! Hope you and your family have

a simply wonderful day!

love Debbi omm to Logan (6 in June) Eli (DS) and Milo (4 in sept)

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  • 1 month later...
Guest guest

Jeanie....

You said: " Pat's cirrhosis went from

stage 1 to stage 4 in just a matter of months. When

he was first diagnosed, 4 1/2 years ago he didn't even

have any symptoms. Now he is constantly affected by

ascites, encephalopathy, extreme fatigue, weakness,

back pain, and varying degrees of jaundice. He's been

on the transplant waiting list for 14 months, and for

the first time I am really getting scared. "

I'm sorry that i have lost touch with you and so sorry about Pat's

condition.

I was gone on my Cleveland trip for a week, crashed badly when I got

back and then not a week later was in Philly all day for doc's

appointments. I am still very tired. I think it is more the mito than

the HepC, but who knows???!!

I was just trying to read the digests from when I was gone (5/30 - 6/5)

and I realize that I cannot do it. Sooooooooooo.... if there was

anything there that anyone really wanted me to know, please write

me.... Thanks.... I am about to delete those digests!!!

Hope all of you are as well as is possible. I should be able to get

back into interactive mode now!!!

Special HUG to you and Pat, Jeanie...

HUGS to all...

Merril

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  • 4 weeks later...
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In a message dated 07/16/2000 3:03:07 AM Pacific Daylight Time,

egroups writes:

<< tea tree doesn't heal...it prevents the growth of bacteria (antibacterial,

antiviral, antifungal) to help prevent infection...but it doens't heal.>>

Marge- I have read that tea tree and lavender are good in soap for acne skin

- does this sound right??

Thanks- Marilyn (thanks for the info on NAHA)

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For a moon mold (and forgive me cause i dont generally do MP soaps)

but wouldnt it save a ton of time and money to buy a 2 " pvc pipe and put

glycerin in that..

then take it out..and cut it in half length wise? Then you'd have two half

moons?

Just a suggestion *L*

http://www.thesoapgoat.com

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thanks for the mayo recipe Lynn! sounds good. well, had a diet set back

this weekend (visitors in town) went out for breakfast (pike place mkt!) +

couldn't resist the hashbrowns and the mushrooms in the veggie omelet! and

one of our guests served napoleons (sp?) for dessert that night and there was

cinnamon on the salmon... next day I had (still have) hives in the back of my

knees!!! wonder if there's a connection there???!!

waiting patiently for Dr. D's recipe book to show up !

hope everyone's feeling good today!

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  • 3 weeks later...
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In a message dated 8/7/00 9:17:03 PM Eastern Daylight Time,

egroups writes:

<< cranial sacral >>

What is this? Our son was delivered with suction and had a huge hemotoma

also. they were able to drain it, he became jaundiced, then theywrapped his

head for afew days--all you could see were his eyes, nose and mouth--then he

appeared fine. Robbin

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In a message dated 8/7/00 6:19:31 PM Pacific Daylight Time,

egroups writes:

<< Hi all -

I will try this again.

I am interested in learning about homeopathic remedies for excess

vaccinations -- ie MMR, etc. I have tried looking on healthy.net, but

couldn't find anything. Somewhere I found a reference to something called

Thuja ( I think) but it was primarily for use immediately after the vaccine

is given. Any suggestions?

Thanks,

>>

,

This isn't something you should try yourself, as thuja is a very powerful

remedy. Most good homeopaths give this after building up the child with

another remedy. There are hundreds and hundrens of remedies, so it's

important the right one is chosen. I am trying to learn all I can about

homeopathy, and some of it I learned the hard way. One expensive lesson was

that high-potency dry remedies aren't nearly as effective as " wet "

low-potency remedies, which lead to a much faster cure. If you're interested

in homeopathy, I'd recommend finding someone experienced in treating kids

with autism.

Homeopathy seems to be slowly detoxing my daughter, judging by her overall

health, and our primary care physician is urging us to stay the course and

not jump into chelation.

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<< << cranial sacral >> >>

It's a type of osteopathic manipulation to get the skull bones and brain back

into their proper relationship after something like a vacuum delivery.

There are several different kinds of osteopathic manipulation for this in

addition to cranial sacral - in some states other kinds of doc's can do

cranial sacral therapy, but few know the other stuff.

Andy

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<< our primary care physician is urging us to stay the course and

not jump into chelation. >>

Does the PCP do the homeopathy?

Inform the PCP that you CAN'T detox mercury out of the brain with homeopathy.

Like any techniques it has its capabilities and limitations.

Andy Cutler

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Lori,

I'm not trying to be nasty, but did you realize when you just hit reply to the

digest, 1) it doesn't tell us the subject and 2) it includes the whole digest in

your reply. I'm not on digest but I've been on other lists. This makes

scrolling through really long. Telling you this in love....

There should be an option on your email to not include the text with your reply.

