RE: sackie Virus??? (long, sorry)

[Guest guest]

Dr G ran ackie Virus screens on our son several years ago to eliminate as

another possible piece of the puzzle as he said that he has sometimes found

this elevated in his patients - fortunately they were negative. An elevated

IgM indicates that there has been a recent/still is an infection. An

elevated IgG indicates that there has been an infection in the past - that

should drop below a reference range over time if no further infections

occur. The two measures should be read together to get a better indication

of what is going on. According to Dr G, tt appears that there could be an

association with this virus and immune dysfunction issues (and ASD issues)

sackie Virus??? (long, sorry)

Hello -I am new here, although I have been lurking for a while. My

four year old son began showing symptoms of autism at 10 months of

age, immediatley after recovering from sackie Virus. I belive it

was a " wild strain " of some kind. I caught it, my mother caught it,

another baby he was playing with caught it - she had it for a full

two weeks. It was just brutal! He had a high fever and screamed way

more than he should have, if it were a normal version of the virus.

Our pediatrician basically said, " hang in there, give him tylenol or

motrin for the fever, Mylanta for the sores. " That was it. The ped

never believed that the sackie Virus had anything to do with my

son's autism. And neither did three subsequent Developmental

Pediatricians, two of whom were DAN docs.

FINALLY, I have found a Developmental Pediatrician who tested for

sackie. Anyway, the doctor ran the McCandless Autism Panel, and

added on a test for the sackie Virus. Yesterday, he presented me

with the report and sure enough, there it is. Here's what it says:

sackie A & B IgM Test

result 42 (Ref Range 0-36)

Anyone know what this might mean? Does that mean that there is still

an active sackie infection? What is IgM as opposed to IgG. I

should have asked the doctor all these questions yesterday, but my

two year old was present and she is just not helpful in these

meetings!

My doctor has prescribed an anti-viral, which I am having compounded

as we speak.

Any ideas, explanations, stories of similar experiences, are greatly

appreciated.

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

, do you know what is done if there is coxsackie

virus present? Do the antivirals help get rid of it?

Barb

--- <rmwilson@...> wrote:

> Dr G ran ackie Virus screens on our son several

> years ago to eliminate as

> another possible piece of the puzzle as he said that

> he has sometimes found

> this elevated in his patients - fortunately they

> were negative. An elevated

> IgM indicates that there has been a recent/still is

> an infection. An

> elevated IgG indicates that there has been an

> infection in the past - that

> should drop below a reference range over time if no

> further infections

> occur. The two measures should be read together to

> get a better indication

> of what is going on. According to Dr G, tt appears

> that there could be an

> association with this virus and immune dysfunction

> issues (and ASD issues)

>

>

>

>

>

> sackie Virus??? (long, sorry)

>

> Hello -I am new here, although I have been lurking

> for a while. My

> four year old son began showing symptoms of autism

> at 10 months of

> age, immediatley after recovering from sackie

> Virus. I belive it

> was a " wild strain " of some kind. I caught it, my

> mother caught it,

> another baby he was playing with caught it - she had

> it for a full

> two weeks. It was just brutal! He had a high fever

> and screamed way

> more than he should have, if it were a normal

> version of the virus.

> Our pediatrician basically said, " hang in there,

> give him tylenol or

> motrin for the fever, Mylanta for the sores. " That

> was it. The ped

> never believed that the sackie Virus had anything

> to do with my

> son's autism. And neither did three subsequent

> Developmental

> Pediatricians, two of whom were DAN docs.

>

> FINALLY, I have found a Developmental Pediatrician

> who tested for

> sackie. Anyway, the doctor ran the McCandless

> Autism Panel, and

> added on a test for the sackie Virus. Yesterday,

> he presented me

> with the report and sure enough, there it is. Here's

> what it says:

>

> sackie A & B IgM Test

> result 42 (Ref Range 0-36)

>

> Anyone know what this might mean? Does that mean

> that there is still

> an active sackie infection? What is IgM as

> opposed to IgG. I

> should have asked the doctor all these questions

> yesterday, but my

> two year old was present and she is just not helpful

> in these

> meetings!

>

> My doctor has prescribed an anti-viral, which I am

> having compounded

> as we speak.

>

> Any ideas, explanations, stories of similar

> experiences, are greatly

> appreciated.

>

>

>

>

>

>

>

>

>

> Responsibility for the content of this message lies

> strictly with

> the original author(s), and is not necessarily

> endorsed by or the

> opinion of the Research Institute and/or the

> Parent Coalition.

>

>

[Guest guest]

I don't know what can be done - Dr Goldberg indicated that there was no

presecribed treatment that would help, however I note that pwhelan6 who

first wrote about this Wednesday has an anti-viral prescribed - I'd be

curious to know what that is.

Thanks

sackie Virus??? (long, sorry)

>

> Hello -I am new here, although I have been lurking

> for a while. My

> four year old son began showing symptoms of autism

> at 10 months of

> age, immediatley after recovering from sackie

> Virus. I belive it

> was a " wild strain " of some kind. I caught it, my

> mother caught it,

> another baby he was playing with caught it - she had

> it for a full

> two weeks. It was just brutal! He had a high fever

> and screamed way

> more than he should have, if it were a normal

> version of the virus.

