Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Request pediatric endocrinologist referral. Need growth hormone levels checked. Some children (such as mine) have hormone deficiencies. Donna From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of Julissa Sent: Thursday, January 19, 2012 4:07 PM To: polymicrogyria Cc: polymicrogyria Subject: Baby in 3% weight I am not new to the group, but have contributed very little. It has taken me a while to come to terms with my son's condition. My son is 9 months old. He almost has control of his head and today, for the first time, raised his hand and tried to push one of the buttons on his gym. It made me so happy! However, his 9 mo checkup did not go so well. In length he is in the 82%, but his head has not grown and only weighs 16lbs 12oz. I am trying everything, but he is teething and won't suck a bottle, he wants to bite everything and has been fighting a few bugs the past three weeks. Endo is running some tests. I have introduced more fats in his diet. Hope it helps. My goal right now is to fatten him up. I welcome any ideas. Julissa Sent from my iPad On Jan 19, 2012, at 3:41 PM, cutekat@... <mailto:cutekat%40xtra.co.nz> wrote: > My girl is 16mths and not doin any of that either, she only learnt to hold her head up about 4mths ago. Each child will write their own story, all u can do is keep up the therapy & encourage them & support them. We celebrate ech goal and set new smll goals our nex one is to sit up unassisted which we practice every day. > Hope this helps. Cheers > Kat > > -original message- > Subject: The normal development of my baby > From: Lina Kurdi <sweet.kurdi@... <mailto:sweet.kurdi%40yahoo.com> > > Date: 20/01/2012 7:37 am > > Dear friends, > > I am concerning about my 15 months daughter is not walking yet or even standing. Also she didn't crawled yet!! Can somebody share his experience about this please? > Thank u:) > Lina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2012 Report Share Posted February 3, 2012 Thanks for the recipe! Karla Sent from my iPad > > I forgot who asked for the custard recipe. I had so many messages in my inbox. So to whoever it was this is what I used: > > http://www.joyofbaking.com/VanillaIceCream.html > > > To: polymicrogyria > From: cutekat@... > Date: Fri, 3 Feb 2012 11:54:43 +1300 > Subject: Re: Baby in 3% weight > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi, im trying to get info on the therotogs but as i am in New Zealand and a long way from USA no one here seems to know about them. Can u get them online? Im keen to try them for my girl who has weak upper body but strong lower body. Thanks. Kat > > > > -original message- > > Subject: Re: Baby in 3% weight > > > > Date: 03/02/2012 5:34 am > > > > My son is the same way and his therapist said the same thing. He doesn't know > > how to connect them - he thinks they are separate. I'll definitely ask her > > about the Theratogs - awesome suggestion! > > > > polymicrogyria on Thursday, February 02, 2012 at 5:57 AM -0800 > > wrote: > >> > >> She sounds like she is doing wonderfully! That is great news! > >> > >> The custard recipe I used was actually to make ice cream. You can freeze it > >> like I did if you have a ice cream maker and just melt what you need to add to > >> her bottles. Or you can just keep in in the fridge. I'll look it up and send > >> it to you. > >> > >> I have one suggestion since you said your daughter has a stronger lower body > >> than upper. With my son it's the same and it is really more coordination kind > >> of like linking his upper body to his lower body. Its almost like they are > >> separate entities. Anyway, we used something called theratogs. It does just > >> that, links the body to act like one. He did great when he had them on. > >> > >> To: polymicrogyria > >> From: kjlondon@... > >> Date: Thu, 2 Feb 2012 04:16:10 -0800 > >> Subject: RE: Baby in 3% weight > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Hi, > >> > >> > >> > >> What a great suggestion! Any chance you can remember your custard recipe? I > >> feed Pediasure and adding some calories would be helpful for my girl, too. I > >> tried adding Duocal which is a calorie rich powder with no flavor but she > >> knows when it is in her bottle and does not like it, at all. > >> > >> > >> > >> My little girl, a, is 2 yrs, BFPP and very bright. She can not sit > >> unsupported...but getting there. I can't walk away because she may tip over, > >> I surround her with pillows if I do walk away but she cannot get back to > >> sitting on her own, yet. Its like a nickel on the table, if you move the > >> table the niclel falls over....the the closest analogy. > >> > >> > >> > >> Her lower half is much stronger than her upper. We have a Mustang gait trainer > >> and when she is in it she cruises all over the place. She opens cabinets, > >> drawers and pulls toilet paper off the roll by the handful. When other kids > >> come over she can chase them and they chase her, she has the best time in > >> it...she laughs and plays...it allows her to be mobile. > >> > >> > >> > >> We do lots of therapy, she goes to school and has a 1:1 aide which