Loriann

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We also had no problem getting Tommy into a approved private school (easter

seals) I went to the district and looked at everything avaiable to him..

The reg class with an aid wasn't an option for me, the multi hand class

became the same problem as Maddie, Tommy is not aggresive but doesn't not

know not to pull the plug on a respirator, or feeding tube, he is very

active, so in the end they had no problem with what I wanted, and because he

has the formal diag. of autism, it wasn't a problem. PA seems to be pretty

flexiable with this.

Lori

Digest Number 326

>

>

>

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  • 2 weeks later...

Hi Aisha,

Thanks for the welcome! And I may need a " SLAP " every now and then when I

start feeling sorry for myself

:-) I HATE THAT!!!

" Another Aussie!! There are a few of us here. Where abouts are you? "

I am about an hour from Melbourne. At the moment we live on the Mornington

Peninsula but are moving next weekend to the Yarra Ranges area.

" Its not your fault though, you did not know you were a carrier. How are you

coping? I see your marriage broke up, was that because of your sons

illness? "

I know my son's disease is not my fault. I did blame myself at first but

then I realised that was going to get me nowhere and as you said I wasn't to

know I was a carrier.

I am coping well now.....I did struggle for awhile and had a minor breakdown

about 6 months ago.

Yes....I think my marriage break-up was caused by my son's illness but then

if it wasn't strong enough to cope with that then maybe it wouldn't haven't

lasted anyway.

" How do you cope? Do you get any support? How do your other children cope

also? "

I cope by taking one day at a time and trying to make every day count. At

the moment where I am living I don't get too much support but when I move I

will be near my family and closer to access the various support services I

need.

My son 12 has struggled to come to terms with 's DMD and is

still trying to come to grips with it all. He has also taken the break-up of

my marriage hard.

Added to this he is a 12 year old and of course we have started on the

" puberty " merry-go-round :-)

But....I am still blessed to have two wonderful children and in many ways

the past few years have been an enriching and rewarding experience. I have

met many wonderful people I may not have met otherwise and learned some

valuable lessons on life. I try to be very positive and encourage my sons to

have a zest for life and to have a go at anything and everything.

Rae :-)

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.177 / Virus Database: 86 - Release Date: 8/7/00

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Dear Anne,

I am sorry the site I sent in messed up your computer. I have no

problems in it, and have no way of knowing that you would, or why. Even

so, I am sorry it caused you problems.~Dorie

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doriedew@... wrote:

> Dear Anne,

> I am sorry the site I sent in messed up your computer. I have no

> problems in it, and have no way of knowing that you would, or why. Even

> so, I am sorry it caused you problems.~Dorie

Don't worry too much about it, life and my computer are okay at the moment.

Anne

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Rae,

Hi there. Welcome to the group!

I can relate to you SOOOO much, it's unreal.

I joined this list as a caregiver for my son (his name was also

!) My Matty also had a very rare, very ugly disease. It was

called Pearson's syndrome, and he later developed Kearns-Sayre syndrome

also. These are both mitochondrial diseases. My passed away in

June...but I'm still here cuz I'm totally addicted to this crazy bunch

of people!! lol

My husband (well, he's my ex-husband now) also could not deal with our

son's illness, and we divorced shortly after Matty was diagnosed. But I

totally agree with you that if my marriage couldn't survive Matty's

disease, then it probably wasn't worth saving anyway.

I have 2 other children, both daughters. Adrienne is 8, and Gracie is

2. To see Matty so very sick was hard for them, too, especially my

oldest. She wanted to badly to help Matty, and it broke her heart when

she realized that she couldn't make him well again. :-( It still

breaks my heart just thinking about it. I remember when I had to tell

her that was going to die soon...She collapsed into tears, and

just kept saying " but he's my best brother...I don't want him to die.

He's the best brother. " I just cried...I couldn't take it.

I really admire the way that you are able to focus on the positive

aspects of your son's life. That's a very hard thing to do, I know. It's

too, too easy to get wrapped up in the negatives. But hold on to the

good things, for those are all that matter.

Take care, and please don't hesitate to let me know if there is

anything that I can ever do for you...I'm half way across the world (in

the States), but I'm always here if you need a sympathetic ear!

with love,

" Rae :-) " wrote:

> Hi Aisha,

>

> Thanks for the welcome! And I may need a " SLAP " every now and then

> when I

> start feeling sorry for myself

> :-) I HATE THAT!!!

>

>

> " Another Aussie!! There are a few of us here. Where abouts are you? "

>

> I am about an hour from Melbourne. At the moment we live on the

> Mornington

> Peninsula but are moving next weekend to the Yarra Ranges area.

>

>

> " Its not your fault though, you did not know you were a carrier. How

> are you

> coping? I see your marriage broke up, was that because of your sons

> illness? "

>

> I know my son's disease is not my fault. I did blame myself at first

> but

> then I realised that was going to get me nowhere and as you said I

> wasn't to

> know I was a carrier.

