new to

[Guest guest]

God bless you also. I hope that you can find some

helpful suggestions on this list. Barb

--- sharon percival <shardon_19992000@...>

wrote:

> Thanks so much for your email it so easy to get

> discouraged. I am trying to find things I need on

> the

> internet today like a dehydrator, frinder blender,

> organic foods and so on. It is hard due to her

> being

> on Tenncare and no other insurance and little funds

> to

> do anything. I am trying to incoorporate the diet

> but

> that is hard too due to her age and eating habits

> but

> God will help me as long as I help myself. God

> Bless

> You!!

> Sharon Percival

>

> --- Barb Katsaros <barbkatsaros@...> wrote:

>

> > You could start by following the nids diet as

> > outlined

> > on the website. Then you could evaluate how she

> > responds to it. My 14 yo was evaluated by our

> > public

> > schools as having a mild mental impairment. We had

> > an

> > educational psychologist that we paid

> independently

> > evaluate him as high functioning autistic. She

> felt

> > he would never get any further than being able to

> > function at the 6th grade level. Yet, when I

> > brought

> > him to Dr. Silton and Dr. Fosnot in California,

> they

> > assure me that he is quite bright. Their opinion

> is

> > that he was ill at a time in his life when

> critical

> > connections for learning were not made. We now

> have

> > to go in and " reprogram " him. His auditory and

> > visual

> > systems are very disconnected. Anyway, I

> > personally,

> > would never give up hope on helping your child.

> > Don't

> > let the so called " experts " take away your hopes.

> > There are possibilities out there that could

> > potentially help your daughter, even at her older

> > age.

> > I do not mean to falsely raise hope, but from

> your

> > email I felt that you were looking for ways to

> help

> > her, so I would suggest you pursue and investigate

> > everything you come across. Being on this email

> > listing can help a lot in terms of gaining

> > information. There are very informative and

> helpful

> > people that we have here as listmates. Barb

> >

> > --- Sharon Kindred Percival

> > <shardon_19992000@...> wrote:

> >

> > > I just came across this term and am very

> curious.

> > I

> > > have a 15 year old daughter with a

> > > diagnosed learning disability. She was

> diagnosed

> > by

> > > the state with mental retardation.

> > > She didn't talk in a timely manner so we had her

> > > checked and were told she had no visible

> > > reason for her slow growth in speech and

> learning

> > so

> > > we were told to get her speach

> > > therapy and it has been a battle ever since.

> She

> > is

> > > in special classes in school and has

> > > succh a hard time with speech and communication.

>

> > > She has always had chronic health

> > > problems including Migranes, weight problems,

> > slight

> > > hypothyroidism, now she has what I

> > > believe are hormone problems with a cyst on her

> > > ovary and slightly enlarged pelvic lymph

> > > nodes. No one has ever even mentioned , I

> had

> > > never heard of it till today, 16 years

> > > into this battle. Where should I start to help

> > her?

> > > If this is what she has do I start with

> > > diet? Is there an expert out there that thinks

> > this

> > > could be our problem? It is so hard to

> > > comunicate with her, she calls herself stupid

> > which

> > > I immediately tell her is not true. I do

> > > not want her on any other prescriptions she has

> > > taken so much medicine and I don't

> > > believe it is good for her. I would like to

> help

> > > her naturally. Thanks in advance for any

> > > help!!!

> > >

> > >

> > >

> > >

> > >

> >

> >

> > Barb Katsaros

> > barbkatsaros@...

> >

> >

> >

> >

> >

>

______________________________________________________

> >

> > for Good

> > Donate to the Hurricane Katrina relief effort.

> > http://store./redcross-donate3/

> >

> >

>

>

> This message was sent to you by;Sharon

> Percivalshardon_19992000@...

>

>

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

>

>

Barb Katsaros

barbkatsaros@...

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

I was just given nids website this morning & am very excited about

what I've read. My son was diagnosed with regressive autism at 2.

