Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 just fyi - there is a new group for discussion of neuroimmune issues called 'neuroendocrineimmune'. It is an informal list for people interested in the discussion of all " aspects of NeuroEndocrineImmune issues and CNDS (Chronic NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or not... " (from the homepage.) My understanding is that the focus will be on current research. fwiw, timary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 I nosed around because I didn't understand what all of the posting on nids were with respect to " article 2649 " and I found that group you mentioned below. Joined it, and then after checking it out unsubscribed. It has a Dr Bruce on the list, but he is a posting member. He appears to be a PHd not a MD. and they have in their file data on mercury alternative therapies. One even had some garbage about a Monkey Brain study.....no, no, no!!!! Do not fall for this garbage, and this stuff is really garbage. You know, a very good friend of mine attended a National Autism Conference and they had Dr Bushar present. In it, he shows a video of a 11 yr old, who purportedly had autism but after using these " amazing ointments " to chelate the kid he magically talks. My friend, and I'm sure all of the people in the conference were completely suckered in! She was convinced her son would be cured of autism after $20,000 in ointment therapy. This is such bullcrap! IV chelation or ointment chelation will not cure these children. Megavitamins will not cure them, Garlic Oil will not cure them, this LD-Ointment will not cure them, its all bull and don't get suckered in. Use regular medicine, don't believe anyone if they say they are going to cure your kid. using sound therapy, swimming with dolphins (although that is fun!), hyperbaric oxygen therapy, Unless ofcourse its Jesus Christ himself laying hands and healing don't you believe any of this crap. There's my two cents, I am now getting off of my soap box. Timary <timaryp@...> wrote: just fyi - there is a new group for discussion of neuroimmune issues called 'neuroendocrineimmune'. It is an informal list for people interested in the discussion of all " aspects of NeuroEndocrineImmune issues and CNDS (Chronic NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or not... " (from the homepage.) My understanding is that the focus will be on current research. fwiw, timary Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute and/or the Parent Coalition. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 In response to this post, which has a lot of misleading and incorrect assertions, I suggest that people who are interested check out the new list themselves and make up their own minds. As did, you can always unsusbcribe if it's not for you. timary > just fyi - there is a new group for discussion of neuroimmune > issues called 'neuroendocrineimmune'. It is an informal list for > people interested in the discussion of all " aspects of > NeuroEndocrineImmune issues and CNDS (Chronic > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or > not... " (from the homepage.) My understanding is that the focus will > be on current research. > > fwiw, > timary > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Out of interest I signed up for this group. I also submitted a question to the list. It was never published and then I was removed from the group, either via some elctronic foul up, or by the moderator. Go figure. > > just fyi - there is a new group for discussion of neuroimmune > issues called 'neuroendocrineimmune'. It is an informal list for > people interested in the discussion of all " aspects of > NeuroEndocrineImmune issues and CNDS (Chronic > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or > not... " (from the homepage.) My understanding is that the focus will > be on current research. > > fwiw, > timary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 , Does medical field study animals, such as mouse, rat, and may be monkeys for many, many years, and human civilization has benefit immensely from it? Is Kutapressin therapy a basically pig liver therapy? Was a lot of very effective medicine are extract from plants? I am not sure way all of sudden animal studies, alternative medicines in general have become a big no no in your post. Jin > just fyi - there is a new group for discussion of neuroimmune > issues called 'neuroendocrineimmune'. It is an informal list for > people interested in the discussion of all " aspects of > NeuroEndocrineImmune issues and CNDS (Chronic > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or > not... " (from the homepage.) My understanding is that the focus will > be on current research. > > fwiw, > timary > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 I speak from experience. I did those things like B12 shots, secretin, amino acids, I brought him to a DAN doctor, and then I came across Dr G on Cspan presenting the immune component of autism. I spoke with him online, which was back in 1999, and he urged me to stop all of the crazy alternative meds, and instead use real medicine, with bloodwork as the baseline, and plenty of followup. I got my son into Dr G in 1999, and I have seen alot more of this crazy alternative meds come out of the closet. The chelating ointment is really in my opinion the worst. My dear friend is ready to sell her house to go out and buy into the $20,000 plus she will have to spend on DMSO/chelations for her son because she saw Dr Bushar present the video of the talking boy. She believes 100% her son will be cured, it breaks my heart. You know if any of that stuff really worked, don't you think it would be all over the news? It doesn't and parents with broken hearts are being played by opportunitists that will take them for a ride. Do real medicine with a real MD, stay away from people that will give you megadoses of medicines, really, your child has a small liver and small kidneys. Don't trust anyone with your child's life unless they are a valid physician. This is a medical condition, our children are injured and need good medicine. jinyang061629 <yanglou@...> wrote: , Does medical field study animals, such as mouse, rat, and may be monkeys for many, many years, and human civilization has benefit immensely from it? Is Kutapressin therapy a basically pig liver therapy? Was a lot of very effective medicine are extract from plants? I am not sure way all of sudden animal studies, alternative medicines in general have become a big no no in your post. Jin > just fyi - there is a new group for discussion of neuroimmune > issues called 'neuroendocrineimmune'. It is an informal list for > people interested in the discussion of all " aspects of > NeuroEndocrineImmune issues and CNDS (Chronic > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or > not... " (from the homepage.) My understanding is that the focus will > be on current research. > > fwiw, > timary > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 I went to a Dan doctor for about two year before I finally went to Dr. Goldberg, because there is no main stream MD will take on his approach, and many parents I spoke to did not think Dr. Goldberg's protocol is a viable alternative. Dr. Globerg's protocol like it or not, is also considered to be an alternative method to main stream medicine which basically does nothing to help. In you first post, because