Re: G-tube/Nissen Opinions Needed

July 17, 2011

has a g tube (Mick ey button) since he was two years old. It is great

and there were no problems. He also had the Nissen surgery 4 years ago and it

has greatly reduced reflux and he has been so much healthier. could no

longer eat safely around age 7 and having the g tube saved his life. He now is

g tube fed with neocate only. Feeding problems and aspiration go hand in hand.

The only issue we had with the Nissen is that it reduced the volume of neocate

he could tolerate at once. So we fed Jim at 85 mls an hour and he gained 8

pounds in 8 months catching up to a weight that was not failure to thrive.

is 13 now. These things have prevented life threatening issues that

reflux causes. When stopped eating via mouth he stopped being congested

and he was happier and had much more energy. The doctors knew what was best.

Blessings to you !

Hasselberger mom to age 13. Bi lateral diffuse PMG 80 %

Sent from 's iPhone

> Callie has always had feeding issues. She was diagnosed as failure to

> thrive early this year and then got a ng-tube at the end of March. In the

> meantime she was diagnosed with eosinophilic esophagitis (EoE) and we

> discovered she has many food allergies. We were hopeful the feeding tube

> would be temporary, but now it appears she is going to need it for awhile

> while we slowly introduce foods and try to determine exactly what she can

> and can not have. So it is time to move on and get a g-tube.

>

> I learned there are two types of g-tubes... PEGs and buttons. The PEG seems

> to be less convenient since it sticks out, but less involved and risky since

> it does not involve surgery. The button seems to be more convenient, but

> more risky initially. I was leaning towards playing it safe and just going

> with the PEG, but then the surgeon advised Callie seems to be a good

> candidate for a Nissen procedure to stop her reflux, which she struggles

> with. If we opt for the Nissen we will get the button because surgery will

> be required.

>

> I wrote about our appointment with the surgeon in more detail on Callie's

> blog (http://calliebloggie.blogspot.com/2011/07/decisions-decisions.html).

> Have many of you had the Nissen? Can you please tell me about your

> experience? Did it stop your child's reflux and did everything go smoothly?

> Do you have any opinions about a PEG vs. button? I am having trouble

> making this decision and it would be helpful to hear about other

> experiences.

>

> Thanks so much in advance!

>

> Mommy to Callie (20 months, BPP, EoE)

> http://calliebloggie.blogspot.com/

>

July 18, 2011

Hi ,

Finlay (now nearly 10) first had a PEG put in when he was 2. About 18 months

later we went back to hospital and the PEG was replaced by a mic-key button.

This was done in day surgery. In the UK they tend to put in a PEG until the

tract to the stomach is fully formed - then replace it with a button.

We were never offered a Nissen - it was never mentioned - but when I see how

easily Finlay brings up his feed, I wonder whether it would help.

Annelies

[Norton AntiSpam] G-tube/Nissen Opinions Needed

Callie has always had feeding issues. She was diagnosed as failure to

thrive early this year and then got a ng-tube at the end of March. In the

meantime she was diagnosed with eosinophilic esophagitis (EoE) and we

discovered she has many food allergies. We were hopeful the feeding tube

would be temporary, but now it appears she is going to need it for awhile

while we slowly introduce foods and try to determine exactly what she can

and can not have. So it is time to move on and get a g-tube.

I learned there are two types of g-tubes... PEGs and buttons. The PEG seems

to be less convenient since it sticks out, but less involved and risky since

it does not involve surgery. The button seems to be more convenient, but

more risky initially. I was leaning towards playing it safe and just going

with the PEG, but then the surgeon advised Callie seems to be a good

candidate for a Nissen procedure to stop her reflux, which she struggles

with. If we opt for the Nissen we will get the button because surgery will

be required.

I wrote about our appointment with the surgeon in more detail on Callie's

blog (http://calliebloggie.blogspot.com/2011/07/decisions-decisions.html).

Have many of you had the Nissen? Can you please tell me about your

experience? Did it stop your child's reflux and did everything go smoothly?

Do you have any opinions about a PEG vs. button? I am having trouble

making this decision and it would be helpful to hear about other

experiences.

Thanks so much in advance!

Mommy to Callie (20 months, BPP, EoE)

http://calliebloggie.blogspot.com/

July 18, 2011

Just a note about . He also had the peg first and once the stomach hole

etc was healed they replaced it with the Mic key button. The button is great.