He will be 3 in May. We've done GF/CF diet and enzymes and he has

made improvements. He's taking speech & OT therapy and we've not seen

a huge amount of progress with those therapies yet.

Please tell me what steps need to be taken to do this program. How

do I find a doctor to go through this with? I need to know how the

plan works exactly, if insurance recognizes it as something they will

make payment on, how to get started!

Thanks-

[Guest guest]

Hi ,

Welcome to the group. For more information about read articles and

Do's and Don'ts of diet (a little more permissive than GF/CF) at the

neuroimmunedr.com website. With , you treat the immune system and then

development comes more naturally. Your therapies will be much more

successful once the body is being treated. You will probably find that

insurance is more willing to pay with the diagnosis. To start, call

Dr. Goldberg's office and they will send you a packet to fill out. You can

also start getting the bloodwork done. My son was 3 when we started and I

had to take him in twice for blood. They couldn't take all the blood that

they needed from my little guy all at once. You'll find a list of the tests

you need at the neuroimmunedr.com site also.

FYI: my son was 3 when we started and spoke mostly where he'd fill in the

blank for my prompts. " I want _____. " He was extremely frustrated, far

from potty trained, and just way behind. He started speech therapy at the

same time we started . The therapist said that she had never seen such

quick progress (almost 3 years progress in 1 year!) He is now almost six,

solidly potty trained for 2 1/2 years now, speech is awkward but he's coming

up with his own questions and really learning to express himself (though his

jokes are just plain awful!!!). He is in a regular Kindergarten class with

an aid (not a personal shadow). He's doing beautifully. One parent who

volunteers in his class a lot was suprised to learn his history. She

thought he was just a regular, sweet kid. The other kids can tell there's

something a little off though, but we'll get there. He'll be

indistinguishable. I give my son the credit; he has worked really hard.

But Dr. Goldberg has made it possible. Welcome to . There really is

hope here.

I wish you all the best

April

[Guest guest]

Hi ,

Welcome to . Call Dr. Goldberg's office directly (818) 343-1010 and ask

Laurie what steps to take.

Good luck,

Argie

new to

I was just given nids website this morning & am very excited about

what I've read. My son was diagnosed with regressive autism at 2.

He will be 3 in May. We've done GF/CF diet and enzymes and he has

made improvements. He's taking speech & OT therapy and we've not seen

a huge amount of progress with those therapies yet.

Please tell me what steps need to be taken to do this program. How

do I find a doctor to go through this with? I need to know how the

plan works exactly, if insurance recognizes it as something they will

make payment on, how to get started!

Thanks-

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

would you mind telling me your " testimonial " about

/Dr. Goldbergs approach? Thank you!

--- Argie Olivo <golivo@...> wrote:

> Hi ,

>

> Welcome to . Call Dr. Goldberg's office

> directly (818) 343-1010 and ask

> Laurie what steps to take.

>

> Good luck,

> Argie

> new to

>

>

> I was just given nids website this morning & am

> very excited about

> what I've read. My son was diagnosed with

> regressive autism at 2.

> He will be 3 in May. We've done GF/CF diet and

> enzymes and he has

> made improvements. He's taking speech & OT therapy

> and we've not seen

> a huge amount of progress with those therapies

> yet.

>

> Please tell me what steps need to be taken to do

> this program. How

> do I find a doctor to go through this with? I

> need to know how the

> plan works exactly, if insurance recognizes it as

> something they will

> make payment on, how to get started!

>

> Thanks-

>

>

>

>

>

>

>

> Responsibility for the content of this message

> lies strictly with

> the original author(s), and is not necessarily

> endorsed by or the

> opinion of the Research Institute and/or the

> Parent Coalition.

>

>

>

>

>

[Guest guest]

Hi ,

I tried to send you a private email to thehacks@... but it will not go

thru.

Argie

new to

>

>

> I was just given nids website this morning & am

> very excited about

> what I've read. My son was diagnosed with

> regressive autism at 2.