there were some terms in Dr. Bruce's profile you do not like, you were basically tell people Dr. Bruce must be some kind of Con doctor. I think you are doing a dis-service to group members who can not fly to see Dr. Goldberg, but may be able to get help from Dr. Bruce. I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in Texas, and was working at NY Clinic. His son was a Dr Goldberg's patient. There are parents in this group have been seeing him, or planning to see him. Especially those live at north east and south east corner of the country. I have not heard any complaint, but from time to time, I have read that he helped some family greatly. My suggestion for you is call him up, like you did with Dr. Goldberg, do some more in depth research, before you form your opinions. You can find his number from NY clinic: http://www.nidsnnyclinic.org/id1.html Just give you some background. My son is doing quite well under Dr. Goldberg's care, he is a six grader, has more then one best friends, on 98/99% nationally on math and reading, and had just took SAT for gifted children, and just got Brown belts for TKD. By the way, I went to a Dan Doctor for two years before we start see Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, but I am not going to stand here and telling people that Dan doctors are con doctors. There are kids helped greatly by Dan doctors. Jin > > just fyi - there is a new group for discussion of > neuroimmune > > issues called 'neuroendocrineimmune'. It is an informal list for > > people interested in the discussion of all " aspects of > > NeuroEndocrineImmune issues and CNDS (Chronic > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD > or > > not... " (from the homepage.) My understanding is that the focus > will > > be on current research. > > > > fwiw, > > timary > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent > Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 I went to a Dan doctor for about two year before I finally went to Dr. Goldberg, because there is no main stream MD will take on his approach, and many parents I spoke to did not think Dr. Goldberg's protocol is a viable alternative. Dr. Globerg's protocol like it or not, is also considered to be an alternative method to main stream medicine which basically does nothing to help. In you first post, because there were some terms in Dr. Bruce's profile you do not like, you were basically tell people Dr. Bruce must be some kind of Con doctor. I think you are doing a dis-service to group members who can not fly to see Dr. Goldberg, but may be able to get help from Dr. Bruce. I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in Texas, and was working at NY Clinic. His son was a Dr Goldberg's patient. There are parents in this group have been seeing him, or planning to see him. Especially those live at north east and south east corner of the country. I have not heard any complaint, but from time to time, I have read that he helped some family greatly. My suggestion for you is call him up, like you did with Dr. Goldberg, do some more in depth research, before you form your opinions. You can find his number from NY clinic: http://www.nidsnnyclinic.org/id1.html Just give you some background. My son is doing quite well under Dr. Goldberg's care, he is a six grader, has more then one best friends, on 98/99% nationally on math and reading, and had just took SAT for gifted children, and just got Brown belts for TKD. By the way, I went to a Dan Doctor for two years before we start see Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, but I am not going to stand here and telling people that Dan doctors are con doctors. There are kids helped greatly by Dan doctors. Jin > > just fyi - there is a new group for discussion of > neuroimmune > > issues called 'neuroendocrineimmune'. It is an informal list for > > people interested in the discussion of all " aspects of > > NeuroEndocrineImmune issues and CNDS (Chronic > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD > or > > not... " (from the homepage.) My understanding is that the focus > will > > be on current research. > > > > fwiw, > > timary > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent > Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Jin I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. I wish only the best to you and your child. Good Luck and God Bless jinyang061629 <yanglou@...> wrote: I went to a Dan doctor for about two year before I finally went to Dr. Goldberg, because there is no main stream MD will take on his approach, and many parents I spoke to did not think Dr. Goldberg's protocol is a viable alternative. Dr. Globerg's protocol like it or not, is also considered to be an alternative method to main stream medicine which basically does nothing to help. In you first post, because there were some terms in Dr. Bruce's profile you do not like, you were basically tell people Dr. Bruce must be some kind of Con doctor. I think you are doing a dis-service to group members who can not fly to see Dr. Goldberg, but may be able to get help from Dr. Bruce. I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in Texas, and was working at NY Clinic. His son was a Dr Goldberg's patient. There are parents in this group have been seeing him, or planning to see him. Especially those live at north east and south east corner of the country. I have not heard any complaint, but from time to time, I have read that he helped some family greatly. My suggestion for you is call him up, like you did with Dr. Goldberg, do some more in depth research, before you form your opinions. You can find his number from NY clinic: http://www.nidsnnyclinic.org/id1.html Just give you some background. My son is doing quite well under Dr. Goldberg's care, he is a six grader, has more then one best friends, on 98/99% nationally on math and reading, and had just took SAT for gifted children, and just got Brown belts for TKD. By the way, I went to a Dan Doctor for two years before we start see Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, but I am not going to stand here and telling people that Dan doctors are con doctors. There are kids helped greatly by Dan doctors. Jin > > just fyi - there is a new group for discussion of > neuroimmune > > issues called 'neuroendocrineimmune'. It is an informal list for > > people interested in the discussion of all " aspects of > > NeuroEndocrineImmune issues and CNDS (Chronic > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD > or > > not... " (from the homepage.) My understanding is that the focus > will > > be on current research. > > > > fwiw, > > timary > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent > Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Is there a doctor in New Jersey? nancy ballard <atlantickayaker@...> wrote: Jin I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. I wish only the best to you and your child. Good Luck and God Bless jinyang061629 <yanglou@...