allows her > >> to interact with the class and activities. School has been fantastic for > >> a and for me. She is with other typical 2 year olds and is learning the > >> skills of a 2 year old, like turn taking but also learning about emotions and > >> how to handle 'big emotions' (code for a tantrum or feeling sad when I leave > >> the room or even mad) and I've learned how to recognize her emotions and > >> acknowledge them with her when she feels sad or mad or frustrated. > >> > >> > >> > >> I've been following these boards for nearly a year and just wanted to add what > >> I hope is encouragement. I love my little a sooo much. > >> > >> > >> > >> Karla > >> > >> Sent with Verizon Mobile Email > >> > >> > >> > >> ---Original Message--- > >> > >> From: polymicrogyria > >> > >> Sent: 1/20/2012 9:20 am > >> > >> To: polymicrogyria > >> > >> Subject: RE: Baby in 3% weight > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2012 Report Share Posted February 3, 2012 To: polymicrogyria From: kjlondon@... Date: Fri, 3 Feb 2012 15:28:52 -0500 Subject: Re: Baby in 3% weight Thanks for the recipe! Karla Sent from my iPad > > I forgot who asked for the custard recipe. I had so many messages in my inbox. So to whoever it was this is what I used: > > http://www.joyofbaking.com/VanillaIceCream.html > > > To: polymicrogyria > From: cutekat@... > Date: Fri, 3 Feb 2012 11:54:43 +1300 > Subject: Re: Baby in 3% weight > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi, im trying to get info on the therotogs but as i am in New Zealand and a long way from USA no one here seems to know about them. Can u get them online? Im keen to try them for my girl who has weak upper body but strong lower body. Thanks. Kat > > > > -original message- > > Subject: Re: Baby in 3% weight > > > > Date: 03/02/2012 5:34 am > > > > My son is the same way and his therapist said the same thing. He doesn't know > > how to connect them - he thinks they are separate. I'll definitely ask her > > about the Theratogs - awesome suggestion! > > > > polymicrogyria on Thursday, February 02, 2012 at 5:57 AM -0800 > > wrote: > >> > >> She sounds like she is doing wonderfully! That is great news! > >> > >> The custard recipe I used was actually to make ice cream. You can freeze it > >> like I did if you have a ice cream maker and just melt what you need to add to > >> her bottles. Or you can just keep in in the fridge. I'll look it up and send > >> it to you. > >> > >> I have one suggestion since you said your daughter has a stronger lower body > >> than upper. With my son it's the same and it is really more coordination kind > >> of like linking his upper body to his lower body. Its almost like they are > >> separate entities. Anyway, we used something called theratogs. It does just > >> that, links the body to act like one. He did great when he had them on. > >> > >> To: polymicrogyria > >> From: kjlondon@... > >> Date: Thu, 2 Feb 2012 04:16:10 -0800 > >> Subject: RE: Baby in 3% weight > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Hi, > >> > >> > >> > >> What a great suggestion! Any chance you can remember your custard recipe? I > >> feed Pediasure and adding some calories would be helpful for my girl, too. I > >> tried adding Duocal which is a calorie rich powder with no flavor but she > >> knows when it is in her bottle and does not like it, at all. > >> > >> > >> > >> My little girl, a, is 2 yrs, BFPP and very bright. She can not sit > >> unsupported...but getting there. I can't walk away because she may tip over, > >> I surround her with pillows if I do walk away but she cannot get back to > >> sitting on her own, yet. Its like a nickel on the table, if you move the > >> table the niclel falls over....the the closest analogy. > >> > >> > >> > >> Her lower half is much stronger than her upper. We have a Mustang gait trainer > >> and when she is in it she cruises all over the place. She opens cabinets, > >> drawers and pulls toilet paper off the roll by the handful. When other kids > >> come over she can chase them and they chase her, she has the best time in > >> it...she laughs and plays...it allows her to be mobile. > >> > >> > >> > >> We do lots of therapy, she goes to school and has a 1:1 aide which allows her > >> to interact with the class and activities. School has been fantastic for > >> a and for me. She is with other typical 2 year olds and is learning the > >> skills of a 2 year old, like turn taking but also learning about emotions and > >> how to handle 'big emotions' (code for a tantrum or feeling sad when I leave > >> the room or even mad) and I've learned how to recognize her emotions and > >> acknowledge them with her when she feels sad or mad or frustrated. > >> > >> > >> > >> I've been following these boards for nearly a year and just wanted to add what > >> I hope is encouragement. I love my little a sooo much. > >> > >> > >> > >> Karla > >> > >> Sent with Verizon Mobile Email > >> > >> > >> > >> ---Original Message--- > >> > >> From: polymicrogyria > >> > >> Sent: 1/20/2012 9:20 am > >> > >> To: polymicrogyria > >> > >> Subject: RE: Baby in 3% weight > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.