> He will be 3 in May. We've done GF/CF diet and

> enzymes and he has

> made improvements. He's taking speech & OT therapy

> and we've not seen

> a huge amount of progress with those therapies

> yet.

>

> Please tell me what steps need to be taken to do

> this program. How

> do I find a doctor to go through this with? I

> need to know how the

> plan works exactly, if insurance recognizes it as

> something they will

> make payment on, how to get started!

>

> Thanks-

>

>

>

>

>

>

>

> Responsibility for the content of this message

> lies strictly with

> the original author(s), and is not necessarily

> endorsed by or the

> opinion of the Research Institute and/or the

> Parent Coalition.

>

>

>

>

>

[Guest guest]

Argie- Please try again.... it should work. Thanks!

--- Argie Olivo <golivo@...> wrote:

> Hi ,

>

> I tried to send you a private email to

> thehacks@... but it will not go

> thru.

> Argie

> new to

> >

> >

> > I was just given nids website this morning &

> am

> > very excited about

> > what I've read. My son was diagnosed with

> > regressive autism at 2.

> > He will be 3 in May. We've done GF/CF diet

> and

> > enzymes and he has

> > made improvements. He's taking speech & OT

> therapy

> > and we've not seen

> > a huge amount of progress with those therapies

> > yet.

> >

> > Please tell me what steps need to be taken to

> do

> > this program. How

> > do I find a doctor to go through this with? I

> > need to know how the

> > plan works exactly, if insurance recognizes it

> as

> > something they will

> > make payment on, how to get started!

> >

> > Thanks-

> >

> >

> >

> >

> >

> >

> >

> > Responsibility for the content of this message

> > lies strictly with

> > the original author(s), and is not necessarily

> > endorsed by or the

> > opinion of the Research Institute and/or

> the

> > Parent Coalition.

> >

> >

> >

> >

> >

[Guest guest]

Hi -- first of all, I want to say welcome! This list will be very

helpful to you in navigating ASD and the protocol.

A couple of things to start with...

15 months is really young and it's great that you have already

contacted Regional Center. She'll probably start getting services

by the time she's 18 months which is fantastic. Most kids don't

start that early because parents don't find out about Regional

Center until later. I never even HEARD of Regional Center until my

son was 2-1/2! So you're already ahead of the game here.

Regional Center wont' give a formal diagnosis of ASD until the age

of 3. HOWEVER, based on what you said in your post, your daughter

will more than likely be classified as being " AT RISK " for a

developmental disability, and she will be eligible for the entire

range of EI services.

If you suspect a yeast problem, do whatever you can to reduce sugars

in the diet, including natural sugars. I don't know what the BED

diet is, but you should absolutely eliminate any and all bovine

dairy products -- milk, cheese, butter, etc., and also eliminate

*whole* grains -- brown rice, baked goods made with whole grains,

etc., which are highly allergenic. Dr. Goldberg has a guide, " The

Do's and Don't's of Diet " , on his website: www.neuroimmunedr.com.

He's gotten a bit stricter over the years, and your child's specific

food allergy profile will further guide what your child should not

eat once you start the protocol, but at least that will serve as a

good place to start.

HTH,

Donna

>

> hello everyone.

>

> i am the mother of an young toddler (almost 15 months old) who is

> currently waiting for the local regional center to call me back so

i

> can get her evaluated. i am pretty certain they will diagnose her

> with ASD as she has many of the characteristics, (not responding

to

> name, no gesturing - pointing, waving, clapping, stimming

> frequently, no words and no pulling to a stand or walking yet).

>

> i have called Dr. G's office and just received the new patient

> packet today. i'm going to fill it out and will either drive it

> there and drop it off or will fedex it. i know there is a

waitlist

> and i just want to get in there as soon as i possibly can.