> wrote: I went to a Dan doctor for about two year before I finally went to Dr. Goldberg, because there is no main stream MD will take on his approach, and many parents I spoke to did not think Dr. Goldberg's protocol is a viable alternative. Dr. Globerg's protocol like it or not, is also considered to be an alternative method to main stream medicine which basically does nothing to help. In you first post, because there were some terms in Dr. Bruce's profile you do not like, you were basically tell people Dr. Bruce must be some kind of Con doctor. I think you are doing a dis-service to group members who can not fly to see Dr. Goldberg, but may be able to get help from Dr. Bruce. I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in Texas, and was working at NY Clinic. His son was a Dr Goldberg's patient. There are parents in this group have been seeing him, or planning to see him. Especially those live at north east and south east corner of the country. I have not heard any complaint, but from time to time, I have read that he helped some family greatly. My suggestion for you is call him up, like you did with Dr. Goldberg, do some more in depth research, before you form your opinions. You can find his number from NY clinic: http://www.nidsnnyclinic.org/id1.html Just give you some background. My son is doing quite well under Dr. Goldberg's care, he is a six grader, has more then one best friends, on 98/99% nationally on math and reading, and had just took SAT for gifted children, and just got Brown belts for TKD. By the way, I went to a Dan Doctor for two years before we start see Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, but I am not going to stand here and telling people that Dan doctors are con doctors. There are kids helped greatly by Dan doctors. Jin > > just fyi - there is a new group for discussion of > neuroimmune > > issues called 'neuroendocrineimmune'. It is an informal list for > > people interested in the discussion of all " aspects of > > NeuroEndocrineImmune issues and CNDS (Chronic > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD > or > > not... " (from the homepage.) My understanding is that the focus > will > > be on current research. > > > > fwiw, > > timary > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent > Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 , What Jin was trying to tell you, and you didn't seem to get is that Dr. is not a PHD. He is an MD. He doesn't practice " alternative " medicines, other than to the extent that is " alternative " medicine. Those moderators who have been so adamently oppposed to chelation all these years are the same people you're now accusing of supporting it. I'm not sure how you became so misinformed. And lastly, Jin is not using alternative treatments with her son. She sees Dr. Goldberg & has for years. Her son is doing well under his care. She was just trying to explain to you that your original post was way off base. > > I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. > > If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. > > In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. > > I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. > > I wish only the best to you and your child. Good Luck and God Bless > > jinyang061629 <yanglou@...> wrote: > I went to a Dan doctor for about two year before I finally went to > Dr. Goldberg, because there is no main stream MD will take on his > approach, and many parents I spoke to did not think Dr. Goldberg's > protocol is a viable alternative. Dr. Globerg's protocol like it or > not, is also considered to be an alternative method to main stream > medicine which basically does nothing to help. > > In you first post, because there were some terms in Dr. Bruce's > profile you do not like, you were basically tell people Dr. Bruce > must be some kind of Con doctor. > > I think you are doing a dis-service to group members who can not fly > to see Dr. Goldberg, but may be able to get help from Dr. Bruce. > > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in > Texas, and was working at NY Clinic. His son was a Dr Goldberg's > patient. There are parents in this group have been seeing him, or > planning to see him. Especially those live at north east and south > east corner of the country. I have not heard any complaint, but from > time to time, I have read that he helped some family greatly. > > My suggestion for you is call him up, like you did with Dr. Goldberg, > do some more in depth research, before you form your opinions. You > can find his number from NY clinic: > http://www.nidsnnyclinic.org/id1.html > > Just give you some background. My son is doing quite well under Dr. > Goldberg's care, he is a six grader, has more then one best friends, > on 98/99% nationally on math and reading, and had just took SAT for > gifted children, and just got Brown belts for TKD. > > By the way, I went to a Dan Doctor for two years before we start see > Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, > but I am not going to stand here and telling people that Dan doctors > are con doctors. There are kids helped greatly by Dan doctors. > > Jin > > > > > > > just fyi - there is a new group for discussion of > > neuroimmune > > > issues called 'neuroendocrineimmune'. It is an informal list > for > > > people interested in the discussion of all " aspects of > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > ASD > > or > > > not... " (from the homepage.) My understanding is that the focus > > will > > > be on current research. > > > > > > fwiw, > > > timary > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute and/or the Parent > > Coalition. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 See post....it was referenced as Dr Bruce, thats his first name. There is a Phd out of Canada....providing alternative medicines and his name is Dr Bruce. My confusion, and again....1000 apologies jj2littletrojans <aandlbryant@...> wrote: , What Jin was trying to tell you, and you didn't seem to get is that Dr. is not a PHD. He is an MD. He doesn't practice " alternative " medicines, other than to the extent that is " alternative " medicine. Those moderators who have been so adamently oppposed to chelation all these years are the same people you're now accusing of supporting it. I'm not sure how you became so misinformed. And lastly, Jin is not using alternative treatments with her son. She sees Dr. Goldberg & has for years. Her son is doing well under his care. She was just trying to explain to you that your original post was way off base. > > I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. > > If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. > > In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. > > I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. > > I wish only the best to you and your child. Good Luck and God Bless > > jinyang061629 <yanglou@...