> Our pediatrician basically said, " hang in there,

> give him tylenol or

> motrin for the fever, Mylanta for the sores. " That

> was it. The ped

> never believed that the sackie Virus had anything

> to do with my

> son's autism. And neither did three subsequent

> Developmental

> Pediatricians, two of whom were DAN docs.

>

> FINALLY, I have found a Developmental Pediatrician

> who tested for

> sackie. Anyway, the doctor ran the McCandless

> Autism Panel, and

> added on a test for the sackie Virus. Yesterday,

> he presented me

> with the report and sure enough, there it is. Here's

> what it says:

>

> sackie A & B IgM Test

> result 42 (Ref Range 0-36)

>

> Anyone know what this might mean? Does that mean

> that there is still

> an active sackie infection? What is IgM as

> opposed to IgG. I

> should have asked the doctor all these questions

> yesterday, but my

> two year old was present and she is just not helpful

> in these

> meetings!

>

> My doctor has prescribed an anti-viral, which I am

> having compounded

> as we speak.

>

> Any ideas, explanations, stories of similar

> experiences, are greatly

> appreciated.

>

>

>

>

>

>

>

>

>

> Responsibility for the content of this message lies

> strictly with

> the original author(s), and is not necessarily

> endorsed by or the

> opinion of the Research Institute and/or the

> Parent Coalition.

>

>

[Guest guest]

I don't think we had that test to see if my kids got

it. I bet kutapressin helped it. Altho, my son

didn't improve much on it. Dr. G and I are still

trying to find out what his " missing piece " is.

--- <rmwilson@...> wrote:

> I don't know what can be done - Dr Goldberg

> indicated that there was no

> presecribed treatment that would help, however I

> note that pwhelan6 who

> first wrote about this Wednesday has an anti-viral

> prescribed - I'd be

> curious to know what that is.

> Thanks

>

>

> sackie Virus??? (long, sorry)

> >

> > Hello -I am new here, although I have been lurking

> > for a while. My

> > four year old son began showing symptoms of autism

> > at 10 months of

> > age, immediatley after recovering from sackie

> > Virus. I belive it

> > was a " wild strain " of some kind. I caught it, my

> > mother caught it,

> > another baby he was playing with caught it - she

> had

> > it for a full

> > two weeks. It was just brutal! He had a high fever

> > and screamed way

> > more than he should have, if it were a normal

> > version of the virus.

> > Our pediatrician basically said, " hang in there,

> > give him tylenol or

> > motrin for the fever, Mylanta for the sores. " That

> > was it. The ped

> > never believed that the sackie Virus had

> anything

> > to do with my

> > son's autism. And neither did three subsequent

> > Developmental

> > Pediatricians, two of whom were DAN docs.

> >

> > FINALLY, I have found a Developmental Pediatrician

> > who tested for

> > sackie. Anyway, the doctor ran the McCandless

> > Autism Panel, and

> > added on a test for the sackie Virus.

> Yesterday,

> > he presented me

> > with the report and sure enough, there it is.

> Here's

> > what it says:

> >

> > sackie A & B IgM Test

> > result 42 (Ref Range 0-36)

> >

> > Anyone know what this might mean? Does that mean

> > that there is still

> > an active sackie infection? What is IgM as

> > opposed to IgG. I

> > should have asked the doctor all these questions

> > yesterday, but my

> > two year old was present and she is just not

> helpful

> > in these

> > meetings!

> >

> > My doctor has prescribed an anti-viral, which I am

> > having compounded

> > as we speak.

> >

> > Any ideas, explanations, stories of similar

> > experiences, are greatly

> > appreciated.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Responsibility for the content of this message

> lies

> > strictly with

> > the original author(s), and is not necessarily

> > endorsed by or the

> > opinion of the Research Institute and/or the

> > Parent Coalition.

> >

> >

[Guest guest]

Hi Barb -

sackie isn't in the herpes group, so the

anti-virals like Valtrex and Famvir don't target it.

However, don't know if gammaglobulins or being on the

other meds would help. I wonder if taking the load

off the immune system by the other meds helps it to

fight off any other chronic infections.

--- Barb Katsaros <barbkatsaros@...> wrote:

> , do you know what is done if there is

> coxsackie

> virus present? Do the antivirals help get rid of

> it?

> Barb

>

__________________________________________________

[Guest guest]

Thanks .. ...which is why I found it odd that a doctor prescribed

acyclovir (Zovirax) to the listmember's child who wrote the other day. Dr G

said to me when we ran the tests several years ago that there was not a

recognized treatment.

Perhaps your thought about ImGG etc might be true.

RE: sackie Virus??? (long, sorry)

Hi Barb -

sackie isn't in the herpes group, so the

anti-virals like Valtrex and Famvir don't target it.

However, don't know if gammaglobulins or being on the

other meds would help. I wonder if taking the load

off the immune system by the other meds helps it to

fight off any other chronic infections.

--- Barb Katsaros <barbkatsaros@...> wrote:

> , do you know what is done if there is

> coxsackie

> virus present? Do the antivirals help get rid of

> it?

> Barb

>

__________________________________________________