>

> so my question to all of you is...where do i go from here? every

> day that passes by feels like a day lost. i have started her on a

> more strict diet (BED - body ecology diet) because i am guessing

she

> might have a yeast problem. the reason i think that is because

when

> i was breastfeeding her, i had a pretty bad problem with yeast

> infections. she didn't get sick very often (no ear infections and

> only 2 colds).

>

> any help/advice is greatly appreciated. i thank you all in

> advance!

>

[Guest guest]

Potato based milk sounds good. I'm going to check it out. Thank

you for that.

Right now, we are hitting a real rough spot with my daughter. She

and I have both been sick with the stomach flu that we got from my

mother in law (GRRRRR!!!). I have finally recovered, but my

daughter hasn't and has fallen deeper into the hole. She is also

crying and screaming alllllll day long. Is this normal?

We took her to the ER last night because we were worried. She was

eating and drinking and then stopped. I took her to the pediatric

GI today and he put her back on prevacid and is going to do some

stool samples. Honestly the last couple of days have been pure

hell. Tonight, I was sitting on the floor in my kitchen bawling,

holding my daughter who was also crying. I was crying from feeling

so helpless and I believe she was crying because she was in pain,

frustrated or something...I have no idea.

I'm so sad.

> > > >

> > > > hello everyone.

> > > >

> > > > i am the mother of an young toddler (almost 15 months old)

who

> > is

> > > > currently waiting for the local regional center to call me

> back

> > so

> > > i

> > > > can get her evaluated. i am pretty certain they will

diagnose

> > her

> > > > with ASD as she has many of the characteristics, (not

> responding

> > > to

> > > > name, no gesturing - pointing, waving, clapping, stimming

> > > > frequently, no words and no pulling to a stand or walking

> yet).

> > > >

> > > > i have called Dr. G's office and just received the new

patient

> > > > packet today. i'm going to fill it out and will either

drive

> it

> > > > there and drop it off or will fedex it. i know there is a

> > > waitlist

> > > > and i just want to get in there as soon as i possibly can.

> > > >

> > > > so my question to all of you is...where do i go from here?

> > every

> > > > day that passes by feels like a day lost. i have started

her

> on

> > a

> > > > more strict diet (BED - body ecology diet) because i am

> guessing

> > > she

> > > > might have a yeast problem. the reason i think that is

> because

> > > when

> > > > i was breastfeeding her, i had a pretty bad problem with

yeast

> > > > infections. she didn't get sick very often (no ear

infections

> > and

> > > > only 2 colds).

> > > >

> > > > any help/advice is greatly appreciated. i thank you all in

> > > > advance!

> > > >

> > >

> >

>

[Guest guest]

I want to add to this great advice that the RC does not have to do the

diagnosing. Your dd can be dx'd by a neurologist or certain psychologists,

for example. Once you have the dx, then you can take that to the RC and

services can/should begin. My son was dx'd by a neurologist (in San Diego)

who wrote an awesome report detailing what services he should get. I took it

to the RC and got them, no problems or fights.

HTH. Good luck.

Kristy

Re: new to

Hi -- first of all, I want to say welcome! This list will be very

helpful to you in navigating ASD and the protocol.

A couple of things to start with...

15 months is really young and it's great that you have already

contacted Regional Center. She'll probably start getting services

by the time she's 18 months which is fantastic. Most kids don't

start that early because parents don't find out about Regional

Center until later. I never even HEARD of Regional Center until my

son was 2-1/2! So you're already ahead of the game here.

Regional Center wont' give a formal diagnosis of ASD until the age

of 3. HOWEVER, based on what you said in your post, your daughter

will more than likely be classified as being " AT RISK " for a

developmental disability, and she will be eligible for the entire

range of EI services.

If you suspect a yeast problem, do whatever you can to reduce sugars

in the diet, including natural sugars. I don't know what the BED

diet is, but you should absolutely eliminate any and all bovine

dairy products -- milk, cheese, butter, etc., and also eliminate

*whole* grains -- brown rice, baked goods made with whole grains,

etc., which are highly allergenic. Dr. Goldberg has a guide, " The

Do's and Don't's of Diet " , on his website: www.neuroimmunedr.com.