> wrote: > I went to a Dan doctor for about two year before I finally went to > Dr. Goldberg, because there is no main stream MD will take on his > approach, and many parents I spoke to did not think Dr. Goldberg's > protocol is a viable alternative. Dr. Globerg's protocol like it or > not, is also considered to be an alternative method to main stream > medicine which basically does nothing to help. > > In you first post, because there were some terms in Dr. Bruce's > profile you do not like, you were basically tell people Dr. Bruce > must be some kind of Con doctor. > > I think you are doing a dis-service to group members who can not fly > to see Dr. Goldberg, but may be able to get help from Dr. Bruce. > > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in > Texas, and was working at NY Clinic. His son was a Dr Goldberg's > patient. There are parents in this group have been seeing him, or > planning to see him. Especially those live at north east and south > east corner of the country. I have not heard any complaint, but from > time to time, I have read that he helped some family greatly. > > My suggestion for you is call him up, like you did with Dr. Goldberg, > do some more in depth research, before you form your opinions. You > can find his number from NY clinic: > http://www.nidsnnyclinic.org/id1.html > > Just give you some background. My son is doing quite well under Dr. > Goldberg's care, he is a six grader, has more then one best friends, > on 98/99% nationally on math and reading, and had just took SAT for > gifted children, and just got Brown belts for TKD. > > By the way, I went to a Dan Doctor for two years before we start see > Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, > but I am not going to stand here and telling people that Dan doctors > are con doctors. There are kids helped greatly by Dan doctors. > > Jin > > > > > > > just fyi - there is a new group for discussion of > > neuroimmune > > > issues called 'neuroendocrineimmune'. It is an informal list > for > > > people interested in the discussion of all " aspects of > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > ASD > > or > > > not... " (from the homepage.) My understanding is that the focus > > will > > > be on current research. > > > > > > fwiw, > > > timary > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute and/or the Parent > > Coalition. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 , I'd also like to add that many kids are doing very well under other protocols. is definitely a great medical protocol but lets not through the bay out with the bath water - its not the panacea. Yes indeed, one must always be aware of Charlatans and unscrupulous practitioners that can take advantage of our kids, but there are " DAN " doctors as careful as Dr G and who are getting as good as results. Truth is, the studies just haven't been done, including , to know which treatment works best with each individual child. Success stories as well as unsuccessful ones continue to abound. Hopefully we can make sense out of all of what's out there some day. Until then, with each others help, and sharing stories, parents will continue to seek help in anyway they can. R Re: neuroimmune research , What Jin was trying to tell you, and you didn't seem to get is that Dr. is not a PHD. He is an MD. He doesn't practice " alternative " medicines, other than to the extent that is " alternative " medicine. Those moderators who have been so adamently oppposed to chelation all these years are the same people you're now accusing of supporting it. I'm not sure how you became so misinformed. And lastly, Jin is not using alternative treatments with her son. She sees Dr. Goldberg & has for years. Her son is doing well under his care. She was just trying to explain to you that your original post was way off base. > > I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. > > If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. > > In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. > > I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. > > I wish only the best to you and your child. Good Luck and God Bless > > jinyang061629 <yanglou@...> wrote: > I went to a Dan doctor for about two year before I finally went to > Dr. Goldberg, because there is no main stream MD will take on his > approach, and many parents I spoke to did not think Dr. Goldberg's > protocol is a viable alternative. Dr. Globerg's protocol like it or > not, is also considered to be an alternative method to main stream > medicine which basically does nothing to help. > > In you first post, because there were some terms in Dr. Bruce's > profile you do not like, you were basically tell people Dr. Bruce > must be some kind of Con doctor. > > I think you are doing a dis-service to group members who can not fly > to see Dr. Goldberg, but may be able to get help from Dr. Bruce. > > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in > Texas, and was working at NY Clinic. His son was a Dr Goldberg's > patient. There are parents in this group have been seeing him, or > planning to see him. Especially those live at north east and south > east corner of the country. I have not heard any complaint, but from > time to time, I have read that he helped some family greatly. > > My suggestion for you is call him up, like you did with Dr. Goldberg, > do some more in depth research, before you form your opinions. You > can find his number from NY clinic: > http://www.nidsnnyclinic.org/id1.html > > Just give you some background. My son is doing quite well under Dr. > Goldberg's care, he is a six grader, has more then one best friends, > on 98/99% nationally on math and reading, and had just took SAT for > gifted children, and just got Brown belts for TKD. > > By the way, I went to a Dan Doctor for two years before we start see > Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, > but I am not going to stand here and telling people that Dan doctors > are con doctors. There are kids helped greatly by Dan doctors. > > Jin > > > > > > > just fyi - there is a new group for discussion of > > neuroimmune > > > issues called 'neuroendocrineimmune'. It is an informal list > for > > > people interested in the discussion of all " aspects of > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > ASD > > or > > > not... " (from the homepage.) My understanding is that the focus > > will > > > be on current research. > > > > > > fwiw, > > > timary > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute and/or the Parent > > Coalition. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 I understand. I hate to see other parents taken advantage of too. I just wanted to clear things up. - In , nancy ballard <atlantickayaker@...> wrote: > > See post....it was referenced as Dr Bruce, thats his first name. There is a Phd out of Canada....providing alternative medicines and his name is Dr Bruce. My confusion, and again....1000 apologies > > jj2littletrojans <aandlbryant@...> wrote: , > > What Jin was trying to tell you, and you didn't seem to get is that > Dr. is not a PHD. He is an MD. He doesn't > practice " alternative " medicines, other than to the extent that > is " alternative " medicine. Those moderators who have been so > adamently oppposed to chelation all these years are the same people > you're now accusing of supporting it. I'm not sure how you became so > misinformed. > > And lastly, Jin is not using alternative treatments with her son. > She sees Dr. Goldberg & has for years. Her son is doing well under > his care. She was just trying to explain to you that your original > post was way off base. > > > > > > > I am glad your son is doing well under Dr Goldberg's care. Dr G > is definitely against adding in alternative medicine into the > medication routine for a child under his care. > > > > If you are adding in alternative medicines you should make him > aware of this. But I will tell you he will tell you how strongly he > feels that there is no place for alternative meds in the form of > megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. > > > > In fact, you will note some of the flaming posts from the > moderator indicates promoting alternative meds on this board is not > tolerated. > > > > I understand you feel very strongly about supporting Dr Bruce > (Phd) and alternative medicines, and I