> I am coping well now.....I did struggle for awhile and had a minor

> breakdown

> about 6 months ago.

> Yes....I think my marriage break-up was caused by my son's illness but

> then

> if it wasn't strong enough to cope with that then maybe it wouldn't

> haven't

> lasted anyway.

>

>

> " How do you cope? Do you get any support? How do your other children

> cope

> also? "

>

> I cope by taking one day at a time and trying to make every day count.

> At

> the moment where I am living I don't get too much support but when I

> move I

> will be near my family and closer to access the various support

> services I

> need.

> My son 12 has struggled to come to terms with 's DMD and

> is

> still trying to come to grips with it all. He has also taken the

> break-up of

> my marriage hard.

> Added to this he is a 12 year old and of course we have started on the

>

> " puberty " merry-go-round :-)

>

> But....I am still blessed to have two wonderful children and in many

> ways

> the past few years have been an enriching and rewarding experience. I

> have

> met many wonderful people I may not have met otherwise and learned

> some

> valuable lessons on life. I try to be very positive and encourage my

> sons to

> have a zest for life and to have a go at anything and everything.

>

> Rae :-)

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.177 / Virus Database: 86 - Release Date: 8/7/00

>

> -----------------------------------------------------------------------

>

> -----------------------------------------------------------------------

> The Being Sick Community

>

> Sharing our resources:-

> Add a website URL you think may help another, or even add a link to

> your own webpage.

>

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> http://www.elderwyn.com/members/chat.html

>

> Egroups JAVA based chatroom for your use anytime:-

> chat/

> (Anyone on web-tv will not be able to access java and it is very slow

> compared to IRC.)

>

> Memorial Page:-

> http://www.elderwyn.com/members/inlovingmemory.html

>

> Members Lounge:-

> Medical resources, counselling via email, information on the daily

> chat times, free psychic readings and the cartoon of the day.

> http://www.elderwyn.com/members

>

> Members Profiles, pictures, and birthdays:-

>

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Promoting This Community:-

> Would you like people to be able to join from your webpage?

> promote/

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you

> receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

> browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your

> convenience and receive no email.

>

> To modify your subscription settings please visit

> mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to

> what you believe, even if it's a tree that stands by itself. Hold on

> to what you must do even, if it's a long way from here. Hold on to

> your life, even if it's easier to let go. " - Pueblo Prayer

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Hi ,

Thankyou for your welcome and YES it looks like we could both relate to each

others situations perfectly.

I am sorry to hear about your Matty and I am glad to see you are still part

of what appears to be a great group of people!!

Rae :-)

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.185 / Virus Database: 88 - Release Date: 8/22/00

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  • 6 months later...
  • 3 months later...
Guest guest

I have been following the HV/SN/nursing/not nursing etc debate with great

interest. What a pity that many practitioners will not see it because they

don't choose to log on to senate. On the subject of practitioner

complacency I think Toity and are right about people being bogged

down by workload and -as percieved by many - yet more chnages in the

pipeline. I am concerned that this complacency really disempowers

practitioners. If you think back to what we have lived through during the

last 10 or so years HVs in particular have been so ground down by stuff

like GP attachment, then GP fundholding where things got so ridiculous in

Glos that one practice actually succeeded in preventing their attched HVs

from taking part in any public health work. Other GPs were instrumental in

shaping HV practice development to suit their own agenda so that some HVs

were forced into doing more and more medical model work, becoming glorified

handmaidens. These changes were achieved by some sharp negotiation with the

Trust(nurses in managers suits) whose sole motivation, it appeared, was to

keep GPs happy. This treatment of a skilled and unique workforce served to

bring morale to rock bottom, where it remains, despite the more recent

pro-HV/SN noises from Tony et al.

When we add to this mess the handicap (and I do mean this) of being nurses,

the end result is a disempowered, stressed out and utterly fed up group of

practitioners. Can you imagine any other professional group letting this

happen to them? Take our esteemed colleagues the GPs - would they have

stood for other professionals, not even similarly qualified and whose

practice was based on a different model, deciding how they were to work? I

believe that our nursing background has socialised us into doing what GPs

ask and accepting changes to practice imposed by managers and others

without questioning it ; and because we are seen as submissive caring types

we are conditioned to follow the script although we grumble amongst

ourselves. Internal grumbling is pretty harmless and eventually subsides

because people become engulfed by the demands of the job.

But now we need to do something bold and uncharacterstic of nurses: we need

to assert ourselves and tell politicians and those who make policy

decisions that actually HVs (AND SNs) offer a unique and irreplacable

service to the well population and we want to retain our professional

integrity and autonomy in order to protect both the service and its

consumers. I weclome my colleauges from school nursing to join the action,

if they can free themselves from nursing and align themselves with their

public health allies.

Digest Number 326

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