He's gotten a bit stricter over the years, and your child's specific

food allergy profile will further guide what your child should not

eat once you start the protocol, but at least that will serve as a

good place to start.

HTH,

Donna

>

> hello everyone.

>

> i am the mother of an young toddler (almost 15 months old) who is

> currently waiting for the local regional center to call me back so

i

> can get her evaluated. i am pretty certain they will diagnose her

> with ASD as she has many of the characteristics, (not responding

to

> name, no gesturing - pointing, waving, clapping, stimming

> frequently, no words and no pulling to a stand or walking yet).

>

> i have called Dr. G's office and just received the new patient

> packet today. i'm going to fill it out and will either drive it

> there and drop it off or will fedex it. i know there is a

waitlist

> and i just want to get in there as soon as i possibly can.

>

> so my question to all of you is...where do i go from here? every

> day that passes by feels like a day lost. i have started her on a

> more strict diet (BED - body ecology diet) because i am guessing

she

> might have a yeast problem. the reason i think that is because

when

> i was breastfeeding her, i had a pretty bad problem with yeast

> infections. she didn't get sick very often (no ear infections and

> only 2 colds).

>

> any help/advice is greatly appreciated. i thank you all in

> advance!

>

[Guest guest]

Stomach issues are the worst! I have the most sensitive system, and easily

get stomach malaises. What has worked WONDERS for me is homeopathy for

stomach issues. Last fall I was ILL like your daughter and not getting

better, and I found a homeopath, who took my complete medical history and

recommended a remedy. By that night I was 50% better and completely well in

36 hours.

Kristy

Re: new to

Potato based milk sounds good. I'm going to check it out. Thank

you for that.

Right now, we are hitting a real rough spot with my daughter. She

and I have both been sick with the stomach flu that we got from my

mother in law (GRRRRR!!!). I have finally recovered, but my

daughter hasn't and has fallen deeper into the hole. She is also

crying and screaming alllllll day long. Is this normal?

We took her to the ER last night because we were worried. She was

eating and drinking and then stopped. I took her to the pediatric

GI today and he put her back on prevacid and is going to do some

stool samples. Honestly the last couple of days have been pure

hell. Tonight, I was sitting on the floor in my kitchen bawling,

holding my daughter who was also crying. I was crying from feeling

so helpless and I believe she was crying because she was in pain,

frustrated or something...I have no idea.

I'm so sad.

> > > >

> > > > hello everyone.

> > > >

> > > > i am the mother of an young toddler (almost 15 months old)

who

> > is

> > > > currently waiting for the local regional center to call me

> back

> > so

> > > i

> > > > can get her evaluated. i am pretty certain they will

diagnose

> > her

> > > > with ASD as she has many of the characteristics, (not

> responding

> > > to

> > > > name, no gesturing - pointing, waving, clapping, stimming

> > > > frequently, no words and no pulling to a stand or walking

> yet).

> > > >

> > > > i have called Dr. G's office and just received the new

patient

> > > > packet today. i'm going to fill it out and will either

drive

> it

> > > > there and drop it off or will fedex it. i know there is a

> > > waitlist

> > > > and i just want to get in there as soon as i possibly can.

> > > >

> > > > so my question to all of you is...where do i go from here?

> > every

> > > > day that passes by feels like a day lost. i have started

her

> on

> > a

> > > > more strict diet (BED - body ecology diet) because i am

> guessing

> > > she

> > > > might have a yeast problem. the reason i think that is

> because

> > > when

> > > > i was breastfeeding her, i had a pretty bad problem with

yeast

> > > > infections. she didn't get sick very often (no ear

infections

> > and

> > > > only 2 colds).

> > > >

> > > > any help/advice is greatly appreciated. i thank you all in

> > > > advance!

> > > >

> > >

> >

>