respect you as a person trying > to help your child, that really is wonderful. > > > > I wish only the best to you and your child. Good Luck and God > Bless > > > > jinyang061629 <yanglou@> wrote: > > I went to a Dan doctor for about two year before I finally went > to > > Dr. Goldberg, because there is no main stream MD will take on his > > approach, and many parents I spoke to did not think Dr. Goldberg's > > protocol is a viable alternative. Dr. Globerg's protocol like it or > > not, is also considered to be an alternative method to main stream > > medicine which basically does nothing to help. > > > > In you first post, because there were some terms in Dr. Bruce's > > profile you do not like, you were basically tell people Dr. Bruce > > must be some kind of Con doctor. > > > > I think you are doing a dis-service to group members who can not > fly > > to see Dr. Goldberg, but may be able to get help from Dr. Bruce. > > > > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based > in > > Texas, and was working at NY Clinic. His son was a Dr > Goldberg's > > patient. There are parents in this group have been seeing him, or > > planning to see him. Especially those live at north east and south > > east corner of the country. I have not heard any complaint, but > from > > time to time, I have read that he helped some family greatly. > > > > My suggestion for you is call him up, like you did with Dr. > Goldberg, > > do some more in depth research, before you form your opinions. You > > can find his number from NY clinic: > > http://www.nidsnnyclinic.org/id1.html > > > > Just give you some background. My son is doing quite well under Dr. > > Goldberg's care, he is a six grader, has more then one best > friends, > > on 98/99% nationally on math and reading, and had just took SAT for > > gifted children, and just got Brown belts for TKD. > > > > By the way, I went to a Dan Doctor for two years before we start > see > > Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, > > but I am not going to stand here and telling people that Dan > doctors > > are con doctors. There are kids helped greatly by Dan doctors. > > > > Jin > > > > > > > > > > > > just fyi - there is a new group for discussion of > > > neuroimmune > > > > issues called 'neuroendocrineimmune'. It is an informal list > > for > > > > people interested in the discussion of all " aspects of > > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > > ASD > > > or > > > > not... " (from the homepage.) My understanding is that the focus > > > will > > > > be on current research. > > > > > > > > fwiw, > > > > timary > > > > > > > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly > with > > > > the original author(s), and is not necessarily endorsed by or > the > > > > opinion of the Research Institute and/or the Parent > > > Coalition. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 I agree, well balanced. When I go to the DAN lists, they talk about how terrible the Rx's are, when I come here there is talk about how bad vitamins/chelation are/is. I don't think any one person has the answer or there would be thousands of recovered kids. IMO, autism is due to viral and heavy metal issues. While one child's issues might be more weighted to viruses and respond more favorably to antiviral treatments, another child's issue might lie more in the heavy metal burden and respond to chelation. If or chelation worked with every child at every instance I could understand the dogmatic way certain people speak of either treatment. Every protocol has the mantra of " Do no harm " , and DAN. But I have known kids harmed with both protocols, both chelation and the antiviral/anti-immunity treatments, and kids helped by neither, and kids helped by either. Takes a healthy dose of self esteem to allow others to express different opinions and be okay with it. I see little of that on any of the boards. Just my opinion. Re: neuroimmune research , What Jin was trying to tell you, and you didn't seem to get is that Dr. is not a PHD. He is an MD. He doesn't practice " alternative " medicines, other than to the extent that is " alternative " medicine. Those moderators who have been so adamently oppposed to chelation all these years are the same people you're now accusing of supporting it. I'm not sure how you became so misinformed. And lastly, Jin is not using alternative treatments with her son. She sees Dr. Goldberg & has for years. Her son is doing well under his care. She was just trying to explain to you that your original post was way off base. > > I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. > > If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. > > In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. > > I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. > > I wish only the best to you and your child. Good Luck and God Bless > > jinyang061629 <yanglou@...> wrote: > I went to a Dan doctor for about two year before I finally went to > Dr. Goldberg, because there is no main stream MD will take on his > approach, and many parents I spoke to did not think Dr. Goldberg's > protocol is a viable alternative. Dr. Globerg's protocol like it or > not, is also considered to be an alternative method to main stream > medicine which basically does nothing to help. > > In you first post, because there were some terms in Dr. Bruce's > profile you do not like, you were basically tell people Dr. Bruce > must be some kind of Con doctor. > > I think you are doing a dis-service to group members who can not fly > to see Dr. Goldberg, but may be able to get help from Dr. Bruce. > > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in > Texas, and was working at NY Clinic. His son was a Dr Goldberg's > patient. There are parents in this group have been seeing him, or > planning to see him. Especially those live at north east and south > east corner of the country. I have not heard any complaint, but from > time to time, I have read that he helped some family greatly. > > My suggestion for you is call him up, like you did with Dr. Goldberg, > do some more in depth research, before you form your opinions. You > can find his number from NY clinic: > http://www.nidsnnyclinic.org/id1.html > > Just give you some background. My son is doing quite well under Dr. > Goldberg's care, he is a six grader, has more then one best friends, > on 98/99% nationally on math and reading, and had just took SAT for > gifted children, and just got Brown belts for TKD. > > By the way, I went to a Dan Doctor for two years before we start see > Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, > but I am not going to stand here and telling people that Dan doctors > are con doctors. There are kids helped greatly by Dan doctors. > > Jin > > > > > > > just fyi - there is a new group for discussion of > > neuroimmune > > > issues called 'neuroendocrineimmune'. It is an informal list > for > > > people interested in the discussion of all " aspects of > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > ASD > > or > > > not... " (from the homepage.) My understanding is that the focus > > will > > > be on current research. > > > > > > fwiw, > > > timary > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute and/or the Parent > > Coalition. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Nicely put Re: Re: neuroimmune research I agree, well balanced. When I go to the DAN lists, they talk about how terrible the Rx's are, when I come here there is talk about how bad vitamins/chelation are/is. I don't think any one person has the answer or there would be thousands of recovered kids. IMO, autism is due to viral and heavy metal issues. While one child's issues might be more weighted to viruses and respond more favorably to antiviral treatments, another child's issue might lie more in the heavy metal burden and respond to chelation. If or chelation worked with every child at every instance I could understand the dogmatic way certain people speak of either treatment. Every protocol has the mantra of " Do no harm " , and DAN. But I have known kids harmed with both protocols, both chelation and the antiviral/anti-immunity treatments, and kids helped by neither, and kids helped by either. Takes a healthy dose of self esteem to allow others to express different opinions and be okay with it. I see little of that on any of the boards. Just my opinion. Re: neuroimmune research , What Jin was trying to tell you, and you didn't seem to get is that Dr. is not a PHD. He is an MD. He doesn't practice " alternative " medicines, other than to the extent that is " alternative " medicine. Those moderators who have been so adamently oppposed to chelation all these years are the same people you're now accusing of supporting it. I'm not sure how you became so misinformed. And lastly, Jin is not using alternative treatments with her son. She sees Dr. Goldberg & has for years. Her son is doing well under his care. She was just trying to explain to you that your original post was way off base. > > I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. > > If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. > > In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. > > I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. > > I wish only the best to you and your child. Good Luck and God Bless > > jinyang061629 <yanglou@...> wrote: > I went to a Dan doctor for about two year before I finally went to > Dr. Goldberg, because there is no main stream MD will take on his > approach, and many parents I spoke to did not think Dr. Goldberg's > protocol is a viable alternative. Dr. Globerg's protocol like it or > not, is also considered to be an alternative method to main stream > medicine which basically does nothing to help. > > In you first post, because there were some terms in Dr. Bruce's > profile you do not like, you were basically tell people Dr. Bruce > must be some kind of Con doctor. > > I think you are doing a dis-service to group members who can not fly > to see Dr. Goldberg, but may be able to get help from Dr. Bruce. > > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in > Texas, and was working at NY Clinic. His son was a Dr Goldberg's > patient. There are parents in this group have been seeing him, or > planning to see him. Especially those live at north east and south > east corner of the country. I have not heard any complaint, but from > time to time, I have read that he helped some family greatly. > > My suggestion for you is call him up, like you did with Dr. Goldberg, > do some more in depth research, before you form your opinions. You > can find his number from NY clinic: > http://www.nidsnnyclinic.org/id1.html > > Just give you some background. My son is doing quite well under Dr. > Goldberg's care, he is a six grader, has more then one best friends, > on 98/99% nationally on math and reading, and had just took SAT for > gifted children, and just got Brown belts for TKD. > > By the way, I went to a Dan Doctor for two years before we start see > Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, > but I am not going to stand here and telling people that Dan doctors > are con doctors. There are kids helped greatly by Dan doctors. > > Jin > > > > > > > just fyi - there is a new group for discussion of > > neuroimmune > > > issues called 'neuroendocrineimmune'. It is an informal list > for > > > people interested in the discussion of all " aspects of > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > ASD > > or > > > not... " (from the homepage.) My understanding is that the focus > > will > > > be on current research. > > > > > > fwiw, > > > timary > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute and/or the Parent > > Coalition. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 ----Original Message Follows---- From: nancy ballard <atlantickayaker@...> Reply- >See post....it was referenced as Dr Bruce, thats his first name. There is a >Phd out of >Canada....providing alternative medicines and his name is Dr >Bruce. My confusion, and again....1000 >apologies , I would also like to point out that the information on Dr. B is only part of the misinformation included in your post. This is also information with no factual basis. Hopefully truth will someday become an active participant in the non-medical part of world. Cheryl/z1raptor " and they have in their file data on mercury alternative therapies. One even had some garbage about a Monkey Brain study.....no, no, no!!!! Do not fall for this garbage,and this stuff is really garbage. " > > > > > > > > I nosed around because I didn't understand what all of the > posting > > on nids were with respect to " article 2649 " and I found that group you mentioned below. Joined it, and then after checking it out > > unsubscribed. > > > > > > It has a Dr Bruce on the list, but he is a posting member. He > > appears to be a PHd not a MD. and they have in their file data on > > mercury alternative therapies. One even had some garbage about a > > Monkey Brain study.....no, no, no!!!! Do not fall for this garbage, > > and this stuff is really garbage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 True on the 'if this were the answer there would be thousands recovered' Autism is a multifaceted disease probably because of our genetic makeups and where we live. The heavy metal issue - while mercury, aluminum and whatever other crap they put in immunizations aren't good for us, if our bodies were functioning at 90-100% capacity -- circulatory, nervous, immune, auditory, visual, etc. then those 'toxins' would be flushed out. Sugar isn't good for us but the various organs + blood circulate, filter and dispose of it. Breathing smoke isn't good for us, but the lungs + blood filter and get rid of the bad (I " m not talking about smoking here - just breathing the stuff that's being deposited in the air these days). Now, immunizations are designed to stir the immune system and cause it to create antibodies to the virus. If the immune system is weak at all, for whatever reason, doesn't matter what the carrier solution is, something bad is going to happen. The filters won't work and things won't be flushed out. There was a mom on this group who had a child with very high mercury readings. The readings went to normal after he was on the protocol for a while (2 yrs?). The immune system was modulated and made to work the way it should. I have never known a child on the protocol, using the antivirals that Dr G prescribes, who has ever reported being harmed. A mom who used to answer the phone line told me that she took a phone call once from an OBGYN with an autistic child. SHe asked him about antiviral usage - he said that monitored, the antivirals were a safe prescription. For life? yes even for life he replied. Now I've seen only a few research items indicating otherwise - but in these cases, there appears to be other underlying issues. And I don't remember the dosage (could be higher than what Dr G prescribes) SSRIs are another story - they are getting a bad rap because physicians don't know how to use them and they don't monitor the patients. Many of us have been playing this game a long time (for us, 7 yrs) We watch the research, we watch parents and we watch the medical community. Overall the approach makes sense for many kids - you really start to wonder why more researchers for AUtism aren't looking into the viruses and immune aspect of the disease. Time is ticking for our kids ... ..02 Doris -maryland Message: 2 Date: Mon, 20 Feb 2006 12:08:46 -0500 From: " Cochran " <Ladyshrink111@...> Subject: Re: Re: neuroimmune research I agree, well balanced. When I go to the DAN lists, they talk about how terrible the Rx's are, when I come here there is talk about how bad vitamins/chelation are/is. I don't think any one person has the answer or there would be thousands of recovered kids. IMO, autism is due to viral and heavy metal issues. While one child's issues might be more weighted to viruses and respond more favorably to antiviral treatments, another child's issue might lie more in the heavy metal burden and respond to chelation. If or chelation worked with every child at every instance I could understand the dogmatic way certain people speak of either treatment. Every protocol has the mantra of " Do no harm " , and DAN. But I have known kids harmed with both protocols, both chelation and the antiviral/anti-immunity treatments, and kids helped by neither, and kids helped by either. Takes a healthy dose of self esteem to allow others to express different opinions and be okay with it. I see little of that on any of the boards. Just my opinion. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Very well put, Doris !! Look at the Hopkins University Medical Abstract dated November 2004.... Your going to tell me that after years of research and the publication of this JHU Abstract.... science is pointing us to one direction....Neuro-Immune Deficient. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 What about the diet? All of the mainstream docs/neuros/GIs I have talked to pretty much consider diets for ASD to be " alternative " unless of course a normal GI workup shows real allergies that need to be treated. In fact, from what I gather, mainstream medicine considers crazy diets to be one of the hallmarks of the ASD alternative medicine protocols. I am not saying that I agree at all, BUT, I am curious how this aspect is reconciled in the protocol as not being " alternative " . Re: Re: neuroimmune research Jin I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. I wish only the best to you and your child. Good Luck and God Bless jinyang061629 <yanglou@...> wrote: I went to a Dan doctor for about two year before I finally went to Dr. Goldberg, because there is no main stream MD will take on his approach, and many parents I spoke to did not think Dr. Goldberg's protocol is a viable alternative. Dr. Globerg's protocol like it or not, is also considered to be an alternative method to main stream medicine which basically does nothing to help. In you first post, because there were some terms in Dr. Bruce's profile you do not like, you were basically tell people Dr. Bruce must be some kind of Con doctor. I think you are doing a dis-service to group members who can not fly to see Dr. Goldberg, but may be able to get help from Dr. Bruce. I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in Texas, and was working at NY Clinic. His son was a Dr Goldberg's patient. There are parents in this group have been seeing him, or planning to see him. Especially those live at north east and south east corner of the country. I have not heard any complaint, but from time to time, I have read that he helped some family greatly. My suggestion for you is call him up, like you did with Dr. Goldberg, do some more in depth research, before you form your opinions. You can find his number from NY clinic: http://www.nidsnnyclinic.org/id1.html Just give you some background. My son is doing quite well under Dr. Goldberg's care, he is a six grader, has more then one best friends, on 98/99% nationally on math and reading, and had just took SAT for gifted children, and just got Brown belts for TKD. By the way, I went to a Dan Doctor for two years before we start see Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, but I am not going to stand here and telling people that Dan doctors are con doctors. There are kids helped greatly by Dan doctors. Jin > > just fyi - there is a new group for discussion of > neuroimmune > > issues called 'neuroendocrineimmune'. It is an informal list for > > people interested in the discussion of all " aspects of > > NeuroEndocrineImmune issues and CNDS (Chronic > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD > or > > not... " (from the homepage.) My understanding is that the focus > will > > be on current research. > > > > fwiw, > > timary > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent > Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Just because helps your child, it doesn't mean that it will be beneficial to all. The one thing we have learned in the past three years is that each child is very much an individual. Our child has no immune problems, no myelein basic protein problems, etc., etc. She is very chemically and metals sensitive. We have had to work through these issues by first eliminating what we knew she didn't have. Don't be so quick to deny that there are other protocols that are beneficial to others. I was really surprised to see such venom spoken on this website. I guess it is not something I will visit again. CW " K. Fischer " <elfischer@...> wrote: What about the diet? All of the mainstream docs/neuros/GIs I have talked to pretty much consider diets for ASD to be " alternative " unless of course a normal GI workup shows real allergies that need to be treated. In fact, from what I gather, mainstream medicine considers crazy diets to be one of the hallmarks of the ASD alternative medicine protocols. I am not saying that I agree at all, BUT, I am curious how this aspect is reconciled in the protocol as not being " alternative " . Re: Re: neuroimmune research Jin I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely against adding in alternative medicine into the medication routine for a child under his care. If you are adding in alternative medicines you should make him aware of this. But I will tell you he will tell you how strongly he feels that there is no place for alternative meds in the form of megavitamins, megaaminos, chelation, hyperbaric oxygen therapy. In fact, you will note some of the flaming posts from the moderator indicates promoting alternative meds on this board is not tolerated. I understand you feel very strongly about supporting Dr Bruce (Phd) and alternative medicines, and I respect you as a person trying to help your child, that really is wonderful. I wish only the best to you and your child. Good Luck and God Bless jinyang061629 <yanglou@...> wrote: I went to a Dan doctor for about two year before I finally went to Dr. Goldberg, because there is no main stream MD will take on his approach, and many parents I spoke to did not think Dr. Goldberg's protocol is a viable alternative. Dr. Globerg's protocol like it or not, is also considered to be an alternative method to main stream medicine which basically does nothing to help. In you first post, because there were some terms in Dr. Bruce's profile you do not like, you were basically tell people Dr. Bruce must be some kind of Con doctor. I think you are doing a dis-service to group members who can not fly to see Dr. Goldberg, but may be able to get help from Dr. Bruce. I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in Texas, and was working at NY Clinic. His son was a Dr Goldberg's patient. There are parents in this group have been seeing him, or planning to see him. Especially those live at north east and south east corner of the country. I have not heard any complaint, but from time to time, I have read that he helped some family greatly. My suggestion for you is call him up, like you did with Dr. Goldberg, do some more in depth research, before you form your opinions. You can find his number from NY clinic: http://www.nidsnnyclinic.org/id1.html Just give you some background. My son is doing quite well under Dr. Goldberg's care, he is a six grader, has more then one best friends, on 98/99% nationally on math and reading, and had just took SAT for gifted children, and just got Brown belts for TKD. By the way, I went to a Dan Doctor for two years before we start see Dr. Goldberg. Althrough I do not agree with Dan doctor's approach, but I am not going to stand here and telling people that Dan doctors are con doctors. There are kids helped greatly by Dan doctors. Jin > > just fyi - there is a new group for discussion of > neuroimmune > > issues called 'neuroendocrineimmune'. It is an informal list for > > people interested in the discussion of all " aspects of > > NeuroEndocrineImmune issues and CNDS (Chronic > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD > or > > not... " (from the homepage.) My understanding is that the focus > will > > be on current research. > > > > fwiw, > > timary > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent > Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 , I know a pediatrician in a mainstream practice (the office is in a large hospital, none the less, with 4 other pediatricians) who is really big on the types of food testing that Dr. Goldberg does... he says the parents are amazed at what removing foods does for their kids' behavior. So maybe it is becoming more mainstream. We had to jump through a few hoops to get the food screen covered that he did on one of our kids, but it was covered partially in the end, which I think shows that at least the insurance company accepted it as not being too far " out there " . Caroline > From: " K. Fischer " <elfischer@...> > Reply-< > > Date: Tue, 21 Feb 2006 09:42:53 -0600 > < > > Subject: RE: Re: neuroimmune research > > What about the diet? All of the mainstream docs/neuros/GIs I have > talked to pretty much consider diets for ASD to be " alternative " unless > of course a normal GI workup shows real allergies that need to be > treated. In fact, from what I gather, mainstream medicine considers > crazy diets to be one of the hallmarks of the ASD alternative medicine > protocols. I am not saying that I agree at all, BUT, I am curious how > this aspect is reconciled in the protocol as not being > " alternative " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Hi , Because, in the protocol, children are treated according to their specific lab test results, which is different than just prescribing some one-size-fits-all, arbitrary " autism " diet. There's nothing " alternative " about avoiding foods that you are proven, through laboratory testing, to be allergic to .. Donna > > > just fyi - there is a new group for discussion of > > neuroimmune > > > issues called 'neuroendocrineimmune'. It is an informal list > for > > > people interested in the discussion of all " aspects of > > > NeuroEndocrineImmune issues and CNDS (Chronic > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to > ASD > > or > > > not... " (from the homepage.) My understanding is that the focus > > will > > > be on current research. > > > > > > fwiw, > > > timary > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author(s), and is not necessarily endorsed by or the > > > opinion of the Research Institute and/or the Parent > > Coalition. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 The diet is based on recommendations... I cannot remember if it's from the OB/Gyn people, or the American Academy of Pediatrics.... It is a low allergy diet that women with a high family history of allergies are supposed to follow while pregnant to hopefully reduce the risk of allergies in their children. Also, children with allergies are supposed to follow different times for introduction of certain foods as well. So actually, the diet is quite mainstream. It is also the least restrictive diet intervention found in the " ASD " world. Some mainstream doctors have been pulled into interest in 'autism' intervention simply because of the responses they've witnessed to the GFCF diet. My son's mainstream neurologist said herself that while she initially 'poo-poo'd' it, she has seen firsthand the benefit in a few children and that while she doesn't believe it was for the same reasons the initial hypothesis was (which has also been refuted by science but is well explained by ), she was now far more supportive of it, although not to the extreme so many people take it. --- " K. Fischer " <elfischer@...> wrote: > What about the diet? All of the mainstream > docs/neuros/GIs I have > talked to pretty much consider diets for ASD to be > " alternative " unless > of course a normal GI workup shows real allergies > that need to be > treated. In fact, from what I gather, mainstream > medicine considers > crazy diets to be one of the hallmarks of the ASD > alternative medicine > protocols. I am not saying that I agree at all, > BUT, I am curious how > this aspect is reconciled in the protocol as > not being > " alternative " . > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Donna, I don't take my son to a DAN doctor, but I do know people who do and from what I've heard they also use lab test results to help determine a particular protocol or diet. On Feb 21, 2006, at 3:59 PM, princesspeach wrote: > > > > Hi , > > Because, in the protocol, children are treated according to their > specific lab test results, which is different than just prescribing > some one-size-fits-all, arbitrary " autism " diet. There's nothing > " alternative " about avoiding foods that you are proven, through > laboratory testing, to be allergic to > . > Donna > > >>>> just fyi - there is a new group for discussion of >>> neuroimmune >>>> issues called 'neuroendocrineimmune'. It is an informal list >> for >>>> people interested in the discussion of all " aspects of >>>> NeuroEndocrineImmune issues and CNDS (Chronic >>>> NeuroendocrineimmuDysfunction Syndrome) -- whether specific to >> ASD >>> or >>>> not... " (from the homepage.) My understanding is that the focus >>> will >>>> be on current research. >>>> >>>> fwiw, >>>> timary >>>> >>>> >>>> >>>> >>>> >>>> Responsibility for the content of this message lies strictly with >>>> the original author(s), and is not necessarily endorsed by or the >>>> opinion of the Research Institute and/or the Parent >>> Coalition. >>>> >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.